Search
Search
About
Log in
Join
Experiences with
Polycythaemia vera
Posts
Communities
529 public posts
Filter results
Hand Sanitiser - DIY Recipes
We all know that it is hard to get hold of hand sanitiser at the moment so DIY recipes are very tempting. Unfortunately there are lots of recipes on the internet that will not provide the protection you need from Covid-19 or seasonal flu. The NHS in the UK and CDC in the USA both recommend that hand
We all know that it is hard to get hold of hand sanitiser at the moment so DIY recipes are very tempting. Unfortunately there are lots of recipes on the internet that will not provide the protection you need from Covid-19 or seasonal flu. The NHS in the UK and CDC in the USA both recommend that hand
Applesnpears
in
MPN Voice
5 years ago
RRP Oct2016, slowly rising uPSA over past year in addition to several other issues including hypogonadism, intermittent TRT, osteopenia, etc
RRP Oct 2016 with slowly rising uPSA over past year in addition to several other issues I’m dealing with including hypogonadism, intermittent TRT, osteopenia, wide fluctuations in lab values regarding Estradiol, DHT, TT, fT, FSH, LH; depending upon treatment, and most recently a “pain in the butt – literally
RRP Oct 2016 with slowly rising uPSA over past year in addition to several other issues I’m dealing with including hypogonadism, intermittent TRT, osteopenia, wide fluctuations in lab values regarding Estradiol, DHT, TT, fT, FSH, LH; depending upon treatment, and most recently a “pain in the butt – literally
LowT
in
Advanced Prostate Cancer
4 years ago
COVID-19 Outbreak: Advice for Patients with Myeloproliferative Neoplasms (MPNs) 30th March 2020
The
government’s general advice
may be found here: https://www.nhs.uk/conditions/coronavirus-covid-19/ The
Myeloproliferative Neoplasms
(MPNs, including Essential Thrombocythaemia,
Polycythaemia
Vera
and Myelofibrosis) are a group of blood cancers.
The
government’s general advice
may be found here: https://www.nhs.uk/conditions/coronavirus-covid-19/ The
Myeloproliferative Neoplasms
(MPNs, including Essential Thrombocythaemia,
Polycythaemia
Vera
and Myelofibrosis) are a group of blood cancers.
Mazcd
MPNVoice
in
MPN Voice
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Home made hand gel
I read recently that it's easy to make your own hand gel with isopropanyl (rubbing alcohol), Aloe Vera gel and some essential oil. Have no idea how effective it is but directions and quantities are on the internet.
I read recently that it's easy to make your own hand gel with isopropanyl (rubbing alcohol), Aloe Vera gel and some essential oil. Have no idea how effective it is but directions and quantities are on the internet.
Titian8
in
Lung Conditions Community Forum
5 years ago
Making your own hand Sanitiser
I’m going to give it a go. I’ve ordered some Aloe Vera gel, tea tree and lavender oil and will get a bottle of vodka. Mix it all up as per YouTube video. Saves on plastic bottles as I can refill the one I have and hopefully save carrying germs by using it regularly. Promise I won’t drink the Vodka.
I’m going to give it a go. I’ve ordered some Aloe Vera gel, tea tree and lavender oil and will get a bottle of vodka. Mix it all up as per YouTube video. Saves on plastic bottles as I can refill the one I have and hopefully save carrying germs by using it regularly. Promise I won’t drink the Vodka.
Hidden
in
SHARE Metastatic Breast Cancer
5 years ago
AMAZING HERBS! VITAMINS! AND SUPPLEMENTS! TO GIVE CANCER A PUNCH💪!!!
ALOE VERA GEL , AMLA: Highest antiox.on Earth! APRICOT KERNELS, Apricot seed, MORINGA: Amazing Superfood! powder form is great! Super greens powder too! BETAGLUCAN! BLACKSEED OIL: Anticancer benefits! THYMOQUINONE! COLLOIDAL SILVER: Mops up bad bacteria! TUMERIC + CURCUMIN : AS much as possible/ also
ALOE VERA GEL , AMLA: Highest antiox.on Earth! APRICOT KERNELS, Apricot seed, MORINGA: Amazing Superfood! powder form is great! Super greens powder too! BETAGLUCAN! BLACKSEED OIL: Anticancer benefits! THYMOQUINONE! COLLOIDAL SILVER: Mops up bad bacteria! TUMERIC + CURCUMIN : AS much as possible/ also
debdetermine58
in
CLL Support
5 years ago
Graves Disease & Permanent Eyeliner
I've been hyperthyroid for 7 years now, manage well with very low dose Carbimazole and feeling fine. 18 months ago I got fed up with looking like an anaemic frog and had my eyebrows microbladed. Loved the results and had permanent eyeliner a couple of months later. The studio was very careful with
I've been hyperthyroid for 7 years now, manage well with very low dose Carbimazole and feeling fine. 18 months ago I got fed up with looking like an anaemic frog and had my eyebrows microbladed. Loved the results and had permanent eyeliner a couple of months later. The studio was very careful with
fairydogmother
in
Thyroid UK
5 years ago
Diagnosis and Management of Polycythaemia Guidelines
See https://b-s-h.org.uk/guidelines/guidelines/diagnosis-and-management-of-
polycythaemia
-
vera
/. Also, would like to say I am looking forward to the Sheffield MPN Forum. I went to one in London a few years ago and found it useful and interesting. The NHS at its best. Regards
See https://b-s-h.org.uk/guidelines/guidelines/diagnosis-and-management-of-
polycythaemia
-
vera
/. Also, would like to say I am looking forward to the Sheffield MPN Forum. I went to one in London a few years ago and found it useful and interesting. The NHS at its best. Regards
PVPVPV
in
MPN Voice
5 years ago
My Latest Blood Test Results
FBS = 114 mg/dL [was 111 mg/dL in December 2019]
Fasting serum Insulin = 20.1 mu-IU/mL [ was 9.9 mu-IU/mL in December 2019]
Insulin Resistance:
HOMA-IR = (Fasting Glucose x Fasting Insulin) / 405 = 114 X 20.1/405= 5.66
Historical values: a) Feb 2019: 111 X 13.63/405= 3.73 b) Aug
FBS = 114 mg/dL [was 111 mg/dL in December 2019]
Fasting serum Insulin = 20.1 mu-IU/mL [ was 9.9 mu-IU/mL in December 2019]
Insulin Resistance:
HOMA-IR = (Fasting Glucose x Fasting Insulin) / 405 = 114 X 20.1/405= 5.66
Historical values: a) Feb 2019: 111 X 13.63/405= 3.73 b) Aug
barani19
Administrator
in
Diabetes India
5 years ago
Aloe Vera
Does anyone take aloe Vera capsules to help with slow track bowel and constipation . I suffer with diverticulitis as well . And was wondering if Aloe Vera would help . I m on constella 290 ,one a day .
Does anyone take aloe Vera capsules to help with slow track bowel and constipation . I suffer with diverticulitis as well . And was wondering if Aloe Vera would help . I m on constella 290 ,one a day .
Readmeastory
in
IBS Network
5 years ago
Latest test results
Hi everyone, I have gone through lab tests three months after first diagnosis of T2DM in late Nov'19. Results are mentioned below with earlier results in brackets and reference ideal values. - HbA1c: 5.7 % [ 16.1 %] # Ref. non-diabetic < 5.7% - FBS: 100 mg/dL [266 mg/dL] # Ref. non-diabetic < 100
Hi everyone, I have gone through lab tests three months after first diagnosis of T2DM in late Nov'19. Results are mentioned below with earlier results in brackets and reference ideal values. - HbA1c: 5.7 % [ 16.1 %] # Ref. non-diabetic < 5.7% - FBS: 100 mg/dL [266 mg/dL] # Ref. non-diabetic < 100
prashantr
in
Diabetes India
5 years ago
Buscopan
Hi does anyone know if we can take either buscopan, or chamomile,peppermint and aloe vera capsules. Thanks.
Hi does anyone know if we can take either buscopan, or chamomile,peppermint and aloe vera capsules. Thanks.
Alley27
in
British Liver Trust
5 years ago
Polycythaemia Vera
I'm a 54 year old male who was diagnosed with
Polycythaemia
Vera
, Exon 12 strain some 4 years ago now. It has been controlled with first asprin, now clopidogrel due to chronic acid indigestion. I have venesections when the level is too high and iron tablets when I feel tired and breathless.
I'm a 54 year old male who was diagnosed with
Polycythaemia
Vera
, Exon 12 strain some 4 years ago now. It has been controlled with first asprin, now clopidogrel due to chronic acid indigestion. I have venesections when the level is too high and iron tablets when I feel tired and breathless.
mrbrindle
in
MPN Voice
5 years ago
One-to-one buddy support
vera
(PV)
Myelodysplastic syndromes (MDS)
We also have trained buddies who are here to support those caring for someone who is diagnosed with a blood cancer.
vera
(PV)
Myelodysplastic syndromes (MDS)
We also have trained buddies who are here to support those caring for someone who is diagnosed with a blood cancer.
HAIRBEAR_UK
in
Leukaemia Support
5 years ago
SMC decision regarding Ruxolitinib (Jakavi) for PV patients in Scotland
We are very pleased to announce that following a full submission made to the SMC (Scottish Medicines Consortium), a decision has been made to accept Ruxolitinib (Jakavi) for use by NHS Scotland for patients with PV (
polycythaemia
vera
) who are intolerant to, or cannot be treated with Hydroxycarbamide
We are very pleased to announce that following a full submission made to the SMC (Scottish Medicines Consortium), a decision has been made to accept Ruxolitinib (Jakavi) for use by NHS Scotland for patients with PV (
polycythaemia
vera
) who are intolerant to, or cannot be treated with Hydroxycarbamide
Mazcd
MPNVoice
in
MPN Voice
5 years ago
Prescription timing.
Good morning. I need help with the timing of my supplements. I have been under the weather so I have gone to different specialists and every one of them prescribes something different. I shall provide the list: Levo 112 mg pantoprazole 40 mg Vitamin D 2000 or 5000 B Complex Magnesium vitamin C Fish
Good morning. I need help with the timing of my supplements. I have been under the weather so I have gone to different specialists and every one of them prescribes something different. I shall provide the list: Levo 112 mg pantoprazole 40 mg Vitamin D 2000 or 5000 B Complex Magnesium vitamin C Fish
Hidden
in
Thyroid UK
5 years ago
Clarityn
I’m on 1.25mg Bisoprolol and 50mg x 2 Flecainaide I usually use Clarityn antihistamine for bites and allergic reactions but now I’m not sure if I can take it. Had a partial knee replacement and got VERY itchy reaction to the dressing, driving me nuts. I used aloe Vera on it. Can anyone tell me if
I’m on 1.25mg Bisoprolol and 50mg x 2 Flecainaide I usually use Clarityn antihistamine for bites and allergic reactions but now I’m not sure if I can take it. Had a partial knee replacement and got VERY itchy reaction to the dressing, driving me nuts. I used aloe Vera on it. Can anyone tell me if
LaceyLady
in
Atrial Fibrillation Support
5 years ago
Aloe Vera gel
I’ve just read Kate Gilbert’s really helpful book and was very interested in the chapter that a leaky gut may be contributing towards inflammation. She drank aloe Vera gel for4 months and found it really helped to reduce the pred. Has anyone tried this? I’d be really interested to know.
I’ve just read Kate Gilbert’s really helpful book and was very interested in the chapter that a leaky gut may be contributing towards inflammation. She drank aloe Vera gel for4 months and found it really helped to reduce the pred. Has anyone tried this? I’d be really interested to know.
Suet3942
in
PMRGCAuk
5 years ago
What are you doing to protect yourself now that its flu season?
Did you get a shot? Do you use medical masks in public? Avoid being around young school age kids? Do you have tips for staying healthy? I’ve had my pneumonia and flu shots. My hands are raw from constant washing but I know that’s one of the most important ways to keep colds and flu at bay. Any
Did you get a shot? Do you use medical masks in public? Avoid being around young school age kids? Do you have tips for staying healthy? I’ve had my pneumonia and flu shots. My hands are raw from constant washing but I know that’s one of the most important ways to keep colds and flu at bay. Any
Denzie
Volunteer
in
Lung Cancer Support
5 years ago
IBS basics for beginners
Dear all, I have recently been suffering from excess burping and stomach pains for which I became dependent on Nexium for a couple of weeks. I have recently found that this is due mainly to changing from almond milk to lactose free milk, and also because I have been drinking a lot of decaff tea and
Dear all, I have recently been suffering from excess burping and stomach pains for which I became dependent on Nexium for a couple of weeks. I have recently found that this is due mainly to changing from almond milk to lactose free milk, and also because I have been drinking a lot of decaff tea and
Stuart24
in
IBS Network
5 years ago
1
...
6
7
8
...
27
Next page
10
20
Filter results
Clear filters
Posted in
All communities
MPN Voice
79 results
Diabetes India
72 results
Thyroid UK
59 results
View top 10 communities
Sort by
Most Relevant
Newest