Search
Search
About
Log in
Join
Experiences with
Polycythaemia vera
Posts
Communities
529 public posts
Filter results
LOW IRON, Platelets AND PV
My query is how can the iron deficiency be treated with a diagnosis of
Vera
when iron supplements are contra indicated.
My query is how can the iron deficiency be treated with a diagnosis of
Vera
when iron supplements are contra indicated.
Hilary777
in
MPN Voice
3 months ago
Pegasys
He has
Polycythaemia
Vera
He has coped really well with Rux but has had to come off owing to large amount of skin cancers over past 12months. Pruritus has been a big issue but Rux really was the answer.
He has
Polycythaemia
Vera
He has coped really well with Rux but has had to come off owing to large amount of skin cancers over past 12months. Pruritus has been a big issue but Rux really was the answer.
waddles22
in
MPN Voice
8 months ago
Pegasys is applying for formal approval in MPN treatment
It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of
Polycythaemia
Vera
(PV) and Essential thrombocytopenia (ET) for PEGASYS, based on published data of clinical studies conducted in support of the efficacy and safety of Pegasys for the treatment
It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of
Polycythaemia
Vera
(PV) and Essential thrombocytopenia (ET) for PEGASYS, based on published data of clinical studies conducted in support of the efficacy and safety of Pegasys for the treatment
TimothyHLuff
in
MPN Voice
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
New member - symptoms??
I'm new here but would like to know if anyone has similar symptoms... I have been diagnosed with probable IBS (D but sometimes C) by my GP (exclusion diagnosis after various tests). My main symptom is discomfort in the upper right abdomen which is just about always present. Occasionally it is more painful
I'm new here but would like to know if anyone has similar symptoms... I have been diagnosed with probable IBS (D but sometimes C) by my GP (exclusion diagnosis after various tests). My main symptom is discomfort in the upper right abdomen which is just about always present. Occasionally it is more painful
imok56
in
IBS Network
8 days ago
Stevodat
Hi Guys, New to this forum but have 7 years tackling & experimenting with nutrition for Hashimotos. With a keen background in nutrition I was determined to address it with this and avoid any thyroid drug interaction if possible. My antibodies were as high as 3500 at worst and are now 528 and dropping
Hi Guys, New to this forum but have 7 years tackling & experimenting with nutrition for Hashimotos. With a keen background in nutrition I was determined to address it with this and avoid any thyroid drug interaction if possible. My antibodies were as high as 3500 at worst and are now 528 and dropping
Stevodat
in
Thyroid UK
2 months ago
More injection questions…
Thank you for the previous tips. I tried them but still had an angry (larger!) reaction this week, but it went down much rapidly and hasn’t itched or bruised much. Progress! Sorry for so many questions for a relatively trivial thing but please may I ask - do you put the needle in part way or right
Thank you for the previous tips. I tried them but still had an angry (larger!) reaction this week, but it went down much rapidly and hasn’t itched or bruised much. Progress! Sorry for so many questions for a relatively trivial thing but please may I ask - do you put the needle in part way or right
RoundTheWorld
in
MPN Voice
3 months ago
Skin plugs
I started getting these about 6 months ago and read something about them coming from cats and soil or dirt but anyway I figured I would try aloe Vera straight from the plant and it healed it in 3 days I hope this helps a lot of people going through these skin plugs that wont heal
I started getting these about 6 months ago and read something about them coming from cats and soil or dirt but anyway I figured I would try aloe Vera straight from the plant and it healed it in 3 days I hope this helps a lot of people going through these skin plugs that wont heal
Loosearrow60
in
MY SKIN
3 months ago
Pegasys, EMA application Extension of indication to include treatment of Polycythaemia Vera (PV) and Essentialthrombocytosis
someone forwarded me information on the above subject. Pegasys is mostly used off label for MPN, but it is prescribed and reimbursed for MPN in many countries. What would be the motivation for Pharma& to start this procedure in this stage? And has the application been accepted, or is there information
someone forwarded me information on the above subject. Pegasys is mostly used off label for MPN, but it is prescribed and reimbursed for MPN in many countries. What would be the motivation for Pharma& to start this procedure in this stage? And has the application been accepted, or is there information
Bariton
in
Fight MPN
9 months ago
NICE Final Guidance on Ruxolitinib for the treatment of Polycythaemia Vera
Polycythaemia
Vera
can be an extremely debilitating illness that has a significant impact on patients’ lives in terms of day-to-day symptoms and affects not only patients but also their families and carers.
Polycythaemia
Vera
can be an extremely debilitating illness that has a significant impact on patients’ lives in terms of day-to-day symptoms and affects not only patients but also their families and carers.
Mazcd
MPNVoice
in
MPN Voice
11 months ago
IC and pelvic pain
Hi fellow suffers. I was diagnoised with IC 3 years ago and have chronic pelvic pain. I also have vulvodynia and IBS. I have tried numerous medications and bladder instillations which have not worked. I have recently started Elmiron but too early to say if it's helping yet. I follow a strict IC diet
Hi fellow suffers. I was diagnoised with IC 3 years ago and have chronic pelvic pain. I also have vulvodynia and IBS. I have tried numerous medications and bladder instillations which have not worked. I have recently started Elmiron but too early to say if it's helping yet. I follow a strict IC diet
Salmonfishing
in
Pelvic Pain Support Network
5 months ago
Itch Relief?
While vacationing last winter, I developed an unbearable itch on my feet. They felt like they were on fire and I was itching so hard I was afraid I’d tear the skin off. I grabbed some aloe vera (for sunburn) and rubbed it on my feet. Instant relief. Certainly easier than jumping in the shower! Hope
While vacationing last winter, I developed an unbearable itch on my feet. They felt like they were on fire and I was itching so hard I was afraid I’d tear the skin off. I grabbed some aloe vera (for sunburn) and rubbed it on my feet. Instant relief. Certainly easier than jumping in the shower! Hope
ILik3Pizza
in
PBC Foundation
5 months ago
Milled Flax so far so good
Hi all way back in 1997 i suffered with severe IBS D i tried antispasmodics from my gp aloe vera juice but it was when i started eating bananas it vanished fast forward 2017 i developed diverticulitis and severe constipation and pain my abdomen was huge luckily it was uncomplicated i started eating wholemeal
Hi all way back in 1997 i suffered with severe IBS D i tried antispasmodics from my gp aloe vera juice but it was when i started eating bananas it vanished fast forward 2017 i developed diverticulitis and severe constipation and pain my abdomen was huge luckily it was uncomplicated i started eating wholemeal
Minty00
in
IBS Network
5 months ago
penis gland skin issue having wrinkles and purple colour on gland
I did I applied two times coconut and aloe Vera gel In a day , but wrinkles are there but it did improve a bit but my concern is where it is not a serious problem , I had rough masturbation that time it was fully wrinkled and shinny white cracks and skin not so easy but I am not sure still what time
I did I applied two times coconut and aloe Vera gel In a day , but wrinkles are there but it did improve a bit but my concern is where it is not a serious problem , I had rough masturbation that time it was fully wrinkled and shinny white cracks and skin not so easy but I am not sure still what time
Rajeshed
in
Men's Health Forum (Penis Health)
6 months ago
PV and hypertension
With my blood pressure increasing and meds on the horizon, I’m trying to research the subject of the best blood pressure medications for those with
polycythaemia
vera
.
With my blood pressure increasing and meds on the horizon, I’m trying to research the subject of the best blood pressure medications for those with
polycythaemia
vera
.
Skyehope
in
MPN Voice
8 months ago
Lupus rash
Hi, My main symptoms are an itch on my neck, face, one shoulder and recently between my shoulder blades. I have puffy fingers and suffer with Raynauds Syndrome. Bouts of Fatigue too. I reduced my working hours to part-time as advised by my consultant. I had a number of tests and I was diagnosed with
Hi, My main symptoms are an itch on my neck, face, one shoulder and recently between my shoulder blades. I have puffy fingers and suffer with Raynauds Syndrome. Bouts of Fatigue too. I reduced my working hours to part-time as advised by my consultant. I had a number of tests and I was diagnosed with
Lula1983
in
LUPUS UK
7 months ago
Can progesterone-only contraception make endometriosis worse?
I'm having terrible pelvis, hip, leg and back pain and have done for most of the last year. I'm 39 and was only diagnosed last year, but have had symptoms since I was 10. I feel like my symptoms have got worse since my laparoscopy and excision last April, but have been trying progesterone only contraception
I'm having terrible pelvis, hip, leg and back pain and have done for most of the last year. I'm 39 and was only diagnosed last year, but have had symptoms since I was 10. I feel like my symptoms have got worse since my laparoscopy and excision last April, but have been trying progesterone only contraception
voodoochild100
in
Endometriosis UK
4 months ago
Unlocking the Maze of B Complexes: A Handy List for Safe Dosages and Bioactive Vitamins
It can be quite challenging to find reliable B-complex supplements that are safe in terms of dosage. Additionally, it is advisable to opt for bioactive vitamins for added safety. To help each other out, I have started compiling a list categorized into low, medium, and high dosages of B6 and B9, which
It can be quite challenging to find reliable B-complex supplements that are safe in terms of dosage. Additionally, it is advisable to opt for bioactive vitamins for added safety. To help each other out, I have started compiling a list categorized into low, medium, and high dosages of B6 and B9, which
Esperanto
in
Cure Parkinson's
9 months ago
appointment with consultant soon, possibly surgery, and im terrified because of my ptsd and i dont know what to expect <3
tldr (summary) 1 - im looking for any advice/ some reassuring/ validating/ seeing im not alone as im shitting bricks for my upcoming appointment following an abdominal mri months ago to rule anything out before possible surgery, and i have ptsd (which is heavily related to my fears about this appointment
tldr (summary) 1 - im looking for any advice/ some reassuring/ validating/ seeing im not alone as im shitting bricks for my upcoming appointment following an abdominal mri months ago to rule anything out before possible surgery, and i have ptsd (which is heavily related to my fears about this appointment
velvetonion
in
Endometriosis UK
4 months ago
Hashimotos - understanding latest blood test results - any advice for next steps?
Hi all, my partner (44F) has been struggling with hypothyroid / possible PCOS symptoms for ~18 months (thinning hair all over, some hirsutism and weight gain). She was diagnosed with Hashimotos in October 2022. We have been trying an approach to tackle both the thyroid issues and the hyperandrogenism
Hi all, my partner (44F) has been struggling with hypothyroid / possible PCOS symptoms for ~18 months (thinning hair all over, some hirsutism and weight gain). She was diagnosed with Hashimotos in October 2022. We have been trying an approach to tackle both the thyroid issues and the hyperandrogenism
Ehal89
in
Thyroid UK
9 months ago
Pain diminishing
Hi All Wanted to post an update and share what I'm doing with my diet: I was diagnosed on 20th October 2023, put on 15mg Pred, 1 month later reduced to 12.5mg then Saturday 16th Dec reduced to 10mg, at first all the pain and stiffness reappeared and I was gutted but it was "only" 6/10 and after taking
Hi All Wanted to post an update and share what I'm doing with my diet: I was diagnosed on 20th October 2023, put on 15mg Pred, 1 month later reduced to 12.5mg then Saturday 16th Dec reduced to 10mg, at first all the pain and stiffness reappeared and I was gutted but it was "only" 6/10 and after taking
MalloryMoss
in
PMRGCAuk
9 months ago
1
2
...
27
Next page
10
20
Filter results
Clear filters
Posted in
All communities
MPN Voice
79 results
Diabetes India
72 results
Thyroid UK
59 results
View top 10 communities
Sort by
Most Relevant
Newest