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Platelet transfusions
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Lou1967
So I've been on steroids for just over 2 months now and my platelets are no higher than they got after a couple of weeks on them, so last week I was still at only 21 and taking 50ml of steroids so now I'm on immunosuppressants and 40ml of steroids! But I've already noticed a lower appetite which is good
So I've been on steroids for just over 2 months now and my platelets are no higher than they got after a couple of weeks on them, so last week I was still at only 21 and taking 50ml of steroids so now I'm on immunosuppressants and 40ml of steroids! But I've already noticed a lower appetite which is good
Lou1967
in
ITP Support Association
8 years ago
Still not happy.
Hello ladies, I had an appointment to see my gynae consultant today. The minute I went into the building something hit me like a ton of bricks.. It' the place I was told I had cancer. It's like I had a delayed reaction or something like that. When Dr .Astbury told me that the tumor was cancerous , I
Hello ladies, I had an appointment to see my gynae consultant today. The minute I went into the building something hit me like a ton of bricks.. It' the place I was told I had cancer. It's like I had a delayed reaction or something like that. When Dr .Astbury told me that the tumor was cancerous , I
Damelza
in
My Ovacome
8 years ago
Private blood results.... Help
I have just received my blood results very quick service it went in the post yesterday and I have just received the results. I only started taking the levothyroxine today 50mcg I also taking HRT Elleste solo 2mg a day Venlaflaxine 37.5 mg a day. I am getting slightly worried about all of this now...
I have just received my blood results very quick service it went in the post yesterday and I have just received the results. I only started taking the levothyroxine today 50mcg I also taking HRT Elleste solo 2mg a day Venlaflaxine 37.5 mg a day. I am getting slightly worried about all of this now...
Purple80
in
Thyroid UK
8 years ago
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FLAIR Trial – Experiences post FCR – Recovery from Red Cell Cytopenia and Neutropenia
As I sit down to write this, having just been for my Flu jab, I realise how quickly time has gone by. Another year heading by. If you are new to CLL then have a look at Nick’s post about flu jabs: https://healthunlocked.com/cllsupport/posts/132460907/cll-patients-and-families-dont-forget-your-flu-vaccination
As I sit down to write this, having just been for my Flu jab, I realise how quickly time has gone by. Another year heading by. If you are new to CLL then have a look at Nick’s post about flu jabs: https://healthunlocked.com/cllsupport/posts/132460907/cll-patients-and-families-dont-forget-your-flu-vaccination
Ernest2
in
CLL Support
8 years ago
NAFLD to NASH to finding out the exact cause - where to go from here...
Hi Everyone, I'm new to the forum and am eager for any advice given :) . I have recently had a scan done by the Perspectum Study in Oxford which showed a 17% fatty liver, normal iron and a very/100% looking red inflamed liver which was marked very high red on their graph. From my talk with the team
Hi Everyone, I'm new to the forum and am eager for any advice given :) . I have recently had a scan done by the Perspectum Study in Oxford which showed a 17% fatty liver, normal iron and a very/100% looking red inflamed liver which was marked very high red on their graph. From my talk with the team
photostar
in
British Liver Trust
8 years ago
Newly diagnosed with ITP
Hi, I was admitted to hospital 3 weeks ago with platlet count of 6.. And had 4 rounds of transfusions and an iron infusion.. I was quite shocked and upset.. Would love to chat to get others opinions and coping mechanisms as I'm quite stressed over it all.. I am on 50mg prednisone and platlets are dropping
Hi, I was admitted to hospital 3 weeks ago with platlet count of 6.. And had 4 rounds of transfusions and an iron infusion.. I was quite shocked and upset.. Would love to chat to get others opinions and coping mechanisms as I'm quite stressed over it all.. I am on 50mg prednisone and platlets are dropping
Chelley075
in
ITP Support Association
8 years ago
Extremely heavy menstrual bleeding after progesterone. Is all hope lost?
Hi ladies. I'm writing partly for advice and partly for others who might experience this. I had 1st lap 5 months ago. Started taking progesterone 2 months later for one month only then stopped because I wanted to have a baby. I had one normal period right away then nothing for 7 weeks (endless bfns).
Hi ladies. I'm writing partly for advice and partly for others who might experience this. I had 1st lap 5 months ago. Started taking progesterone 2 months later for one month only then stopped because I wanted to have a baby. I had one normal period right away then nothing for 7 weeks (endless bfns).
Coreysart
in
Endometriosis UK
8 years ago
Iron Deficiency Anaemia
Hi all I am new to the community and was wonder if anyone can help or as experienced anything like the problems that I currently experiencing at the moment? I am a 20 year old female suffering with transfusion dependant Anaemia. I am currently have blood transfusions weekly this as now been going on
Hi all I am new to the community and was wonder if anyone can help or as experienced anything like the problems that I currently experiencing at the moment? I am a 20 year old female suffering with transfusion dependant Anaemia. I am currently have blood transfusions weekly this as now been going on
Doubleh1
in
Pernicious Anaemia Society
8 years ago
Blood test results.
Friday, I was at my 3 monthly blood count appointment. Been going there since 2012, every 3 months too keep an eye on my hemoglobin, iron and full blood count. All good and not drifting down, had a hemoglobin, iron blood transfusion back in January this year and I'm still stable. Need a blood transfusion
Friday, I was at my 3 monthly blood count appointment. Been going there since 2012, every 3 months too keep an eye on my hemoglobin, iron and full blood count. All good and not drifting down, had a hemoglobin, iron blood transfusion back in January this year and I'm still stable. Need a blood transfusion
1968
in
Lung Conditions Community Forum
8 years ago
Iron levels
I am wondering if my Parkinson's was caused by 2 iron transfusions I had around 5 years ago, with my first symptons appearing (in retrospect) around 4 years ago. Has anyone else had issues with iron levels that have required treatment?
I am wondering if my Parkinson's was caused by 2 iron transfusions I had around 5 years ago, with my first symptons appearing (in retrospect) around 4 years ago. Has anyone else had issues with iron levels that have required treatment?
Astra7
in
Cure Parkinson's
8 years ago
Iv iron
I received a blood transfusion and have had 4 weeks of iv iron and have been dizzy heart palpations back pain diarrhea and and tired and lost about 5 pounds wondering if maybe my thyroid meds needs adjusted
I received a blood transfusion and have had 4 weeks of iv iron and have been dizzy heart palpations back pain diarrhea and and tired and lost about 5 pounds wondering if maybe my thyroid meds needs adjusted
sarahhall76
in
Thyroid UK
8 years ago
First Time MF Poster
I am a 69 year old male. I was diagnosed with nonspecific myeloproliferative disorder in 2009. Twelve months ago, following declining red blood cell counts and a bone marrow biopsy, diagnosis of myelofibrosis was made. I initially started on hydroxyurea and prednisolone, but after four months Jakafi
I am a 69 year old male. I was diagnosed with nonspecific myeloproliferative disorder in 2009. Twelve months ago, following declining red blood cell counts and a bone marrow biopsy, diagnosis of myelofibrosis was made. I initially started on hydroxyurea and prednisolone, but after four months Jakafi
47Robert
in
MPN Voice
8 years ago
Last Chemo Cycle Delayed
Feeling down and a little scared. I just got my blood results back from yesterdays draw and my platelets plummeted down to 44. My hemoglobin is now below 8. Explains why I have been a little tired lately. Could hardly get much done at work yesterday, I went and had my blood draw and my port started
Feeling down and a little scared. I just got my blood results back from yesterdays draw and my platelets plummeted down to 44. My hemoglobin is now below 8. Explains why I have been a little tired lately. Could hardly get much done at work yesterday, I went and had my blood draw and my port started
caf132
in
My Ovacome
8 years ago
Boooo hooooooo not WOO HOOOOO!!!!!!
So much for woo hoooo Martin came out hospital thursday I ambulance carted me off Saturday. Got strange rash on bum and even stranger pain in groin and leg, but what they are worried about is low blood pressure. It's my run for anti everything's and buckets of fluid, leg pain still coming and going
So much for woo hoooo Martin came out hospital thursday I ambulance carted me off Saturday. Got strange rash on bum and even stranger pain in groin and leg, but what they are worried about is low blood pressure. It's my run for anti everything's and buckets of fluid, leg pain still coming and going
knoxie
in
My Ovacome
8 years ago
First post - waiting for some sort of diagnosis
Hi all, I've been following this community recently. I have been suffering worsening anaemia for the 1-2yrs. I have had various tests and scopes via gastro consultant but everything was negative so i was discharged. I have now had to begin a series of iron transfusions as it was so low and tablets and
Hi all, I've been following this community recently. I have been suffering worsening anaemia for the 1-2yrs. I have had various tests and scopes via gastro consultant but everything was negative so i was discharged. I have now had to begin a series of iron transfusions as it was so low and tablets and
Trigger2
in
LUPUS UK
8 years ago
Low platelets
Please can anyone help , mum as been in hospital since Sunday are nostrils have been packed to stop bleeding her platelets are below 10 , she has had a platelet transfusion , an today they are doing a double one , so scared fearful it's not going to improve , she has 3c ovarian cancer can anyone please
Please can anyone help , mum as been in hospital since Sunday are nostrils have been packed to stop bleeding her platelets are below 10 , she has had a platelet transfusion , an today they are doing a double one , so scared fearful it's not going to improve , she has 3c ovarian cancer can anyone please
Flower19
in
My Ovacome
8 years ago
Possible Vasculitis
First of all I would like to say what a fantastic site. I have found all comments extremely helpful and it puts in to perspective how serious this disease can be My story I was released from hospital 3 weeks ago with pneumonia, blood in the lungs and "possible vasculitis" I was in for a total of 6 days
First of all I would like to say what a fantastic site. I have found all comments extremely helpful and it puts in to perspective how serious this disease can be My story I was released from hospital 3 weeks ago with pneumonia, blood in the lungs and "possible vasculitis" I was in for a total of 6 days
Ianhend
in
Vasculitis UK
8 years ago
Last chemo or not!!!!!!
I went to the chemo unit today for what I was told was my last chemo. It had been delayed already two and half weeks as my bloods were low again, so had the usual blood transfusion. Carbo only the same as my last 2, but this time introducing avastin, which I am to have 18 sessions of. I arrived at 10
I went to the chemo unit today for what I was told was my last chemo. It had been delayed already two and half weeks as my bloods were low again, so had the usual blood transfusion. Carbo only the same as my last 2, but this time introducing avastin, which I am to have 18 sessions of. I arrived at 10
Millie-c
in
My Ovacome
8 years ago
Has anyone been on Cisplatin (with/without Etoposide)?
A few days ago I asked if anyone had experienced pain with Caelyx but turned out mine is due the cancer having spread and the 4 months of Carbo/Caelyx I've been having, not worked(2nd time around). Consultant is suggesting (last resort? I've had this cancer 5 years) Cisplatin with Etoposide tablets but
A few days ago I asked if anyone had experienced pain with Caelyx but turned out mine is due the cancer having spread and the 4 months of Carbo/Caelyx I've been having, not worked(2nd time around). Consultant is suggesting (last resort? I've had this cancer 5 years) Cisplatin with Etoposide tablets but
Veronique
in
My Ovacome
8 years ago
Grandson and Dog both have ITP
My grandson was diagnosed with ITP in Dec of 2015 he was 2 months shy of his 3rd birthday. He is an identical twin. My grandson woke up in a pool of blood from his nose and we took him to the ER. He was losing so much blood the Medi Vac' him to the children's hospital that was less than 20 miles away
My grandson was diagnosed with ITP in Dec of 2015 he was 2 months shy of his 3rd birthday. He is an identical twin. My grandson woke up in a pool of blood from his nose and we took him to the ER. He was losing so much blood the Medi Vac' him to the children's hospital that was less than 20 miles away
lilredphoenician
in
ITP Support Association
8 years ago
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