Search
Search
About
Log in
Join
Experiences with
Platelet transfusions
Posts
Communities
1,564 public posts
Filter results
Well looks like I'm on my own!
So, since last year when all of this misery kicked off i have changed GP surgeries once, seen two endocrinologists, a gastroenterologist, a haematologist, had an iron transfusion costing a LOT of money, went form 3 months of torture on levothyroxine, several months faffing on armour and now settled
So, since last year when all of this misery kicked off i have changed GP surgeries once, seen two endocrinologists, a gastroenterologist, a haematologist, had an iron transfusion costing a LOT of money, went form 3 months of torture on levothyroxine, several months faffing on armour and now settled
Bioluminence
in
Thyroid UK
8 years ago
Severe anemia
Since diagnosis at the beginning of May I have completed three rounds of FCR treatments. The first cycle went well and before second cycle my blood counts were close to normal (low lymphs). After second cycle everything started to go down and my third round was put off for two weeks while my counts improved
Since diagnosis at the beginning of May I have completed three rounds of FCR treatments. The first cycle went well and before second cycle my blood counts were close to normal (low lymphs). After second cycle everything started to go down and my third round was put off for two weeks while my counts improved
Elremsetay
in
CLL Support
8 years ago
cramping and pain with cirrhosis
Hi, my son is 42 and has stage 4 cirrhosis plus Hep C. We are waiting to see if he is eligible for the Hep C treatment. He goes every other week for paracentesis the drain 11 litres or 2 quarts each time. Recently he has had sever cramping in his hands and feet to the point of it bringing him to tears
Hi, my son is 42 and has stage 4 cirrhosis plus Hep C. We are waiting to see if he is eligible for the Hep C treatment. He goes every other week for paracentesis the drain 11 litres or 2 quarts each time. Recently he has had sever cramping in his hands and feet to the point of it bringing him to tears
Soonie1522
in
British Liver Trust
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Side affects off adalinimab/ Humira
Has anyone has low platelets and ended up with internal rectal bleeding with a patachial rash off Adalinimb? Because my daughter did and could of died. She needed a blood platelets transfusion ☹️☹️☹️. X
Has anyone has low platelets and ended up with internal rectal bleeding with a patachial rash off Adalinimb? Because my daughter did and could of died. She needed a blood platelets transfusion ☹️☹️☹️. X
Century1969
in
JIA-at-NRAS
8 years ago
blood test results have left me confused, like really confused.
so last week I had restless leg syndrome which is my bodies way of telling me my iron levels have dropped. My levels have a habbit of going up and down which is something Im not able to fully control. This is because if I take ferrous sulfate when I feel fine my levels go above normal. So I have to
so last week I had restless leg syndrome which is my bodies way of telling me my iron levels have dropped. My levels have a habbit of going up and down which is something Im not able to fully control. This is because if I take ferrous sulfate when I feel fine my levels go above normal. So I have to
seanto
in
Thyroid UK
8 years ago
blood test results have left me confused, like really confused.
so last week I had restless leg syndrome which is my bodies way of telling me my iron levels have dropped. My levels have a habbit of going up and down which is something Im not able to fully control. This is because if I take ferrous sulfate when I feel fine my levels go above normal. So I have to
so last week I had restless leg syndrome which is my bodies way of telling me my iron levels have dropped. My levels have a habbit of going up and down which is something Im not able to fully control. This is because if I take ferrous sulfate when I feel fine my levels go above normal. So I have to
seanto
in
LUPUS UK
8 years ago
Non- A,Non- B
Hi People, This is my story. I am not sure how I contracted Hep C. When I was a teen, I was going to a Halloween party. My sister was helping me with my clown makeup.Next thing I know she was screaming for my mother to look at my eyes. They were bright yellow, also known as Jaundice. I was taken to Walter
Hi People, This is my story. I am not sure how I contracted Hep C. When I was a teen, I was going to a Halloween party. My sister was helping me with my clown makeup.Next thing I know she was screaming for my mother to look at my eyes. They were bright yellow, also known as Jaundice. I was taken to Walter
trumpet63
in
Hepatitis C Support
8 years ago
A Week in a Life That I Wish Hadn't Happened
After being denied Xtandi, and approved for Zytiga, I was looking forward to moving on. (difference $1000) Last Wednesday, I had another bout of Melena, and wound up in the ER. And, again, my bladder was blocked up. My Hemoglobin was at 7. I had the Zytiga with me just in case I could start it while
After being denied Xtandi, and approved for Zytiga, I was looking forward to moving on. (difference $1000) Last Wednesday, I had another bout of Melena, and wound up in the ER. And, again, my bladder was blocked up. My Hemoglobin was at 7. I had the Zytiga with me just in case I could start it while
Hidden
in
Advanced Prostate Cancer
8 years ago
Just started Pegeses/Interferon
Hello all, I just started this drug Pegeses /Interferon, also taking 5 mg of Jakafi twice a day. I have MF 2-3, JAK+. Also transfusion dependent, platelets are low also, I am very nervous. Any insight would be much appreciated. Thinking of all who are in this fight and wishing you all the best
Hello all, I just started this drug Pegeses /Interferon, also taking 5 mg of Jakafi twice a day. I have MF 2-3, JAK+. Also transfusion dependent, platelets are low also, I am very nervous. Any insight would be much appreciated. Thinking of all who are in this fight and wishing you all the best
Realtorlin
in
MPN Voice
8 years ago
Advice needed
Hi all I'm very worried and some advice I've had my baby 6 weeks ago and he was 5 weeks premature and I had to have a blood transfusion because I lost over 2vpints of blood I want to know if it's normal to bleed after this long and have clots, their not big but they are often can anyone help me!! Also
Hi all I'm very worried and some advice I've had my baby 6 weeks ago and he was 5 weeks premature and I had to have a blood transfusion because I lost over 2vpints of blood I want to know if it's normal to bleed after this long and have clots, their not big but they are often can anyone help me!! Also
Xzow123
in
Endometriosis UK
8 years ago
HCV treated with Harvoni Information genotype 1a/b
This is an update regarding my Hepatitis C or HCV. In 1987 I was feeling tired and my skin had very slight yellow tinge...which others thought was a suntan. My sister in USA prompted me to have full blood tests to find out if I contracted anything. My GP said it was probably due to having two small children
This is an update regarding my Hepatitis C or HCV. In 1987 I was feeling tired and my skin had very slight yellow tinge...which others thought was a suntan. My sister in USA prompted me to have full blood tests to find out if I contracted anything. My GP said it was probably due to having two small children
art4949
in
British Liver Trust
8 years ago
Critical OHSS Story
Hi all, I have been stalking this sight for a while and don't really see much about OHSS so I wanted to get my story out there for anybody who has the symptoms of OHSS and is worried and to get other people's stories of how it has affected them after the stage I am at now. I was told I was at risk of
Hi all, I have been stalking this sight for a while and don't really see much about OHSS so I wanted to get my story out there for anybody who has the symptoms of OHSS and is worried and to get other people's stories of how it has affected them after the stage I am at now. I was told I was at risk of
Suzanne-Ferguson
in
Fertility Network UK
8 years ago
Gluten free info for t3 needed
Hi, I have been treated with t4 for 20 years and have recently had some health issue which raised my level of concerns. I was hospitalized for 5 days and after numerous test and several blood transfusions I was diagnosed with Pernicious Anemia and celiac disease all Autoimmune diseases. I 'am severly
Hi, I have been treated with t4 for 20 years and have recently had some health issue which raised my level of concerns. I was hospitalized for 5 days and after numerous test and several blood transfusions I was diagnosed with Pernicious Anemia and celiac disease all Autoimmune diseases. I 'am severly
elelliott1971
in
Thyroid UK
8 years ago
Not crazy!!
Hi there..I'm a 40 yr old female and had my 1st crisis at fifteen what we were told was I might have meningitis Not! Crisis number 2#after the birth of my daughter couldn't walk a cab driver had to pick me up off the street & bring me to my mother home bc I was in so much pain all I could say was her
Hi there..I'm a 40 yr old female and had my 1st crisis at fifteen what we were told was I might have meningitis Not! Crisis number 2#after the birth of my daughter couldn't walk a cab driver had to pick me up off the street & bring me to my mother home bc I was in so much pain all I could say was her
Leora15Duarte
in
Sickle Cell Society
8 years ago
40 and fed up
My pain started at 13. A week in hospital ended with doctors telling my mum it might be endo but they didn't think so because I was too young. Mum not knowing what that meant took me home and I was left to get on with it. I had an ectopic pregnancy at 18 and they removed my right fallopian tube. My
My pain started at 13. A week in hospital ended with doctors telling my mum it might be endo but they didn't think so because I was too young. Mum not knowing what that meant took me home and I was left to get on with it. I had an ectopic pregnancy at 18 and they removed my right fallopian tube. My
Kimmi_darling
in
Endometriosis UK
8 years ago
GPA with kidney involvement
Hello I live in the US and my dearest friend has just been diagnosed with GPA. She is 56 years old and has never been sick a day in her life. Last year she seemed to be getting colds that would last for a couple days then would go away. Nothing to alarming, however just in the past few months she developed
Hello I live in the US and my dearest friend has just been diagnosed with GPA. She is 56 years old and has never been sick a day in her life. Last year she seemed to be getting colds that would last for a couple days then would go away. Nothing to alarming, however just in the past few months she developed
Shels
in
Vasculitis UK
8 years ago
Dementia isn’t passed on via transfusion, team says
This should be reassuring news, given we are more likely to need transfusions with a CLL diagnosis![i] [/i] [i]'Results of a large, retrospective study suggest that neurological diseases are not transmitted via blood transfusion.[/i] [i]:[/i] [i]“The results are unusually clear for such a complicated
This should be reassuring news, given we are more likely to need transfusions with a CLL diagnosis![i] [/i] [i]'Results of a large, retrospective study suggest that neurological diseases are not transmitted via blood transfusion.[/i] [i]:[/i] [i]“The results are unusually clear for such a complicated
AussieNeil
Partner
in
CLL Support
8 years ago
CeLLs
Hello everyone, has anyone had low T cells and had a blood transfusion are discussed it with your rheumy?
Hello everyone, has anyone had low T cells and had a blood transfusion are discussed it with your rheumy?
vonda
in
LUPUS UK
8 years ago
Bev in hospital
I visited Bev in hospital yesterday. She has been in hospital for a month now! Things have been touch-and-go. They have carried out all sorts of tests including the kidney biopsy and blood transfusion. She has had a terrible time and has struggled to cope. While I was there Bev was moved to a new wing
I visited Bev in hospital yesterday. She has been in hospital for a month now! Things have been touch-and-go. They have carried out all sorts of tests including the kidney biopsy and blood transfusion. She has had a terrible time and has struggled to cope. While I was there Bev was moved to a new wing
Beverly
Administrator
in
The Australian Sjögren's Syndrome Association
8 years ago
Myself dx while preg, my 16 yo had it, 4 yo has trait And found out my mom is the one that past it down :)
My 16 yo son was dx with sickle cell trait with his new born screening. I just knew it had to be a mistake since we were the first born at a new labor/delivery hospital. Long story short-- sure enough it was confirmed. We knew either his dad or myself gave it to him, but neither one of us got tested
My 16 yo son was dx with sickle cell trait with his new born screening. I just knew it had to be a mistake since we were the first born at a new labor/delivery hospital. Long story short-- sure enough it was confirmed. We knew either his dad or myself gave it to him, but neither one of us got tested
MarlaDeAnn
in
Sickle Cell Society
8 years ago
1
...
61
62
63
...
79
Next page
20
30
40
50
60
70
Filter results
Clear filters
Posted in
All communities
CLL Support
178 results
Advanced Prostate Cancer
151 results
MPN Voice
134 results
View top 10 communities
Sort by
Most Relevant
Newest