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Beware of Lansoprazole
I have taken this drug for years for acid reflux. Last year, during a medical check, it was found that my blood count was so low it was almost at needing a transfusion level. I was put on Ferrous Fumarate which brought my level up but my ferritin level is still low. I had an endoscopy and it was discovered
I have taken this drug for years for acid reflux. Last year, during a medical check, it was found that my blood count was so low it was almost at needing a transfusion level. I was put on Ferrous Fumarate which brought my level up but my ferritin level is still low. I had an endoscopy and it was discovered
Hidden
in
Acid Reflux Support
6 months ago
An Eventful January
I like to keep the NHS busy. My January itinerary as its stands, although more can be added yet. Week 1 - Respiratory Chest Consultant, following a CT Scan on 29/12 I had an appt with the Consultant a few days later. As I expected the scan showed that I had a Pleural Effusion/Pneumonia (fluid) in both
I like to keep the NHS busy. My January itinerary as its stands, although more can be added yet. Week 1 - Respiratory Chest Consultant, following a CT Scan on 29/12 I had an appt with the Consultant a few days later. As I expected the scan showed that I had a Pleural Effusion/Pneumonia (fluid) in both
Hidden
in
British Heart Foundation
6 months ago
Venetoclax
Hi all Well we finally got to see a specialist. They did a bone marrow biopsy which showed 50% CLL infiltration on top of the pancytopenia. They have suggested treatment with Venetoclax only which they have said may reduce the frequency of transfusions which is currently weekly. I have only ever
Hi all Well we finally got to see a specialist. They did a bone marrow biopsy which showed 50% CLL infiltration on top of the pancytopenia. They have suggested treatment with Venetoclax only which they have said may reduce the frequency of transfusions which is currently weekly. I have only ever
JoeMcDote
in
CLL Support
6 months ago
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Thinking of going back on Sertraline but my partner makes it seem like i’m being weak or lazy
Hi, So I first wrote on this forum 5 years ago when I suddenly had the worst Health Anxiety of my life and it felt totally out of the blue at the time. I had never experienced anything at all like it. I woke up one day with my muscles aching, feeling dizzy, felt like I was rocking on a boat or like
Hi, So I first wrote on this forum 5 years ago when I suddenly had the worst Health Anxiety of my life and it felt totally out of the blue at the time. I had never experienced anything at all like it. I woke up one day with my muscles aching, feeling dizzy, felt like I was rocking on a boat or like
NEC_xx
in
Anxiety and Depression Support
6 months ago
blood transfusions
My husband has high risk MF and takes RUX/jackifi which he started last March since his disease has progressed and HU did not work for him any longer. He has had to rely on monthly blood transfusions since last June which normally last him around a month before he needs another transfusion since
My husband has high risk MF and takes RUX/jackifi which he started last March since his disease has progressed and HU did not work for him any longer. He has had to rely on monthly blood transfusions since last June which normally last him around a month before he needs another transfusion since
Bainbridge
in
MPN Voice
7 months ago
Vitamin A
Hello everyone,This is such a bizarre question - I went to see a liver consultant back in October of last year and I got a call from the Liver registrar saying everything was okay but my inr was on the low wide so ive had 2 transfusions of vitamin K so that helped with that but she said my vitamin A
Hello everyone,This is such a bizarre question - I went to see a liver consultant back in October of last year and I got a call from the Liver registrar saying everything was okay but my inr was on the low wide so ive had 2 transfusions of vitamin K so that helped with that but she said my vitamin A
DaniellaJayMay
in
British Liver Trust
7 months ago
Stomach cancer
Hi, My wife started feeling sick couple of months after the birth of our son. GP thought it was possibly birth related. She started having pain and lost weight very quickly (10 kg in 2 months). She was asked to have h pylori stool test, which came postive. She had 1 week of Anti biotic but the pain and
Hi, My wife started feeling sick couple of months after the birth of our son. GP thought it was possibly birth related. She started having pain and lost weight very quickly (10 kg in 2 months). She was asked to have h pylori stool test, which came postive. She had 1 week of Anti biotic but the pain and
Carefull
in
SHARE Metastatic Breast Cancer
7 months ago
low hemoglobin and platelets
My husband in on Carbo and cabazitaxel and it is causing his hemoglobin and platelets to drop. He is now having to have blood transfusions every other day. Has anyone else had this issue and if so did your blood counts finally stabilize?
My husband in on Carbo and cabazitaxel and it is causing his hemoglobin and platelets to drop. He is now having to have blood transfusions every other day. Has anyone else had this issue and if so did your blood counts finally stabilize?
Peloton
in
Advanced Prostate Cancer
7 months ago
iron overload
An early happy new year to all. Just curious if anyone has iron overload from blood transfusions and if they have started any therapy for this. My husband has high risk MF and has been dependent on monthly blood transfusions since his hemoglobin and hematocrit levels have been low 25 for hematocrit
An early happy new year to all. Just curious if anyone has iron overload from blood transfusions and if they have started any therapy for this. My husband has high risk MF and has been dependent on monthly blood transfusions since his hemoglobin and hematocrit levels have been low 25 for hematocrit
Bainbridge
in
MPN Voice
7 months ago
Acalabrutinib to treat CLL & AIHA
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune Haemolytic Anaemia, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb. My CLL is still relatively low level and ordinarily would not
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune Haemolytic Anaemia, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb. My CLL is still relatively low level and ordinarily would not
Wen_dy
in
CLL Support
7 months ago
Don't want to go back on the pill/more surgeries! Deep infiltrating endo on bowel and uterine polyp removed recently for heavy bleeding.
Hello fellow endo warriors. I have a dilemma. I really don't want to go back on the bcp after being on it for 15 years as it has not been effective for my deep infiltrating endo on my bowel. My ultimate goal is to heal endo at the core using non-hormonal & surgery approach. Not just a bandaid solution
Hello fellow endo warriors. I have a dilemma. I really don't want to go back on the bcp after being on it for 15 years as it has not been effective for my deep infiltrating endo on my bowel. My ultimate goal is to heal endo at the core using non-hormonal & surgery approach. Not just a bandaid solution
jen2023
in
Endometriosis UK
7 months ago
Start of SCT journey
Quick recap for those that haven't followed my previous posts. Diagnosed September 2022 with primary MF, no previous signs or symptoms before catching Covid in June 2022 and health deteriorating until GP visit at end of August 2022. After some RBC transfusions, blood tests and BMP I enrolled on FEDORA
Quick recap for those that haven't followed my previous posts. Diagnosed September 2022 with primary MF, no previous signs or symptoms before catching Covid in June 2022 and health deteriorating until GP visit at end of August 2022. After some RBC transfusions, blood tests and BMP I enrolled on FEDORA
Flyingsteamer
in
MPN Voice
7 months ago
Ruxolitinib Combinations Reduce Spleen Volume in Myelofibrosis: Combos with navitoclax/pelabresib led to more patients achieving reductions
SAN DIEGO -- Combining the Janus kinase (JAK) inhibitor ruxolitinib (Jakafi) with either navitoclax or pelabresib led to more patients with myelofibrosis achieving reductions in spleen volume, two phase III studies showed. In the TRANSFORM-1 trial, the combination of the BCL-XL/BCL-2 inhibitor navitoclax
SAN DIEGO -- Combining the Janus kinase (JAK) inhibitor ruxolitinib (Jakafi) with either navitoclax or pelabresib led to more patients with myelofibrosis achieving reductions in spleen volume, two phase III studies showed. In the TRANSFORM-1 trial, the combination of the BCL-XL/BCL-2 inhibitor navitoclax
PhysAssist
in
MPN Voice
7 months ago
Pain everywhere.
I've been 10+ yrs searching for answers. I had some bladder problems in 2013. Doctors did surgery. I almost died. Apparently they told me my blood vessels looked funny. They didn't know if they "knicked " me or what but I lost 8 pints of blood very quickly. They barely got me transfusion in time. I chalked
I've been 10+ yrs searching for answers. I had some bladder problems in 2013. Doctors did surgery. I almost died. Apparently they told me my blood vessels looked funny. They didn't know if they "knicked " me or what but I lost 8 pints of blood very quickly. They barely got me transfusion in time. I chalked
CountryGirl9636
in
Partners for Behcet's
7 months ago
i am so scared
my mom are going to hard times… all the time she get carbo and taxol till she didnt have shock to carbo and they start give hee doxil… red devil which made her so ill after first chemo she get lower stomack blockage and surgery to replace it… that uclers and in october trombs in legs …seems that it
my mom are going to hard times… all the time she get carbo and taxol till she didnt have shock to carbo and they start give hee doxil… red devil which made her so ill after first chemo she get lower stomack blockage and surgery to replace it… that uclers and in october trombs in legs …seems that it
Inguc_is
in
My Ovacome
7 months ago
Please pray for me 🙏
She's been dealing with so much health problems but she never had before. Started with a random blood test with bad results so she got checked up with that. It was nephrotic syndrome and something else for the kidneys. I made peace with okay this is forever we'll make her comfortable and treat it Etc
She's been dealing with so much health problems but she never had before. Started with a random blood test with bad results so she got checked up with that. It was nephrotic syndrome and something else for the kidneys. I made peace with okay this is forever we'll make her comfortable and treat it Etc
Lve2dance
in
Mental Health Support
8 months ago
Prostap injection
Had a prostap injection just under a week ago. Feel awful. Tired and can't sleep walking up and down the stairs causes me to sit down. I'm hoping it will reduce the size of my uterus as I have adenymosis and fibrioids. I'm having a hysteroscopy under anesthesia for the mirena coil in hospital on weds
Had a prostap injection just under a week ago. Feel awful. Tired and can't sleep walking up and down the stairs causes me to sit down. I'm hoping it will reduce the size of my uterus as I have adenymosis and fibrioids. I'm having a hysteroscopy under anesthesia for the mirena coil in hospital on weds
Hidden
in
Endometriosis UK
8 months ago
Severe RLS Where do I go now?
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
e365
in
Restless Legs Syndrome
8 months ago
Consultant recommendations in the Essex, London, South East area
Hi I was diagnosed with hypothyroidism almost 5 years ago now despite me not having any symptoms. I'd had a blood test because of illness in my family and I was very surprised to find out that my T4 levels were around 8.5 and my TSH was 10.3. My antibodies were out of range and my iron levels were borderline
Hi I was diagnosed with hypothyroidism almost 5 years ago now despite me not having any symptoms. I'd had a blood test because of illness in my family and I was very surprised to find out that my T4 levels were around 8.5 and my TSH was 10.3. My antibodies were out of range and my iron levels were borderline
Cybob
in
Thyroid UK
8 months ago
Scared
Hi everyone, I’m not sure what I’m looking for from you lovely people, maybe just your experience. I’m 44 and have been an alcoholic for 11 years. I was very in the dark about my condition. Last November I had an ascities drainage, I didn’t know the cause, just a massive, painful tummy. The drainage
Hi everyone, I’m not sure what I’m looking for from you lovely people, maybe just your experience. I’m 44 and have been an alcoholic for 11 years. I was very in the dark about my condition. Last November I had an ascities drainage, I didn’t know the cause, just a massive, painful tummy. The drainage
Starlight79
in
British Liver Trust
8 months ago
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