Partners for Behcet's | HealthUnlocked

I imagine lots of you like me have struggled to get a diagnosis, but I'm at the end of my tether! I've seen gastro and Max fax without joy, and I'm now so fed...

I've been 10+ yrs searching for answers. I had some bladder problems in 2013. Doctors did surgery. I almost died. Apparently they told me my blood vessels...

I've been 10 yrs plus trying to get help. Finally yesterday my doctors had those aha moments when it came together for them. Behcets with lupus/ connective...

We just don’t know how to find a real path to treat this disease and maintain quality of life while on these medications that strip quality of life. It can’t...

Does anyone know if the Avise test show any Behcet's type information. I told my new doctor I might have Behcet's, other doctors have thought it might be....

Hi all, Iv been back and forth between rheumatologist, eye consultants, dermatologist and the rest for over a year and a half now. Firstly they thought it was...

Has anyone had any skin issues? If so what are they like? I have cystic like acne and it has been going on for awhile. It first showed up in my armpits and...

Does anyone know if possibly looking at Bechets, scleroderma, or MS as possible diagnosis which one would include pretty normal bloodwork?

I am 19 yrs. old and I have Behcet’s. I am taking dapsone, colchicine, amitriptyline, folic acid, leflunomide,keppra, and Infliximab (every 4 weeks, 900 mg). I...

Hi, I am newly diagnosed with BD and am looking for ways to help my symptoms at home as best I can. I have found that an anti-inflammatory diet may help so...

Hi all, After years and years of symptoms and feeling as though I am going crazy, I have been diagnosed with Behcet’s. Of course I feel relieved to finally put...

I'm new here, and already finding it so helpful. Just the fact that there are other people who experience what I am, makes me feel so much less alone. I...

Has anyone else with Behcets been told the genital ulcers will start to phase out with age (I am 64) I have been told the ucers and pain I get now is Lichen...

I wonder if I could write with someone who has knowledge of this Behcet's. I want to ask about how to talk to dr.s about my pain. I get 5 days per month I am...

A nurse is flying up here on Friday to give me home IV treatment. I am on imuran, colchacine & TRIED Humera shot every other week. I have severe joint pain ,...

Hello, I have recently been diagnosed with Behcets. I came down with ugly, shocking, frightening and painful symptoms, and after 5 days of being hospitalized,...

I would like to bring this to everyone's attention and speak out against it. It exists and isolates it's victims! It is a REAL problem! In Senior buildings,...

Does anyone know if there is a good life insurance company who doesn't think everyone with behcets has had it!! My life insurance went up by 50 quid a month...

Hi, I have a close friend with Bechet's and I was hoping to get advice on how to best support and encourage her. She has had a rough time, not just with the...

Can I get approved for disability benefits having behcets disease. diagnosed in 2010, & having excruciating, intolerable Ulers in my mouth , throat, tongue,...

Hi all, I'm have neuro bechets (diagnosed September 2014). I am back in hospital again since December 3rd. This is my third time in hospital in 15 months. The...

I have been diagnosed with Behcet's disease and am sadly losing my battle. I am a mother of 4 young children, and wife. I will die soon if I don't receive...

My daughter who's 11 as behcets I'm trying to get her to meet others with it her age and also someone I can chat to as well I'm in Barnsley South Yorkshire/uk...

hi everyone pleased to meet you all my husband has behcets,just wanted to ask if anyone knows anything about the department of work and pensions my husband was...

Young Sufferers Weekend Away I clearly remember the amazement on my daughter’s face the first time she met a room full of others who also had Behcet’s - the...

I have recurrent painful mouth ulcers,genital rash/redness non painful and pain in my eye could this be bd?

Hello there As accurate information is so difficult to find for this rare Syndrome, I wanted to let you know about a book publishing in October - it can be...

Hello, I've had Behcet's for 27 yrs but in the last 2 years it has gone out of control. Also, I found out last year I have a rare bone cancer. They removed the...

Our community is now getting active. How about introducing yourself and your involvement with Behcet's plus any questions here. Let's get this group active.