Benign liver mass op: Hi everyone, my... - Children's Liver ...

Children's Liver Disease Foundation

2,001 members703 posts

Benign liver mass op

Weeliver profile image
2 Replies

Hi everyone, my daughter has a large undiagnosed mass on her liver , just before she turned one I felt it in her stomach and was told she was constipated naturally I felt the urge to get a second and third opinion to then be quickly taken to Glasgow childrens hospital and be told it was most likely cancer , a central line was put in and biopsy taken she then needed a blood transfusion and biopsy did not give any clues to a diagnosis. We were sent home and up until now at 4yo my little girl has been happy and thriving with regular scans and bloods tests and protruding tummy.up until these last few weeks , I have been told after MRI the mass has grown and putting pressure on other organs we are to be admitted to Leeds next month for major surgery , naturally I am petrified and would like to hear any similar situations or advice , particularly now my daughter is older and much more aware of how I can begin to explain to her what is happening to her :'(

Written by
Weeliver profile image
Weeliver
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Juliaaaa profile image
Juliaaaa

Dear Weekiver,

My daughter has been diagnosed as hepatoblastoma, that she also has a solid mass in her liver. She had been given chemotherapy and possibly will have liver surgery after a month time. Timing is key. Get it treated the early the better. Wish your daughter all the best.

Lois-Cldf profile image
Lois-CldfPartner

CLDF have a support worker based in Scotland that can help.

You can join us for free online at

Www.childliverdisease.org

Click contact

Click new parent

Complete the form

And I'll get a pack sent out to you.

The support team are here for you and your family.

You may also like...

Query for liver transplant

My daughter had kasai at 52 days but seems like that has failed and now doctors are insisting for...

Portal hypertension, enlarged spleen and liver damage

portal hypertension, my 1 year old daughter has Biliary Atresia, she has the kasai operation at 6...

Elevated direct bilirubin and liver enzymes

familiar with this roller coaster experience . Up until 5 months ago I couldn’t even tell you what...

Elevation of liver enzymes in Alagilles

eater), growing and despite her petite size no one even can think she has liver disease. I am here...

Does elevated conjugated bilirubin in newborn always mean liver disease?

old baby girl who has been jaundiced since birth (can especially tell in whites of her eyes). At...