Search
Search
About
Log in
Join
Experiences with
Platelet transfusions
Posts
Communities
1,576 public posts
Filter results
UK infected blood
Hi all I’m new here and trying my hardest to gather information regarding the scandal of infected blood within the NHS. My mother was given a blood transfusion back in the 1980’s and recently had a Hepatitis C diagnosis which hit us out of the blue!! I’ve been following all the guidelines and applying
Hi all I’m new here and trying my hardest to gather information regarding the scandal of infected blood within the NHS. My mother was given a blood transfusion back in the 1980’s and recently had a Hepatitis C diagnosis which hit us out of the blue!! I’ve been following all the guidelines and applying
WoosieWoo
in
British Liver Trust
5 years ago
Hepatic Encephalitis Help
Hi There, My mum acquired Hepatitis C from a blood transfusion with infected blood in the 1980's. She had always managed quite well and was regularly monitored, but she never wanted any treatment for the Hep C. In June this year she was admitted to hospital due to fluid overload thought to be from kidney
Hi There, My mum acquired Hepatitis C from a blood transfusion with infected blood in the 1980's. She had always managed quite well and was regularly monitored, but she never wanted any treatment for the Hep C. In June this year she was admitted to hospital due to fluid overload thought to be from kidney
HannahLB1
in
British Liver Trust
5 years ago
People of HealthUnlocked | Meet Keith
[i] Hello lovely people, just want to take a moment to thank everyone for sending in their stories, they will all be shared here over the next few weeks - so keep them coming. They are so inspiring. If you'd like to have your story featured here, get in touch on the email at the bottom of this post.
[i] Hello lovely people, just want to take a moment to thank everyone for sending in their stories, they will all be shared here over the next few weeks - so keep them coming. They are so inspiring. If you'd like to have your story featured here, get in touch on the email at the bottom of this post.
MarketingHU
in
HealthUnlocked Blog
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Sulphazaine and anaemia
Hi In new to the group.... Has anyone developed anaemia resulting from taking Sulphasazine ? This was my first treatment I was just starting week 6 of taking this drug when my hb went down to 72. My platelets and other blood work was degranged. I had to have a blood transfusion My consultant was adamant
Hi In new to the group.... Has anyone developed anaemia resulting from taking Sulphasazine ? This was my first treatment I was just starting week 6 of taking this drug when my hb went down to 72. My platelets and other blood work was degranged. I had to have a blood transfusion My consultant was adamant
Nwad68
in
NRAS
5 years ago
Dizzies??
Just joined up here, so glad to see all kinds of issues addressed re PBC (incl. prognosis; my doc just says "You're healthy"). I am on Ursodiol for the PBC and diuretics (for ascites), and have had one banding experience (for varices) which turned into internal bleeding and blood transfusions. I am
Just joined up here, so glad to see all kinds of issues addressed re PBC (incl. prognosis; my doc just says "You're healthy"). I am on Ursodiol for the PBC and diuretics (for ascites), and have had one banding experience (for varices) which turned into internal bleeding and blood transfusions. I am
meginaromas
in
PBC Foundation
5 years ago
My counsellor told me I had PTSD and then said she was not doing anymore sessions :(
I have lived an awful life this true Childhood full of domestic volience the worst my mum is lucky to be alive. Me aged 16 assisted by my father’s friend Married a chronic alcoholic when I was 22 I knew no different that was my life 8 years infertility treatment Developed chronic anxiety and IBS
I have lived an awful life this true Childhood full of domestic volience the worst my mum is lucky to be alive. Me aged 16 assisted by my father’s friend Married a chronic alcoholic when I was 22 I knew no different that was my life 8 years infertility treatment Developed chronic anxiety and IBS
Runrabbit50
in
Anxiety and Depression Support
5 years ago
ANXIETY I’ve IBSD and travel anxiety and have a hospital appointment Monday
I have had anxiety lead IBS D for 25 years kicked off as I was pregnant after 8 years fertility treatment back in 1994-95 the year before I miscarried after years infertility treatment, when pregnant the second time my Nan died and my then father in law both with in 2 weeks of each other my ex husband
I have had anxiety lead IBS D for 25 years kicked off as I was pregnant after 8 years fertility treatment back in 1994-95 the year before I miscarried after years infertility treatment, when pregnant the second time my Nan died and my then father in law both with in 2 weeks of each other my ex husband
Runrabbit50
in
Anxiety and Depression Support
5 years ago
Denied for Vision Trial
My husband was diagnosed Stage 4 Prostate Cancer with Gleason score 9 last summer. After Lupron, Zytiga and Chemo (Docetaxcel) all failed on him, we are hoping he could get in the Vision Trial. However, due to the low hemoglobin counts he was denied for the Vision Trial. His hemoglobin counts started
My husband was diagnosed Stage 4 Prostate Cancer with Gleason score 9 last summer. After Lupron, Zytiga and Chemo (Docetaxcel) all failed on him, we are hoping he could get in the Vision Trial. However, due to the low hemoglobin counts he was denied for the Vision Trial. His hemoglobin counts started
Muzpapa
in
Advanced Prostate Cancer
5 years ago
Started imbruvica
I was diagnosed with CLL in 2000... Did the usual watchful waiting till 2009, then had FCR for 6 months. Went into total remission till 2016... Had AIHA in September of 2018, treated in hospital with 4 transfusions ,and prednisone. My cll is back & I started imbruvica 3 days ago. I'm feeling much stronger
I was diagnosed with CLL in 2000... Did the usual watchful waiting till 2009, then had FCR for 6 months. Went into total remission till 2016... Had AIHA in September of 2018, treated in hospital with 4 transfusions ,and prednisone. My cll is back & I started imbruvica 3 days ago. I'm feeling much stronger
habsrule
in
CLL Support
5 years ago
Stem cell transplant for Myelofibrosis
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
Dodders
in
MPN Voice
5 years ago
What a to do.
What I would like to know is do steroids thin the blood? I posted this somewhere yesterday but it seemed to disappear. I was given Apixaban anticoagulant because of A/F. Within four weeks I had collapsed and was taken to Resus with a Haemaglobin of 57. I had 4 transfusions and the consensus was that
What I would like to know is do steroids thin the blood? I posted this somewhere yesterday but it seemed to disappear. I was given Apixaban anticoagulant because of A/F. Within four weeks I had collapsed and was taken to Resus with a Haemaglobin of 57. I had 4 transfusions and the consensus was that
polymy
in
PMRGCAuk
5 years ago
What a to d0!
My. Question is do steroids thin the blood? I have just come out of hospital. I have a/f and had been prescribed apixaban anticoagulant 8 weeks ago. It caused rectal haemorrhage and I collapsed with a Haemaglobin score of 57. Have had 4 pints of blood transfused. The doctor has prescribed apixaban at
My. Question is do steroids thin the blood? I have just come out of hospital. I have a/f and had been prescribed apixaban anticoagulant 8 weeks ago. It caused rectal haemorrhage and I collapsed with a Haemaglobin score of 57. Have had 4 pints of blood transfused. The doctor has prescribed apixaban at
polymy
in
NRAS
5 years ago
Just being yourself......
Sometimes like many of you, the inside of the home is a blessing and occasionally it seems a cage.I burrow myself away until I feel better.Last night I talked with the Lord(and listened) and I got the impression that what is right in front of me IS enough.Cant do much about past, the future..who knows
Sometimes like many of you, the inside of the home is a blessing and occasionally it seems a cage.I burrow myself away until I feel better.Last night I talked with the Lord(and listened) and I got the impression that what is right in front of me IS enough.Cant do much about past, the future..who knows
jackiesj
in
My MSAA Community
5 years ago
Postponed for now
So an update about Ryan, The craniotomy had to be postponed. His red blood cell counts tanked for unknown reasons unfortunately. We are currently looking for a GI bleed. We did an endoscopy that turned up clean and normal. But his RBC has continued to drop. He got 2 full bags of condensed RBCs for a
So an update about Ryan, The craniotomy had to be postponed. His red blood cell counts tanked for unknown reasons unfortunately. We are currently looking for a GI bleed. We did an endoscopy that turned up clean and normal. But his RBC has continued to drop. He got 2 full bags of condensed RBCs for a
kellyOd
in
Melanoma Caregivers
5 years ago
Second opinion suggestions
My relative has not been doing well. His redblood cells are good quality, but much too few. His blood proteins are high. He has little CLL In his blood marrow. He has had many transfusions, a number of different treatments, immune support, anti cancer, etc. he thinks highly of his doctor. However even
My relative has not been doing well. His redblood cells are good quality, but much too few. His blood proteins are high. He has little CLL In his blood marrow. He has had many transfusions, a number of different treatments, immune support, anti cancer, etc. he thinks highly of his doctor. However even
Odale
in
CLL Support
5 years ago
Chemotherapy, Blood Transfusion etc.
Hi My husband had stage 4 prostate cancer. Right after we found his cancer last summer, doctor ordered Lupron shots. It has been keeping his Testosterone level down but not PSA. He started Zytiga in spring but it failed after a couple of months. So he started Chemotherapy in July. Prior to Chemo his
Hi My husband had stage 4 prostate cancer. Right after we found his cancer last summer, doctor ordered Lupron shots. It has been keeping his Testosterone level down but not PSA. He started Zytiga in spring but it failed after a couple of months. So he started Chemotherapy in July. Prior to Chemo his
Muzpapa
in
Advanced Prostate Cancer
5 years ago
Possible placenta accrete
Yesterday at my 25 week consultation I am Being referred for an MRI scan due to possible placenta accrete. After reading dr google I am absolutely terrified. I had a myomectomy last year and the babies placenta just happens to be on my scar site. They mentioned if accrete is there early csection, possible
Yesterday at my 25 week consultation I am Being referred for an MRI scan due to possible placenta accrete. After reading dr google I am absolutely terrified. I had a myomectomy last year and the babies placenta just happens to be on my scar site. They mentioned if accrete is there early csection, possible
ICSIBaby86
in
Pregnancy and Parenting Support
5 years ago
Placenta Accrete
Yesterday at my 25 week consultation I am Being referred for an MRI scan due to possible placenta accrete. After reading dr google I am absolutely terrified. I had a myomectomy last year and the babies placenta just happens to be on my scar site. They mentioned if accrete is there early csection, possible
Yesterday at my 25 week consultation I am Being referred for an MRI scan due to possible placenta accrete. After reading dr google I am absolutely terrified. I had a myomectomy last year and the babies placenta just happens to be on my scar site. They mentioned if accrete is there early csection, possible
ICSIBaby86
in
British Pregnancy Advisory Service
5 years ago
Long Overdue Update
Three week hospital stay, blood, plasma,
platelet
transfusions
. Degarelix and Casodex tried first. First dose of docetaxel started in ICU and he survived to be discharged, wasn’t expected to live six months. 9 rounds of docetaxel, taken off my MD Anderson. Nadir was 2.28 I believe.
Three week hospital stay, blood, plasma,
platelet
transfusions
. Degarelix and Casodex tried first. First dose of docetaxel started in ICU and he survived to be discharged, wasn’t expected to live six months. 9 rounds of docetaxel, taken off my MD Anderson. Nadir was 2.28 I believe.
joekaty
in
Advanced Prostate Cancer
5 years ago
Adoport
New to group. Have had liver transplant 6 years ago due to hep c through contaminated blood transfusion. Prograf used for immune suppressant but now been told I’ve to change to Adoport to save money. Cannot find any real info on adoport which is new product offered. I got hep c because government wanted
New to group. Have had liver transplant 6 years ago due to hep c through contaminated blood transfusion. Prograf used for immune suppressant but now been told I’ve to change to Adoport to save money. Cannot find any real info on adoport which is new product offered. I got hep c because government wanted
Tourguide
in
British Liver Trust
5 years ago
1
...
34
35
36
...
79
Next page
10
20
30
40
50
60
70
Filter results
Clear filters
Posted in
All communities
CLL Support
180 results
Advanced Prostate Cancer
153 results
MPN Voice
138 results
View top 10 communities
Sort by
Most Relevant
Newest