Second opinion suggestions: My relative has not... - CLL Support

CLL Support

22,728 members38,988 posts

Second opinion suggestions

Odale profile image
2 Replies

My relative has not been doing well. His redblood cells are good quality, but much too few. His blood proteins are high. He has little CLL In his blood marrow. He has had many transfusions, a number of different treatments, immune support, anti cancer, etc. he thinks highly of his doctor. However even he is puzzled and is encouraging him to get another opinion. My question is is anyone aware of researchers working on this sort of problem? Or suggestions for avenues to explore. Thank you, Odale

Written by
Odale profile image
Odale
To view profiles and participate in discussions please or .
Read more about...
2 Replies
PlanetaryKim profile image
PlanetaryKim

Hi Odale. Is your relative seeing an actual CLL specialist? If not, that would be an important step forward. CLL specialists are found in larger centres, usually connected to research and clinical trials as well as treatment. Do you know what specific CLL treatments your relative has had up to this point? Good luck!

cllady01 profile image
cllady01Former Volunteer

Odale, i have read your past posts and know you have been given the following place to get names of Specialists, but I am not sure where you are in the world. This may not help you, but, here it is again. cllsociety.org/toolbox/cll-...

And, if you will click or your name/icon to go to your profile page, you will find the previous post that others replied to in regard to suggestions for a 2nd opinion.

I hope your CLL friend/relative will soon choose to see someone to get the situation diagnosed and treated.

You may also like...

Going to OSU for Second Opinion

everyone on this site! I was just diagnosed with CLL on Dec 18th and I started chemo (BR) on Dec....

Finished my second opinion today

fingernails to test the cells to compare them with my lymph node and marrow cells to see the cell...

Should I get a second opinion!

all these questions about my CLL. Questions about what stage is my CLL at, was he going to do an...

Second Opinion Dr needed

Furman and Dr. Keating to give an honest opinion for second opinion route? Any guidance...

When to seek a second opinion

treatments and research. CLL is a dangerous disease, don't be afraid to ask for a second opinion!