Melanoma Caregivers | HealthUnlocked

Is anyone on novo and relatlimab (Opdualag)?How are you doing on it? Any side effects?

We are struggling to make ends meet.. anything would be so much appreciated. If not prayers prayers prayers... thank you all for following our journey for so...

Ryan is not doing well. Insane tumors on top of the skin. Radiation. More radiation. Restarted Keytruda in January. Not doing anything unfortunately. We may be...

Hello all! I have read everyone’s wonderful messages - it’s been hard to get back. Ryan is okay. He started ipilimumab on November 23rd, 2021. Onco said we...

Hello all, it has been a while. A lot has changed in a very short time per usual. At this time Ryan has had another mass spread. His right arm is literally...

Folks, there is now a Caregivers Guide available on the MRF site. To make it more easily readible, use the ZOOM to make the print larger....

Folks may be interested in these sections from this medical research review: Accellerated cancer drug outcomes, Incentives for Clinical Trials, Covid Infection...

https://summit.cancerresearch.org/?utm_source=facebook&utm_medium=cpc&utm_campaign=2021summit&utm_term=discuss&utm_content=skin&fbclid=IwAR0hj8Gi1Rz0tVwa9Wlcp_Z

Looks like TIL therapy for someone who has been heavily pre treated doesn’t look like the way to go. Response rates drop significantly. Taf Mek it is for now...

This just popped up in my feed. Sounds promising at first glance . September 20, 2021 FDA grants priority review to relatlimab-nivolumab regimen for...

Rdad these results carefully noting use of Pembro with high risk melanoma patients increased length of time to recurrance, but there are concerns about use of...

Hi everyone, I just wanted to see if anyone is attending this year’s Society for Melanoma Research (virtually) conference? Or the Society for Integrative...

As of September 7th we are re challenging the Taf/Mek targeted therapy. We will wait 2ish weeks and see if there is a response. Dr wants to order ipilimumab...

It’s not easy to make this update.. Ryan’s cancer is taking over the arm even after the resection. Soft tissue involvement like crazy.. I have no words at this...

Imerman Angels: A Discussion On Grief And Loss https://e.sparxo.com/Imerman-Angels--National-Grief-Awareness-Day?mc_cid=f0d7e2e834&mc_eid=2216fc067b AUG 30...

Ryan had his surgery at 9AM this morning.. still feel like I’m in a huge “unknown” bubble. The bone was taken; and soft tissue surrounding it was involved too....

Hey guys. So that’s what we are looking at. Orthopedic oncologist just wants to take the damn thing out. He has about 4cm of radial bone involvement that is...

Hello friends My Moderna vaccinated son has covid . He isn’t terribly ill at this time, and hopefully the vaccine will keep the virus in check. I am sharing...

Dear ones: discard immediately spray Neutrogena and Aveeno SPF sunscreen products due to safety recall. This is expecially concerning to our community since...

When my sons treatment stops being effective, I start this rather panicked roller coaster ride of seeking new treatment and clinical trials. It’s just how I...

hello all Three times during this melanoma journey, i have had to search for clinical trials. When that happens, I get totally consumed in a complex process....

Hi guys! Sorry I didn’t reply to some messages - a lot has happened in a short period of time. We went on our vacation to OBX, NC and the elbow got...

Ryan’s elbow is not great. Starting to see some significant swelling. Any ideas how to help pain and reduce swelling? Cant have ibuprofen because of blood...

1. Iovance (advanced biotech company for use of Adoptive Cell Therapy/Tumor Infiltrating Lymphocytes (TIL) reports data at the 33 month follow up point....

Folks may have interest in attending this free webinar:...

http://healthivibe.com/blog/

Mental Health is health. How are you doing today? What could help you function better? What have you found over the past year supports your mental health?...

This is beautiful, Missy. Your love, dedication to Wayne and to the whole Melanoma Community shine though in your eloquent words. Thank you.

COOLIBAR “There have been times in my life where being a human is hard. But there are also many times when grace, large and small, covers and surrounds me...

Today I am honored to represent all of us as melanoma caregivers as a part of the Coolibar This Is Brave campaign. Purchase of Coolibar's Be Brave shirts...