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Update on cause of body shape changes
I was very grateful to everyone for their advice on my last post regarding. Weight gain / moonface / body changes and have taken the advice on board. @Heron mentioned checking with Dr which stroke a chord with me and hit me thinking that this strange shape ( protruding abdomen) might be something else
I was very grateful to everyone for their advice on my last post regarding. Weight gain / moonface / body changes and have taken the advice on board. @Heron mentioned checking with Dr which stroke a chord with me and hit me thinking that this strange shape ( protruding abdomen) might be something else
Phoenix51
in
PMRGCAuk
3 years ago
Pelvic fracture
Finally have an answer (unhappily) to my groin pain. I have a left hip labral tear and a left inferior pubic ramus fracture. I knew something serious was happening but 2 drs. just said go to physical therapy. The third dr. finally ran an MRI (which was very painful in and of itself.) I had been asking
Finally have an answer (unhappily) to my groin pain. I have a left hip labral tear and a left inferior pubic ramus fracture. I knew something serious was happening but 2 drs. just said go to physical therapy. The third dr. finally ran an MRI (which was very painful in and of itself.) I had been asking
Linny3
in
PMRGCAuk
3 years ago
I am stuck, pudendal neuralgia caused by internal problem
I am on here as I am losing hope. This is so so so tiring. I cannot cope and feel suicidal. I am begging doctors for help, they won't listen. I have pudendal neuralgia, I have done pelvic floor physical therapy to no avail. I cannot put pressure on my abdomen and have left sided vulval swelling. I cannot
I am on here as I am losing hope. This is so so so tiring. I cannot cope and feel suicidal. I am begging doctors for help, they won't listen. I have pudendal neuralgia, I have done pelvic floor physical therapy to no avail. I cannot put pressure on my abdomen and have left sided vulval swelling. I cannot
Wewillgetbetter
in
Pelvic Pain Support Network
3 years ago
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Turned down for PIP, even though I was previously getting it for the last 7 years!
So I was getting PIP with a mobility score of 10 out of 12, but then had a telephonic review and had sent off all my evidence showing that my FM and osteoarthritis is getting worse. However, the result of this review came back with a score of ZERO!! Can anyone tell me what they're playing at at the DWP
So I was getting PIP with a mobility score of 10 out of 12, but then had a telephonic review and had sent off all my evidence showing that my FM and osteoarthritis is getting worse. However, the result of this review came back with a score of ZERO!! Can anyone tell me what they're playing at at the DWP
MissyCat
in
Fibromyalgia Action UK
3 years ago
Just another blip in the road.
Warning long post! Hi, hope everyone is well. This So here I approach my 1 year on Benra anniversary. It hasn’t been a smooth ride that’s for sure, and the ride leading up to it was incredibly bumpy. But with the current situation I have had lots of time to reflect a celebrate the milestones, no
Warning long post! Hi, hope everyone is well. This So here I approach my 1 year on Benra anniversary. It hasn’t been a smooth ride that’s for sure, and the ride leading up to it was incredibly bumpy. But with the current situation I have had lots of time to reflect a celebrate the milestones, no
HoppyNurse
in
Asthma Community Forum
3 years ago
Anyone recognise these symptoms?
My present situation is one of great despair and isolation. I am a 50 yr old female, am currently housebound, for a year now and unable to work due to my ever mysterious symptoms, I live on my own and have had to close my business and rely on daily help from my elderly parents. I have no support from
My present situation is one of great despair and isolation. I am a 50 yr old female, am currently housebound, for a year now and unable to work due to my ever mysterious symptoms, I live on my own and have had to close my business and rely on daily help from my elderly parents. I have no support from
Verysorelegs
in
The UK Mastocytosis Support Group
3 years ago
Any experiences from COVID ICU patients in their 70s? We seem to have a small window left.
My dad’s symptoms started Boxing Day, in hospital since Jan 5th. His oxygen requirements kept going up and up until he had to go on a ventilator on Jan 19th. He had a stroke a 4 months ago and had an operation to remove a blocked section of artery in his neck, but was making good recovery in regaining
My dad’s symptoms started Boxing Day, in hospital since Jan 5th. His oxygen requirements kept going up and up until he had to go on a ventilator on Jan 19th. He had a stroke a 4 months ago and had an operation to remove a blocked section of artery in his neck, but was making good recovery in regaining
Hidden
in
ICUsteps
3 years ago
Who would have thought a year ago that I'd miss running?
Thought I had a hamstring injury (incurred 5 weeks ago, worsened 3 weeks ago, so no running since then). No such luck. Worn out meniscus is the likely culprit according to the physio (there's probably been a piece floating in there since 1981, causing my knee to lock when I kneel or squat) resulting
Thought I had a hamstring injury (incurred 5 weeks ago, worsened 3 weeks ago, so no running since then). No such luck. Worn out meniscus is the likely culprit according to the physio (there's probably been a piece floating in there since 1981, causing my knee to lock when I kneel or squat) resulting
WeavingWonk
Graduate10
in
Bridge to 10K
3 years ago
Start again....????
I injured myself two weeks ago on W6R2...(swollen inner ankle, pain). I haven’t ran since and have been doing some daily exercises recommended to me by a physio. Swelling is gone, pain is gone, but can still feel a very slight niggling/discomfort at times, like a reminder that something was wrong! So
I injured myself two weeks ago on W6R2...(swollen inner ankle, pain). I haven’t ran since and have been doing some daily exercises recommended to me by a physio. Swelling is gone, pain is gone, but can still feel a very slight niggling/discomfort at times, like a reminder that something was wrong! So
Jane46a
in
Couch to 5K
3 years ago
Back pain
Hi, I am currently waiting on blood test results to see if I have ET. I'm 42 and have had consistently raised platelets since 2017 raining from 450 to 600. I also have recently been diagnosed with a form of lupus which effects the skin. Since before Xmas I have been suffering from back pain which goes
Hi, I am currently waiting on blood test results to see if I have ET. I'm 42 and have had consistently raised platelets since 2017 raining from 450 to 600. I also have recently been diagnosed with a form of lupus which effects the skin. Since before Xmas I have been suffering from back pain which goes
106776
in
MPN Voice
3 years ago
New here
Hi all, My grandfather was diagnosed with MSA almost 3 years ago. At the age of 65. He has since became progressively worse, he is currently in hospital after having covid. In the hospital, doctors are treating him with physio as covid did make him lose more power in his legs. We think they are thinking
Hi all, My grandfather was diagnosed with MSA almost 3 years ago. At the age of 65. He has since became progressively worse, he is currently in hospital after having covid. In the hospital, doctors are treating him with physio as covid did make him lose more power in his legs. We think they are thinking
Lm12345
in
Multiple System Atrophy Trust
3 years ago
Jaw Popping
Well, I finally went to physio and he is working on my jaw. I told him I basically hurt all over but Rhemy says it is OA. He thinks it could be myophasia and I keep thinking what next? I have been off pred for three months now and the only comment he made regarding medications was he is glad I am off
Well, I finally went to physio and he is working on my jaw. I told him I basically hurt all over but Rhemy says it is OA. He thinks it could be myophasia and I keep thinking what next? I have been off pred for three months now and the only comment he made regarding medications was he is glad I am off
Robinsnest72
in
PMRGCAuk
3 years ago
ENT and infections.
Hi I wrote a post recently about Temperomandibular issues. This is a follow up and may be interesting for people with ENT issues. I had jaw and ear pains, balance and spatial awareness issues immediately following a TBI. There were other issues that got resolved with treatment for various physio and
Hi I wrote a post recently about Temperomandibular issues. This is a follow up and may be interesting for people with ENT issues. I had jaw and ear pains, balance and spatial awareness issues immediately following a TBI. There were other issues that got resolved with treatment for various physio and
pinkvision
in
Headway
3 years ago
PMR gone or has it?
So after just over 2 years since diagnosis and the usual bumps I eventually tapered to zero pred last November. The PMR symptoms I started with have gone but I’m now dealing with an acute issue in the left shoulder. I saw a specialist and had MRI scans which showed inflammation in the tendon that runs
So after just over 2 years since diagnosis and the usual bumps I eventually tapered to zero pred last November. The PMR symptoms I started with have gone but I’m now dealing with an acute issue in the left shoulder. I saw a specialist and had MRI scans which showed inflammation in the tendon that runs
Mikeysaab
in
PMRGCAuk
3 years ago
Secondary pneumonia- post covid/ventilator
Hi everyone, My dad is off the vent and off sedation. He is breathing on his own but still in the hospital. However, today they said his breathing was a bit laboured. They also said his white blood count was low. They are suspecting secondary bacterial pneumonia. They have already started treating it
Hi everyone, My dad is off the vent and off sedation. He is breathing on his own but still in the hospital. However, today they said his breathing was a bit laboured. They also said his white blood count was low. They are suspecting secondary bacterial pneumonia. They have already started treating it
Ren2985
in
ICUsteps
3 years ago
Can I have help please with tapering?
Had face to face with rheumy today. Diagnosed six weeks ago and prescribed 7.5mgs Prednisolone daily. My main concern was GCA, the headaches, shoulder and arm pain, but he seems to have ruled this out because the ultrasound did not show any signs of inflammation!! I have felt better these last few
Had face to face with rheumy today. Diagnosed six weeks ago and prescribed 7.5mgs Prednisolone daily. My main concern was GCA, the headaches, shoulder and arm pain, but he seems to have ruled this out because the ultrasound did not show any signs of inflammation!! I have felt better these last few
merril
in
PMRGCAuk
3 years ago
Update on mum who is ventilated for 63days
Am pleased to say that my mum has been making progress. She still has the tracheostomy on, however she had done 12 hours ventilator free breathing yesterday, she handled it well and reached her target. Her target today is to reach 24 hour ventilator free breathing. She sat on a chair as part of her physio
Am pleased to say that my mum has been making progress. She still has the tracheostomy on, however she had done 12 hours ventilator free breathing yesterday, she handled it well and reached her target. Her target today is to reach 24 hour ventilator free breathing. She sat on a chair as part of her physio
Anuur44
in
ICUsteps
3 years ago
Pain aches interferon
Hi I recently started on interferon switching from Hydrea. I have ET. Since starting interferon l have been having on -going leg pain ( hip and shins) not all the time. First in my left leg then in the right. Wandered if anyone else has had the same. I take paracetamol which helps. But it’s been
Hi I recently started on interferon switching from Hydrea. I have ET. Since starting interferon l have been having on -going leg pain ( hip and shins) not all the time. First in my left leg then in the right. Wandered if anyone else has had the same. I take paracetamol which helps. But it’s been
Dovme
in
Fight MPN
3 years ago
Steroid withdrawal or PMR (undiagnosed) ?
I have been reducing Pred over last 12 months - diagnosed with GCA January 20. Not been very successful until dr added in MMF which seems to have helped me get to my current dose which is 12.5 alternate days with 10mg. The good news is I haven’t had my usual GCA flare with head pain etc but I have been
I have been reducing Pred over last 12 months - diagnosed with GCA January 20. Not been very successful until dr added in MMF which seems to have helped me get to my current dose which is 12.5 alternate days with 10mg. The good news is I haven’t had my usual GCA flare with head pain etc but I have been
Phoenix51
in
PMRGCAuk
3 years ago
Feeling upset with rheumy
Hi everyone. I'm feeling like my rheumy is just ignoring my pleas when I'm telling him about my pain and fatigue. Had some bloods done last week. I had to chase him up today with the results. And this is the response I got (see attached photos)I feel like I need a little boost of something to help me
Hi everyone. I'm feeling like my rheumy is just ignoring my pleas when I'm telling him about my pain and fatigue. Had some bloods done last week. I had to chase him up today with the results. And this is the response I got (see attached photos)I feel like I need a little boost of something to help me
heda123
in
LUPUS UK
3 years ago
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