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Peroxisomal acyl-CoA oxidase deficiency
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Pain Relief??!!
Hi all, I came off my period on Tuesday but since yesterday I’ve had such horrendous back pain, the bottom of my back is really sore even to touch, and I have sciatic pain all the way down from the bum to my thighs. I’m on Naproxen and co-codamol but nothing is touching the pain. A hot water bottle
Hi all, I came off my period on Tuesday but since yesterday I’ve had such horrendous back pain, the bottom of my back is really sore even to touch, and I have sciatic pain all the way down from the bum to my thighs. I’m on Naproxen and co-codamol but nothing is touching the pain. A hot water bottle
Louboo78
in
Endometriosis UK
6 years ago
Pain medication/ help
Hi all, First post. I’ve had RA for 15 years now (I’m 36). Have so far tried cimzia, humira, Benepali, rituximab and tox infusions - some worked for a short while, some not at all. I have been on prednisolone since I was diagnosed at varying doses - sometimes as low as 1mg a day but currently on 10mg
Hi all, First post. I’ve had RA for 15 years now (I’m 36). Have so far tried cimzia, humira, Benepali, rituximab and tox infusions - some worked for a short while, some not at all. I have been on prednisolone since I was diagnosed at varying doses - sometimes as low as 1mg a day but currently on 10mg
Bizzita
in
NRAS
6 years ago
Do FBC results show a full picture of iron?
Please could I ask your advice on my FBC results as my GP said my iron levels are fine and has never suggested any other iron related tests? Red blood cell count 0.2 (no range) Haemoglobin 133 (115-164) Haematocrit 0.4 (0.36-0.47) (Platelets and white cell count - both at the very low end of ranges,
Please could I ask your advice on my FBC results as my GP said my iron levels are fine and has never suggested any other iron related tests? Red blood cell count 0.2 (no range) Haemoglobin 133 (115-164) Haematocrit 0.4 (0.36-0.47) (Platelets and white cell count - both at the very low end of ranges,
advoash
in
Thyroid UK
6 years ago
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Krill oil anyone? Interesting research to start for Lupus SLE
Hi all http://lupusnewstoday.com/2018/08/29/new-trial-assessing-potential-krill-oil-ease-lupus-symptoms/ However the participants in the trial will be those who eat seafood two or less times a month(?!), so will probably show an improvement anyway... as shown in this 2016 article: http://lupusnewstoday.com
Hi all http://lupusnewstoday.com/2018/08/29/new-trial-assessing-potential-krill-oil-ease-lupus-symptoms/ However the participants in the trial will be those who eat seafood two or less times a month(?!), so will probably show an improvement anyway... as shown in this 2016 article: http://lupusnewstoday.com
DJK99
in
LUPUS UK
6 years ago
Low ferritin - Do I need to supplement?
Both my Endo and GP do not see a cause for concern, but I thought a balanced ferritin level was essential for production of thyroid hormones? They say my stores are fine. Any thoughts would be much appreciated x 30 Apr Serum ferritin 18 ug/l Range 13-150 Serum transferritin 3 g/l Range 2-3.6 g/L Serum
Both my Endo and GP do not see a cause for concern, but I thought a balanced ferritin level was essential for production of thyroid hormones? They say my stores are fine. Any thoughts would be much appreciated x 30 Apr Serum ferritin 18 ug/l Range 13-150 Serum transferritin 3 g/l Range 2-3.6 g/L Serum
HypoCrazy
in
Thyroid UK
6 years ago
17 weeks and baby movements
Hi! I am 17 weeks and 5 days and had been feeling the baby 'move/flutter' since I was about 11/12 weeks on and off. My pregnancy has so far been good, no complications, but 2 days ago I had kidney stones and the doctor at A&E prescribed co-codamol. I took one, then looked closer and it's not advised
Hi! I am 17 weeks and 5 days and had been feeling the baby 'move/flutter' since I was about 11/12 weeks on and off. My pregnancy has so far been good, no complications, but 2 days ago I had kidney stones and the doctor at A&E prescribed co-codamol. I took one, then looked closer and it's not advised
ncroud89
in
Pregnancy and Parenting Support
6 years ago
Once upon a time....
This post outlines how my diagnosis came about and why I’m feeling a little more positive. I’d been ‘unwell’ for a while, backwards and forwards to the GP with various symptoms that collectively were having a real impact on my life. First, I was told it was pernicious anaemia. That was some time
This post outlines how my diagnosis came about and why I’m feeling a little more positive. I’d been ‘unwell’ for a while, backwards and forwards to the GP with various symptoms that collectively were having a real impact on my life. First, I was told it was pernicious anaemia. That was some time
Paula-kent
in
PMRGCAuk
6 years ago
Venetoclax and ibrutinib trial
Hello, I’m on month 19 of a 26 month trial taking Venetoclax & ibrutinib plus aciclovir, co-trimoxazole, lansoprazole & allopurinol to counteract side effects caused by the Venetoclax & ibrutinib. My last consultation shows no evidence of CLL anywhere. This is great news but I’m thinking why I should
Hello, I’m on month 19 of a 26 month trial taking Venetoclax & ibrutinib plus aciclovir, co-trimoxazole, lansoprazole & allopurinol to counteract side effects caused by the Venetoclax & ibrutinib. My last consultation shows no evidence of CLL anywhere. This is great news but I’m thinking why I should
Mick5329
in
CLL Support
6 years ago
Mini pill and thyroxine
I’ve just had a nightmare at the doctors, left so upset and literally not getting anywhere. Anyway.... my question is I’m on the mini pill Desogestrel but since taking it I’ve had lots of hypo symptoms which seem to be getting worse and wondered if it could be the pill causing this? The dr won’t increase
I’ve just had a nightmare at the doctors, left so upset and literally not getting anywhere. Anyway.... my question is I’m on the mini pill Desogestrel but since taking it I’ve had lots of hypo symptoms which seem to be getting worse and wondered if it could be the pill causing this? The dr won’t increase
Rachael3000
in
Thyroid UK
6 years ago
How can someone receive iv iron infusion with only 0.5 increase in hb ...pregnant woman 32 years
Iron profile after infusion shows everything within normal range except for high transferrin (I guess it increased from the infusion) haemoglobin was 8.4 now after a month of iv therapy with sucrose iron it's only 8.9
Iron profile after infusion shows everything within normal range except for high transferrin (I guess it increased from the infusion) haemoglobin was 8.4 now after a month of iv therapy with sucrose iron it's only 8.9
z_sidrak
in
Thyroid UK
6 years ago
how to get an IV iron infusion
My Ferritin level is 29.7. I know that I need to get it up to 100-350 range and the best possibly only way to get my levels up that high is an IV iron infusion. Even though I've explained the situation that RLS suffers needed higher levels, and just how hard it can be to obtain those levels with oral
My Ferritin level is 29.7. I know that I need to get it up to 100-350 range and the best possibly only way to get my levels up that high is an IV iron infusion. Even though I've explained the situation that RLS suffers needed higher levels, and just how hard it can be to obtain those levels with oral
RLSgirl
in
Restless Legs Syndrome
6 years ago
Pains in right thigh and hip, i.e. not bilateral, as well as usual, although not too severe, PMR symptoms.
I've been slowly tapering down to 5 mg. for the last couple of weeks (diagnosed Oct 2016). I'm not feeling too good with it but this maybe due to withdrawal symptoms. However I've had pains in my right thigh and hip for about 6 weeks now which get worse when I get up after sitting a while or when I walk
I've been slowly tapering down to 5 mg. for the last couple of weeks (diagnosed Oct 2016). I'm not feeling too good with it but this maybe due to withdrawal symptoms. However I've had pains in my right thigh and hip for about 6 weeks now which get worse when I get up after sitting a while or when I walk
Joan-E-D
in
PMRGCAuk
6 years ago
Tens Machines?!?
Hi all, I’m at the end of my tether with pain relief. Nothing seems to work very well. Currently on Naproxen and Co-codamol at night but they simply take the edge off the pain. I can’t take anything stronger cause I have to function, work and have 2 kids!! Has anyone used a tens machine for pain relief
Hi all, I’m at the end of my tether with pain relief. Nothing seems to work very well. Currently on Naproxen and Co-codamol at night but they simply take the edge off the pain. I can’t take anything stronger cause I have to function, work and have 2 kids!! Has anyone used a tens machine for pain relief
Chelsea1980
in
Endometriosis UK
6 years ago
Hypothyroid - low serum iron and saturation, but normal Ferritin
I am hypothyroid and already have a post about what I'm doing: https://healthunlocked.com/thyroiduk/posts/138590346/high-tsh-with-high-ft3-blood-test-with-t3-only-supplementation?responses=138592416 In this post I would like to ask a separate question around my iron panel. My iron panel and optimal results
I am hypothyroid and already have a post about what I'm doing: https://healthunlocked.com/thyroiduk/posts/138590346/high-tsh-with-high-ft3-blood-test-with-t3-only-supplementation?responses=138592416 In this post I would like to ask a separate question around my iron panel. My iron panel and optimal results
ak_83
in
Thyroid UK
6 years ago
Need help with best type of iron supplement and suggested dosage for addressing low ferritin. Are MCHC levels in blood tests important?
I have posted here once and had one reply but I still need advice about iron and would be grateful if anyone could help. I now realise my ferritin has been consistently low since 2015. (Not looked at earlier results). I understand from various posts on here that this should be in the upper part of the
I have posted here once and had one reply but I still need advice about iron and would be grateful if anyone could help. I now realise my ferritin has been consistently low since 2015. (Not looked at earlier results). I understand from various posts on here that this should be in the upper part of the
Pipricho
in
Thyroid UK
6 years ago
New diagnosis travel plans
My husband has recently been diagnosed with RA and is on methotrexate 15mgs weekly which he has been taking for 6 weeks and prednisolone 15 mgs daily. In addition to this he is needing co codamol to help with the pain. We have a holiday booked to Mauritius in mid October . We have just come back from
My husband has recently been diagnosed with RA and is on methotrexate 15mgs weekly which he has been taking for 6 weeks and prednisolone 15 mgs daily. In addition to this he is needing co codamol to help with the pain. We have a holiday booked to Mauritius in mid October . We have just come back from
Wildmoose
in
NRAS
6 years ago
Iron in all its forms.
This description of the various forms of iron came up in an answer on the Iron Disorders Institute email forum. I have got permission from the poster to share on this site. Hopefully it will clarify some of the mystery about the whole iron situations in our bodies. "Serum Iron - circulating iron, subject
This description of the various forms of iron came up in an answer on the Iron Disorders Institute email forum. I have got permission from the poster to share on this site. Hopefully it will clarify some of the mystery about the whole iron situations in our bodies. "Serum Iron - circulating iron, subject
Madlegs1
in
Restless Legs Syndrome
6 years ago
Celiac- prescription iron meds🌟(just posted this on gf gorillas &thought someone here could help too).
Hi there its been ages since I last posted anything but here goes- I have been supplementing since January with a iron supplement called floravital which is gluten free and soya free but being I am very iron deficient it is not been lifting my levels, I have now been referred to haem/GI. I have gp appt
Hi there its been ages since I last posted anything but here goes- I have been supplementing since January with a iron supplement called floravital which is gluten free and soya free but being I am very iron deficient it is not been lifting my levels, I have now been referred to haem/GI. I have gp appt
Rmichelle
in
Thyroid UK
6 years ago
Celiac- prescription iron meds😁
Hi there its been ages since I last posted anything but here goes- I have been supplementing since January with a iron supplement called floravital which is gluten free and soya free but being I am very iron deficient it is not been lifting my levels, I have now been referred to haem/GI. I have gp appt
Hi there its been ages since I last posted anything but here goes- I have been supplementing since January with a iron supplement called floravital which is gluten free and soya free but being I am very iron deficient it is not been lifting my levels, I have now been referred to haem/GI. I have gp appt
Rmichelle
in
Gluten Free Guerrillas
6 years ago
Any ideas?
Hi new to this group! I have recenently been reading up on Fibromyalgia and a lot of the symptoms resonated with things that have been going on with my over the past 2 and a half years. I was wondering if this sounds like Fibromyalgia and I should talk to GP about it. I am 20 year old who’s health
Hi new to this group! I have recenently been reading up on Fibromyalgia and a lot of the symptoms resonated with things that have been going on with my over the past 2 and a half years. I was wondering if this sounds like Fibromyalgia and I should talk to GP about it. I am 20 year old who’s health
logan97
in
Fibromyalgia Action UK
6 years ago
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