My Ferritin level is 29.7. I know that I need to get it up to 100-350 range and the best possibly only way to get my levels up that high is an IV iron infusion.
Even though I've explained the situation that RLS suffers needed higher levels, and just how hard it can be to obtain those levels with oral iron, my doctor just doesn't get it. and won't give me iv iron. She wants me to take oral iron for a couple months and re-asses. meanwhile I have to continue to suffer.
She also mentioned that it would be very difficult/ impossible to get insurance to cover an IV iron infusion.
how does one go about getting a doctor to give you an IV iron infusion and is there a trick to get insurance to cover it?
RLSgirl it might be a good idea to give oral iron a try first. A few of us on here are quite lucky and actually get nightly relief from the RLS by taking a tablet or two of ferrous bisglycinate (I buy Gentle Iron from Amazon) on an empty stomach about an hour before bed. Then there are several people on here who have been taking oral iron on a regular basis and found that in the long run it has helped them. And some it does nothing. Since you recently checked your iron levels and they are quite low for someone with RLS it is unlikely you will suffer from iron poisoning by doing a trial run of the recommended dose. For the price of $10 you can find out if your RLS is responsive to iron supplementation. I won't be without it.