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Experiences with
Myalgic encephalomyelitis
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Hi! I'm new here, and looking for some advice about Hypothyroidism.
I'm 25, and was diagnosed with ME (
Myalgic
Encephalomyelitis
) / CFS (Chronic Fatigue Syndrome), Depression and Anxiety at the age of 12/13.
I'm 25, and was diagnosed with ME (
Myalgic
Encephalomyelitis
) / CFS (Chronic Fatigue Syndrome), Depression and Anxiety at the age of 12/13.
Lavender_Dreams
in
Thyroid UK
8 years ago
ME Report by Healthwatch Trafford
A revealing new report released today by Healthwatch Trafford shows the findings of a survey of people with
Myalgic
Encephalomyelitis
(ME), also known as Chronic Fatigue Syndrome(CFS), to find out what their experience of the NHS was like.
A revealing new report released today by Healthwatch Trafford shows the findings of a survey of people with
Myalgic
Encephalomyelitis
(ME), also known as Chronic Fatigue Syndrome(CFS), to find out what their experience of the NHS was like.
lynmynott
Thyroid UK
in
Thyroid UK
8 years ago
Metabolic Switch
Also known as ME or
myalgic
encephalomyelitis
, CFS affects some 250,000 people in the UK. The main symptom is persistent physical and mental exhaustion that doesn’t improve with sleep or rest. It often begins after a mild infection, but its causes are unknown.
Also known as ME or
myalgic
encephalomyelitis
, CFS affects some 250,000 people in the UK. The main symptom is persistent physical and mental exhaustion that doesn’t improve with sleep or rest. It often begins after a mild infection, but its causes are unknown.
CheshireKatz
in
Ramsays Disease
8 years ago
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A must watch video
Five years ago, TED Fellow Jennifer Brea became progressively ill with
myalgic
encephalomyelitis
, commonly known as chronic fatigue syndrome, a debilitating illness that severely impairs normal activities and on bad days makes even the rustling of bed sheets unbearable.
Five years ago, TED Fellow Jennifer Brea became progressively ill with
myalgic
encephalomyelitis
, commonly known as chronic fatigue syndrome, a debilitating illness that severely impairs normal activities and on bad days makes even the rustling of bed sheets unbearable.
Effort
in
EDMESH
8 years ago
Research Funding
However, the burden of disease has not been quantified for
myalgic
encephalomyelitis
, also called chronic fatigue syndrome (ME/CFS) and is often underestimated due to a lack of research and the misperceptions about the nature of the disease.
However, the burden of disease has not been quantified for
myalgic
encephalomyelitis
, also called chronic fatigue syndrome (ME/CFS) and is often underestimated due to a lack of research and the misperceptions about the nature of the disease.
readerlist
in
Ramsays Disease
8 years ago
why is it still so poorly understood?
Very powerful article that asks some very important questions about the medical politics surrounding
myalgic
encephalomyelitis
. https://www.opendemocracy.net/naomi-whittingham/severe-me-left-me-in-world-of-pain-and-darkness-26-years-on-why-is-it-still-poorly-understood
Very powerful article that asks some very important questions about the medical politics surrounding
myalgic
encephalomyelitis
. https://www.opendemocracy.net/naomi-whittingham/severe-me-left-me-in-world-of-pain-and-darkness-26-years-on-why-is-it-still-poorly-understood
Theresa60
in
Ramsays Disease
8 years ago
CDC Grand Rounds
A variety of other names have been used, including
myalgic
encephalomyelitis
(ME), ME/CFS, chronic fatigue immune dysfunction, and most recently, systemic exertion intolerance disease (3).
A variety of other names have been used, including
myalgic
encephalomyelitis
(ME), ME/CFS, chronic fatigue immune dysfunction, and most recently, systemic exertion intolerance disease (3).
Halflife
in
Ramsays Disease
8 years ago
Microgenderome
Our recent research inferred support for the microgenderome by showing sex differences in microbiota-symptom associations in a clinical sample of patients with
myalgic
encephalomyelitis
/ chronic fatigue syndrome (ME/CFS).
Our recent research inferred support for the microgenderome by showing sex differences in microbiota-symptom associations in a clinical sample of patients with
myalgic
encephalomyelitis
/ chronic fatigue syndrome (ME/CFS).
readerlist
in
Ramsays Disease
8 years ago
For All Autoimmuner's: FREE 7-Part Documentary with Tom O'Bryan
threads/betrayal-series-the-autoimmune-disease-solution.47862/ [*
Myalgic
Encephalomyelitis
/ Chronic Fatigue Syndrome (ME/CFS) ] _______ 📹 Functional (Medicine) Forum videos: https://m.youtube.com/channel/UCNDkjwTcB4EHrlnShoMAK3Q
Functional/ Integrative Medicine Forum (Sept. 2016)
(James Maskell
threads/betrayal-series-the-autoimmune-disease-solution.47862/ [*
Myalgic
Encephalomyelitis
/ Chronic Fatigue Syndrome (ME/CFS) ] _______ 📹 Functional (Medicine) Forum videos: https://m.youtube.com/channel/UCNDkjwTcB4EHrlnShoMAK3Q
Functional/ Integrative Medicine Forum (Sept. 2016)
(James Maskell
Kai--
in
NRAS
8 years ago
Oh so tired
Probably just being over the top, but once again I am feeling very tired and unable to concentrate, has anyone ever thought they may have
Myalgic
Encephalomyelitis
? (Chronic Fatigue Syndrome) someone at work mentioned it to me the other day?
Probably just being over the top, but once again I am feeling very tired and unable to concentrate, has anyone ever thought they may have
Myalgic
Encephalomyelitis
? (Chronic Fatigue Syndrome) someone at work mentioned it to me the other day?
Sandy1710
in
Anxiety Support
8 years ago
Change the World Health Organisation classification of Fibromyalgia to Neurological
#Fibromyalgia has been reported for a long time to be a Neurological illness in fact as it has synonymous symptoms as
Myalgic
Encephalomyelitis
who already have a Neurological World Health Classification of Neurological it's not at all surprising to us!
#Fibromyalgia has been reported for a long time to be a Neurological illness in fact as it has synonymous symptoms as
Myalgic
Encephalomyelitis
who already have a Neurological World Health Classification of Neurological it's not at all surprising to us!
Admin_AFMCG
Administrator
in
Andover Fibromyalgia & ME Community Group
8 years ago
Advice on bloods
Advice on results from endo, tsh 1.74, ft4 16.4, ft3 4.7, been on levothyroxine at 100mcg since may 17 diagnosed on my birthday 🎂, I was severe undiagnosed for two years with lots on doctors appointments, when they did do the thyroid blood test again my tsh was 100, ft4 unmeasurable, I still feel
Advice on results from endo, tsh 1.74, ft4 16.4, ft3 4.7, been on levothyroxine at 100mcg since may 17 diagnosed on my birthday 🎂, I was severe undiagnosed for two years with lots on doctors appointments, when they did do the thyroid blood test again my tsh was 100, ft4 unmeasurable, I still feel
Nataliefahey
in
Thyroid UK
8 years ago
Chapter 7 - ONE OF THE WORST DISASTERS in the history of medicine is the endocrinology specialty’s modern guidelines
Many are outraged at endocrinologists’ arrogant dismissal of their continuing symptoms as features of mysterious “new diseases” such as fibromyalgia, chronic fatigue syndrome, or
myalgic
encephalomyelitis
(ME).
Many are outraged at endocrinologists’ arrogant dismissal of their continuing symptoms as features of mysterious “new diseases” such as fibromyalgia, chronic fatigue syndrome, or
myalgic
encephalomyelitis
(ME).
shaws
Administrator
in
Thyroid UK
8 years ago
Microbiota and Virome
Myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS) is a heterogeneous disorder of significant societal impact that is proposed to involve both host and environmentally derived aetiologies that may be autoimmune in nature.
Myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS) is a heterogeneous disorder of significant societal impact that is proposed to involve both host and environmentally derived aetiologies that may be autoimmune in nature.
readerlist
in
Ramsays Disease
8 years ago
Epidemiology
No epidemiological investigations have previously been conducted in Australia according to the current clinical definitions of chronic fatigue syndrome/
myalgic
encephalomyelitis
(CFS/ME).
No epidemiological investigations have previously been conducted in Australia according to the current clinical definitions of chronic fatigue syndrome/
myalgic
encephalomyelitis
(CFS/ME).
readerlist
in
Ramsays Disease
8 years ago
(Ireland) 4 free Screenings of Forgotten Plague Documentary about ME/CFS during May, ME/CFS Awareness Month
The Irish ME/CFS Association is pleased to announce that it has arranged for four free screenings of the documentary on
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS), Forgotten Plague, in various venues around Ireland during May, ME/CFS Awareness Month: - Limerick: South Court Hotel.
The Irish ME/CFS Association is pleased to announce that it has arranged for four free screenings of the documentary on
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS), Forgotten Plague, in various venues around Ireland during May, ME/CFS Awareness Month: - Limerick: South Court Hotel.
IrishGuy5
in
Myalgic Encephalomyelitis Community
8 years ago
Tramadol
Hi still taking my magnesium with malic acid was great at first with pain and sleep but like all drugs for me they stop working or make things worst, Had to up co codamol and back to zopiclone to get some sleep but only use rarely. what I would like to know is how good tramadol is do you need to keep
Hi still taking my magnesium with malic acid was great at first with pain and sleep but like all drugs for me they stop working or make things worst, Had to up co codamol and back to zopiclone to get some sleep but only use rarely. what I would like to know is how good tramadol is do you need to keep
frances1
in
Restless Legs Syndrome
8 years ago
Rintatolimod
Chronic fatigue syndrome/
Myalgic
encephalomyelitis
(CFS/ME) is a poorly understood seriously debilitating disorder in which disabling fatigue is an universal symptom in combination with a variety of variable symptoms.
Chronic fatigue syndrome/
Myalgic
encephalomyelitis
(CFS/ME) is a poorly understood seriously debilitating disorder in which disabling fatigue is an universal symptom in combination with a variety of variable symptoms.
Babylon5
in
Ramsays Disease
8 years ago
Fibromyalgia Syndrome (FmS) A condition with symptoms overlaping other disorders like Chronic Fatigue Syndrome & Myalgic Encephalomyelitis..
When some asks me how does fibromyalgia effect me I find it is easier to send this picture rather than type up all the symptoms... Feel free to use it if you wish... God bless :)
When some asks me how does fibromyalgia effect me I find it is easier to send this picture rather than type up all the symptoms... Feel free to use it if you wish... God bless :)
Hidden
in
Fibromyalgia Action UK
8 years ago
ADVISE PLEASE
Hi been reading fibro posts and not sure if I might have this, It started TMJ pain in the jaws next pain in neck and shoulders spondylitis, I have IBS and now RLS pain in legs day and night hip and sometimes torso, Feet burn up could they all be linked, doctor said all fibro means they do not know what
Hi been reading fibro posts and not sure if I might have this, It started TMJ pain in the jaws next pain in neck and shoulders spondylitis, I have IBS and now RLS pain in legs day and night hip and sometimes torso, Feet burn up could they all be linked, doctor said all fibro means they do not know what
frances1
in
Fibromyalgia Action UK
8 years ago
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