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Experiences with
Myalgic encephalomyelitis
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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected disease
[/u] [i]
Encephalomyelitis
/Chronic Fatigue Syndrome: the biology of a neglected disease[/i] [i]
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS) is a chronic, debilitating disease characterised by a wide range of symptoms that severely impact all aspects of life.
[/u] [i]
Encephalomyelitis
/Chronic Fatigue Syndrome: the biology of a neglected disease[/i] [i]
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS) is a chronic, debilitating disease characterised by a wide range of symptoms that severely impact all aspects of life.
helvella
Thyroid UK
in
Thyroid UK
4 months ago
Interesting Article On NHS Failings Re ME Care
The Guardian had a good article pointing out the flaws in the NHS treatment of ME patients. https://www.theguardian.com/society/article/2024/aug/09/what-is-me-
myalgic
-
encephalomyelitis
-nhs-criticised
The Guardian had a good article pointing out the flaws in the NHS treatment of ME patients. https://www.theguardian.com/society/article/2024/aug/09/what-is-me-
myalgic
-
encephalomyelitis
-nhs-criticised
Sparklingsunshine
in
Thyroid UK
2 months ago
Brain alterations with Chronic Fatigue
The physical therapist referenced an article about scientists recently finding what may be the physiological root of chronic fatigue and ME (
myalgic
encephalomyelitis
). Apparently there are signs of regulation alteration in parts of the brain in people with these syndromes.
The physical therapist referenced an article about scientists recently finding what may be the physiological root of chronic fatigue and ME (
myalgic
encephalomyelitis
). Apparently there are signs of regulation alteration in parts of the brain in people with these syndromes.
Cobalt1312
in
Pernicious Anaemia Society
7 months ago
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Found: the dial in the brain that controls the immune system
[/i] [i]Researchers have made a discovery, which, if it holds up, has the potential to transform treatments for autoimmune diseases and post-viral illness like long covid and
myalgic
encephalomyelitis
.
[/i] [i]Researchers have made a discovery, which, if it holds up, has the potential to transform treatments for autoimmune diseases and post-viral illness like long covid and
myalgic
encephalomyelitis
.
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Study offers clues as to how exhaustion could arise in people with ME/CFS—and potentially other conditions (like PMR/GCA?)
utm_source=Nature+Briefing&utm_campaign=662006700a-briefing-dy-20230814_COPY_01&utm_medium=email&utm_term=0_c9dfd39373-662006700a-47672252 People living with
myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS) struggle not only with extreme exhaustion and the cognitive problems known as brain
utm_source=Nature+Briefing&utm_campaign=662006700a-briefing-dy-20230814_COPY_01&utm_medium=email&utm_term=0_c9dfd39373-662006700a-47672252 People living with
myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS) struggle not only with extreme exhaustion and the cognitive problems known as brain
LIVEORDIEHEREIAM
in
PMRGCAuk
1 year ago
weather related flare
Having a bad one today. Thunderstorms and wind yesterday, more rain today. Headache and body pain. Took an arthritis Tylenol, magnesium and malic acid and it hasn’t subsided. ☹️. After I’ve had something to eat, I’ll take an Advil. 🤞😶🌫️
Having a bad one today. Thunderstorms and wind yesterday, more rain today. Headache and body pain. Took an arthritis Tylenol, magnesium and malic acid and it hasn’t subsided. ☹️. After I’ve had something to eat, I’ll take an Advil. 🤞😶🌫️
ratoncita
in
Fibromyalgia Action UK
1 month ago
School experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
A narrative inquiry into the school experiences of teenagers living with
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS)(Doctoral dissertation, University of Bristol).
A narrative inquiry into the school experiences of teenagers living with
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS)(Doctoral dissertation, University of Bristol).
theia
in
Myalgic Encephalomyelitis Community
1 year ago
Does the microbiome hold the key to chronic fatigue?
[/i] [i]In 2019, years after developing the
myalgic
encephalomyelitis
(ME/CFS) that had kept her bedridden in a state of chronic pain and exhaustion, Tamara Romanuk experienced something “miraculous”.
[/i] [i]In 2019, years after developing the
myalgic
encephalomyelitis
(ME/CFS) that had kept her bedridden in a state of chronic pain and exhaustion, Tamara Romanuk experienced something “miraculous”.
helvella
Thyroid UK
in
Thyroid UK
1 year ago
A life lived differently: an exploration of how living with CFS/ME impacts upon people's identity
See below: Murray, Rebecca E. (2016) A life lived differently: an exploration of how living with chronic fatigue syndrome/
myalgic
encephalomyelitis
(CFS/ME) impacts upon people's identity.
See below: Murray, Rebecca E. (2016) A life lived differently: an exploration of how living with chronic fatigue syndrome/
myalgic
encephalomyelitis
(CFS/ME) impacts upon people's identity.
theia
in
Myalgic Encephalomyelitis Community
2 years ago
Long-term experiences of managing Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (CFS/ME): A qualitative study
Long-term experiences of managing Chronic Fatigue Syndrome/
Myalgic
Encephalomyelitis
(CFS/ME): A qualitative study (Doctoral dissertation, University of the West of England) which you can find here: https://core.ac.uk/display/323895281?
Long-term experiences of managing Chronic Fatigue Syndrome/
Myalgic
Encephalomyelitis
(CFS/ME): A qualitative study (Doctoral dissertation, University of the West of England) which you can find here: https://core.ac.uk/display/323895281?
theia
in
Myalgic Encephalomyelitis Community
2 years ago
Are Urine tests for Thyroid problems available anywhere?
She wrote the following:- [i]
Encephalomyelitis
., M.E. to its sufferers.[/i] [i]
The continuing story of a recovery
[/i] [i]Dear Reader[/i] [i]I want to let you know about a new treatment I have had for my M.E.
She wrote the following:- [i]
Encephalomyelitis
., M.E. to its sufferers.[/i] [i]
The continuing story of a recovery
[/i] [i]Dear Reader[/i] [i]I want to let you know about a new treatment I have had for my M.E.
Simonron
in
Thyroid UK
1 year ago
Should I tell GP I'm taking T3 on private prescription?
To further compound the story (and as some will know on here), I've had a formal diagnosis of '
Myalgic
Encephalomyelitis
' (ME/CFS) these past 5 yrs - and this means that GPs attitudes are far far worse. The illness can be caused by Hypothyroidism, but of ofcourse they do not accept that do they.
To further compound the story (and as some will know on here), I've had a formal diagnosis of '
Myalgic
Encephalomyelitis
' (ME/CFS) these past 5 yrs - and this means that GPs attitudes are far far worse. The illness can be caused by Hypothyroidism, but of ofcourse they do not accept that do they.
RhianR
in
Thyroid UK
1 year ago
Two important studies link ME/CFS to changes in the gut microbiome
Here is the web-link https://www.insideprecisionmedicine.com/topics/translational-research/microbiome/changes-in-gut-microbiome-associated-with-
myalgic
-
encephalomyelitis
-chronic-fatigue-syndrome/ The article may be a bit technical for some and not detailed enough for others.
Here is the web-link https://www.insideprecisionmedicine.com/topics/translational-research/microbiome/changes-in-gut-microbiome-associated-with-
myalgic
-
encephalomyelitis
-chronic-fatigue-syndrome/ The article may be a bit technical for some and not detailed enough for others.
bennevisplace
in
Myalgic Encephalomyelitis Community
2 years ago
Magnesium salts and RLS: malate, glycinate or citrate
Just following up on a recent post recommending magnesium malate for RLS, quoting recommendations made by Californian company Pure Biogenics in promoting their RLS supplement Seratame. Looking into this, experiments on rats suggested that malate may be the most bio-available form of magnesium; there
Just following up on a recent post recommending magnesium malate for RLS, quoting recommendations made by Californian company Pure Biogenics in promoting their RLS supplement Seratame. Looking into this, experiments on rats suggested that malate may be the most bio-available form of magnesium; there
ChrisColumbus
in
Restless Legs Syndrome
2 years ago
Addiction drug shows promise lifting long COVID brain fog, fatigue
The drug has been used with some success to treat a similar complex, post-infectious syndrome marked by cognitive deficits and overwhelming fatigue called
myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS). It is also on the short list of treatments to be tested in the U.S.
The drug has been used with some success to treat a similar complex, post-infectious syndrome marked by cognitive deficits and overwhelming fatigue called
myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS). It is also on the short list of treatments to be tested in the U.S.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
People of HU - Living with Irritable Bowel Syndrome
I began to wonder if this was really post-viral syndrome from some very unusual virus or a mild
myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS).
I began to wonder if this was really post-viral syndrome from some very unusual virus or a mild
myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS).
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
ME/CFS discussed in terms of thyroid dysfunction
an initial explanation for how
myalgic
encephalomyelitis
/ chronic fatigue syndrome (ME/CFS) could originate and perpetuate by drawing on findings from critical illness research.
an initial explanation for how
myalgic
encephalomyelitis
/ chronic fatigue syndrome (ME/CFS) could originate and perpetuate by drawing on findings from critical illness research.
diogenes
in
Thyroid UK
3 years ago
New info on exercise and breathing issues for some with Autoimmune afflictions
This study relates to exercise and breathing and indicates a delayed recovery for folks with
Myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS) and also Fibromyalgia. But this could be the case with Polymyalgia Rheumatica (PMR), too.
This study relates to exercise and breathing and indicates a delayed recovery for folks with
Myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS) and also Fibromyalgia. But this could be the case with Polymyalgia Rheumatica (PMR), too.
Greytree
in
PMRGCAuk
3 years ago
A review of ME/CFS syndrome and thyroid function
Theory: Treatments for Prolonged ICU Patients May Provide New Therapeutic Avenues for
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS)
May 2021Frontiers in Medicine 8:672370 Follow journal
DOI: 10.3389/fmed.2021.672370
Dominic Stanculescu, Lars Larsson, Jonas Bergquist
Theory: Treatments for Prolonged ICU Patients May Provide New Therapeutic Avenues for
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS)
May 2021Frontiers in Medicine 8:672370 Follow journal
DOI: 10.3389/fmed.2021.672370
Dominic Stanculescu, Lars Larsson, Jonas Bergquist
diogenes
in
Thyroid UK
3 years ago
Is there anyone with M.E. and CLL ?
is there anyone especially in the UK , with
Myalgic
Encephalomyelitis
. (M E ) and. CLL ? As you can see on my profile I was diagnosed with ME a long time ago and then in 2013 also with CLL.
is there anyone especially in the UK , with
Myalgic
Encephalomyelitis
. (M E ) and. CLL ? As you can see on my profile I was diagnosed with ME a long time ago and then in 2013 also with CLL.
Greencyclist
in
CLL Support
3 years ago
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