Chronic Fatigue Syndrome or ME - A Name Change To Ramsays Disease
Patients have long sought a change CFS...Read more
CheshireKatz19 hours ago
Some important questions which need urgent answers
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readerlist10 days ago
It is very important that researchers define exactly what a term such as "recovered" actually means beyond the ivory towers of academia wher...
4 Replies2 Likes
NIH Research Funding
Stormchaser18 days ago
Finally the centres that will be funded and just what they are researching is announced and with ten bids in for three spots some were alway...
2 Replies4 Likes
Theresa6022 days ago
Need signatures quickly as this petition will close on Wednesday 11 October at 5pm
We want to give everyone the opportunity to de...
12 Replies7 Likes
NIH Research Centers
Halflife23 days ago
The National Institutes of Health (NIH) will award four grants to establish a coordinated scientific research effort on myalgic encephalomye...
4 Replies1 Like
readerlista month ago
NICE guideline will be reviewed despite advice fro technical expert group that no review was necessary at this time....
11 Replies4 Likes
Ian123a month ago
The NHS provides psychiatric therapies for what it refers to as "CFS/ME". These therapies are often ineffective and sometimes make patients ...
13 Replies9 Likes
NICE Topic Experts
Efforta month ago
Freedom Of Information requests for anonymized reports are published on Phoenix Rising forums.phoenixrising.me/ind... and provide insights i...
3 Replies2 Likes
Cellular energy production
Halflifea month ago
Perhaps the most striking clue Davis has uncovered thus far is the ability of plasma from ME/CFS patients to make healthy controls’ cells lo...
Dr David Tuller examines ethical approval of a CFS paper an interesting read on how the wagons are circled when a threat is perceived.
2 Replies2 Likes
Evidence Based Medicine
readerlist2 months ago
An investigation of the research indicating effective and safe treatment protocols.
4 Replies5 Likes
Molecular Basis Symposium
Mistymooring2 months ago
Ron Davis, PhD, calls chronic fatigue syndrome (also known as myalgic encephalomyelitis, or ME/CFS) the “last major disease about which we k...
2 Replies3 Likes
CheshireKatz2 months ago
Invest in ME Research 2017 conference in a 16 page document written by Dr Sheperd of the MEA
Halflife2 months ago
CPET stressor on immune samples
2 Replies5 Likes
Ian1232 months ago
A flawed Dutch study that showed no benefits at long term follow up is to be funded at tax payers expense in the UK
3 Replies5 Likes
Preprint of new research which follows on from Mark VanNess / Workwell Foundation research into twenty four hour repeat CPET
4 Replies4 Likes
pandemic2 months ago
Gets the urgency because of his son Whitney and wants faster movement than waiting on validation in science journals brings....
Mistymooring3 months ago
Advances the evidence of cytokines causing some symptoms.
4 Replies6 Likes
readerlist3 months ago
A Special Issue of the Journal of Health Psychology on the PACE Trial, is to be published and freely available online on Monday 31 July 2017...
Halflife3 months ago
The intramural ME/CFS study at NIH Maryland
Further PACE Commentary
Refuting the assertion of PACE trial authors that a series of misunderstandings and misrepresentations were present in a previous critique o...
NICE Guidelines & CDC
Effort3 months ago
Reasons why a proper review of CG 53 are needed and urgently
4 Replies8 Likes
Ian1233 months ago
Not fit for purpose - please add your signature and share
7 Replies10 Likes
News from Norway
readerlist4 months ago
The project "Defective Energy Metabolism in ME/CFS" is one of four projects towards user-identified research on CFS/ME, that have been grant...
CheshireKatz4 months ago
The latest flawed effort from the psychobabble brigade does not show any sign of learning from previous errors in the PACE trial in fact it ...
8 Replies9 Likes
Research is linking the imbalance in gut bacteria found in me/cfs patients with disease severity in recently published research....
1 Reply4 Likes
Ian1234 months ago
Another biomarker candidate that has the potential for identifying those with the disease from patients thrown into a wastebasket diagnosis ...
Mistymooring4 months ago
After years of NIH claiming the numbers requesting research funding was behind the desperate lack of tax dollars spent on us comes the proof...
3 Replies4 Likes
Onceagain5 months ago
Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/chronic fatig...
readerlist5 months ago
Slides from Dr Naviaux illustrating the proposed metabolic effects of a cell danger response on mitochondria.
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