We are a charity primarily focused on helping patients and their families with ME (Myalgic...Read more
Effort9 days ago
Please sign and share this as widely as possible
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Diagnosed with CFS, is there any where to go ?
digga225 days ago
End of 2016, son was born prematurely. Many days and nights in the hospital.
Beginning of 2016, energy levels are reduced, yearly ...
10 Replies1 Like
How Can I Get My Parents to Understand CFS?
sarahbp93a month ago
So, I've been having some difficulty trying to get my parents, especially my dad, to understand how I feel going through CFS. My mum's metho...
7 Replies1 Like
CFS & POTS Connection?
Hi guys, I've been diagnosed with both CFS and POTS (Postural Orthostatic Tachycardia Syndrome) and I was wondering if anyone else has been ...
Could I have CFS?
nikkibee93a month ago
Hi, I am all new to this and after reading about CFS, i really think I have it. I have been to my GP and all my tests come back normal. I co...
Onlyme28122 months ago
My GP might be diagnosing me with CFS as all my tests are coming back normal since November. I am worried about the changes ...
4 Replies1 Like
ME and Heat, Temperature sensitivity
PaulaJE3 months ago
Is it normal for some one with ME to be sensitive to heat and the temperature. When the weather gets warm I experience symptoms of a flare-...
ME or not
Petarah3 months ago
Last june, i developed hypertension, was put on amalodipine and rampril. I had a set of bloods done to which found my tsh levels were bad....
ME/CFS clinics in Glasgow
princessmia54 months ago
Does anyone know of any support groups or ME/CFS clinics in the Glasgow area?
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Why me ?
Allymay4 months ago
I'm New to all this me/cfs business. For me I think it started around 2011 I thought I was just doing too many hours at work and over the ...
1 Reply1 Like
Advise / suggestions needed
PaulaJE4 months ago
I am currently have a bad flaw up of my symptoms. My doctor wants to sign me off but I am afraid to be signed off as I have been threaten w...
Pacing Tips During School?
SSK015 months ago
Hi All, I'm 15 and in year 10 and was diagnosed with CFS back in December.
I've tried pacing myself during the day, but find it difficult as ...
2 Replies1 Like
CFS/ME dropping working hours and financial help
PaulaJE5 months ago
Hi, whilst I've been diagnosed with ME since late 2015 and reduced my working hours by 1 day. I found this still to much and just got my em...
NHS Chronic Fatigue and Pain Clinics
Caroljm285 months ago
For general information for all. Following my diagnosis in 2013 I attended a clinic run by the NHS in Aylesbury for CFS sufferers. There are...
3 Replies1 Like
CFS/ME and mobility (New member)
HPErebus5 months ago
Hi there, I'm new here, I was diagnosed with CFS about a week ago, after being diagnosed with Post-Viral Fatigue Syndrome for about 6 months...
Dg41denise5 months ago
Im new here. Hi I have pernicious anemia and went to the docs 4 yrs ago with exhaustion. Blood tests revealed low folic acid levels. He u...
CFS and shingles link?
Hi, I have had chronic fatigue/ME for four years now, but I am concerned that my mother may also have developed it. She had shingles a few y...
ME & Thyroid symptoms
AWoody5 months ago
I've had ME for 30 years and am lucky because it is mild so can keep up a relatively active lifestyle provided that I go to bed by 9pm ...
Cognitivecon Sultation Health Services
marrydavis5 months ago
The Neurocognitive Diagnostic & Treatment Center by dr. joel becker nuerosycologists is providing the best human resources imparement Consul...
Do I have ME/CFS?
Aae316 months ago
For the last 3 years I have not felt myself. I get tired more easy and get frequent headaches. The doctors don't really know what's u...
WHO are reviewing the ICD-11 Reclassification of ME. Please help support the MEAction call to arms.
ukmsmi46 months ago
Please see this "call to arms" from MEAction and follow the links. You can use MEAction as your organisation or the names of any ME organis...
Confused and Tired all the time.
LouisTurfrey6 months ago
Hi to everyone here. I have recently been suffering from Fibromyalgia and suffer chronic pain and central sensitisation. However, the one th...
tobby14286 months ago
this is going to be painful but here goes......apart from a naso gastric tube,a catheter I was fitted with a "tracky".having one of these ca...
I am new here and undiagnosed
martindarren6 months ago
Hi, i am hoping somebody can help me. I have been having problems for about 1 year now. starting when i get up in the morning stiff all over...
Absence of Effective Policy
Effort6 months ago
ME (Myalgic Encephalomyelitis) a physical, neurological illness, but remains untreated except with psychotherapy - a failed policy based on ...
I'm new here and currently undiagnosed...
princessmia56 months ago
Hi, I'm hoping I can use this forum as a sounding board. I have been advised by my work GP that based on the symptoms I have described and t...
CFS,depression- Hads score
shortandsweet146 months ago
Hi everyone..I was recently diagnosed with CFS...i had been ill for a couple of years but the last 12 months have been the worst.. I was dis...
guillaine barre syndrome...gbs
22 years ago I had this condition,although to be honest it was never properly diagnosed,for my clinical needs it was treat as gbs all be it ...
Broomy6 months ago
Hello guys. I was diagnosed 5 years ago. I work for the NHS as a healthcare assistant which i really enjoy. But sadly for the last month my...
My healing Experience!!
Waterlilly6 months ago
I would like to share my experience of feeling better so far with the help of my lovely nutritionist. I have suffered from ...
If you have claimed ESA, or been migrated from another benefit to ESA, at what stage is your claim? Please comment if you want to explain further.
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