We are a charity primarily focused on helping patients and their families with ME (Myalgic...Read more
Mountain Wheelchair Project
mountainwheelchair41 minutes ago
Hello all. My daughter, who previously won the "Junior Adventurer of the Year" competition, was diagnosed with Myalgic Encephalomyelitis las...
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Support DR Myhill eat al re ME PACE Please read
fidders4 days ago
*** DR MYHILL HAS COMPLAINED TO THE GMC ABOUT THE PACE AUTHORS ***
*** SHE WANTS YOUR HELP ***
**PLEASE DO COPY YOUR LETTER OF SUPPORT TO cr64...
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Effort25 days ago
An interview with Dr David Tuller conducted by a severely ill patient
Onlyme2812a month ago
Hi all! I know a lot of people resort to alternative therapy for CFS/ME and was wondering if any worked for you? I tried acupuncture but fel...
Optimum health Clinic for chronic fatigue syndrome
martha_taunt2 months ago
I was diaongones this summer with crunch fatigue after two years of Beeing really ill
Have been picked up by my local chronic fatigue team i...
Thyroid test results - Do these look normal ?
digga22 months ago
In brief: been suffering from CFS for over 15+ months.
Most symptoms have subsided except the muscle soreness in my thighs, general energy le...
a big thank you!!!!!
tobby14283 months ago
you might recall that I tried to write a blog about the terrible time I had with guillane barre syndrome over 20 years ago.i thought by writ...
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Jenni153 months ago
I am new to this site and looking for support I just discovered that my referral to Chronic Fatigue clinic has been lost and the original ho...
Samartime13 months ago
Hi everyone, hope your taking it easy. I suffer from a few conditions and one of them is ME. Nice to know that their are other people livi...
Transdermal B12, what's the best area
digga23 months ago
I have been using this transdermal spray - salesatdrmyhill.co.uk/trans...
Is there a particular area on the skin that absorbs better? I have ...
Onlyme28123 months ago
Hello everyone. I'm currently having a tough time with my employers. I recently got diagnosed with cfs (this year August) and been off work ...
Please leave me alone
Maxibonus3 months ago
Totally worn out.
Been in bed most of summer.
I hate mornings as I hate telephone calls and people at the door. Become a night bird.
2 Replies1 Like
heatherthornton5784 months ago
Hello Everyone Its been awhile since Ive been on here and I am now 16 and still suffering with CFS. I've been bruising very easily and in th...
Effort4 months ago
Please sign and share this as widely as possible
2 Replies2 Likes
Diagnosed with CFS, is there any where to go ?
digga25 months ago
End of 2016, son was born prematurely. Many days and nights in the hospital.
Beginning of 2016, energy levels are reduced, yearly ...
11 Replies2 Likes
How Can I Get My Parents to Understand CFS?
sarahbp935 months ago
So, I've been having some difficulty trying to get my parents, especially my dad, to understand how I feel going through CFS. My mum's metho...
7 Replies1 Like
CFS & POTS Connection?
Hi guys, I've been diagnosed with both CFS and POTS (Postural Orthostatic Tachycardia Syndrome) and I was wondering if anyone else has been ...
Could I have CFS?
nikkibee935 months ago
Hi, I am all new to this and after reading about CFS, i really think I have it. I have been to my GP and all my tests come back normal. I co...
Onlyme28126 months ago
My GP might be diagnosing me with CFS as all my tests are coming back normal since November. I am worried about the changes ...
4 Replies1 Like
ME and Heat, Temperature sensitivity
PaulaJE6 months ago
Is it normal for some one with ME to be sensitive to heat and the temperature. When the weather gets warm I experience symptoms of a flare-...
ME or not
Petarah7 months ago
Last june, i developed hypertension, was put on amalodipine and rampril. I had a set of bloods done to which found my tsh levels were bad....
ME/CFS clinics in Glasgow
princessmia58 months ago
Does anyone know of any support groups or ME/CFS clinics in the Glasgow area?
Why me ?
Allymay8 months ago
I'm New to all this me/cfs business. For me I think it started around 2011 I thought I was just doing too many hours at work and over the ...
1 Reply1 Like
Advise / suggestions needed
PaulaJE8 months ago
I am currently have a bad flaw up of my symptoms. My doctor wants to sign me off but I am afraid to be signed off as I have been threaten w...
Pacing Tips During School?
SSK018 months ago
Hi All, I'm 15 and in year 10 and was diagnosed with CFS back in December.
I've tried pacing myself during the day, but find it difficult as ...
CFS/ME dropping working hours and financial help
PaulaJE9 months ago
Hi, whilst I've been diagnosed with ME since late 2015 and reduced my working hours by 1 day. I found this still to much and just got my em...
NHS Chronic Fatigue and Pain Clinics
Caroljm289 months ago
For general information for all. Following my diagnosis in 2013 I attended a clinic run by the NHS in Aylesbury for CFS sufferers. There are...
3 Replies1 Like
CFS/ME and mobility (New member)
HPErebus9 months ago
Hi there, I'm new here, I was diagnosed with CFS about a week ago, after being diagnosed with Post-Viral Fatigue Syndrome for about 6 months...
Dg41denise9 months ago
Im new here. Hi I have pernicious anemia and went to the docs 4 yrs ago with exhaustion. Blood tests revealed low folic acid levels. He u...
CFS and shingles link?
Hi, I have had chronic fatigue/ME for four years now, but I am concerned that my mother may also have developed it. She had shingles a few y...
If you have claimed ESA, or been migrated from another benefit to ESA, at what stage is your claim? Please comment if you want to explain further.
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