Hi been reading fibro posts and not sure if I might have this, It started TMJ pain in the jaws next pain in neck and shoulders spondylitis, I have IBS and now RLS pain in legs day and night hip and sometimes torso, Feet burn up could they all be linked, doctor said all fibro means they do not know what is wrong, I had a heart attack two years ago could of this have been a trigger, take pain killers, magnesium, malic acid which has helped RLS. Thank you for any advise

6 Replies

  • Hi there

    Do you know what other conditions your GP has already ruled out first, because it is very important this is done before a diagnosis of Fibro can be made?

    If your GP's view is that we have Fibro because they can't find anything else, I would seriously suggest you see another GP. 

    Your best bet is to ask for a referral to see a Rheumatologist.  These consultants specialise in Fibromyalgia so they would be able to tell you for sure.

    Good luck and please do let us know how you get on.

    Wishing you much peace

    Lu xx

    Admin Volunteer 

  • Bluemermaid3 , France's 1, I AGREE, you need to get new GP!!!!!One of the key tests is the Trigger Point Test.  Fibro has sooooooo many symptoms that are also related to other illness. Trigger point test is key to  Fibro.

  • While I agree with BlueMermaid3, I wonder if you have muscle aches and pains in your back and arms? Do your arms tire easily and you find you have to rest them often? ...long before your simplest task is done? Do you get knots of burning pain in your back? Do the cramps prevent you from lifting and using your arms normally at times? What other things like these have you experienced? This question is for anywhere you have muscle...your legs, neck, jaw and so forth.

  • You. Say you have spondylitis which is inflammation of the vertibrae in the spine, so you must have had some tests  bloods X Ray's etc which would rule out certain things,  did your Dr say what was causing all the pain that you were given painkillers for , if you are not happy you must discuss it with your Dr and possibly ask to see a rheumatologist for further investigations, take care 

  • Doctors normally come to  the conclusion of fibro when blood test have ruled out illnesses like RA and thyroid and certain vitamin and mineral deficiencies.  My GP did that and also arranged for a MRI scan on the thoracic area of my back which at the time was causing the most pain.  This showed degeneration of the spine but in his opinion not enough to explain the extreme pain I was having.

    He did give me iron tablets as he said a deficiency in iron could cause the retless legs and burning in feet and calves.  Unfortunately in my case it did not work but worth asking about. Many fibro people are also deficient inmagnesium and Vitamin D

    If none of these tests have been done like the others I would see if you could get an appt with  a specialistx

  • Hi frances1

    I am so genuinely sorry to read that you are suffering and struggling in this way and I sincerely hope that you can find the answers that you so desperately desire and deserve. I have pasted you an FMA UK link below entitled:

    What is Fibromyalgia and I sincerely hope that this can go a long way in answering your questions:

    As the others have said, if the best your GP can come up with is Fibro meaning ''he'' doesn't know then maybe you could ask to see a different GP? As this does not give me much faith in this individual?

    I want to genuinely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you


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