Experiences with

Myalgic encephalomyelitis

[/u] [i] Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected disease[/i] [i]Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic, debilitating disease characterised by a wide range of symptoms that severely impact all aspects of life.

The Guardian had a good article pointing out the flaws in the NHS treatment of ME patients. https://www.theguardian.com/society/article/2024/aug/09/what-is-me-myalgic-encephalomyelitis-nhs-criticised

The physical therapist referenced an article about scientists recently finding what may be the physiological root of chronic fatigue and ME (myalgic encephalomyelitis). Apparently there are signs of regulation alteration in parts of the brain in people with these syndromes.

[/i] [i]Researchers have made a discovery, which, if it holds up, has the potential to transform treatments for autoimmune diseases and post-viral illness like long covid and myalgic encephalomyelitis.

utm_source=Nature+Briefing&utm_campaign=662006700a-briefing-dy-20230814_COPY_01&utm_medium=email&utm_term=0_c9dfd39373-662006700a-47672252 People living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) struggle not only with extreme exhaustion and the cognitive problems known as brain

Having a bad one today. Thunderstorms and wind yesterday, more rain today. Headache and body pain. Took an arthritis Tylenol, magnesium and malic acid and it hasn’t subsided. ☹️. After I’ve had something to eat, I’ll take an Advil. 🤞😶‍🌫️

A narrative inquiry into the school experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)(Doctoral dissertation, University of Bristol).

[/i] [i]In 2019, years after developing the myalgic encephalomyelitis (ME/CFS) that had kept her bedridden in a state of chronic pain and exhaustion, Tamara Romanuk experienced something “miraculous”.

She wrote the following:- [i] Encephalomyelitis., M.E. to its sufferers.[/i] [i]The continuing story of a recovery[/i] [i]Dear Reader[/i] [i]I want to let you know about a new treatment I have had for my M.E.

See below: Murray, Rebecca E. (2016) A life lived differently: an exploration of how living with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) impacts upon people's identity.

Long-term experiences of managing Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME): A qualitative study (Doctoral dissertation, University of the West of England) which you can find here: https://core.ac.uk/display/323895281?

To further compound the story (and as some will know on here), I've had a formal diagnosis of 'Myalgic Encephalomyelitis' (ME/CFS) these past 5 yrs - and this means that GPs attitudes are far far worse. The illness can be caused by Hypothyroidism, but of ofcourse they do not accept that do they.

Here is the web-link https://www.insideprecisionmedicine.com/topics/translational-research/microbiome/changes-in-gut-microbiome-associated-with-myalgic-encephalomyelitis-chronic-fatigue-syndrome/ The article may be a bit technical for some and not detailed enough for others.

Just following up on a recent post recommending magnesium malate for RLS, quoting recommendations made by Californian company Pure Biogenics in promoting their RLS supplement Seratame. Looking into this, experiments on rats suggested that malate may be the most bio-available form of magnesium; there

The drug has been used with some success to treat a similar complex, post-infectious syndrome marked by cognitive deficits and overwhelming fatigue called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). It is also on the short list of treatments to be tested in the U.S.

I began to wonder if this was really post-viral syndrome from some very unusual virus or a mild myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

an initial explanation for how myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) could originate and perpetuate by drawing on findings from critical illness research.

This study relates to exercise and breathing and indicates a delayed recovery for folks with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and also Fibromyalgia. But this could be the case with Polymyalgia Rheumatica (PMR), too.

Theory: Treatments for Prolonged ICU Patients May Provide New Therapeutic Avenues for Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) May 2021Frontiers in Medicine 8:672370 Follow journal DOI: 10.3389/fmed.2021.672370 Dominic Stanculescu, Lars Larsson, Jonas Bergquist

is there anyone especially in the UK , with Myalgic Encephalomyelitis. (M E ) and. CLL ? As you can see on my profile I was diagnosed with ME a long time ago and then in 2013 also with CLL.