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Experiences with
Myalgic encephalomyelitis
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encephalomyelitis
(M.E.), sometimes diagnosed as chronic fatigue syndrome (CFS, or M.E.
encephalomyelitis
(M.E.), sometimes diagnosed as chronic fatigue syndrome (CFS, or M.E.
Admin_AFMCG
Administrator
in
Andover Fibromyalgia & ME Community Group
7 years ago
Bring me to life without chronic fatigue syndrome
Only after a year I did get a diagnosis: ME (
myalgic
encephalomyelitis
). For me, who is fond of shaping, facebuilding, intensified training on a slide board (not to be confused with snow sports), these symptoms were a real blow, after which my life was never the same again.
Only after a year I did get a diagnosis: ME (
myalgic
encephalomyelitis
). For me, who is fond of shaping, facebuilding, intensified training on a slide board (not to be confused with snow sports), these symptoms were a real blow, after which my life was never the same again.
Jane28friends
in
The York ME Community
7 years ago
Caution about taking B12 supplements - article. By B12 deficiency research group.
Response to Vitamin B12 and Folic Acid in
Myalgic
Encephalomyelitis
and Fibromyalgia. PLoS ONE, 10(4), e0124648. doi:10.1371/journal.pone.0124648 Rundles, R. W. (1946). PROGNOSIS IN THE NEUROLOGIC MANIFESTATIONS OF PERNICIOUS ANEMIA. Blood, 1(3), 209-219.
Response to Vitamin B12 and Folic Acid in
Myalgic
Encephalomyelitis
and Fibromyalgia. PLoS ONE, 10(4), e0124648. doi:10.1371/journal.pone.0124648 Rundles, R. W. (1946). PROGNOSIS IN THE NEUROLOGIC MANIFESTATIONS OF PERNICIOUS ANEMIA. Blood, 1(3), 209-219.
eddie1952
in
Thyroid UK
7 years ago
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Left ventricle non compaction .... Is it rare heart condition.
After being treated for fibromylgia, then being told I also had
Myalgic
Encephalomyelitis
. I always felt ill, so decided to visit Gp. And mentioned I was not feeling that hot. A appointment was made for a ECG, It was decided to send myself to Hospital via ambulance for further test.
After being treated for fibromylgia, then being told I also had
Myalgic
Encephalomyelitis
. I always felt ill, so decided to visit Gp. And mentioned I was not feeling that hot. A appointment was made for a ECG, It was decided to send myself to Hospital via ambulance for further test.
nidginski
in
British Heart Foundation
7 years ago
M.E Petition
They are the result of a
Myalgic
Encephalomyelitis
policy heavily influenced by psychiatrists who are skeptical about the existence of
Myalgic
Encephalomyelitis
.
They are the result of a
Myalgic
Encephalomyelitis
policy heavily influenced by psychiatrists who are skeptical about the existence of
Myalgic
Encephalomyelitis
.
Ian123
in
Ramsays Disease
7 years ago
NIH Research Centers
The National Institutes of Health (NIH) will award four grants to establish a coordinated scientific research effort on
myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS).
The National Institutes of Health (NIH) will award four grants to establish a coordinated scientific research effort on
myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS).
Halflife
in
Ramsays Disease
7 years ago
NEW MEMBER
I HAVE SUFFERED FROM CHRONIC FATIGUE SYNDROME /
MYALGIC
ENCEPHALOMYELITIS
SINCE 1995, TRIGEMINAL NEURALGIA SINCE 2015, AND BELLS PALSY(?) SINCE 2016.
I HAVE SUFFERED FROM CHRONIC FATIGUE SYNDROME /
MYALGIC
ENCEPHALOMYELITIS
SINCE 1995, TRIGEMINAL NEURALGIA SINCE 2015, AND BELLS PALSY(?) SINCE 2016.
BIGRABC
in
Facial Palsy UK
7 years ago
Molecular Basis Symposium
Ron Davis, PhD, calls chronic fatigue syndrome (also known as
myalgic
encephalomyelitis
, or ME/CFS) the “last major disease about which we know almost nothing.”
Ron Davis, PhD, calls chronic fatigue syndrome (also known as
myalgic
encephalomyelitis
, or ME/CFS) the “last major disease about which we know almost nothing.”
Mistymooring
in
Ramsays Disease
7 years ago
PACE Scandal
A controversial and poorly understood disease…
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS) is a controversial and poorly understood disease that blights the lives of over 250,000 people in the UK and 1.0M Americans.
A controversial and poorly understood disease…
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS) is a controversial and poorly understood disease that blights the lives of over 250,000 people in the UK and 1.0M Americans.
readerlist
in
Ramsays Disease
7 years ago
Bias
Bias, misleading information and lack of respect for alternative views have distorted perceptions of
myalgic
encephalomyelitis
/chronic fatigue syndrome and its treatment long read with some worthwhile nuggets challenging an establishment dogma http://journals.sagepub.com/doi/10.1177/1359105317707216
Bias, misleading information and lack of respect for alternative views have distorted perceptions of
myalgic
encephalomyelitis
/chronic fatigue syndrome and its treatment long read with some worthwhile nuggets challenging an establishment dogma http://journals.sagepub.com/doi/10.1177/1359105317707216
Onceagain
in
Ramsays Disease
7 years ago
Malic acid
Apparently good for many things. Has anyone tried it? If so what did it help with? Thanks 🙂
Apparently good for many things. Has anyone tried it? If so what did it help with? Thanks 🙂
Silver_Fairy
in
Thyroid UK
7 years ago
International Fibromyalgia & ME Awareness Day (12th May), please support this Thunderclap campaign
Myalgic
encephalomyelitis
(ME) is characterised by a range of neurological symptoms and signs, muscle pain with intense physical or mental exhaustion, debilitating fatigue and specific cognitive disabilities.
Myalgic
encephalomyelitis
(ME) is characterised by a range of neurological symptoms and signs, muscle pain with intense physical or mental exhaustion, debilitating fatigue and specific cognitive disabilities.
Mdaisy
in
Fibromyalgia Action UK
7 years ago
International Fibromyalgia & ME Awareness Day (12th May), please support our Thunderclap campaign
Myalgic
encephalomyelitis
(ME) is characterised by a range of neurological symptoms and signs, muscle pain with intense physical or mental exhaustion, debilitating fatigue and specific cognitive disabilities.
Myalgic
encephalomyelitis
(ME) is characterised by a range of neurological symptoms and signs, muscle pain with intense physical or mental exhaustion, debilitating fatigue and specific cognitive disabilities.
Admin_AFMCG
Administrator
in
Andover Fibromyalgia & ME Community Group
7 years ago
Immune System
Myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS) is characterised by multiple symptoms including fatigue, headaches and cognitive impairment, which have a significantly adverse effect on the normal functioning and well-being of the individual.
Myalgic
encephalomyelitis
/chronic fatigue syndrome (ME/CFS) is characterised by multiple symptoms including fatigue, headaches and cognitive impairment, which have a significantly adverse effect on the normal functioning and well-being of the individual.
Onceagain
in
Ramsays Disease
7 years ago
Protest letter: cut paste amend send to your heart's content
If Levothyroxine does not return good health, without T3 on prescription many longer term problems such as chronic fatigue syndrome or
myalgic
encephalomyelitis
present. May I suggest that these are likely to cause a greater burden on the NHS in the longer term?
If Levothyroxine does not return good health, without T3 on prescription many longer term problems such as chronic fatigue syndrome or
myalgic
encephalomyelitis
present. May I suggest that these are likely to cause a greater burden on the NHS in the longer term?
Rapunzel
in
Thyroid UK
7 years ago
Absence of Effective Policy
ME (
Myalgic
Encephalomyelitis
) a physical, neurological illness, but remains untreated except with psychotherapy - a failed policy based on the views of discredited psychiatrists who deny that ME exists. A non-psychiatric policy of ME research and treatment would end this ongoing medical scandal.
ME (
Myalgic
Encephalomyelitis
) a physical, neurological illness, but remains untreated except with psychotherapy - a failed policy based on the views of discredited psychiatrists who deny that ME exists. A non-psychiatric policy of ME research and treatment would end this ongoing medical scandal.
Effort
in
EDMESH
8 years ago
Absence of Effective Policy
ME (
Myalgic
Encephalomyelitis
) a physical, neurological illness, but remains untreated except with psychotherapy - a failed policy based on the views of discredited psychiatrists who deny that ME exists.
ME (
Myalgic
Encephalomyelitis
) a physical, neurological illness, but remains untreated except with psychotherapy - a failed policy based on the views of discredited psychiatrists who deny that ME exists.
Theresa60
in
Ramsays Disease
8 years ago
Do you call it CFS or ME? What are the implications
My understanding is that use of the term
Myalgic
encephalomyelitis
(ME) by the NHS, has fallen by the wayside and that new diagnosises are given simply as CFS. ME seems more associated with activists or those who believe their symptoms to be more severe.
My understanding is that use of the term
Myalgic
encephalomyelitis
(ME) by the NHS, has fallen by the wayside and that new diagnosises are given simply as CFS. ME seems more associated with activists or those who believe their symptoms to be more severe.
Antony_M
in
EDMESH
8 years ago
PEM
Acute exercise exacerbated symptoms, impaired cognitive performance and affected brain function in
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome patients.
Acute exercise exacerbated symptoms, impaired cognitive performance and affected brain function in
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome patients.
Theresa60
in
Ramsays Disease
8 years ago
Moving Toward Answers
https://directorsblog.nih.gov/2017/03/21/moving-toward-answers-in-mecfs/ Unfortunately, this is not fiction, but reality for at least a million Americans—who suffer from a condition that carries the unwieldy name of
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS), a perplexing disease that
https://directorsblog.nih.gov/2017/03/21/moving-toward-answers-in-mecfs/ Unfortunately, this is not fiction, but reality for at least a million Americans—who suffer from a condition that carries the unwieldy name of
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS), a perplexing disease that
Halflife
in
Ramsays Disease
8 years ago
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