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Experiences with
Myalgic encephalomyelitis
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PACE Review
The main findings reported in the PACE trial were that cognitive behavioral therapy (CBT) and graded exercise therapy (GET) were moderately effective treatments for
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS), and fear avoidance beliefs constituted the strongest mediator of both therapies
The main findings reported in the PACE trial were that cognitive behavioral therapy (CBT) and graded exercise therapy (GET) were moderately effective treatments for
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome (ME/CFS), and fear avoidance beliefs constituted the strongest mediator of both therapies
readerlist
in
Ramsays Disease
8 years ago
M.E.
Myalgic
Encephalomyelitis
. My neurologist gave me a print-out when I was Diagnosed with FND. I suppose he wanted to include ME and CFS, without making a distinction between FND, M.E. and CFS?
Myalgic
Encephalomyelitis
. My neurologist gave me a print-out when I was Diagnosed with FND. I suppose he wanted to include ME and CFS, without making a distinction between FND, M.E. and CFS?
Tewa
in
Functional Neurological Disorder - FND Hope
9 years ago
Mitty999
I am also extremely into
Myalgic
Encephalomyelitis
. Having spent 2 years in bed, I have plenty of time to read sites concerning ME. I have read a great deal about this awful disease, and studied many theories on where it comes from , and possible cures.
I am also extremely into
Myalgic
Encephalomyelitis
. Having spent 2 years in bed, I have plenty of time to read sites concerning ME. I have read a great deal about this awful disease, and studied many theories on where it comes from , and possible cures.
mitty999
in
EDMESH
9 years ago
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Australian Senate
Transcript of the meeting http://scott-ludlam.greensmps.org.au/content/estimates/estimates-diagnosis-and-treatment-
myalgic
-
encephalomyelitis
-or-chronic-fatigue-syn
Transcript of the meeting http://scott-ludlam.greensmps.org.au/content/estimates/estimates-diagnosis-and-treatment-
myalgic
-
encephalomyelitis
-or-chronic-fatigue-syn
millysent
in
Ramsays Disease
9 years ago
Supplements (Hashi's)
Hi all. I am about to buy some supplements to hopefully help with symptoms of Hashi's. I was diagnosed approx one year ago and on B&R therapy. I had an awful flare last week and really want to help myself and my body be able to deal with this better in the future and also to protect myself. I wondered
Hi all. I am about to buy some supplements to hopefully help with symptoms of Hashi's. I was diagnosed approx one year ago and on B&R therapy. I had an awful flare last week and really want to help myself and my body be able to deal with this better in the future and also to protect myself. I wondered
Chloececilia
in
Thyroid UK
9 years ago
NIH Pathways report
A heads up report of the 2014 NIH Pathways to Prevention Workshop: Advancing the Research on
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome, The panel's final report will appear in print in the Annals of Internal Medicine and will be posted online on the ODP website on Tuesday, June 16, 2015 https
A heads up report of the 2014 NIH Pathways to Prevention Workshop: Advancing the Research on
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome, The panel's final report will appear in print in the Annals of Internal Medicine and will be posted online on the ODP website on Tuesday, June 16, 2015 https
Peter-J
in
Ramsays Disease
9 years ago
ME/CFS Similarity With MS
Myalgic
encephalomyelitis
- ME Encephalomyelitis disseminata - MS (multiple sclerosis) Show remarkable levels of similarity in phenomenology and neuroimmune characteristics http://www.biomedcentral.com/1741-7015/11/205 With an overlap in symptoms information is available that saves re-inventing the
Myalgic
encephalomyelitis
- ME Encephalomyelitis disseminata - MS (multiple sclerosis) Show remarkable levels of similarity in phenomenology and neuroimmune characteristics http://www.biomedcentral.com/1741-7015/11/205 With an overlap in symptoms information is available that saves re-inventing the
Ian123
in
Ramsays Disease
9 years ago
Open Medicine Foundation
The current focus is on ME/CFS (
myalgic
encephalomyelitis
/ chronic fatigue syndrome), fibromyalgia, autism, Lyme disease and others. http://phoenixrising.me/archives/26602
The current focus is on ME/CFS (
myalgic
encephalomyelitis
/ chronic fatigue syndrome), fibromyalgia, autism, Lyme disease and others. http://phoenixrising.me/archives/26602
Halflife
in
Ramsays Disease
9 years ago
Link to Audio, video, powerpoint and transcript of Dr Alastair Miller's lecture on ME/CFS on May 5th
The transcript doesn't seem to be a complete record - more lecture notes. http://www.gresham.ac.uk/lectures-and-events/
myalgic
-
encephalomyelitis
-chronic-fatigue-syndrome-not-just-tired-all-the-time There's another lecture tomorrow by Prof.
The transcript doesn't seem to be a complete record - more lecture notes. http://www.gresham.ac.uk/lectures-and-events/
myalgic
-
encephalomyelitis
-chronic-fatigue-syndrome-not-just-tired-all-the-time There's another lecture tomorrow by Prof.
MrsSowester
in
Myalgic Encephalomyelitis Community
9 years ago
Link to Audio, video, powerpoint and transcript of Dr Alastair Miller's lecture on ME/CFS on May 5th
http://www.gresham.ac.uk/lectures-and-events/
myalgic
-
encephalomyelitis
-chronic-fatigue-syndrome-not-just-tired-all-the-time There's another lecture tomorrow by Prof. Julia Newton - I'll post link to that when the recording is uploaded in a few weeks time.
http://www.gresham.ac.uk/lectures-and-events/
myalgic
-
encephalomyelitis
-chronic-fatigue-syndrome-not-just-tired-all-the-time There's another lecture tomorrow by Prof. Julia Newton - I'll post link to that when the recording is uploaded in a few weeks time.
MrsSowester
in
Ramsays Disease
9 years ago
Anyone seen this doctor in Lancashire?
He's a doctor who is the consultant for the local CFS service - I'm not very hopeful about anyone who heads-up a service that calls
Myalgic
Encephalomyelitis
CFS, since the former is a recognised diagnosis, especially in Canada, and the latter a bucket diagnosis, especially in Britain!
He's a doctor who is the consultant for the local CFS service - I'm not very hopeful about anyone who heads-up a service that calls
Myalgic
Encephalomyelitis
CFS, since the former is a recognised diagnosis, especially in Canada, and the latter a bucket diagnosis, especially in Britain!
Schenks
in
Thyroid UK
9 years ago
Bio - Marker
New research findings may shed new light on the potential cause of Chronic Fatigue Syndrome/
Myalgic
Encephalomyelitis
(CFS/ME).
New research findings may shed new light on the potential cause of Chronic Fatigue Syndrome/
Myalgic
Encephalomyelitis
(CFS/ME).
Ian123
in
Ramsays Disease
9 years ago
Act Up for M.E.
Myalgic
encephalomyelitis
(ME) is a debilitating, neuroimmune disease affecting an estimated one million men, women and children in the U.S. It has been described as the “Hidden Plague,” “Polio-like” and a “non HIV/AIDS” disease. Most Americans have never heard of it. Why?
Myalgic
encephalomyelitis
(ME) is a debilitating, neuroimmune disease affecting an estimated one million men, women and children in the U.S. It has been described as the “Hidden Plague,” “Polio-like” and a “non HIV/AIDS” disease. Most Americans have never heard of it. Why?
Peter-J
in
Ramsays Disease
9 years ago
Vitamin B12
id=10.1371/journal.pone.0124648 Abstract BACKGROUND Patients with
myalgic
encephalomyelitis
(ME, also called chronic fatigue syndrome) may respond most favourably to frequent vitamin B12 injections, in vital combination with oral folic acid.
id=10.1371/journal.pone.0124648 Abstract BACKGROUND Patients with
myalgic
encephalomyelitis
(ME, also called chronic fatigue syndrome) may respond most favourably to frequent vitamin B12 injections, in vital combination with oral folic acid.
Ian123
in
Ramsays Disease
9 years ago
Do I Have ME/CFS?
They suffer from
Myalgic
Encephalomyelitis
(ME) also called Chronic Fatigue Syndrome (CFS). ME/CFS is a debilitating and real medical condition that has a serious impact on a person’s quality of life. Early diagnosis of ME/CFS is important.
They suffer from
Myalgic
Encephalomyelitis
(ME) also called Chronic Fatigue Syndrome (CFS). ME/CFS is a debilitating and real medical condition that has a serious impact on a person’s quality of life. Early diagnosis of ME/CFS is important.
Seascape
in
Ramsays Disease
9 years ago
ME/CFS, FM, B12, MTHFR and Thyroid
Response to Vitamin B12 and Folic Acid in
Encephalomyelitis
and Fibromyalgia. Regland B1, Forsmark S1, Halaouate L1, Matousek M1, Peilot B1, Zachrisson O1, Gottfries CG1.
Response to Vitamin B12 and Folic Acid in
Encephalomyelitis
and Fibromyalgia. Regland B1, Forsmark S1, Halaouate L1, Matousek M1, Peilot B1, Zachrisson O1, Gottfries CG1.
helvella
Thyroid UK
in
Thyroid UK
9 years ago
Are People ME/CFS Now Being Diagnosed With FND Instead?
I have been reading posts on here and I can't help but think that some people are being a diagnosis of FND when they may have ME/CFS (
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome) .
I have been reading posts on here and I can't help but think that some people are being a diagnosis of FND when they may have ME/CFS (
Myalgic
Encephalomyelitis
/Chronic Fatigue Syndrome) .
PaulUK
in
Functional Neurological Disorder - FND Hope
9 years ago
I'm New And Sceptical
But I also lack trust his website because he classes ME/CFS (
myalgic
encephalomyelitis
/ Chronic Fatigue Syndrome) and fibromyalgia as functional, even though there's loads of evidence for the physiological basis of both conditions.
But I also lack trust his website because he classes ME/CFS (
myalgic
encephalomyelitis
/ Chronic Fatigue Syndrome) and fibromyalgia as functional, even though there's loads of evidence for the physiological basis of both conditions.
PaulUK
in
Functional Neurological Disorder - FND Hope
9 years ago
Awareness Week
It stands for
Myalgic
Encephalomyelitis
, but the medical establishment prefers the term Chronic Fatigue Syndrome. There is no test for it, let alone a cure, and it affects about 250,000 people in the UK.
It stands for
Myalgic
Encephalomyelitis
, but the medical establishment prefers the term Chronic Fatigue Syndrome. There is no test for it, let alone a cure, and it affects about 250,000 people in the UK.
slowmotion
in
Ramsays Disease
9 years ago
Severe Myalgic Encephalomyelitis
Research for the forgotten http://www.meresearch.org.uk/our-research/ongoing-studies/severely-affected-me-patients/
Research for the forgotten http://www.meresearch.org.uk/our-research/ongoing-studies/severely-affected-me-patients/
Arianne
in
Ramsays Disease
10 years ago
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