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Experiences with
Medium chain acyl dehydrogenase deficiency
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Not having much luck
Those following my journey know my Radium 223 basically did nothing and my PSA went up to 300, in Oct my Oncologist tried Zytiga combined with Prednisolon, within a couple of weeks my PSA dropped right down to 88 and I even had an improvement in pain levels, which allowed me to drop the large quantities
Those following my journey know my Radium 223 basically did nothing and my PSA went up to 300, in Oct my Oncologist tried Zytiga combined with Prednisolon, within a couple of weeks my PSA dropped right down to 88 and I even had an improvement in pain levels, which allowed me to drop the large quantities
Zetabow
in
Advanced Prostate Cancer
4 years ago
Ok to supplement with small amount of iron if not anemic?
SlowDragon and SeasideSusie, I think you were the ones who advised that to correct low ferritin without anemia, you shouldn't supplement but get the iron through food. I'm wondering if I could at least take 5mg of iron supplement each day -- the amount that's in many daily women's multivitamins? Not long-term
SlowDragon and SeasideSusie, I think you were the ones who advised that to correct low ferritin without anemia, you shouldn't supplement but get the iron through food. I'm wondering if I could at least take 5mg of iron supplement each day -- the amount that's in many daily women's multivitamins? Not long-term
Gophe
in
Thyroid UK
4 years ago
Nalcrom Supply Update
Nalcrom update: Sanofi (maker of licensed Nalcrom) are estimating that their product will return to the UK in the week commencing 14 December. The Department of Health and Social Care estimates on their website that it will return in early January (perhaps taking into account that Sanofi's date has
Nalcrom update: Sanofi (maker of licensed Nalcrom) are estimating that their product will return to the UK in the week commencing 14 December. The Department of Health and Social Care estimates on their website that it will return in early January (perhaps taking into account that Sanofi's date has
Jess-UKMasto
Partner
in
The UK Mastocytosis Support Group
4 years ago
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Help interpreting bloods please
Hello First time poster. Asking for thoughts. I am 63 yrs old, 5 ft 8 ‘ish, about 145 pounds , reasonably fit High ldl, doc wanted me on statins, usual story Mainly lchf-light but not as lc nor hf as many .. Other health issues.. poor circulation (raynaulds?), wondering about thyroid General
Hello First time poster. Asking for thoughts. I am 63 yrs old, 5 ft 8 ‘ish, about 145 pounds , reasonably fit High ldl, doc wanted me on statins, usual story Mainly lchf-light but not as lc nor hf as many .. Other health issues.. poor circulation (raynaulds?), wondering about thyroid General
grahammus
in
Low-Carb High-Fat (LCHF)
4 years ago
Multiple gastroscopies
I was diagnosed with Nash about two and a half years ago. I had no idea that I had cirrhosis until it was discovered that I was severely endemic and the dermatologist ordered an abdominal scan. My lft,shave always been virtually normal. I was due to have a spectroscopy last December but didn't get an
I was diagnosed with Nash about two and a half years ago. I had no idea that I had cirrhosis until it was discovered that I was severely endemic and the dermatologist ordered an abdominal scan. My lft,shave always been virtually normal. I was due to have a spectroscopy last December but didn't get an
GrandmaDylan
in
British Liver Trust
4 years ago
B12 and platelet drop
Hi I have b12 deficiency and noticed my platelet count dropped to 149000 my doctor says it’s ok , happens with b12 deficiency but I am a bit concerned on this . Do these correlate . I have been asked to check my folate and iron levels which I will do next week. I am presently on b12 injections will
Hi I have b12 deficiency and noticed my platelet count dropped to 149000 my doctor says it’s ok , happens with b12 deficiency but I am a bit concerned on this . Do these correlate . I have been asked to check my folate and iron levels which I will do next week. I am presently on b12 injections will
Ulrich-vi
in
Pernicious Anaemia Society
4 years ago
Colonoscopy
Another question Can I take mebeverine and buscopan before a colonoscopy? It says on letter to stop taking Imodium, codeine phosphate & lomotil 5 days before but doesn’t mention mebeverine and buscopan!
Another question Can I take mebeverine and buscopan before a colonoscopy? It says on letter to stop taking Imodium, codeine phosphate & lomotil 5 days before but doesn’t mention mebeverine and buscopan!
Maisiemoo10
in
IBS Network
4 years ago
Imodium capsule
is imodium 2mg safe use for long term, imodium is perfect solution for diareha? for Diarehea pattient,
is imodium 2mg safe use for long term, imodium is perfect solution for diareha? for Diarehea pattient,
zubi123
in
IBS Network
4 years ago
Iron deficiency
Diagnosed with iron deficiency Anamia in 3/2020, prescribed ferrous sulfate 200mg twice a day. Had colonoscopy, endoscopy, no issue found. Chemist told me to take tablet with orange juice & after food. But I have to go to toilet 7 times with loose stool. Any suggestions?
Diagnosed with iron deficiency Anamia in 3/2020, prescribed ferrous sulfate 200mg twice a day. Had colonoscopy, endoscopy, no issue found. Chemist told me to take tablet with orange juice & after food. But I have to go to toilet 7 times with loose stool. Any suggestions?
mwanza100
in
Thyroid UK
4 years ago
Progress in 10 months
In January 2020 my CKD numbers were as follows eGFR = 42, Creatinine = 148. My numbers today (just had blood test on 4th November) are eGFR - 54 and creatinine 115. I am a 74 year old male with progressive multiple sclerosis. I decided to make some big changes to my life as follows. 1. I purchased
In January 2020 my CKD numbers were as follows eGFR = 42, Creatinine = 148. My numbers today (just had blood test on 4th November) are eGFR - 54 and creatinine 115. I am a 74 year old male with progressive multiple sclerosis. I decided to make some big changes to my life as follows. 1. I purchased
JAYCEE33
in
Early CKD Support
4 years ago
OLD on blood results
OLD does indeed mean old. The blood sample needs to go to the lab the same day for some tests including Folate Potassium chloride and sodium. My bloods were taken in the afternoon so we’re sent to the lab the next day. A lesson that bloods should be taken early morning. I shall have them done again
OLD does indeed mean old. The blood sample needs to go to the lab the same day for some tests including Folate Potassium chloride and sodium. My bloods were taken in the afternoon so we’re sent to the lab the next day. A lesson that bloods should be taken early morning. I shall have them done again
Tanya-B
in
Thyroid UK
4 years ago
Worried
Hi, I’ve been having stomach issues for the past few months. I can’t go anywhere without taking Imodium first, because my anxiety makes me feel like I need to be close to a bathroom at all times. I’m starting a new job soon and I’m really nervous about how I’m going to deal with my stomach issues at
Hi, I’ve been having stomach issues for the past few months. I can’t go anywhere without taking Imodium first, because my anxiety makes me feel like I need to be close to a bathroom at all times. I’m starting a new job soon and I’m really nervous about how I’m going to deal with my stomach issues at
Hidden
in
Anxiety Support
4 years ago
Is anyone on Bisacodyl tablets?
Hi - my 7 year old has been switched from sodium picosulphate to bisacodyl oral tablets. The consultant felt her bowel might have got a bit used to the sodium pico and therefore mixing it up with a different stimulant for a while might help. We’re not in a bad place at the moment but still get at little
Hi - my 7 year old has been switched from sodium picosulphate to bisacodyl oral tablets. The consultant felt her bowel might have got a bit used to the sodium pico and therefore mixing it up with a different stimulant for a while might help. We’re not in a bad place at the moment but still get at little
Helen36
in
ERIC
4 years ago
Anaemia and PMR/GCA
I am new here and this has probably come up before but I am trying to find out if there is a connection between PMR/GCA (they are not sure which I have) and anaemia - my Hb was 70 - I was given 2 bags of blood back in March (at start of lockdown!!) and have been on 3x210g of ferrous fumarate a day since
I am new here and this has probably come up before but I am trying to find out if there is a connection between PMR/GCA (they are not sure which I have) and anaemia - my Hb was 70 - I was given 2 bags of blood back in March (at start of lockdown!!) and have been on 3x210g of ferrous fumarate a day since
springeramber
in
PMRGCAuk
4 years ago
I'm new here I have low MCHC (31.8) and low b12, High Creatine (1.0) , Low Globulin (2.3). Are these numbers concerning? Thx for any advice
I need help interpreting bloodwork. Low MCHC concerns me. Thank you for any advice. My doctor is away and I don't want to worry in the meantime. Thanks
I need help interpreting bloodwork. Low MCHC concerns me. Thank you for any advice. My doctor is away and I don't want to worry in the meantime. Thanks
ceekingle
in
Pernicious Anaemia Society
4 years ago
Bladder problems??
After 3 months on Zytiga and Prednisone with no drop in a climbing PSA ( 6.4 in 12/19 to 20.1 on 11/14/20)we elected to try Dexamethasone with the Zytiga. I was on Xtandi for 3 yrs prior. But I noticed my evening bladder leakage problems got much worse. I usually just use a Maximum Depends Guard at night
After 3 months on Zytiga and Prednisone with no drop in a climbing PSA ( 6.4 in 12/19 to 20.1 on 11/14/20)we elected to try Dexamethasone with the Zytiga. I was on Xtandi for 3 yrs prior. But I noticed my evening bladder leakage problems got much worse. I usually just use a Maximum Depends Guard at night
docbulldog
in
Advanced Prostate Cancer
4 years ago
can anyone advise re test results? not sure what to think
hi Forum! I'm new here - first post - could i get some advice? I am 48, have been feeling really tired for months and really brainfogged since Feb/March & thought it was age and menopause starting. Then i had 2 periods in a month so went to GP to see if ok and talk about HRT because fed up of tiredness
hi Forum! I'm new here - first post - could i get some advice? I am 48, have been feeling really tired for months and really brainfogged since Feb/March & thought it was age and menopause starting. Then i had 2 periods in a month so went to GP to see if ok and talk about HRT because fed up of tiredness
ElephantShrew
in
Thyroid UK
4 years ago
The Road Less Traveled
THE ROAD LESS TRAVELED written by a prostate cancer patient who wants to be anonymous (posted by me on his behalf.) Most men if they ever think about their death presume it will be fast and painless. A PCA diagnosis can shatter that presumption. From age 70 to 73 my annual blood work showed an increasing
THE ROAD LESS TRAVELED written by a prostate cancer patient who wants to be anonymous (posted by me on his behalf.) Most men if they ever think about their death presume it will be fast and painless. A PCA diagnosis can shatter that presumption. From age 70 to 73 my annual blood work showed an increasing
Darryl
Partner
in
Advanced Prostate Cancer
4 years ago
Has anyone used Dipyridamole with effect for RLS?
I read that in 2014 and 2015 , Dr Ferre receieved grants from the RLS Foundation to more closely examine how dopamine and glutamate work in the brain. Apparently he found that low levels of receptors of adenosine, a chemical in the brain that regulates neurochemicals, lead to abnormally high levels
I read that in 2014 and 2015 , Dr Ferre receieved grants from the RLS Foundation to more closely examine how dopamine and glutamate work in the brain. Apparently he found that low levels of receptors of adenosine, a chemical in the brain that regulates neurochemicals, lead to abnormally high levels
mateloch
in
Restless Legs Syndrome
4 years ago
Ectopics
Was getting some bad Ectopics a month ago, had a E C G, cardiologist said i should cut down on coffee and Tea, My self i think i was overdoing it at work, but will never know, I had a blood test for my sodium, Magnesium, and Potassium all normal, Started taking Magnesium, but is it worth taking extra
Was getting some bad Ectopics a month ago, had a E C G, cardiologist said i should cut down on coffee and Tea, My self i think i was overdoing it at work, but will never know, I had a blood test for my sodium, Magnesium, and Potassium all normal, Started taking Magnesium, but is it worth taking extra
higgy52
in
Atrial Fibrillation Support
4 years ago
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