Multiple gastroscopies

[GrandmaDylan]

I was diagnosed with Nash about two and a half years ago. I had no idea that I had cirrhosis until it was discovered that I was severely endemic and the dermatologist ordered an abdominal scan. My lft,shave always been virtually normal. I was due to have a spectroscopy last December but didn't get an appointment till March which was obviously cancelled because of covid. In May at my yearly diabetes check I was once again found to be extremely anaemic. My go write to the liver team asking for an urgent spectroscopy but after waiting for about 10 weeks I contacted the outpatients appointment office only to be told that they didn't have me down as urgent. I asked if urgent was when you are vomiting blood and the advisor said pretty much yes! My go write again and I was still waiting for an appointment at the end of August when I started with Malena (black blood) I was admitted into the hospital and given two transfusions and then taken for the gastroscopy. They found two bleeding ulcers which they treated. I was in hospital for three days. Almost 3weeks later the same thing happened, admitted, gastroscopy , 2 iron infusions 3

days in hospital and sent home with more heavy duty meds. Three weeks later more of the same, 4 days in hospital and an appointment for another gastroscopy in a week with plans to treat the bleeding areas with argon beam as a day case. They couldn't stop the bleeding so I was admitted yet again with another gastroscopy and argon treatment with 3 consultants in attendance planned for the next day with three time slots booked. They were concerned that 5 gastroscopies in 7 weeks wasn't ideal. I was in hospital for 5 days this time. I had been hooked up to a 72 hour PPI this time which was a nuisance apart from anything else. I was discharged from the hospital and there was an appointment letter for me to have another gastroscopy on 24th of this month. I also an booked for an abdo scan in two weeks. I am so SIck of this disease.

Sorry for such a long, boring post but I just needed to tell someone who knows what cirrhosis does to your life and how much it takes away.

[Hidden]

Good morning,

Sorry to hear what you have been through, but thank you for sharing your experience here.

I hope your next endoscopy goes well.

Trust9

[AmericanDemocrat]

GD, I'm so glad to hear from you - I have been wondering about you. But I am terribly sorry to hear that things have taken this turn. To be honest, I didn't recall that you actually have cirrhosis ... I thought it was only NASH. (Although, maybe you just learned about the cirrhosis last December?) It's an awful disease and I wish so very much that you didn't have it. The description of what you've been through is not boring at all. We're here to listen and support each other. And you deserve to "vent" after all you've been through - it always helps to tell someone and get it off your chest. Are things at the point where you will or can be assessed for a transplant? Do you have family and friends to support you? Sending you all best wishes.