The UK Mastocytosis Support Group | HealthUnlocked

The UK Mastocytosis Support Group

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Post menopause mast cell reactions and is there light at the end of the tunnel?

I wondered if mast cell reactions would reduce at some point post menopause and ...

Today is International Mastocytosis and Mast Cell Diseases Awareness Day

Say what YOU need to live well with your mast cell disease today.
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"Say What You Need" for Awareness Day 2022 on October 20.

Here is another "tile" you can share on social media on Thursday!

Availability of Sodium Cromoglicate

Hi, is anyone else having supply issues with Sodium Cromoglicate at the moment? ...

"Say what you need" Awareness Day Campaign

Mastocytosis and Mast Cell Diseases Awareness Day is coming on October 20th! We...
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Advice on Medical Professionals overseeing MCAS care in Scotland.

Hi Everyone, 👋 I'm new to HealthUnlocked so still figuring things out.🙃 I hop...

Getting ready for Mastocytosis and Mast Cell Diseases Awareness Day on October 20, 2022!

The countdown is on...........We will be sharing numerous posts over the coming ...
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Ketotifen supply issue

Hi - I'm Kay and I have indolent systemic mastocytosis. I have just been phonin...
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Lemrac66.

I am 66 Myloplastic. And systemic mastocytosis. For mylo i on no medication....

MAST CELL ACTIVATION SYNDROME ONLINE TALKS

For all fellow MCAS ( also Histamine intolerance) sufferers, of if you suspect y...

any ideas can not sleep

any ideas. I gone another night with no sleep at all yesterday I slept for...

help please

I have hEDS . I had my kidney removed 12 weeks ago as I had vascular issues with...

GP doesn’t know where to send me.

I’m having a massive Mast Cell attack effecting my Kidneys and bladder. No signs...

Dental treatment. Tooth extraction.

I (82years old) have mastocytosis. One of my teeth has to be extracted. Has anyb...

what am I able ( if anything to claim for)

I am retired age 66. diagnosed with systemic mastocytosis and myloplasti...

So hot bad upset stomache

Please can anyone advise me going crazy with the heat.burning up sweating Very b...

Epe pen....demonstration one

Hi I ordered a demo epe pen . Anyone any idea how long it takes to deliver Than...

Swollen feet.joint pain.itching .don't sleep.

Hi another night no sleep. Was diagnosed. Aggressive systemic Mastocytosis. Wit...

Pains in legs

Can anyone advise diagnosed sm Week end both my legs from my knees to my ankles...

Anyone with sm .would like to chat

Hi my name lemrac. Anyone with sm who would like to chat on this .I not sure whe...

Learning my way round all this

Hi my name is Tony.. I have sm.recently diagnosed. Male 66. If there is anyone w...

Help please

I am new to this can anyone help

Severe Allergic Reaction due to heat. How do others manage this?

Hi all. I was hoping to hear from other people whose MCAS is triggered by heat a...

Help please. MCAS investigation on the NHS?

Hi. Sorry this is quite long but would be grateful if a anyone is able to help....

Changes In Immune System

After living with UP for around 30yrs and Systemic Mastocytosis diagnosed 13yrs ...

Cutaneous or Systemic - help please?!

Firstly - I am so happy to have found this place. Secondly - I am very aware tha...

Mastocytosis

Hi, I'm sorry to hear you are struggling with your medical condition. It can'...

Painrelief

Hello just a share point. Suffering with pain due to gallstones, as I am allergi...

Is this Community Group appropriate for Urticaria?

Is this Community Grouo appropriate for Urticaria/HIVES

Nalcrom (sodium cromoglicate) Availability

Hi, Does anyone know what the latest information is on the availability of Nalcr...
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About us

The UK Mastocytosis Support Group community is for anyone with diagnosed or un-diagnosed Mast Cell Diseases or...

Read more about The UK Mastocytosis Support Group
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