The UK Mastocytosis Support Group | HealthUnlocked

The UK Mastocytosis Support Group

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Advice on Covid booster

I was advised to have the Covid AZ jab due to my allergies and SM. Now I’m due f...

First immunology appointment

Hi, I have my first immunology appointment soon, under the allergy clinic. Can a...

Hello and Help!

Hi, I'm cheating here, as I'm from Australia, but the Lupus group hasn't minded ...

Mucus and Mastocytosis

Hi, I am struggling with a build up of mucus in my throat that I can can’t clear...

MGUS & Mastocytosis

Hi anyone else had an abnormal paraprotein identified? I have IgA kappa discover...

No supplies of zaditen/ketotifen

I went to collect my monthly prescription of zaditen/ketotifen this evening and ...

Which Covid vaccine with MCAS? Safe to take antihistamines?

Hello - I just wondered if there is any advice anywhere on which Covid vaccine i...

Brassica vegetables triggering mastocytosis?

I have been following a very restricted, low histamine diet for a couple of year...

MCAS specialist in London?

I’m still struggling with pain in my ears and deafness. I’ve not been able to ge...

Question about Blood Tryptase testing

Does anyone know the correct conditions for the blood mast cell tryptase to be p...

Nalcom

Hi just had a update for my pharmacy in Midhurst that Nalcrom is stil unavailab...

Adrenaline auto-injectors for children

Hello, I have recently been diagnosed with adult-onset urticaria pigmentosa. My ...

Mum with recently diagnosed baby

Hello :-) I’m a mum of a 6 month old who was diagnosed with mastocytosis this we...

Anyone know a UP specialist near Dorset?

This is mostly directed at the admins but was wondering if anyone knows a dermat...

Has anyone else struggled with the 2nd AstraZeneca jab?

I had the jab 6 weeks ago and still have Tinnitus, headache and terrible sinus p...

Nalcrom

Hi all, I hope everyone is coping ok with the heat! Feel as though this is unfor...

Newly diagnosed and confused

Hello, this is my first post here. I have just had the results from a biopsy an...

School Attendance help please

Hi, i'm not on here and not sure I'm posting in the right place? My son Jake, wh...

Struggling with symptoms

Hello everyone. I am new to the group but not new to systemic mastocytosis. My ...

Any suggestions for eye make-up ( simple eye pencil will also do) that does not cause itchy dry eye?

I always struggled to put on any eye make-up and could not figure out how all m...

Xolair

Is anyone here on it? How do you find it? My allergist at St. Thomas' has sugges...

Advice please,

Hi everyone, I'm starting to really struggle now. I'm...

MCAS

Hello Really good to find this group on HealthUnlocked. I’ve been sick on and o...

Mastocytosis Specialist UK

Hi, very new to forum posting but having read through a few threads it seems lik...

MCAS, Tarlov cysts, autoimmune diseases etc

Hi all I’ve had Mcas for around 8 years now. Seen several of the well known Mcas...

Chlorine?

Hello - I'm new here and just wanted to ask people a question I have recently jo...

Anti-histamine recommendation without fillers etc?

Hello Everyone, My 16 year old daughter has suspected mast cell overactivity and...

Need guidance on which specialist GP should refer

My GP is clueless about Mastocytosis. Asking me which specialist should she refe...

Nalcrom and Intal update

When I spoke with Sanofi recently they confirmed that we should expect Nalcrom t...

Unusual symptoms -- could this be mast cell?

Hello everyone! I have a symptoms question I wanted to ask on behalf of my husba...
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The UK Mastocytosis Support Group community is for anyone with diagnosed or un-diagnosed Mast Cell Diseases or...

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