Apparently my blood counts have gotten so low that there's no treatment available for me I've done the LU177 and the radium 223 but the doctor told me yesterday 3 to 6 months you all take care love you all treat each other with respeit's back and keep helping each other
Thanks for support and great informat... - Advanced Prostate...
Thanks for support and great information
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Devtony8
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My counts have all been sinking in recent months... the cancer is in the bone marrow now, not just bone lesions. (I also failed the Lu177, which probably made the marrow situation worse instead of better.)
Next week I will get my first shot of high-dose T in an attempt at BAT. Even if the high-T fails to kill cancer cells, I am hoping it will 1) improve low blood counts, and 2) improve energy levels and QoL.
Not many docs are going to suggest high-T, let alone be willing to administer it, but might be worth a shot?
I agree with noahware in this situation. If no other treatment, may as well restore testosterone to SPT level with BAT and hope to feel better and stimulate marrow function. It can even suppress the cancer in over half of patients.
Very sorry for your lack of a positive response.
hi devtony8 ….
First I’m sorry your nuclear treatments didn’t succeed. I know that must bum you out . Your doctors may well be correct saying you have 3 - 6 months left , but ….speaking from personal experience, that ain’t necessarily so. The docs are giving you their best medical guess but it’s just a guess. I believe that sometimes a strong desire to persist, attitude in other words …can play strongly into things.
When I was DXed, my table full of doctors, grim faces and all, said I should enter hospice immediately, my time was short. My wife and I cried a lot. I had never had any attempt at treatment and asked for adt ….first.
Now, its 52 months past that awful meeting and I’m still here going pretty strong.
My friend Mark, Urang on this group, ….after 22years fighting the beast …was sent home by the V.A. for home hospice. They said death was close. Mark puttered around his garden and played with his computers for 3 more comfortable years.
The human spirit can be strong and we are often able to persist well beyond what doctors might think. Your doctors are giving you their best conservative guess but you might live well beyond what everyone expects. No one really knows when their end will come.
Even your projected 3 - 6 months gives you time to enrich your life and the lives of your loved ones around you. Making nice loving memories for those staying behind. I believe , for me at least, it’s far better building close loving QOL times with my remaining time … Better sitting watching that beautiful multi hued sunset with my loved ones ..than sitting on my couch depressed, angry … feeling sorry for myself, making everyone around me cry.
3 - 6 months is an opportunity if you live in the moment and seize that opportunity. Drag your butt up, dust yourself off, throw away those wet tissues and book reservations for dinner at a nice restaurant and take your closest loved out out to dinner. Book a few days at a local or nearby resort … take your loved one , maybe some family too … go play in the heated pool and spa. Dine at an upscale restaurant … go for scenic walks , …have a pic-nic … walk the sea shore. … Make those lasting memories, … they will serve you as long as you remain and stay with your loved ones remaining behind after. It’s WAY better for you than that crummy couch brother. You are “ good to go “ right now, so get up and do it. Don’t throw away any of your remaining life , life is too precious…. Loved ones are too precious as well. Instead of making them cry , make them some loving memories to treasure.
Just my own thoughts on the moment … I hope they can be yours too.
Much love brother
❤️❤️❤️
Kaliber, you always know what to say in these times. Love you brother!
I'm sorry to hear about your low blood counts. I hope they can maintain your quality of life with palliative therapy.
Ty
Tough spot. You just might be surprised how much mileage you can get by “making the most of it.” Keep doing what makes you feel most alive for as long as you can. You just might surprise your docs and yourself. Best wishes to you.
sending peace & love 🕊️
Thank you for taking the time to post, despite your frightening news. I respect that effort a lot.
K's comments above pretty much say it all. I wish you strength, love and peace in this difficult time.
Ty
What K said. You didn't choose to have cancer, but you can choose what you do from here on out. 🙏❤💪
Sending you love and peace
Looking for someone in or near Maryland to do BAT
I believe Johns Hopkins may do BAT; Dr Denmeade.
Did you get all 6 treatments of LU-177? At what point did your blood counts get too low that treatment had to stop? Stopping treatment, at least temporarily, can help improve your bone marrow and blood counts.
Yes I got them all then 45 days later they started zofigo because of met growth in New areas. So it was in my opinion now too much nuclear medicine.
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