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Medium chain acyl dehydrogenase deficiency
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Clonidine - success with RLS anyone?
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Heatherandgorse
in
Restless Legs Syndrome
3 months ago
Monitor My Health iron test - lack of ranges
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
Bearo
in
Thyroid UK
4 months ago
TSAT low, ferretin high
Dear fellow sufferers in RLS hell. My sleep medicine doctor suggested an iron infusion because my TSAT is 28,87% while my ferretin is 145,40ng/ml. I was taking iron supplement for 6 months before the test. I am not very knowledgeable about the difference between TSAT and ferritin. How high are
Dear fellow sufferers in RLS hell. My sleep medicine doctor suggested an iron infusion because my TSAT is 28,87% while my ferretin is 145,40ng/ml. I was taking iron supplement for 6 months before the test. I am not very knowledgeable about the difference between TSAT and ferritin. How high are
sigurdur
in
Restless Legs Syndrome
4 months ago
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iron and b12 test results
How am I doing with iron and b12? i posted before about my thyroid results and have reduced my Levo a tiny amount pending testing again in a few weeks time I now have the rest of my results (minus ferritin and folate ) from MMH. I can see that my iron and b12 are not dire but neither are they optimal
How am I doing with iron and b12? i posted before about my thyroid results and have reduced my Levo a tiny amount pending testing again in a few weeks time I now have the rest of my results (minus ferritin and folate ) from MMH. I can see that my iron and b12 are not dire but neither are they optimal
Bearo
in
Thyroid UK
4 months ago
Mums progression
Evening everyone, My mum was diagnosed with cirrhosis of the liver back in Feb, she has had numerous stays in hospital in that time due to Ascites and problems after taking her diuretics (problem with low sodium), we managed to get her home for around 8 weeks and in that time she slowly started to pick
Evening everyone, My mum was diagnosed with cirrhosis of the liver back in Feb, she has had numerous stays in hospital in that time due to Ascites and problems after taking her diuretics (problem with low sodium), we managed to get her home for around 8 weeks and in that time she slowly started to pick
Char0127
in
British Liver Trust
6 days ago
Ibs 40 years wipeout yesterday . I've been taking imodium for nearly 4 years after having Covid 3 times. Tried Buscopan instead of imodium
Hi since trying buscapan for 2 weeks I have in last few days woken up with explosive diarrhoea overflow. I decided last Monday I would not take imodium but yesterday was shocking 11 trips to loo with runs. Drank 2 liters of water to keep hydrated I'm nearly 76 feel week. Kidney Disease. Rehydration
Hi since trying buscapan for 2 weeks I have in last few days woken up with explosive diarrhoea overflow. I decided last Monday I would not take imodium but yesterday was shocking 11 trips to loo with runs. Drank 2 liters of water to keep hydrated I'm nearly 76 feel week. Kidney Disease. Rehydration
Angelsong2020
in
IBS Network
6 days ago
Can't use Panpharma 😫
Although I'm prescribed B12 ampoules via my gp, I can only use certain brands without agonising stinging and burning. My local pharmacy hasn't been able to source anything for over a month. It's the added sodium acrylate that I react to. Decided to order online and I thought I'd thoroughly researched
Although I'm prescribed B12 ampoules via my gp, I can only use certain brands without agonising stinging and burning. My local pharmacy hasn't been able to source anything for over a month. It's the added sodium acrylate that I react to. Decided to order online and I thought I'd thoroughly researched
Myoldcat
in
Pernicious Anaemia Society
7 days ago
IBS-D Flare Up
Hey All, first time posting, I’ve had ibsd for over 10 years now and I have the occasional flare up which I deal with, however since Christmas when I was caught short on a walk my anxiety has been through the roof with going out and worrying about getting caught short again. I have been on Citalopram
Hey All, first time posting, I’ve had ibsd for over 10 years now and I have the occasional flare up which I deal with, however since Christmas when I was caught short on a walk my anxiety has been through the roof with going out and worrying about getting caught short again. I have been on Citalopram
Discoverer
in
IBS Network
8 days ago
High blood pressure
As well as Tzc, I am taking 5mg pred, 10mg amitryptiline, naproxen, lanzoprazole, risendronate sodium, calcium and vit D. Could any of these be the culprit for high blood pressure rather than Tocilizumab injections?
As well as Tzc, I am taking 5mg pred, 10mg amitryptiline, naproxen, lanzoprazole, risendronate sodium, calcium and vit D. Could any of these be the culprit for high blood pressure rather than Tocilizumab injections?
AliDeJ
in
PMRGCAuk
10 days ago
Continued Journey
I will be starting the prep for my Bone Marrow Transplant (June 27) Friday. I have 5 days of chemo starting Friday this week, with a rest day before the BMT. Apprehension has been growing in me but it is balanced by others that have successfully made this journey. Also, my Drs. And team give an
I will be starting the prep for my Bone Marrow Transplant (June 27) Friday. I have 5 days of chemo starting Friday this week, with a rest day before the BMT. Apprehension has been growing in me but it is balanced by others that have successfully made this journey. Also, my Drs. And team give an
FiArt12X
in
CLL Support
10 days ago
Sodium intake.
With a norm of 136.0-151.0, my sodium is 127 mmol/l, which means that it is below the norm. With a norm of 3.5-5.6 potassium, it is 5.7, which is above the norm. Does anyone here have this? Should I increase my sodium intake? Besides atrial fibrillation, I also have stage 3b chronic renal failure.
With a norm of 136.0-151.0, my sodium is 127 mmol/l, which means that it is below the norm. With a norm of 3.5-5.6 potassium, it is 5.7, which is above the norm. Does anyone here have this? Should I increase my sodium intake? Besides atrial fibrillation, I also have stage 3b chronic renal failure.
Falkovec
in
Atrial Fibrillation Support
10 days ago
Silent Reflux? Is yours scary?
Initially I could just be having a drink of water from a bottle and suddenly spray the water straight back out of my mouth. No warning. No previous symptoms either. After a scan and blood tests that were fine, in a week it stopped. 3 months down the track, the left hand side of tongue and under tongue
Initially I could just be having a drink of water from a bottle and suddenly spray the water straight back out of my mouth. No warning. No previous symptoms either. After a scan and blood tests that were fine, in a week it stopped. 3 months down the track, the left hand side of tongue and under tongue
MeeMawMea
in
Acid Reflux Support
17 days ago
Sodium Lauryl Sulphate&Iron
Hi, anybody found out if ferrous fumerate can be got without sodium lauryl sulphate. I need the iron badly but suffer because of the SLS.
Hi, anybody found out if ferrous fumerate can be got without sodium lauryl sulphate. I need the iron badly but suffer because of the SLS.
Mattie2022
in
Thyroid UK
17 days ago
New thyroid and renal bloods🤔
Hi everyone ❤️So I have now received my thyroid blood work after 6 weeks tyring to stomach 25micrograms T4 vencamil..🤢 as before I've suffered with all the side effects which highten when I went from 12.5 to 25micrograms the worst being the diarrhoea, cramps,sickness,headache, metallic taste in mouth
Hi everyone ❤️So I have now received my thyroid blood work after 6 weeks tyring to stomach 25micrograms T4 vencamil..🤢 as before I've suffered with all the side effects which highten when I went from 12.5 to 25micrograms the worst being the diarrhoea, cramps,sickness,headache, metallic taste in mouth
birkie
in
Thyroid UK
18 days ago
IBS ok with daily loperamide
Male, for the Last 4 years have suffered from IBS -D ( mainly diarrhoea )diagnosis after colonoscopy & associated blood tests I was advised by a specialist to take Imodium (loperamide) daily after first poo, I follow the FODMAP diet & LOW insoluble fibre. And try to eat Prebiotic foods e.g Oats, also
Male, for the Last 4 years have suffered from IBS -D ( mainly diarrhoea )diagnosis after colonoscopy & associated blood tests I was advised by a specialist to take Imodium (loperamide) daily after first poo, I follow the FODMAP diet & LOW insoluble fibre. And try to eat Prebiotic foods e.g Oats, also
Kestrel66
in
IBS Network
20 days ago
Sublingual to Swallowing Levo/T3 - My Grand Experiment n=1 - the results are in!
I am planning to update on my latest blood test results, but first I’m going to report back on my grand experiment - Switching from sublingual to swallowing my thyroid hormones. |
*****EXPERIMENT SET UP*****
I have been taking sublingual since diagnosed in Aug ‘22 at which time my TSH was 85
I am planning to update on my latest blood test results, but first I’m going to report back on my grand experiment - Switching from sublingual to swallowing my thyroid hormones. |
*****EXPERIMENT SET UP*****
I have been taking sublingual since diagnosed in Aug ‘22 at which time my TSH was 85
FallingInReverse
in
Thyroid UK
21 days ago
Is it OK to take hydrolytes when you have PMR?
We live in Cyprus and are currently going through a heatwave with temperatures reaching 40C. I've had PMR since August 2020 and have been on 7.5mg of prednisolone since October 2020. In the past I've taken hydrolytes in very hot weather as I suffer badly from head sweating. Strangely enough, nowhere
We live in Cyprus and are currently going through a heatwave with temperatures reaching 40C. I've had PMR since August 2020 and have been on 7.5mg of prednisolone since October 2020. In the past I've taken hydrolytes in very hot weather as I suffer badly from head sweating. Strangely enough, nowhere
Pr0jection
in
PMRGCAuk
22 days ago
Indapamide & Potassium
Hi guys, i had a blood test on Monday as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure also underactive thyroid Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74
Hi guys, i had a blood test on Monday as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure also underactive thyroid Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74
yewotc23
in
Thyroid UK
23 days ago
Indapamide & Potassium
Hi guys, i had a blood test on Monday to as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74 umol/L [45.0 - 84.0
Hi guys, i had a blood test on Monday to as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74 umol/L [45.0 - 84.0
yewotc23
in
Early CKD Support
23 days ago
Indapamide & Potassium
Hi guys, i had a blood test on Monday to as doctor wanted to test U&Es Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74 umol/L [45.0 - 84.0] It's been marked as satisfactory no further action,
Hi guys, i had a blood test on Monday to as doctor wanted to test U&Es Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74 umol/L [45.0 - 84.0] It's been marked as satisfactory no further action,
yewotc23
in
High Blood Pressure Support
23 days ago
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