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Medium chain acyl dehydrogenase deficiency
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need guidance
I need help. I recently lost my NP that monitored and subscribed my thyroid medication. I don’t have a thyroid. I had it removed in 2002 due to a thyroid nodules that were cancerous. I have taken 120 mg of Armour thyroid for years and a small dose of t3 12mcg. The new prescriber I just saw wants
I need help. I recently lost my NP that monitored and subscribed my thyroid medication. I don’t have a thyroid. I had it removed in 2002 due to a thyroid nodules that were cancerous. I have taken 120 mg of Armour thyroid for years and a small dose of t3 12mcg. The new prescriber I just saw wants
Hydejf66
in
Thyroid Cancer Support
8 months ago
Help!
Nearly 6 y old son who is having issues with faecal soiling and wet accidents. Has been on Movicol for 3 years - several disimpactions with the most recent in December. Best success yet having got up to 12 sachets and brown water. Continued for 24 h and got more solid poo out so did further 24 hours
Nearly 6 y old son who is having issues with faecal soiling and wet accidents. Has been on Movicol for 3 years - several disimpactions with the most recent in December. Best success yet having got up to 12 sachets and brown water. Continued for 24 h and got more solid poo out so did further 24 hours
Helplesslyhoping1
in
ERIC
6 months ago
loperamide
my doctor has advised I take this daily but I’m worried they will lose their effect over time and stop working. Does anyone else take Imodium daily and if so has this happened?
my doctor has advised I take this daily but I’m worried they will lose their effect over time and stop working. Does anyone else take Imodium daily and if so has this happened?
Finefornow
in
IBS Network
8 months ago
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b12 iron relationship?
Hi friends…I was diagnosed with a b12 deficiency in June, which is thankfully improving with injections (I had horrible neuro symptoms). I had my iron tested twice over the summer, both well in the good range (over 100). However, this week I had an iron panel showing my iron is 40 (literally the bottom
Hi friends…I was diagnosed with a b12 deficiency in June, which is thankfully improving with injections (I had horrible neuro symptoms). I had my iron tested twice over the summer, both well in the good range (over 100). However, this week I had an iron panel showing my iron is 40 (literally the bottom
MuppDog
in
Pernicious Anaemia Society
9 months ago
Iron deficiency
Hello I’m asking a question with regards to low ferritin levels (17.4). I’m confused whether I should be prescribed folic acid or iron?!
Hello I’m asking a question with regards to low ferritin levels (17.4). I’m confused whether I should be prescribed folic acid or iron?!
sewingroom
in
Thyroid UK
9 months ago
Results Advice
Hi I’m looking for some advice on my recent bloods please, since my last test I dropped my levo back to 100mg a day and increased my lio by 5mg so I’m a little confused as to why my T3 has dropped🤷♀️the only thing I can think of is that I’ve been using Morningside lio for my 10mg dose in the morning
Hi I’m looking for some advice on my recent bloods please, since my last test I dropped my levo back to 100mg a day and increased my lio by 5mg so I’m a little confused as to why my T3 has dropped🤷♀️the only thing I can think of is that I’ve been using Morningside lio for my 10mg dose in the morning
PrincessAnnie
in
Thyroid UK
9 months ago
Targinact
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
Quiltingmum
in
Restless Legs Syndrome
9 months ago
Promethazine Hydrochloride
hi I have been desperate for sleep but my RLS has been so bad that I’ve found it impossible I managed to get a GP appointment and told her my story and background and although she was sympathetic said the RLS I’d very difficult to control I told her I had no desire to go back on to a DA and my problems
hi I have been desperate for sleep but my RLS has been so bad that I’ve found it impossible I managed to get a GP appointment and told her my story and background and although she was sympathetic said the RLS I’d very difficult to control I told her I had no desire to go back on to a DA and my problems
Hoochybaby
in
Restless Legs Syndrome
9 months ago
Chemo Update March 27, 2024
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
Islandboy2021
in
Advanced Prostate Cancer
4 months ago
Takotsubo Cardiomyopathy
had a small heart attack while on holiday in Turkey on 26/09/23. Hospitalised for 6 days on drip as had low sodium/potassium levels. Had an angiogram, No stents required, found muscular bridge and mitral valve regurgitation, given medication.Upon return to UK Hospitalised after a week with chest pain
had a small heart attack while on holiday in Turkey on 26/09/23. Hospitalised for 6 days on drip as had low sodium/potassium levels. Had an angiogram, No stents required, found muscular bridge and mitral valve regurgitation, given medication.Upon return to UK Hospitalised after a week with chest pain
Quaddie
in
British Heart Foundation
8 months ago
Thyroid, Cortisol And Sodium Question
Hi All, Got my latest results and it's a bit messy. I got off NDT 1,5 grains and switched to 88 mcg of levo, my old levo I was on before. Prior to that, I was on 75/88 mcg, alternating. So I increased and now re-checked my bloods after 8 weeks. Btw, I'm well versed in everything recommended here
Hi All, Got my latest results and it's a bit messy. I got off NDT 1,5 grains and switched to 88 mcg of levo, my old levo I was on before. Prior to that, I was on 75/88 mcg, alternating. So I increased and now re-checked my bloods after 8 weeks. Btw, I'm well versed in everything recommended here
Juliet_22
in
Thyroid UK
8 months ago
GI issues post transplant
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
Tankjsl
in
Kidney Transplant
8 months ago
High BLood Pressure, Kidney failure, cause discovered
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
phebamom
in
High Blood Pressure Support
5 months ago
👋 bad experience with indapamine.
My g.p recently added Indapamine to my blood pressure medication, I also take losartan and lercanidipine. I felt ill for 14 days and after a blood test I was sent to A and E for emergency treatment, a potassium and sodium drop overnight and tablets to take at home for 7 days. I still feel ill and had
My g.p recently added Indapamine to my blood pressure medication, I also take losartan and lercanidipine. I felt ill for 14 days and after a blood test I was sent to A and E for emergency treatment, a potassium and sodium drop overnight and tablets to take at home for 7 days. I still feel ill and had
skagal
in
High Blood Pressure Support
8 months ago
ileostomy surgery recovery
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
MyStar86
in
Living with a Stoma
8 months ago
Sodium Picosulfate
my foster child has been on either Laxido or Movecol since he was 5years old, he is now 12. He had a brief time of no soiling during Covid and isolation, and another one a year ago where he didn’t soil. He has now been put on sodium Picosulfate, since November last year. He has a 5ml dose each evening
my foster child has been on either Laxido or Movecol since he was 5years old, he is now 12. He had a brief time of no soiling during Covid and isolation, and another one a year ago where he didn’t soil. He has now been put on sodium Picosulfate, since November last year. He has a 5ml dose each evening
Samnon
in
ERIC
4 months ago
new blood test,
New blood test, any help of understanding this I’d would be great full. Serum lipid levels Serum cholesterol level 6.5 mmol/L Serum HDL cholesterol level 1.1 mmol/L Cholesterol/HDL Ratio 5.9 Serum LDL cholesterol level 3.8 mmol/L Serum triglyceride levels 3.5 mmol/L Guide to Lipid Interpretation
New blood test, any help of understanding this I’d would be great full. Serum lipid levels Serum cholesterol level 6.5 mmol/L Serum HDL cholesterol level 1.1 mmol/L Cholesterol/HDL Ratio 5.9 Serum LDL cholesterol level 3.8 mmol/L Serum triglyceride levels 3.5 mmol/L Guide to Lipid Interpretation
Haze1975
in
Thyroid UK
8 months ago
Erfa swap update
my ferritin has just come back as 28 (5-204) I think this is my iron store so it’s clearly deficient. I’ve struggled with anaemia since I was about 18 (maybe before but no cause before then for a blood test it was discovered when I became a donor) No one has ever given me a reason for this! And I
my ferritin has just come back as 28 (5-204) I think this is my iron store so it’s clearly deficient. I’ve struggled with anaemia since I was about 18 (maybe before but no cause before then for a blood test it was discovered when I became a donor) No one has ever given me a reason for this! And I
Starseed56
in
Thyroid UK
9 months ago
Radium-223 and [177Lu]Lu-PSMA
Has anyone here from Canada had experience with either of the two PSMA treatments. I was all excited about this until I looked into it a bit more and the results seem to be very mixed not to mention the cost of upwards of $27K per treatment (5 or 6 treatments seems to be typical). I have completed 8
Has anyone here from Canada had experience with either of the two PSMA treatments. I was all excited about this until I looked into it a bit more and the results seem to be very mixed not to mention the cost of upwards of $27K per treatment (5 or 6 treatments seems to be typical). I have completed 8
westjl2
in
Advanced Prostate Cancer
5 months ago
ketchup
can anyone with experience taking Radium 223 tell me the experience they went thru. I am staring on the 8th and want to know if there were side effects and if you managed to do all 6 doses. Cheers
can anyone with experience taking Radium 223 tell me the experience they went thru. I am staring on the 8th and want to know if there were side effects and if you managed to do all 6 doses. Cheers
catsup
in
Advanced Prostate Cancer
5 months ago
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