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Medium chain acyl dehydrogenase deficiency
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loperamide
my doctor has advised I take this daily but I’m worried they will lose their effect over time and stop working. Does anyone else take Imodium daily and if so has this happened?
my doctor has advised I take this daily but I’m worried they will lose their effect over time and stop working. Does anyone else take Imodium daily and if so has this happened?
Finefornow
in
IBS Network
7 months ago
Targinact
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
Quiltingmum
in
Restless Legs Syndrome
8 months ago
Promethazine Hydrochloride
hi I have been desperate for sleep but my RLS has been so bad that I’ve found it impossible I managed to get a GP appointment and told her my story and background and although she was sympathetic said the RLS I’d very difficult to control I told her I had no desire to go back on to a DA and my problems
hi I have been desperate for sleep but my RLS has been so bad that I’ve found it impossible I managed to get a GP appointment and told her my story and background and although she was sympathetic said the RLS I’d very difficult to control I told her I had no desire to go back on to a DA and my problems
Hoochybaby
in
Restless Legs Syndrome
8 months ago
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Following SOC here in BC Canada
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
Islandboy2021
in
Advanced Prostate Cancer
2 months ago
Help!
Nearly 6 y old son who is having issues with faecal soiling and wet accidents. Has been on Movicol for 3 years - several disimpactions with the most recent in December. Best success yet having got up to 12 sachets and brown water. Continued for 24 h and got more solid poo out so did further 24 hours
Nearly 6 y old son who is having issues with faecal soiling and wet accidents. Has been on Movicol for 3 years - several disimpactions with the most recent in December. Best success yet having got up to 12 sachets and brown water. Continued for 24 h and got more solid poo out so did further 24 hours
Helplesslyhoping1
in
ERIC
6 months ago
My husband has passed.
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
rhenrick
in
Advanced Prostate Cancer
2 months ago
Takotsubo Cardiomyopathy
had a small heart attack while on holiday in Turkey on 26/09/23. Hospitalised for 6 days on drip as had low sodium/potassium levels. Had an angiogram, No stents required, found muscular bridge and mitral valve regurgitation, given medication.Upon return to UK Hospitalised after a week with chest pain
had a small heart attack while on holiday in Turkey on 26/09/23. Hospitalised for 6 days on drip as had low sodium/potassium levels. Had an angiogram, No stents required, found muscular bridge and mitral valve regurgitation, given medication.Upon return to UK Hospitalised after a week with chest pain
Quaddie
in
British Heart Foundation
7 months ago
Ttck1825
Is anyone taking slow sodium tablets for low levels and gaining weight
Is anyone taking slow sodium tablets for low levels and gaining weight
Ttck1825
in
British Liver Trust
3 months ago
Thyroid, Cortisol And Sodium Question
Hi All, Got my latest results and it's a bit messy. I got off NDT 1,5 grains and switched to 88 mcg of levo, my old levo I was on before. Prior to that, I was on 75/88 mcg, alternating. So I increased and now re-checked my bloods after 8 weeks. Btw, I'm well versed in everything recommended here
Hi All, Got my latest results and it's a bit messy. I got off NDT 1,5 grains and switched to 88 mcg of levo, my old levo I was on before. Prior to that, I was on 75/88 mcg, alternating. So I increased and now re-checked my bloods after 8 weeks. Btw, I'm well versed in everything recommended here
Juliet_22
in
Thyroid UK
8 months ago
Mania Episodes
I have mania episodes too much high as I went off of antidepressants. I was a couple of months off of meds. But due to angerness my psychiatrist started Divalproex Sodium solution and Risperidone + Trihexyphenidyl meds. I saw Divalproex comes under black box warning in US. I live in India. I am a little
I have mania episodes too much high as I went off of antidepressants. I was a couple of months off of meds. But due to angerness my psychiatrist started Divalproex Sodium solution and Risperidone + Trihexyphenidyl meds. I saw Divalproex comes under black box warning in US. I live in India. I am a little
guitaristepiphone
in
Anxiety and Depression Support
3 months ago
GI issues post transplant
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
Tankjsl
in
Kidney Transplant
8 months ago
My response to the AASM Guidelines For RLS
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
SueJohnson
in
Restless Legs Syndrome
3 months ago
👋 bad experience with indapamine.
My g.p recently added Indapamine to my blood pressure medication, I also take losartan and lercanidipine. I felt ill for 14 days and after a blood test I was sent to A and E for emergency treatment, a potassium and sodium drop overnight and tablets to take at home for 7 days. I still feel ill and had
My g.p recently added Indapamine to my blood pressure medication, I also take losartan and lercanidipine. I felt ill for 14 days and after a blood test I was sent to A and E for emergency treatment, a potassium and sodium drop overnight and tablets to take at home for 7 days. I still feel ill and had
skagal
in
High Blood Pressure Support
8 months ago
ileostomy surgery recovery
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
MyStar86
in
Living with a Stoma
8 months ago
new blood test,
New blood test, any help of understanding this I’d would be great full. Serum lipid levels Serum cholesterol level 6.5 mmol/L Serum HDL cholesterol level 1.1 mmol/L Cholesterol/HDL Ratio 5.9 Serum LDL cholesterol level 3.8 mmol/L Serum triglyceride levels 3.5 mmol/L Guide to Lipid Interpretation
New blood test, any help of understanding this I’d would be great full. Serum lipid levels Serum cholesterol level 6.5 mmol/L Serum HDL cholesterol level 1.1 mmol/L Cholesterol/HDL Ratio 5.9 Serum LDL cholesterol level 3.8 mmol/L Serum triglyceride levels 3.5 mmol/L Guide to Lipid Interpretation
Haze1975
in
Thyroid UK
8 months ago
Chemo Update March 27, 2024
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
Islandboy2021
in
Advanced Prostate Cancer
3 months ago
Erfa swap update
my ferritin has just come back as 28 (5-204) I think this is my iron store so it’s clearly deficient. I’ve struggled with anaemia since I was about 18 (maybe before but no cause before then for a blood test it was discovered when I became a donor) No one has ever given me a reason for this! And I
my ferritin has just come back as 28 (5-204) I think this is my iron store so it’s clearly deficient. I’ve struggled with anaemia since I was about 18 (maybe before but no cause before then for a blood test it was discovered when I became a donor) No one has ever given me a reason for this! And I
Starseed56
in
Thyroid UK
9 months ago
High BLood Pressure, Kidney failure, cause discovered
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
phebamom
in
High Blood Pressure Support
5 months ago
Multiple mechanisms to clear a-synuclein with natural substances (in mice).
For informational purposes only Alpha Synuclein 1. INTRODUCTION: There are no effective treatments nor drugs available to modify disease progression
For informational purposes only Alpha Synuclein 1. INTRODUCTION: There are no effective treatments nor drugs available to modify disease progression
House2
in
Cure Parkinson's
8 months ago
medication timing and blood
hi am currently on a t4 t3 commode bloods at 945am next week what is the best time to take them they are two tablets each tablet is levothryoxine sodium 50ug liothyronine sodium 12.5ug) thankyou in advance
hi am currently on a t4 t3 commode bloods at 945am next week what is the best time to take them they are two tablets each tablet is levothryoxine sodium 50ug liothyronine sodium 12.5ug) thankyou in advance
Joannak
in
Thyroid UK
8 months ago
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