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Experiences with
Medium chain acyl dehydrogenase deficiency
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Iron Infusion
Sue perhaps you can help me, I have been successfully relying on diet for years but RLS seems to be catching up. I am in Australia. Perhaps its simply a matter of getting older (currently 79) but a couple of other things might be a problem. I tore a hamstring muscle or tendon that apparently caused
Sue perhaps you can help me, I have been successfully relying on diet for years but RLS seems to be catching up. I am in Australia. Perhaps its simply a matter of getting older (currently 79) but a couple of other things might be a problem. I tore a hamstring muscle or tendon that apparently caused
Graham3196
in
Restless Legs Syndrome
4 months ago
4th line palliative systemic options?
Oncologist phone call today was not the news we were hoping for.PSA had been at 20 past 4 months and hubby was diagnosed as stable. Monthly PSA blood work is done and this month PSA jumped to 29. Oncologist is sending hubby for another Bone and CT scan. She has suggested either abiraterone, clinical
Oncologist phone call today was not the news we were hoping for.PSA had been at 20 past 4 months and hubby was diagnosed as stable. Monthly PSA blood work is done and this month PSA jumped to 29. Oncologist is sending hubby for another Bone and CT scan. She has suggested either abiraterone, clinical
Docker53
in
Advanced Prostate Cancer
5 months ago
Struggling
My partner had a fall 8 weeks ago whilst on holiday in Bulgaria. He had a fractured occipital bone and 3 small bleeds on the brain. He spent 12 days in hospital and a further week in the hotel before he was fit to fly. Within three days of being home he was walking quite well, only occasionally using
My partner had a fall 8 weeks ago whilst on holiday in Bulgaria. He had a fractured occipital bone and 3 small bleeds on the brain. He spent 12 days in hospital and a further week in the hotel before he was fit to fly. Within three days of being home he was walking quite well, only occasionally using
Support4Norm
in
Headway
8 months ago
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Taking Metformin?
This MHRA advice was published last year: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
[/i] [i]Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
This MHRA advice was published last year: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
[/i] [i]Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
helvella
Thyroid UK
in
Thyroid UK
9 months ago
Iron results help
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Nellie2016
in
Thyroid UK
9 months ago
suspected epidural tumour
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
StayingSTRNG
in
Advanced Prostate Cancer
5 months ago
Hypo with CKD & Bradycardia
Him A little about me, 55, female, psoriatic arthritis from a child, treated with biological Cosentxy and Methotrexate. Fatigue/weight gain led to a diagnosis of Fibromyalgia in 2018 after gallbladder removal. I was treated with high dose steroid injections. Over the next 18 months I suffered 12
Him A little about me, 55, female, psoriatic arthritis from a child, treated with biological Cosentxy and Methotrexate. Fatigue/weight gain led to a diagnosis of Fibromyalgia in 2018 after gallbladder removal. I was treated with high dose steroid injections. Over the next 18 months I suffered 12
SimbaT
in
Thyroid UK
9 months ago
b12 purchase
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Maximus2222
in
Pernicious Anaemia Society
9 months ago
iron supplements
hello just enquiring if you think I should take iron supplements, my serum iron was 10 (5.83/34.5) it has now gone up a bit to 13.6 same range,saturated 20% folate 3.3 (3/26-8) drs say everything is fine I do get restless leg syndrome and am on ropinerole but have started getting it in the daytime as
hello just enquiring if you think I should take iron supplements, my serum iron was 10 (5.83/34.5) it has now gone up a bit to 13.6 same range,saturated 20% folate 3.3 (3/26-8) drs say everything is fine I do get restless leg syndrome and am on ropinerole but have started getting it in the daytime as
Kowbie
in
Pernicious Anaemia Society
9 months ago
Radium 223 when there is lymph node involvement?
Is Radium 223 used when there is lymph node involvement along with skeletal mets, but no visceral mets? Thanks in advance.
Is Radium 223 used when there is lymph node involvement along with skeletal mets, but no visceral mets? Thanks in advance.
SuppWife
in
Advanced Prostate Cancer
5 months ago
RSL - has anyone had severe side effects
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
Paul2905
in
Restless Legs Syndrome
9 months ago
Iron Bisglycinate
I have been taking Nutravita iron bisglycinate 28mg x 2 tabs on alternate days for 3 1/2 months. My ferritin levels were originally 50 and have only risen to 67. I’m confused about the dose of the iron. Is 28mg of iron bisglycinate equivalent to 28mg elemental iron? Sue said the two tablets (equaling
I have been taking Nutravita iron bisglycinate 28mg x 2 tabs on alternate days for 3 1/2 months. My ferritin levels were originally 50 and have only risen to 67. I’m confused about the dose of the iron. Is 28mg of iron bisglycinate equivalent to 28mg elemental iron? Sue said the two tablets (equaling
Dires
in
Restless Legs Syndrome
9 months ago
Advice please
Due to my dads low red blood cell count his treament has been stopped his been off all meds except pain killler, now since september 2023. He was due to start radium 223 january 24 but its been postponed until his better, but how can he get better when his PSA is increasing weekly and his red bloods
Due to my dads low red blood cell count his treament has been stopped his been off all meds except pain killler, now since september 2023. He was due to start radium 223 january 24 but its been postponed until his better, but how can he get better when his PSA is increasing weekly and his red bloods
Hidden
in
Advanced Prostate Cancer
5 months ago
What should I expect at the end?
My dad 77 year old had been battling castration resistant prostate cancer for many years. He was in remission for awhile (unsure exactly how long as he was secretive about the whole thing) however it made a huge comeback in January of 2022 and he has been through a short stint of chemo as well as
My dad 77 year old had been battling castration resistant prostate cancer for many years. He was in remission for awhile (unsure exactly how long as he was secretive about the whole thing) however it made a huge comeback in January of 2022 and he has been through a short stint of chemo as well as
Pechey
in
Advanced Prostate Cancer
5 months ago
Itchy Rash Help Please!
Hi! I'm new here & relatively new to being hypothyroid too (Dec 2022) & I'm so glad I found this forum for help! Sorry for long description & awful pics, but I'm desperate now & need this lovely forum's opinions. I have searched the site for similar issue to my own too. Began on 50mcg Levothyroxine
Hi! I'm new here & relatively new to being hypothyroid too (Dec 2022) & I'm so glad I found this forum for help! Sorry for long description & awful pics, but I'm desperate now & need this lovely forum's opinions. I have searched the site for similar issue to my own too. Began on 50mcg Levothyroxine
Urbanski
in
Thyroid UK
7 months ago
Oral Iron supplements, doing it wrong!
Well, I got my full blood test back and after some analysis, I think I messed up. I have been supplementing daily with 36 milligrams of ferrous bisglysinate. Here are my lab results that concern me. Ferritin was 72! This is my lowest since my infusion in 2016. Eight weeks after my infusion
Well, I got my full blood test back and after some analysis, I think I messed up. I have been supplementing daily with 36 milligrams of ferrous bisglysinate. Here are my lab results that concern me. Ferritin was 72! This is my lowest since my infusion in 2016. Eight weeks after my infusion
WideBody
in
Restless Legs Syndrome
9 months ago
A new approach for treatment of subthreshold bipolar disorders: Targeted high dose levothyroxine+repetitive TMS for mitochondrial treatment
A very interesting paper. Difficult to grab any individual bits for discussion or introduction. The whole paper isn't very long. Even if bipolar disorders are not themselves of much direct interest, it might be worth a quick read because it discusses the control group as well and their ability to tolerate
A very interesting paper. Difficult to grab any individual bits for discussion or introduction. The whole paper isn't very long. Even if bipolar disorders are not themselves of much direct interest, it might be worth a quick read because it discusses the control group as well and their ability to tolerate
helvella
Thyroid UK
in
Thyroid UK
5 months ago
My response to WinnieThePoo.
"You are sure it's [ALS/PD/AD] a toxic syndrome? Can you describe a mechanism of action for the disease process? You are sure it's not diet? Or stress? Of course you are sure. But unlikely to offer a viable solution to share. Meanwhile, those less blinkered [blinded by tunnel vision] research solutions
"You are sure it's [ALS/PD/AD] a toxic syndrome? Can you describe a mechanism of action for the disease process? You are sure it's not diet? Or stress? Of course you are sure. But unlikely to offer a viable solution to share. Meanwhile, those less blinkered [blinded by tunnel vision] research solutions
SilentEchoes
in
Cure Parkinson's
9 months ago
pramixipole YOU MUST READ THIS!!!!
PLEASE PLEASE be aware of the side effects of this drug. My husband had been taking it for approx 7 years and then the behavioural disorder started about 4 years ago (although we didn’t realise that this was due to the drug). Two weeks ago after gambling over £50000 in the past years he went to the
PLEASE PLEASE be aware of the side effects of this drug. My husband had been taking it for approx 7 years and then the behavioural disorder started about 4 years ago (although we didn’t realise that this was due to the drug). Two weeks ago after gambling over £50000 in the past years he went to the
Paul2905
in
Restless Legs Syndrome
9 months ago
Radium 223 offered
Hi everyone Husband diagnosed nearly 51/2 years ago. Stage 4 with mets to spine and hip (4 in total) none to organs etc. Had Chemo five years ago ,Zytiga +Pred for 2 1/2 years (now failing ) as PSA is up to 37. We are in UK as some of you know, and Clint has been offered Radium 223 for his bone mets
Hi everyone Husband diagnosed nearly 51/2 years ago. Stage 4 with mets to spine and hip (4 in total) none to organs etc. Had Chemo five years ago ,Zytiga +Pred for 2 1/2 years (now failing ) as PSA is up to 37. We are in UK as some of you know, and Clint has been offered Radium 223 for his bone mets
16starsky
in
Advanced Prostate Cancer
5 months ago
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