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Thyroid Cancer Support

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need guidance

Hydejf66 profile image
9 Replies

I need help. I recently lost my NP that monitored and subscribed my thyroid medication. I don’t have a thyroid. I had it removed in 2002 due to a thyroid nodules that were cancerous. I have taken

120 mg of Armour thyroid for years and a small dose of t3 12mcg. The new prescriber I just saw wants to switch me to 45 mcg a day of armour. I know that’s going to take me down a path I have been before, hypo and very sick, weight gain, excruciating joint and muscle pain, incognitive impairment, hair loss, constipation, etc..

Ft3 2.2 (2-4.4)

FT4 0.66 (0.82-1.77)

Tsh 0.010 (0.45-4.5)

WBC 7.1 (3.4-10.😎

Rbc 5.24 (3.77-5.28)

Hemoglobin 13.9 (11.1-15.9)

Hematocrit 42.6 (34-46.6)

Mcv 81 (79-97)

Mch 26.5 (26.6-33)

Mchc 32.6 (31.5-35.7)

Rdw 15.4 (11.7-15.4)

Platelets 233 (150-450)

Neutrophils 61

Lymphs 28

Monocytes 7

Eos 3

Basos 1

Neutrophils 4.4 (1.4-7)

Lymphs 2.0 (0.7-3.1)

Monocytes0.5 (0.1-0.9)

Eos 0.2 (0-0.4)

Glucose 112 (70-99)

Bun 11 (6-24)

Creatine 0.96 (0.57-1)

Egfr 69 (59-1.73)

Bun/creatinine ratio 11 (9-23)

Sodium 141 (134-144)

Potassium 4.1 (3.5-5.2)

Chloride 101 (96-106)

Calcium 9.0 ( 8.7-10.2)

Protein total 6.4 (6-8.5)

Albumin 4.5 (3.8-4.9)

Globulin 1.9 (1.5-4.5)

A/g ratio 2.4 (1.2-2.2)

Bilirubin 0.7 (0-1.2)

Iron bind cap 235 (250-450)

Uibic 175 (131-425)

Iron 60 (27-159)

Iron saturation 26 (15-55)

Vitamin D 33.9 (30-100)

Vitamin b12 454 (232-1245)

I realize this is information overload but also know a lot of what goes on in our body has to do with thyroid function. Thanks for any information. I am panicking about being made very sick by this drastic of a dose change.

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Hydejf66
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9 Replies
JOY2THEWORLD49 profile image
JOY2THEWORLD49

Hi

Well I am the same as you.

In 2020 Feb after a stroke in Sept 2019 I had a thyroidectomy and 12 right lymph nodes removed (2 affected with the same Papillary as the .19 carcinoma in right lobe but 1 surgeon captured a minute bit in right lobe.

After operation I declined RAI Radio Active Iodine and no to Suppression of my TSH.

Put into the Low Risk box I trusted my surgeon who also removed a milk duct in my right breast in 2005 where I also declined the radiation post surgery.

What Cancer Level were you given? Had the cancer been in the lymph nodes only and hadn't gone central?

Suppression of TSH is difficult and is ?ed when someone is older and/or has a heart condition.

Your Potassium - please check - did you mean 4.1? Not 41.

I'm at 4.5.

Your answer will let me to give you some good information.

I take my 5-7am Synthroid 100 and 25mg early morning under tongue having some water first. 1 hr later I have my CCB Diltiazem 120mg heart pill for controlling my H/R Day.

Then breakfast 1/2-1 hr later.

No milk for 4 hrs after Synthroid. No soy, no chlorine in water or toothpaste.

I have my anti-co.angulant at 10am.

Don't eat licorice as I found out that it interferes with your thyroid levels.

Yesterday I gave my heart/specialist a lesson on keeping my thyroid on my 1.5-2.5 TSH level.

cheri JOY. 74. (NZ)

Hydejf66 profile image
Hydejf66 in reply to JOY2THEWORLD49

Yes, potassium was 4.1. I was diagnosed with papillary carcinoma thyroid cancer. It was just in the right side of my thyroid. I had a partial thyroidectomy in February 2002 and a completion in May 2002. No radioactive iodine or any other further treatment. Thanks for responding.

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply to Hydejf66

Hi

Same as me but I had a total thyroidectomy as I had 19mm Papillary cancer in the right edge of lobe and a tiny bit in left. My surgeon removed 12 right lymph nodes.

I have a yearly neck scan which you should have as well.

Low Risk keep your TSH @ 1.5-2.5.

You are too low. You don't need T3. You need a daily dose of thyroxin and would recommend Synthyroid. Based on my 86kg weight I take daily early morning a 100mg and 25mg Synthroid.

Reason reliable dosage

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I'm so glad they caught yours in time too. Papillary thyroid cancer is a slow moving cancer.

Mine was discovered as a shadow on thyroid with no lump.

Just rely on your TSH to be 1.5-2.5 just off normal says Mr Gary Clayman, and my Surgeon.

I end up taking 100mg 3 days in every month.

My T3 is 4.0 just in normal range.

You can't worry about total T4 ever as it is the TSH you are finding a level.

My T4 is 21,22,23,24 as I am adjusting it but I have had the pills in the morning and the total is there to cover 24 hours.

Easy once you get your level.

Try 100 mg first and do leave off all the rest. You are too low and even in toxic

hyperthyroid.

cheers JOY 74. (NZ)

Batty1 profile image
Batty1

Tell him/her NO I do it all the time and your thyroid test don’t look complete unless I missed some on the list and your TSH and T4 will be low because your on AT and T3.

Where in the US do u live?

Hydejf66 profile image
Hydejf66 in reply to Batty1

I live in West Virginia. I posted my tsh, free t3, free t4. What others tests should I have had. I didn’t have a reverse t3 done.

Batty1 profile image
Batty1

If those test you did is FT4 and T3 put the capital F in front of T4 so people won’t wonder about those …. It’s weird that no admin has commented in full to your situation anyway look up slow dragons post about testing protocols and vitamins… long list of do’s and don’t

Hydejf66 profile image
Hydejf66 in reply to Batty1

I can’t find the edit option to add a F for my t3 and t4, thanks

Batty1 profile image
Batty1 in reply to Hydejf66

under your post to the right is a more button open it and u can edit

JOY2THEWORLD49 profile image
JOY2THEWORLD49

Hi

Rereading your post you talk about cancer nodules/....then later you say carcinoma in the 1 node.

It's very unusual not to have the full thyroid removed because surgeons can miss it like my scan was closely looked at until one found a tiny bit. That would have been disasterous to show cancer returning but actual fact it was there waiting before. Sounds like they missed yours.

Back luck to have to undergo surgery again.

Blood Tests for TSH, T3, T4 (for interest only) get whoever to write CA THYROIDECTOMY. You are now different from others who have the above but still have their thyroid.

I'm coming up to my 4th neck scan in Feb.

Take care, JOY