ketchup

[catsup]

can anyone with experience taking Radium 223 tell me the experience they went thru.

I am staring on the 8th and want to know if there were side effects and if you managed to do all 6 doses.

Cheers

[Ronnie7C]

Completed 5 of 6 sessions of Radium223 and based on my Oncologist advice stopped since scans showed it was not helping. Side effects have been terrible. Previously was very active but now have to use walking stick to shuffle around. Wish I had never tried Radium223

[catsup in reply to Ronnie7C]

sorry treatment’s ended badly for you.

I hope your condition improves. God bless

[Mcrpca]

my husband did Zofigo and had no side effects at all. He also only completed 3 doses because scans showed that his mets were spreading despite treatment. For him, it was not a miracle cure but the treatments themselves were easy.

[OldWarrior]

did six doses of Xofigo. Side effects were bone and back pain for a few days. Mixed results - some Mets smaller but a few new Mets. PSA mostly went side ways. Not a home run but glad I tried it, bought me some time.

[j-o-h-n]

On fries, please...

Good Luck, Good Health and Good Humor.

j-o-h-n

[Islandboy2021]

I completed 6 treatments and no extra side effects other than fatigue. The results were only slowing the advancement of the Mets and maybe delaying pain. PSA kept climbing during treatment. Apparently some people say it could be more effective if you can have Provenge with it or a second hormonal drug.

[Stage4vizuals]

I did a partial cycle of 223 -

About 18 months ago - from what I recall it seemed to work very well for about 2 month but them my PSA jumped way up, as well a neuropathy got worse. So we discontinued. From there we did the long wait until I could get on Pluvicto Lut 177. 5 months ago. This substance seems to work better than than any treatment I have received so far. Good luck and may then force be with you.

[Tinuriel]

Similar results for my husband - all six, mild issues with digestive track, scans showed progression in spite of it - probably slowed things down, but our RO said there was no way to be certain.

[catsup in reply to Tinuriel]

Thank you everyone for you response. I can now face my challenge with eyes open

Cheers

[Janhpr in reply to catsup]

My husband diagnosed in 2008 we are both now 80, best treatment period was Abiraterone 6years but became toxic to his Liver. After RT 2019 COVID and no real follow up until PSA was rising. Eventually got Dec 22 PSMA PET Scan, found widespread bone mets. Privately had 6 Lu gave him 4 months after stopping treatment. R223 started 5th December 23, been a very rocky road except for 1st treatment, bad side effects diarrhoea nausea and bone pain reduced mobility. Did have a gap of treatment between 3/4th treatment as had flu like symptoms and that time got him back to more his old self. Now using a walking stick fatigue +++ gets up late in the morning, unlike him, not eating well. ALP initially came down from 106 to 72 so optimistic. 4th treatment 19th April now ALP 123 and new met in higher coccyx and possibly progression on hip. Seeing R223 Oncologist 12th June but think will advise no further treatment. Local oncologist feels body needs rest and recovery and Q time, said a single fracture radiation can be done to relieve bone pain but says all treatment/radiation has side effects. We would prefer the option of SBRT not widely available on NHS. A quote said to us a while back, treatment can cause financial and time toxicity which it certainly has. My husband still keeps his positivity and definitely his ongoing humour which keeps us both going,

Best wishes to all you men who battle with this devastating disease