Search
Search
About
Log in
Join
Experiences with
Mast cell activation syndrome (MCAS)
Posts
Communities
4,507 public posts
Filter results
Normal blood levels mean anything?
I generally have normal b12 levels in the 500-600 range but have symptoms that mimic b12 deficiency. Sometimes my folate levels are low and I supplement there but was wondering if b12 injections are the next step. My doctor did a parietal cell antibody test and that was high at 30 but mma was below
I generally have normal b12 levels in the 500-600 range but have symptoms that mimic b12 deficiency. Sometimes my folate levels are low and I supplement there but was wondering if b12 injections are the next step. My doctor did a parietal cell antibody test and that was high at 30 but mma was below
Jjg42
in
Pernicious Anaemia Society
2 years ago
PRP - Thin Endometrium - feedback anyone ?
Hi All, I have been struggling with thin endometrium for almost 2 years now ( i have 6 excellent quality embryos from the first IVF cycle) , tried all the conventional methods of hormonal therapies - i have taken boxes of progynova but it doesnt seem to help. My doc has not suggested to try PRP therapy
Hi All, I have been struggling with thin endometrium for almost 2 years now ( i have 6 excellent quality embryos from the first IVF cycle) , tried all the conventional methods of hormonal therapies - i have taken boxes of progynova but it doesnt seem to help. My doc has not suggested to try PRP therapy
VG2021
in
Fertility Network UK
3 years ago
Oxycodone and Laxative
I have just started on Oxycodone to replace Oramorph... 5 mg fast relief . Suffering from Bladder Camcer. Problem is that I then need a laxative because both of the above make me constipated. Oxycodone appears not to react well with Dulcosoft laxative. Anyone any suggestions ?
I have just started on Oxycodone to replace Oramorph... 5 mg fast relief . Suffering from Bladder Camcer. Problem is that I then need a laxative because both of the above make me constipated. Oxycodone appears not to react well with Dulcosoft laxative. Anyone any suggestions ?
Bramcote212
in
Restless Legs Syndrome
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Menopause and Sickle Cell
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
Iyalode26
in
Sickle Cell Society
3 years ago
RLS
I take 2 Ropinirole 0.25 mg and 2 Codeine Phosphate 15mg at bedtime and every 2-3 nights take 1 Ferro-tab 200 mg. Then about 2-3 hrs later take 2 Panadol, then about 2 hrs later take another 2 codeine Phosphate again. This allows me to get a few hours sleep!! Then I sometimes take 1 Madopar 62.5 if
I take 2 Ropinirole 0.25 mg and 2 Codeine Phosphate 15mg at bedtime and every 2-3 nights take 1 Ferro-tab 200 mg. Then about 2-3 hrs later take 2 Panadol, then about 2 hrs later take another 2 codeine Phosphate again. This allows me to get a few hours sleep!! Then I sometimes take 1 Madopar 62.5 if
Dunedinite
in
Restless Legs Syndrome
2 years ago
Rare diseases
Does any body on this site, have a very rare lung disease called pulmonary langerhans cell histiocytosis?
Does any body on this site, have a very rare lung disease called pulmonary langerhans cell histiocytosis?
Sandrapez
in
Lung Conditions Community Forum
3 years ago
MMC Chromosome results “Trisomy for Chromosome 15”
Hi, I had a MMC almost 7 weeks ago and just had genetic testing results back from London lab. My husband and myself now need to go for a blood test to see if we are carriers of any chromosomal errors. We’ve had 55 eggs collected over 4 fresh cycles - all four ending in miscarriage. I read up about our
Hi, I had a MMC almost 7 weeks ago and just had genetic testing results back from London lab. My husband and myself now need to go for a blood test to see if we are carriers of any chromosomal errors. We’ve had 55 eggs collected over 4 fresh cycles - all four ending in miscarriage. I read up about our
Downonthefarm
in
Fertility Network UK
3 years ago
RLS Medication Recommendations
Greetings all. I I've been reading quite a bit about Ropinirole and why it's bad. I was first prescribed it in August 2021 for RLS. I have 2 spinal cord injuries resulting in neuropathy in both feet and my right leg. My leg jerks uncontrollably throughout the day and night resulting in a terrible quality
Greetings all. I I've been reading quite a bit about Ropinirole and why it's bad. I was first prescribed it in August 2021 for RLS. I have 2 spinal cord injuries resulting in neuropathy in both feet and my right leg. My leg jerks uncontrollably throughout the day and night resulting in a terrible quality
vertices
in
Restless Legs Syndrome
2 years ago
Levels fine but still exhausted what can I say to the Endo?
I have an appointment with my endocrinologist this pm still feeling absolutely crap on 75 Levothyroxine per day (since Jan) and worried he might put my dose down here are my latest blood tests (fasted) TSH 0.13 (was 1.51 Nov) T4 17.3 (was 14 Nov) T3 5.4 (was 4.1 Nov) B12 350 (was 475 Nov) D 63.6 (was
I have an appointment with my endocrinologist this pm still feeling absolutely crap on 75 Levothyroxine per day (since Jan) and worried he might put my dose down here are my latest blood tests (fasted) TSH 0.13 (was 1.51 Nov) T4 17.3 (was 14 Nov) T3 5.4 (was 4.1 Nov) B12 350 (was 475 Nov) D 63.6 (was
HealthySam
in
Thyroid UK
2 years ago
ME/CFS discussed in terms of thyroid dysfunction
Interesting papers are coming in, in droves almost. This downloadable paper discusses links between thyroid function in critical illness and ME/CFS. Title and Abstract here:
PERSPECTIVE article
Front. Med., 08 March 2022 | https://doi.org/10.3389/fmed.2022.818728
Perspective: Drawing
Interesting papers are coming in, in droves almost. This downloadable paper discusses links between thyroid function in critical illness and ME/CFS. Title and Abstract here:
PERSPECTIVE article
Front. Med., 08 March 2022 | https://doi.org/10.3389/fmed.2022.818728
Perspective: Drawing
diogenes
in
Thyroid UK
2 years ago
Best foundation for telangiectasia?
Hi all, Anyone out there found a good foundation to cover telangiectasia on the face? I was diagnosed with systemic sclerosis 3 years ago. I know it seems trivial with all the other things we have to deal with but the redness on my face gets me down sometimes and I wondered if anyone has found the holy
Hi all, Anyone out there found a good foundation to cover telangiectasia on the face? I was diagnosed with systemic sclerosis 3 years ago. I know it seems trivial with all the other things we have to deal with but the redness on my face gets me down sometimes and I wondered if anyone has found the holy
Helenlouise40
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
CBD and RLS
Like so many of us, I am ALSO weaning off of pramipexole. I have been taking a "low" 0.375 or 1.5 of the 0.25 mg tablet (with 600 mg Gabapentin) at 1030 pm (prior to a 12 am bedtime) for the dreaded RLS onset at 130-2 am, which would then last for 1 to 3 hours. It was working but I was feeling the
Like so many of us, I am ALSO weaning off of pramipexole. I have been taking a "low" 0.375 or 1.5 of the 0.25 mg tablet (with 600 mg Gabapentin) at 1030 pm (prior to a 12 am bedtime) for the dreaded RLS onset at 130-2 am, which would then last for 1 to 3 hours. It was working but I was feeling the
Crazilegs
in
Restless Legs Syndrome
2 years ago
Liver function tests with Tocilizumab.
My Liver function tests are slightly out of range (0-35) mine were 42 last time and 46 recently. My Rheumatologist proposes that I come off Tocilizumab and start Methotrexate . It was my understanding that Metotrexate also caused raised liver enzymes. I don’t want to alienate my lovely Rheumatologist
My Liver function tests are slightly out of range (0-35) mine were 42 last time and 46 recently. My Rheumatologist proposes that I come off Tocilizumab and start Methotrexate . It was my understanding that Metotrexate also caused raised liver enzymes. I don’t want to alienate my lovely Rheumatologist
SheffieldJane
in
PMRGCAuk
2 years ago
Confused about not taking the Down syndrome test
Hello ladies, I am 35 weeks pregnant and I was refused a down syndrome test in the first trimester. But I don't know why now I am worried about it. Can anyone please suggest or what should I do now. So that I can remove these negative things from my mind.
Hello ladies, I am 35 weeks pregnant and I was refused a down syndrome test in the first trimester. But I don't know why now I am worried about it. Can anyone please suggest or what should I do now. So that I can remove these negative things from my mind.
Dilpreet123
in
Pregnancy and Parenting Support
3 years ago
Cold Turkey on Pramipexole?
I have had RLS for 40 years and have been prescribed Prmipexole for the last 10 years.I was taking 6mg pr day.The augmentation is horrific. I have managed to cut this dose in half. I used Tramadol to help mitigate the worst side effects. I was doing quite well until I gt down to half the dose. Then it
I have had RLS for 40 years and have been prescribed Prmipexole for the last 10 years.I was taking 6mg pr day.The augmentation is horrific. I have managed to cut this dose in half. I used Tramadol to help mitigate the worst side effects. I was doing quite well until I gt down to half the dose. Then it
welschrispy
in
Restless Legs Syndrome
2 years ago
RLS and Marijuana
Does anyone know of a good practitioner in Toronto who is very knowledgeable about treating RLS with CBD and/or marijuana? I was told that typically suggested doses of CBD are far too low to be very effective. What about marijuana capsules or vaporizers? As time goes on I am less and less confident
Does anyone know of a good practitioner in Toronto who is very knowledgeable about treating RLS with CBD and/or marijuana? I was told that typically suggested doses of CBD are far too low to be very effective. What about marijuana capsules or vaporizers? As time goes on I am less and less confident
Celloguy
in
Restless Legs Syndrome
2 years ago
Lab results help. Feeling plataued
EDIT: UPDATE endocrinologist apt went horribly. She basically gaslit me and said my TSH is normal and even though my T3 is FLAGGED AS LOW, she said “oh it’s only 3 point below”. She said I am fine and that she’s not increasing my medication. I fucking hate doctors and I am literally spinning and my
EDIT: UPDATE endocrinologist apt went horribly. She basically gaslit me and said my TSH is normal and even though my T3 is FLAGGED AS LOW, she said “oh it’s only 3 point below”. She said I am fine and that she’s not increasing my medication. I fucking hate doctors and I am literally spinning and my
Queenofwands1212
in
Thyroid UK
2 years ago
Update on work done nationally by joint thyroid groups
I posted this on another thread, but more will people will see it as a separate post: Since 2018 the groups below have worked closely together as a consortium, as well as doing their own work. We produced the Liothyronine dossier requested by DHSC and Lord Hunt., and also sent to NHSE. The British Thyroid
I posted this on another thread, but more will people will see it as a separate post: Since 2018 the groups below have worked closely together as a consortium, as well as doing their own work. We produced the Liothyronine dossier requested by DHSC and Lord Hunt., and also sent to NHSE. The British Thyroid
TaraJR
in
Thyroid UK
2 years ago
TOO MUCH MOVICOL !
Advice again please! After three months Movicol for impacted bowel my GP advised I had been overdoing it with the Movicol ( Although still having terrible wind,stomach pain and feel like something there I cannot Pass. So on her advice took no laxatives' for three days and then two satchets of Fibrogel
Advice again please! After three months Movicol for impacted bowel my GP advised I had been overdoing it with the Movicol ( Although still having terrible wind,stomach pain and feel like something there I cannot Pass. So on her advice took no laxatives' for three days and then two satchets of Fibrogel
Shopnow1
in
IBS Network
2 years ago
the culprit is in the cbd I am taking
HI, thanks to all of you who have responded to my last post. After days of wondering as what is the reason the oxycodone I have taking for years lost effectiveness all of a sudden. It is not the pregabalin but the high-dose CBD I have been taking in the past half month reduces the effectiveness of
HI, thanks to all of you who have responded to my last post. After days of wondering as what is the reason the oxycodone I have taking for years lost effectiveness all of a sudden. It is not the pregabalin but the high-dose CBD I have been taking in the past half month reduces the effectiveness of
halperinchen
in
Restless Legs Syndrome
3 years ago
1
...
50
51
52
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1456 results
Fertility Network UK
361 results
Thyroid UK
353 results
View top 10 communities
Sort by
Most Relevant
Newest