Search
Search
About
Log in
Join
Experiences with
Mast cell activation syndrome (MCAS)
Posts
Communities
4,507 public posts
Filter results
Transplant waiting list imminent/Nintedanib feedback
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Encouraging Progress
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
redhawk1
in
Cure Parkinson's
2 years ago
Its positive
Hi, lovely ladies, so yesterday my beta hcg done, this is my first ivf, and guess what i m pregnant. I m over the moon and i m so happy.
Hi, lovely ladies, so yesterday my beta hcg done, this is my first ivf, and guess what i m pregnant. I m over the moon and i m so happy.
Anjalichaudhary
in
Fertility Network UK
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
From Gabapentin to Buprenorphine.
I have PLMD. I'm currently on 1800 mg of Gabapentin, but it's breaking down and both PLM and shortscale sleep sequence increases are making the nights intolerable. I'm able to move on to a Buprenorphine patch. Do I need to withdraw completely from the Gabapentin first or can I withdraw from it whilst
I have PLMD. I'm currently on 1800 mg of Gabapentin, but it's breaking down and both PLM and shortscale sleep sequence increases are making the nights intolerable. I'm able to move on to a Buprenorphine patch. Do I need to withdraw completely from the Gabapentin first or can I withdraw from it whilst
dickJones
in
Restless Legs Syndrome
2 years ago
Medical Marijuana and RLS, but mostly PLMD
Has anyone had any success with Legal THC in treatment mostly PLMD. Periodic Limb Motion Disorder?
Has anyone had any success with Legal THC in treatment mostly PLMD. Periodic Limb Motion Disorder?
Wanman4
in
Restless Legs Syndrome
2 years ago
Horizant not really useful
Day 12 of Horizant 600 mg. Taken at 5 pm with fatty meal. First 2 nights, I slept. Now I don't. And, like others, I seem to have insomnia from this drug. Awake all night. Also, on top of the Restless Leg, I have this itchy allergic feeling all over my body, not just my legs. The literature says it takes
Day 12 of Horizant 600 mg. Taken at 5 pm with fatty meal. First 2 nights, I slept. Now I don't. And, like others, I seem to have insomnia from this drug. Awake all night. Also, on top of the Restless Leg, I have this itchy allergic feeling all over my body, not just my legs. The literature says it takes
CranberryMix
in
Restless Legs Syndrome
2 years ago
Private or nhs
**sensitive post*** Some background I’m 39 with epilepsy. After 2 rounds of ivf we got a bfp and currently 10 weeks. Since we’ve told my in-laws they have gone on about private maternity care as my DH sisters both went private, over 16 years ago and it wasn’t as expensive then. I feel it would
**sensitive post*** Some background I’m 39 with epilepsy. After 2 rounds of ivf we got a bfp and currently 10 weeks. Since we’ve told my in-laws they have gone on about private maternity care as my DH sisters both went private, over 16 years ago and it wasn’t as expensive then. I feel it would
Babytwinkle
in
Pregnancy and Parenting Support
2 years ago
Disassociated feeling
I'm currently on Tocilizumab for GCA under the direction of a specialist physician. I was on 20mg Pred when I started the Tocilizumab which I have injected every 2 weeks. I'm on my third week right now. I was instructed to reduce Pred 5mg every 2 weeks and reduce again 5mg 3 weeks , which is
I'm currently on Tocilizumab for GCA under the direction of a specialist physician. I was on 20mg Pred when I started the Tocilizumab which I have injected every 2 weeks. I'm on my third week right now. I was instructed to reduce Pred 5mg every 2 weeks and reduce again 5mg 3 weeks , which is
redhouts
in
PMRGCAuk
2 years ago
Advice. Morphine sulphate (MST) 5mg prolonged release. Or stay on tramadol.
Hi all. Haven't posted for a while. I’ll update you on my RLS journey and ask for advice on the above. Last time I posted I was going through a rough patch with my long standing insomnia where getting 4-5 hours nightly for years was ok, then went to having 0-1 hours and maybe 6hours after being awake
Hi all. Haven't posted for a while. I’ll update you on my RLS journey and ask for advice on the above. Last time I posted I was going through a rough patch with my long standing insomnia where getting 4-5 hours nightly for years was ok, then went to having 0-1 hours and maybe 6hours after being awake
Freegaza786
in
Restless Legs Syndrome
2 years ago
World Blood Cancer Day May 28th
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Dovme
in
MPN Voice
2 years ago
succinyl choline not acetyl choline
I posted earlier about using acetyl choline to euthanize dogs in my vet clinic. I was wrong. We used succinyl choline 30 years ago. It's still used as an anesthesia adjunct.
I posted earlier about using acetyl choline to euthanize dogs in my vet clinic. I was wrong. We used succinyl choline 30 years ago. It's still used as an anesthesia adjunct.
kaypeeoh
in
Cure Parkinson's
2 years ago
Lower Abdominal pain and Tocilizumab
Tocilizumab side effects: The main thing I have noticed is a proneness to infection, like UTIs, sinus, nasal and Blepharitis. This will be because my immunity is so firmly suppressed what with Prednisalone and Tocilizumab. I was able to quickly get down from 40 mgs of Pred to 10 mgs without the usual
Tocilizumab side effects: The main thing I have noticed is a proneness to infection, like UTIs, sinus, nasal and Blepharitis. This will be because my immunity is so firmly suppressed what with Prednisalone and Tocilizumab. I was able to quickly get down from 40 mgs of Pred to 10 mgs without the usual
SheffieldJane
in
PMRGCAuk
2 years ago
Opioid withdrawal/ management advice
Hi. I have been taking opiods for many years. First codeine, which stopped working. I moved on to Tramadol and now Morphine. I have never suffered withdrawal symptoms whilst stopping an opioid because once a week I have a night drug free. I am doing this whilst on Morphine too in anticipation of
Hi. I have been taking opiods for many years. First codeine, which stopped working. I moved on to Tramadol and now Morphine. I have never suffered withdrawal symptoms whilst stopping an opioid because once a week I have a night drug free. I am doing this whilst on Morphine too in anticipation of
Jumpey
in
Restless Legs Syndrome
2 years ago
CDC reconsidering guidelines for opiate use. This affects RLS sufferers.
RLS.org is asking us to send comments to the Center for Disease Control about our use of opioids to treat our symptoms, as the CDC is reconsidering guidelines for their appropriate use and how they can be prescribed. Please don’t think this is only for Americans. ( See below.) My comment stated that
RLS.org is asking us to send comments to the Center for Disease Control about our use of opioids to treat our symptoms, as the CDC is reconsidering guidelines for their appropriate use and how they can be prescribed. Please don’t think this is only for Americans. ( See below.) My comment stated that
WendyBea
in
Restless Legs Syndrome
2 years ago
Chronic Fatigue Syndrome and Fibromyalgia treatment with B12 injections and oral folate
In the category of "not helpful but interesting", I am sharing this paper decribing a research project which treated patients with Chronic Fatigue Syndrome and Fibromyalgia with B12 injections and oral folate. One interesting facet is that dose of B12 and folate is based on symptoms as reflected in clinician
In the category of "not helpful but interesting", I am sharing this paper decribing a research project which treated patients with Chronic Fatigue Syndrome and Fibromyalgia with B12 injections and oral folate. One interesting facet is that dose of B12 and folate is based on symptoms as reflected in clinician
WiscGuy
in
Pernicious Anaemia Society
2 years ago
What are the Significant Tests to Determine Pernicious Anemia
Hello Everyone...I'd like to start by saying how much I appreciate each of you. I have learned an enormous amount of information since joining this group and it has helped me in so many ways; one of which is how to form questions to ask my doctors (I go in prepared with written questions as my brain
Hello Everyone...I'd like to start by saying how much I appreciate each of you. I have learned an enormous amount of information since joining this group and it has helped me in so many ways; one of which is how to form questions to ask my doctors (I go in prepared with written questions as my brain
Hidden
in
Pernicious Anaemia Society
2 years ago
Rotational Medication Regime
I’m wondering if anyone has tried a rotational medication regime (i.e. Tramadol for 1 week, Requip for 10 days, Gabapentin for 7 days - rinse and repeat) and what thier experiences were like?
I’m wondering if anyone has tried a rotational medication regime (i.e. Tramadol for 1 week, Requip for 10 days, Gabapentin for 7 days - rinse and repeat) and what thier experiences were like?
ircam2112
in
Restless Legs Syndrome
2 years ago
Anomaly scan update, 6 months running
Hlo all dears I am currently 6 months running.. My baby is in breech position... What should I do?? And I feel my tummy very tight and stretching .. Does this happens to everyone?? This is my first pregnancy.. I am 36 years old.. So worried alot...
Hlo all dears I am currently 6 months running.. My baby is in breech position... What should I do?? And I feel my tummy very tight and stretching .. Does this happens to everyone?? This is my first pregnancy.. I am 36 years old.. So worried alot...
Momtob
in
Pregnancy and Parenting Support
2 years ago
withdrawal
At Drs this morning after up all night with jerky legs no pramipexole only 2 . 50mg tramadol tablets not working been on it since January ,put on 1 0.05 Clonazepam 30 mins before bedtime for 1 week then if needed take 2 ,fingers crossed for a good nights sleep ,anyone else tried Clonazepam and did
At Drs this morning after up all night with jerky legs no pramipexole only 2 . 50mg tramadol tablets not working been on it since January ,put on 1 0.05 Clonazepam 30 mins before bedtime for 1 week then if needed take 2 ,fingers crossed for a good nights sleep ,anyone else tried Clonazepam and did
auldreekie18
in
Restless Legs Syndrome
2 years ago
RLS codeine
I have never experienced such a dramatic sensation in my body but I do keep RLS at bay with dihydrocodeine before bedtime and one in the night if I start kicking and screaming. The two natural things I find helpful is magnesium and a magnet wrapped in cloth near my legs.
I have never experienced such a dramatic sensation in my body but I do keep RLS at bay with dihydrocodeine before bedtime and one in the night if I start kicking and screaming. The two natural things I find helpful is magnesium and a magnet wrapped in cloth near my legs.
Daisy2408
in
Restless Legs Syndrome
2 years ago
1
...
48
49
50
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1456 results
Fertility Network UK
361 results
Thyroid UK
353 results
View top 10 communities
Sort by
Most Relevant
Newest