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Hello all
Hi everyone. I am new to this group only having been diagnosed last November with stage 4 lung cancer. I have a secondary in my brain but am lucky to have the EGFR Exon 19 mutation so now on targeted table therapy Osimertinib. Slowly working through the shock and trying to find informed and positive
Hi everyone. I am new to this group only having been diagnosed last November with stage 4 lung cancer. I have a secondary in my brain but am lucky to have the EGFR Exon 19 mutation so now on targeted table therapy Osimertinib. Slowly working through the shock and trying to find informed and positive
Musicgirl71
in
The Roy Castle Lung Cancer Foundation
2 years ago
Week 2 Buddy?
Anyone on Week 2? Looking for an online buddy or some chat with someone who is at the same point as me? I’m doing in part for health reasons as I’m waiting for a kidney transplant. Doing most of the actual runs with my partner, unfortunately he finds them very easy and is naturally fit!
Anyone on Week 2? Looking for an online buddy or some chat with someone who is at the same point as me? I’m doing in part for health reasons as I’m waiting for a kidney transplant. Doing most of the actual runs with my partner, unfortunately he finds them very easy and is naturally fit!
MerlinonMull
in
Couch to 5K
2 years ago
Confused
test but I think my last one was 57% and I have another test next week ,I don't feel as though I'm dying so I'm thinking it will just all of a sudden hit me ,I'm well aware my like is deteriorated massively, tired easily,not so much of an appetite I was told I would be sent to Newcastle hospital for a
lung
test but I think my last one was 57% and I have another test next week ,I don't feel as though I'm dying so I'm thinking it will just all of a sudden hit me ,I'm well aware my like is deteriorated massively, tired easily,not so much of an appetite I was told I would be sent to Newcastle hospital for a
lung
Dion50
in
Lung Conditions Community Forum
3 years ago
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March - National Kidney Month
“Needing a Kidney Gave Me Strength to Help Others” by Anne Bina My name is Anne Bina and I am here to tell you the story of my miracle, my gift of life. It all started with the story of my kidney transplant on October 15, 1999. H3: The Beginning My story is a little different than most. While many
“Needing a Kidney Gave Me Strength to Help Others” by Anne Bina My name is Anne Bina and I am here to tell you the story of my miracle, my gift of life. It all started with the story of my kidney transplant on October 15, 1999. H3: The Beginning My story is a little different than most. While many
WYOAnne
in
Early CKD Support
2 years ago
HCC Any New Up to Date Recommendations?
Hi, I had as liver resection last May 2021 . My cancer came back 8 months later which is this past January. It has been recommended that I have a Y-90. And Immunotherapy. After a consult with all my DR's it is now recommended that I have a consult with the Transplant team at a nearby hospital. So much
Hi, I had as liver resection last May 2021 . My cancer came back 8 months later which is this past January. It has been recommended that I have a Y-90. And Immunotherapy. After a consult with all my DR's it is now recommended that I have a consult with the Transplant team at a nearby hospital. So much
Iggy08713287
Patient
in
Blue Faery Liver Cancer
2 years ago
Lung Cancer
Was diagnosed with Lung cancer Feb 2021 small stem approx. 4cm Tumour in lower right Lobe and had imbedded itself in the lining and on main archery and other blood vessels and therefore inoperable. Had 3 sessions of chemo and 6. 1/2 weeks of radiotherapy treatment finishing on 9/5/21. Then 3 monthly
Was diagnosed with Lung cancer Feb 2021 small stem approx. 4cm Tumour in lower right Lobe and had imbedded itself in the lining and on main archery and other blood vessels and therefore inoperable. Had 3 sessions of chemo and 6. 1/2 weeks of radiotherapy treatment finishing on 9/5/21. Then 3 monthly
Lainey100
in
The Roy Castle Lung Cancer Foundation
2 years ago
Wellness poster for my stay at hospital
I am due to have a stem cell transplant and have prepared myself for my stay at the hospital. It’s been suggested that I can decorate my room and can use posters to put on the wall. I wonder if anyone could suggest somewhere online that they would know of that I could find any reasonably priced posters
I am due to have a stem cell transplant and have prepared myself for my stay at the hospital. It’s been suggested that I can decorate my room and can use posters to put on the wall. I wonder if anyone could suggest somewhere online that they would know of that I could find any reasonably priced posters
Kraskie1915
in
CLL Support
2 years ago
Sct question
Hello friends! I'm using Google translate now. I hope you will understand. I have a question that I can not find an answer to online. It's about stem cell transplantation. If this were to happen at some point in the future, how precise/exact does a match need to be? My parents have different ethnic
Hello friends! I'm using Google translate now. I hope you will understand. I have a question that I can not find an answer to online. It's about stem cell transplantation. If this were to happen at some point in the future, how precise/exact does a match need to be? My parents have different ethnic
Johan2021
in
MPN Voice
2 years ago
Lung cancer
Hi, I was wondering if ya'll know how long it takes to start seeing results from being on Keytruda. My husband, who was diagnosed with lung cancer last year just recently started Keytruda and has had two treatments, but he doesn't feel any better. He's tired, has pain and nausea. Thank ya'll
Hi, I was wondering if ya'll know how long it takes to start seeing results from being on Keytruda. My husband, who was diagnosed with lung cancer last year just recently started Keytruda and has had two treatments, but he doesn't feel any better. He's tired, has pain and nausea. Thank ya'll
Orchid2583
in
Lung Cancer Support
2 years ago
Feeling a bit Hopeless
I have been on the
lung
transplant
list for 18 months. I had one dry run 4 months ago, but I am wondering if I will ever get the call. Transplants are low, party because of Covid and only 30% of people on the list received a transplant in the year up to March, according to latest statistics.
I have been on the
lung
transplant
list for 18 months. I had one dry run 4 months ago, but I am wondering if I will ever get the call. Transplants are low, party because of Covid and only 30% of people on the list received a transplant in the year up to March, according to latest statistics.
mary1956
in
Lung Conditions Community Forum
3 years ago
Gathering HOPE- new Wellness focus social event!
Hello HealthUnlocked Community, We want your input! I am excited to invite you to a very special Gathering HOPE social hour on Tuesday, March 8th at 5pm PT/8pm ET to explore and discuss the needs of the lung cancer community beyond your diagnosis, and the way that wellness-specific activities can support
Hello HealthUnlocked Community, We want your input! I am excited to invite you to a very special Gathering HOPE social hour on Tuesday, March 8th at 5pm PT/8pm ET to explore and discuss the needs of the lung cancer community beyond your diagnosis, and the way that wellness-specific activities can support
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
I'm a bit Scared, to be honest😥
Dear All, Several of my neighbours, we only have eighteen flats, have had/ currently 'have' COVID. Now I know that this 'Variant' isn't as Serious- to Most People that is! However I am Immune Suppressed, due to BOTH Vasculitis AND a Kidney Transplant (in July 2013).Clearly IF I DO contract, this disease
Dear All, Several of my neighbours, we only have eighteen flats, have had/ currently 'have' COVID. Now I know that this 'Variant' isn't as Serious- to Most People that is! However I am Immune Suppressed, due to BOTH Vasculitis AND a Kidney Transplant (in July 2013).Clearly IF I DO contract, this disease
AndrewT
in
Vasculitis UK
2 years ago
My brother has lung cancer
Few weeks ago my brother received information that he has lung cancer (no talks on staging yet). The information we received is that he has a small tumor on his right lung. Currently we are waiting for the result of the tumor sample they took and we should receive it this week. While waiting for the
Few weeks ago my brother received information that he has lung cancer (no talks on staging yet). The information we received is that he has a small tumor on his right lung. Currently we are waiting for the result of the tumor sample they took and we should receive it this week. While waiting for the
Hidden
in
The Roy Castle Lung Cancer Foundation
2 years ago
Cipro and bactrim for Pseudomonas aeruginosa infection
Did any got Cipro and bactrim for bacteria infections? How did you deal with it? I got a kidney transplant 18 days ago. Deceased donor, never on dialysis. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent
Did any got Cipro and bactrim for bacteria infections? How did you deal with it? I got a kidney transplant 18 days ago. Deceased donor, never on dialysis. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent
vision22
in
Kidney Transplant
2 years ago
Has anyone else discovered Ground glass opacities in lung on abdominal ct for pre transplant evaluation? What was the outcome?
Hi my ckd friends, My recent abdominal CT for transplant evaluation discovered 5 mm ground glass opacity nodularity in the lower left lingual. Report said to consider 3 to 6 month follow-up CT scan. Still waiting to hear from the transplant team.Has anyone else encountered this? How did it affect the
Hi my ckd friends, My recent abdominal CT for transplant evaluation discovered 5 mm ground glass opacity nodularity in the lower left lingual. Report said to consider 3 to 6 month follow-up CT scan. Still waiting to hear from the transplant team.Has anyone else encountered this? How did it affect the
Jamok
in
Kidney Disease
2 years ago
2nd transplant
Is anyone on disability and had a second kidney transplant less than 1 year ago?
Is anyone on disability and had a second kidney transplant less than 1 year ago?
Leekee
in
Kidney Transplant Patient Support
2 years ago
Nutritionist denial
Got my formal denial from Medicare for a nutritionist today. Liver was not covered even when asking for an exception, nor was liver transplant. Only things listed were; diabetes, kidney and transplant, weightloss. Nothing about heart although I know there is a heart diet and exercise program, I know
Got my formal denial from Medicare for a nutritionist today. Liver was not covered even when asking for an exception, nor was liver transplant. Only things listed were; diabetes, kidney and transplant, weightloss. Nothing about heart although I know there is a heart diet and exercise program, I know
ThyroidDeb
in
Living with Fatty Liver and NASH
2 years ago
4 years post transplant and now a fibro scan of happy liver
Received a Liver Transplant 12/2017. 4 years later ... Life has been good. However, today I go to my Hepatologist for a Fibro scan of my Happy Liver. Checking for Fiberosous. Fibro scan is similar to Ultra Scan but it is supposed to give better image. Saying a prayer all good. I feel good with
Received a Liver Transplant 12/2017. 4 years later ... Life has been good. However, today I go to my Hepatologist for a Fibro scan of my Happy Liver. Checking for Fiberosous. Fibro scan is similar to Ultra Scan but it is supposed to give better image. Saying a prayer all good. I feel good with
meme7
in
British Liver Trust
2 years ago
DO YOU HAVE THE MET EXON14 MUTATION, NSCLC? DRUG SUBMISSION TIME.
Tepotinib (Tetmeko) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS Scotland, and we are invited to provide a Patient Group Submission for the medicine. The indication this new medicine will be assessed under is 'For use in adults to treat a type of lung cancer, called
Tepotinib (Tetmeko) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS Scotland, and we are invited to provide a Patient Group Submission for the medicine. The indication this new medicine will be assessed under is 'For use in adults to treat a type of lung cancer, called
RoyCastleHelpline
Roy Castle
in
The Roy Castle Lung Cancer Foundation
2 years ago
Kidney transplant
Anybody else Waiting for a transplant & feeling like they don’t know what to do or feel. Me I feel lost and numb . Someone please help 😔
Anybody else Waiting for a transplant & feeling like they don’t know what to do or feel. Me I feel lost and numb . Someone please help 😔
AmberScavolo93
in
Kidney Transplant
2 years ago
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