Was diagnosed with Lung cancer Feb 2021 small stem approx. 4cm Tumour in lower right Lobe and had imbedded itself in the lining and on main archery and other blood vessels and therefore inoperable.
Had 3 sessions of chemo and 6. 1/2 weeks of radiotherapy treatment finishing on 9/5/21. Then 3 monthly scans and appointments with Oncologist. First 2 August 21 and 11/21 I was told the Tumour was stable . On 4/3/22 however I was told the tumour had grown to Approx. 7.5 but hadn't spread. I have now been told that Ill start Immunotherapy Pembrolizumab on 18/3 with 3 monthly scans and oncology.
If the treatment works can have for 2 years or more. If it doesn't work then another conversation with the Oncologist.
I live alone with no family near me. Any One out there have had similar treatment
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Lainey100
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Welcome to the forum where you will find support and encouragement.
Sorry to hear you have lung cancer and it can feel quite isolating, especially if you live alone.
There are many who have experienced the same and you are not alone in this, even though you feel you are.
We have many information booklets from diagnosis, the different treatments to living with lung cancer and can be found on this link:roycastle.org/help-and-supp...
We have online support groups through zoom and if you are interested in registering for this you can do so through this link: roycastle.org/help-and-supp...
This link will take you to some encouraging accounts from those who have had Immunotherapy: roycastle.org/campaigns/lik...
Hope you do well on the Immunotherapy and you hear from others of their experience, it can take a few days before you may receive a reply, meanwhile if you would like to discuss anything you can email ask the nurse at lungcancerhelp@roycastle.org or call our free phone nurse led helpline number on 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600
Hi Lainey100, so sorry to see that you have to have another treatment, I too had Pembrolizumab which worked on reducing the treatment, but I did stop after 8 rounds, as I got colitis, so don't worry if you have to stop early, as this sometimes happens, I have been stable for 18 months, so I hope it works for you as well as me. Also, the every day side effects were not bad for me, so I hope the same for you xx
Hiya Thank you so much for replying to me it gives me hope and I hope you continue to remain stable. Can you have immunotherapy again if the tumour starts to grow again ?
Hi Elaine, I don't think I can, I got really quite bad Colitis from it, which is normal, but mine wasn't shifting, so I can't go back on it, but I am one person and others go on and have it again or have it for a long time. I did get a really good response from it from when I had it and although the Colitis was hideous, if I was to choose again, I would still take the immunotherapy - wishing you lots of luck xx
I'm sorry I don't know about pembro, but do know about tecentiq which is a very similar drug. My husband has it in combination with avastin, which works differently to the immunos, it helps stop the cancer building its own blood supply.
He's doing really well on it (1 year since diagnosis now) - currently there is very little evidence of any disease on his scans. He has almost no side effects and is living a very active and 'normal' life.
Immunotherapies can be a real game changer for lung cancer and hopefully you'll get a fantastic response too.
It must be hard without family near - are there any local support groups?
Hi SarahThank you for your mail and taking time to answer. I have Roy castle and do a zoom call every 2 weeks about living with cancer. I also have Farley Hospice which soon to have alternate treatments looking forward to a bit of pampering .
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