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An update on my father’s immunotherapy for his lung cancer.
Hello , an update on my father’s immunotherapy for lung cancer. Would really appreciate any thoughts , insight or experiences. Especially, but no only, those which can give my father some further hope. My father was disagnosed with Stage 4 lung cancer around 10 months ago. He started on chemo but
Hello , an update on my father’s immunotherapy for lung cancer. Would really appreciate any thoughts , insight or experiences. Especially, but no only, those which can give my father some further hope. My father was disagnosed with Stage 4 lung cancer around 10 months ago. He started on chemo but
Vip1
in
The Roy Castle Lung Cancer Foundation
1 year ago
Any advice welcome
My husband was diagnosed with liver disease approx 4 years ago and was placed on the liver transplant waiting list. He had since been very stable and continued to work if somewhat more tired than he used to be. Over Christmas this year he caught a virus / infection which has resulted in him now being
My husband was diagnosed with liver disease approx 4 years ago and was placed on the liver transplant waiting list. He had since been very stable and continued to work if somewhat more tired than he used to be. Over Christmas this year he caught a virus / infection which has resulted in him now being
Hidden
in
British Liver Trust
1 year ago
Hypoxia, transplant dry runs and raising awareness of IPF
I've been called up twice for a possible
lung
transplant
, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for Pulmonary Fibrosis Awareness Month.
I've been called up twice for a possible
lung
transplant
, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for Pulmonary Fibrosis Awareness Month.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
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Officially on the lung transplant waiting list
Last Friday I made the decision to join the
lung
transplant
waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching.
Last Friday I made the decision to join the
lung
transplant
waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Lung Surgery Cancelled Twice
After an incidental find of a 19mm lung nodule and a clear PET scan in late October my respiratory consultant was sure it was a slow growing cancer caught early and recommended, which was agreed by me, that rather than a biopsy I go straight to surgery for a lung wedge resection to remove the nodule
After an incidental find of a 19mm lung nodule and a clear PET scan in late October my respiratory consultant was sure it was a slow growing cancer caught early and recommended, which was agreed by me, that rather than a biopsy I go straight to surgery for a lung wedge resection to remove the nodule
Domino13
in
The Roy Castle Lung Cancer Foundation
1 year ago
4 months post transplant
Is been at least 4 months post liver transplant. I would like to know from patients with experience how long it'll take for me to stop getting tired easily and still shaky sometimes? I also have on and off severe headaches and my appetite is the worse.....
Is been at least 4 months post liver transplant. I would like to know from patients with experience how long it'll take for me to stop getting tired easily and still shaky sometimes? I also have on and off severe headaches and my appetite is the worse.....
Kamx
in
British Liver Trust
1 year ago
Anti Covid treatments for the Immuno-compromised
I wrote the following to my MP on 22nd November last David , we have corresponded about this many times, and I know you are sympathetic to the problem. Things are getting worse, not better, and despite covid numbers falling, many of us are having to become more and more cautious in our already restricted
I wrote the following to my MP on 22nd November last David , we have corresponded about this many times, and I know you are sympathetic to the problem. Things are getting worse, not better, and despite covid numbers falling, many of us are having to become more and more cautious in our already restricted
RogerPinner
in
CLL Support
1 year ago
Would you be interested in new support if you have a mutation driven lung cancer, or have surgery as a treatment?
Hello all, On 16th February we will be starting an eight week programme of hour long on line support sessions for people with genetic mutation driven lung cancer. The sessions will be run by our facilitator and share coping ideas, practical tips and experience of treatment. If you would like to participate
Hello all, On 16th February we will be starting an eight week programme of hour long on line support sessions for people with genetic mutation driven lung cancer. The sessions will be run by our facilitator and share coping ideas, practical tips and experience of treatment. If you would like to participate
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
1 year ago
Relief for swollen feet ....
Hello, An update, my son has been put forward for an assessment for a liver transplant. There may be light at the end of the tunnel and we know there is still a long way to go, it gives us hope.I was wondering if anyone has any tips on any relief for very swollen feet due to oedema.. My son is having
Hello, An update, my son has been put forward for an assessment for a liver transplant. There may be light at the end of the tunnel and we know there is still a long way to go, it gives us hope.I was wondering if anyone has any tips on any relief for very swollen feet due to oedema.. My son is having
Charlieathome
in
British Liver Trust
1 year ago
jan16
anyone been diagnosed with
lung
cancer following liver
transplant
for pbc
anyone been diagnosed with
lung
cancer following liver
transplant
for pbc
jackk9
in
PBC Foundation
2 years ago
Hello there - any advice about Chemo (Carboplatin and Pemetrexed) and Immunotherapy (Pembrolizomab)?
Hi, so I was diagnosed just before Christmas (Is cancer the Christmas Grinch? 🤔 It was in my case....) Anyway, having been diagnosed with NSCL cancer I've now been put on a treatment plan, and start on Monday next week. Has anyone got any top tips for getting through the next few months? It all sounds
Hi, so I was diagnosed just before Christmas (Is cancer the Christmas Grinch? 🤔 It was in my case....) Anyway, having been diagnosed with NSCL cancer I've now been put on a treatment plan, and start on Monday next week. Has anyone got any top tips for getting through the next few months? It all sounds
Boo_Radley
in
The Roy Castle Lung Cancer Foundation
1 year ago
Surviving in retirement
At age 52 I was diagnosed with stage 3 Multiple Myeloma ; after 2 bone marrow transplants in 2007 & 2009 I was able to continue my engineering job until age 65. At 66 my PSA was 3400 with Gleason score 4 ; started Docetaxel and Jevtana until July 23 ; Now on Pluvicto have 5 more treatments to
At age 52 I was diagnosed with stage 3 Multiple Myeloma ; after 2 bone marrow transplants in 2007 & 2009 I was able to continue my engineering job until age 65. At 66 my PSA was 3400 with Gleason score 4 ; started Docetaxel and Jevtana until July 23 ; Now on Pluvicto have 5 more treatments to
chipspesto
in
Advanced Prostate Cancer
9 months ago
No offer of treatment.
My dear friend and colleague was diagnosed with stage 4 lung cancer in December. She has had a biopsy and been told there is no treatment available for her. She is just being given pain relief. She did not want to know how long she might have left. She sleeps most of the day and can't walk from the
My dear friend and colleague was diagnosed with stage 4 lung cancer in December. She has had a biopsy and been told there is no treatment available for her. She is just being given pain relief. She did not want to know how long she might have left. She sleeps most of the day and can't walk from the
Loppydune
in
The Roy Castle Lung Cancer Foundation
1 year ago
Transplant list waiting. Mgus57
This is Mgus57 I did another blood test at Mayo Clinic. This journey to be put on the kidney transplant,list has been emotional one. The feedback I received from the team, at Mayo has positive. They tell me I should be a candidate for a transplant. I hope I receive a kidney soon. I want to wish
This is Mgus57 I did another blood test at Mayo Clinic. This journey to be put on the kidney transplant,list has been emotional one. The feedback I received from the team, at Mayo has positive. They tell me I should be a candidate for a transplant. I hope I receive a kidney soon. I want to wish
Fsgs57
in
Kidney Disease
1 year ago
Ureteral stricture surgery/Ureteral retransplantation, replacement of ureter w small intestines etc and specialists who do this
I have a third kidney transplant and a ureteral stricture. We have tried everything to fix the stricture but nothing has worked. So my transplant team decided that surgery was the option ,surgical retransplantation of the ureter using a piece of my small intestines where the stricture was ,in its place
I have a third kidney transplant and a ureteral stricture. We have tried everything to fix the stricture but nothing has worked. So my transplant team decided that surgery was the option ,surgical retransplantation of the ureter using a piece of my small intestines where the stricture was ,in its place
Calebzztop
in
Kidney Transplant
1 year ago
Heart-lung transplant
Hi is there anyone that could share information or experience about a hear-
lung
transplant
. It is the last option for a family member with complex cyanotic heart disease any info would be appreciated . Thank you
Hi is there anyone that could share information or experience about a hear-
lung
transplant
. It is the last option for a family member with complex cyanotic heart disease any info would be appreciated . Thank you
John9912
in
British Heart Foundation
2 years ago
What is yin yoga...and why it matters
For all the yang in the world, we need the softer yin to balance. To harmonise. To experience viscerally, our inner equipose. A sojourn to an old converted olive farm in Andalucia in 2012, was my first entry point into a formal yoga teacher training (YTT). As a woman then in my 30s, a healthy functioning
For all the yang in the world, we need the softer yin to balance. To harmonise. To experience viscerally, our inner equipose. A sojourn to an old converted olive farm in Andalucia in 2012, was my first entry point into a formal yoga teacher training (YTT). As a woman then in my 30s, a healthy functioning
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
1 year ago
Media Request: West Devon
Do you live in or near West Devon and would you be happy to share your story with local press? TheTavistock Times would like to speak to someone living with non alcohol related liver disease, alcohol related liver disease or viral hepatitis who has received a liver transplant. If you're able to help
Do you live in or near West Devon and would you be happy to share your story with local press? TheTavistock Times would like to speak to someone living with non alcohol related liver disease, alcohol related liver disease or viral hepatitis who has received a liver transplant. If you're able to help
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
start of my SCT journey
Hi pawb I’m primary MF and Cal-r positive. I’ve been on Epo injections for 30 weeks which has kept my red cells in the high 90s. My platelets are in the low 40s. I have started to take Ruxolitinib but because of my low platelets 5mg 2 times a day. This will hopefully reduce my spleen. I have been told
Hi pawb I’m primary MF and Cal-r positive. I’ve been on Epo injections for 30 weeks which has kept my red cells in the high 90s. My platelets are in the low 40s. I have started to take Ruxolitinib but because of my low platelets 5mg 2 times a day. This will hopefully reduce my spleen. I have been told
Grizly
in
MPN Voice
9 months ago
Stem Cell Transplant update
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
Scaredy_cat
in
MPN Voice
9 months ago
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