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Immune Responses + Autoimmune Myelofibrosis
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
LongETinUS
in
MPN Voice
8 months ago
Flying
Hi I was diagnosed with stage 4 nsclc 2 years ago now just had my 23rd round of immunotherapy treatment which is keeping Beryl the lung lodger stable…Has anybody found that they have problems flying, last time I flew to Malaga a short time after I got home I landed up with a chest infection which made
Hi I was diagnosed with stage 4 nsclc 2 years ago now just had my 23rd round of immunotherapy treatment which is keeping Beryl the lung lodger stable…Has anybody found that they have problems flying, last time I flew to Malaga a short time after I got home I landed up with a chest infection which made
Cosmic54
in
The Roy Castle Lung Cancer Foundation
1 year ago
after effects of kidney transplant
Hi There, I am a 62 years old male, with CKD 4 , EGFR as 16 and creatinine 4.07 . I have been listed for Kidney Transplant. I need to talk to people who have already got the transplant done and what kind of experience they have after getting the transplant. Any complications they had, is it better or
Hi There, I am a 62 years old male, with CKD 4 , EGFR as 16 and creatinine 4.07 . I have been listed for Kidney Transplant. I need to talk to people who have already got the transplant done and what kind of experience they have after getting the transplant. Any complications they had, is it better or
asahdev
in
Kidney Transplant
1 year ago
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one month post op
I am one month out from my liver transplant, and am still in horrible pain, have lost 40 pounds, of which I did not have to loose, still taking OxyContin regularly, can’t sleep, and can’t eat solid foods. Any suggestions? Feeling absolutely miserable, and NO energy.
I am one month out from my liver transplant, and am still in horrible pain, have lost 40 pounds, of which I did not have to loose, still taking OxyContin regularly, can’t sleep, and can’t eat solid foods. Any suggestions? Feeling absolutely miserable, and NO energy.
Rubyrebe
in
British Liver Trust
1 year ago
Lipstickandcrayons
Hello my name is lipsticandcrayons I am a previous kidney transplant Paitient. It lasted me a whole 7 years and trust me when I say I protect this kidney with my life because it came from my beautiful mother. My mother was getting tested she had done the round and I got a call to come in , I was so
Hello my name is lipsticandcrayons I am a previous kidney transplant Paitient. It lasted me a whole 7 years and trust me when I say I protect this kidney with my life because it came from my beautiful mother. My mother was getting tested she had done the round and I got a call to come in , I was so
Lipstickncrayons
in
Kidney Transplant
1 year ago
Adenocarcinoma lung cancer
Hi All thanks so much for the kind people who responded to my mothers diagnosis of Adenocarcinoma of the lungs. We’ve now had the oncology appointment and Mums PDL1 is 100% and immunotherapy is the recommended treatment. We are due to start pembroluzumab (keytruda) to start every 3 weeks in the next
Hi All thanks so much for the kind people who responded to my mothers diagnosis of Adenocarcinoma of the lungs. We’ve now had the oncology appointment and Mums PDL1 is 100% and immunotherapy is the recommended treatment. We are due to start pembroluzumab (keytruda) to start every 3 weeks in the next
SharonTan
in
The Roy Castle Lung Cancer Foundation
1 year ago
F4: cirrhosis
I was recently diagnosed with F4 Cirrhosis and I'm terrified. I found out by reading my medical record. I was first told that I had Autoimmune Hepatitis after my Fibro scan results and that I needed to start treatment with Imuran and prednisone. GI dr said that if treatment didn't work I would be put
I was recently diagnosed with F4 Cirrhosis and I'm terrified. I found out by reading my medical record. I was first told that I had Autoimmune Hepatitis after my Fibro scan results and that I needed to start treatment with Imuran and prednisone. GI dr said that if treatment didn't work I would be put
TrixieMami
in
Living with Fatty Liver and NASH
1 year ago
kidney transplant recipient.
hello everyone with a kidney transplant, congratulations to all. I received my new kidney about a year and a half ago. I still have pain at the site of the surgery. I drive for living what advice you guys can render?
hello everyone with a kidney transplant, congratulations to all. I received my new kidney about a year and a half ago. I still have pain at the site of the surgery. I drive for living what advice you guys can render?
ru7318
in
Kidney Transplant
1 year ago
Transplant and BKV Realities
I received my kidney transplant 8 1/2 months ago. The surgery went so well and the transplant has been a new lease on life in so many ways. As I have posted here, I have dealt with a near-constant onslaught of infections (C-dif x2, UTI, Sepsis, BKV, CMV), the most recent resulting in 2 weeks spent in
I received my kidney transplant 8 1/2 months ago. The surgery went so well and the transplant has been a new lease on life in so many ways. As I have posted here, I have dealt with a near-constant onslaught of infections (C-dif x2, UTI, Sepsis, BKV, CMV), the most recent resulting in 2 weeks spent in
Hidden
in
Kidney Transplant
1 year ago
Famous Kidney Transplant People
I am watching Modern Family (rerun and the series is now ended) and remembered that Sarah Hyland, the oldest daughter, Hailey, of Claire and Phil on the show, was transplanted with a kidney when she was younger by a donation from her father. It failed and she got another transplant.I read that she said
I am watching Modern Family (rerun and the series is now ended) and remembered that Sarah Hyland, the oldest daughter, Hailey, of Claire and Phil on the show, was transplanted with a kidney when she was younger by a donation from her father. It failed and she got another transplant.I read that she said
TaffyTwoshoes27
in
Kidney Transplant
1 year ago
Queenersize
So I'm trying to find ways to get motivated to exercise. I want to lose weight in preparation for a transplant. I have no donor yet, but I was told I would gain weight from steroids taken after your transplant. Can anyone give more insight on that? I at least want to try. I'm on my second week of clean
So I'm trying to find ways to get motivated to exercise. I want to lose weight in preparation for a transplant. I have no donor yet, but I was told I would gain weight from steroids taken after your transplant. Can anyone give more insight on that? I at least want to try. I'm on my second week of clean
HipHopQueen
in
Kidney Dialysis
1 year ago
Start of my stem cell journey 0.3.1 ambulatory care
I have been offered Ambulatory Care (treatment in a specialised day unit) for my stem cell transplant has anyone else gone through this process?
I have been offered Ambulatory Care (treatment in a specialised day unit) for my stem cell transplant has anyone else gone through this process?
Grizly
in
MPN Voice
9 months ago
Start of my Stem Cell Journey 0.3
Well, where do I start. The transplant team wanted to increase my Rux to 10 mgs which has been really good for me. So much energy hardly any symptoms and overall feeling better. The fly in the ointment is my blood levels are dropping red cells were 80 and my platelets were in the 30’s. My Haematologist
Well, where do I start. The transplant team wanted to increase my Rux to 10 mgs which has been really good for me. So much energy hardly any symptoms and overall feeling better. The fly in the ointment is my blood levels are dropping red cells were 80 and my platelets were in the 30’s. My Haematologist
Grizly
in
MPN Voice
9 months ago
Covid Positive now day 60
Hi All Am getting concerned about my husband - he had a liver transplant in 2017 due to NASH cirrhosis and suffers from COPD, Asthma and Diabetes Type 2. He has now tested positive for Covid for 60 days and has had 1 x anti viral medication from St Thomas, 4 x antibiotics, 3 x steroids and remains
Hi All Am getting concerned about my husband - he had a liver transplant in 2017 due to NASH cirrhosis and suffers from COPD, Asthma and Diabetes Type 2. He has now tested positive for Covid for 60 days and has had 1 x anti viral medication from St Thomas, 4 x antibiotics, 3 x steroids and remains
Kimlescam
in
British Liver Trust
1 year ago
Scared I might have lung cancer
Home About Cancer Cancer Chat Post I have a cough most of my life, but just lately I have had a horrible, relentless tickly cough, to the point I gag, and pee myself! I went to AnE in February for a cough that was really hurting my ribs.... They saw me and sent me to ambulatory care. They did test
Home About Cancer Cancer Chat Post I have a cough most of my life, but just lately I have had a horrible, relentless tickly cough, to the point I gag, and pee myself! I went to AnE in February for a cough that was really hurting my ribs.... They saw me and sent me to ambulatory care. They did test
Loosygoosey7
in
The Roy Castle Lung Cancer Foundation
1 year ago
Back on the transplant list
Yesterday I returned to the
lung
transplant
waiting list after an enforced break due to my Dad picking up his second bout of Covid. Fortunately, Lauren and I didn't get it, too.
Yesterday I returned to the
lung
transplant
waiting list after an enforced break due to my Dad picking up his second bout of Covid. Fortunately, Lauren and I didn't get it, too.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Join Us! Tomorrow, April 11th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, April 11th, at 5pm PT/8pm ET. At this
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, April 11th, at 5pm PT/8pm ET. At this
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
Osteoporosis treatment post transplant
I'm post Kidney Transplant with many problems, and one is Osteoporosis. My Endocrinologist wanted to put me on Reclast and I declined. Now, he wants to put me on Prolia. There seems to be many side effects to this also. I was on Fosomax and had many bad abdominal side effects. I'm told these are my
I'm post Kidney Transplant with many problems, and one is Osteoporosis. My Endocrinologist wanted to put me on Reclast and I declined. Now, he wants to put me on Prolia. There seems to be many side effects to this also. I was on Fosomax and had many bad abdominal side effects. I'm told these are my
Rocknlily
in
Bone Health and Osteoporosis UK
1 year ago
ARTIFICIAL LIVER
Good news , maybe we don’t have to wait for a liver transplant after all. I didn’t realise that machines existed that can carry out the function of the liver, at this stage they are external like kidney dialysis. Would think you have to hooked up permanently as the liver is always working.
Good news , maybe we don’t have to wait for a liver transplant after all. I didn’t realise that machines existed that can carry out the function of the liver, at this stage they are external like kidney dialysis. Would think you have to hooked up permanently as the liver is always working.
Oztrax
in
British Liver Trust
1 year ago
Depression and Anxiety
I am 68 years male, retired, with diabetes, liver transplant suffering from depression and anxiety. I am single, feel bored, not having hobbies, difficult to pass time alone. Not having friends to talk so missing a lot. I always think of doing suicide. Need help and support.
I am 68 years male, retired, with diabetes, liver transplant suffering from depression and anxiety. I am single, feel bored, not having hobbies, difficult to pass time alone. Not having friends to talk so missing a lot. I always think of doing suicide. Need help and support.
MOVY
in
Anxiety and Depression Support
1 year ago
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