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Maintenance treatment
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Ina3
in
Lung Cancer Support
5 years ago
Hello
I am awaiting a
lung
transplant
and just got on the waiting list a couple of weeks ago.
I am awaiting a
lung
transplant
and just got on the waiting list a couple of weeks ago.
Hema13
in
Lung Conditions Community Forum
5 years ago
LDH markers
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
Goingcuckoo
in
The Roy Castle Lung Cancer Foundation
5 years ago
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Hi!
Hello everyone! I recently received a kidney transplant this past weekend and I was just curious about how many of you who had also received one have been feeling the first couple days/weeks. I’m terribly bloated and this pain is crazy. Thank god for painkillers right? lol. Has anyone had the stent
Hello everyone! I recently received a kidney transplant this past weekend and I was just curious about how many of you who had also received one have been feeling the first couple days/weeks. I’m terribly bloated and this pain is crazy. Thank god for painkillers right? lol. Has anyone had the stent
Hidden
in
Kidney Disease
5 years ago
does enalapril reduce kidney function
does enalapril medication make ur kidney function or gfr decrease . very concern my gfr when from being normal for my kidney transplant to one point 6 gfr really worried but at the same time in hope that the reason it decrease because of this medication and because i didnt drink enough water was feeling
does enalapril medication make ur kidney function or gfr decrease . very concern my gfr when from being normal for my kidney transplant to one point 6 gfr really worried but at the same time in hope that the reason it decrease because of this medication and because i didnt drink enough water was feeling
jennifer24
in
Early CKD Support
5 years ago
Back pains
I had a lower left lung lobectomy 11 weeks ago with no real complication. I have now started chemo and had my first cycle 2 weeks ago. All was ok with that apart from feeling tired and fatigued. I am having pains now in my sides where as when I bend down they really hurt mainly around the base of the
I had a lower left lung lobectomy 11 weeks ago with no real complication. I have now started chemo and had my first cycle 2 weeks ago. All was ok with that apart from feeling tired and fatigued. I am having pains now in my sides where as when I bend down they really hurt mainly around the base of the
Happy64
in
The Roy Castle Lung Cancer Foundation
5 years ago
Steroids and BK virus
Six months after my 2nd kidney transplant I started rejecting and they discovered I had the BK virus so they took mr off MMF and kept me on Adoport and added Prednisolone which is now at 10mg per day and have been on this now for 18 months and have been told I will have to stay on this dose always .
Six months after my 2nd kidney transplant I started rejecting and they discovered I had the BK virus so they took mr off MMF and kept me on Adoport and added Prednisolone which is now at 10mg per day and have been on this now for 18 months and have been told I will have to stay on this dose always .
smashandgrab
in
Kidney Transplant Patient Support
5 years ago
TigerBalm
Morning All, Just a quick question... I am a kidney transplant patient with painful arthritis. Someone has recomended Tiger Balm.... Does anyone else use this? Is it ok with transplant meds? Thanks Mgt
Morning All, Just a quick question... I am a kidney transplant patient with painful arthritis. Someone has recomended Tiger Balm.... Does anyone else use this? Is it ok with transplant meds? Thanks Mgt
Mgt8
in
Kidney Transplant Patient Support
5 years ago
Happy Days Are Here Again
For those of you diagnosed with stage 4, don’t give up! Hope is a wonderful aid to healing. I had my usual three month scan and “there is no evidence of disease”. When I was diagnosed in 2013, it was assumed that I only had months to live. I am celebrating my news not only for me but those who are
For those of you diagnosed with stage 4, don’t give up! Hope is a wonderful aid to healing. I had my usual three month scan and “there is no evidence of disease”. When I was diagnosed in 2013, it was assumed that I only had months to live. I am celebrating my news not only for me but those who are
Ncpoet
in
Lung Cancer Support
5 years ago
Devastated is this the end?
My husband has had a cirrhotic liver and alcoholic liver disease for a number of years coupled with all the complications this brings. He has now been abstinent for 4 and a half years, as I write he is spending his 17th night in hospital, this is his 3rd stay this year. In January this year he was told
My husband has had a cirrhotic liver and alcoholic liver disease for a number of years coupled with all the complications this brings. He has now been abstinent for 4 and a half years, as I write he is spending his 17th night in hospital, this is his 3rd stay this year. In January this year he was told
Billfury
in
British Liver Trust
5 years ago
Listed For Lung Transplant
Hello everyone, Just wanted to give you all an update since signing the papers on 26th Feb my mother was placed on the
lung
transplant
list Friday 22nd March, its felt like a fight to get to this point .... chasing up various and tests and appointments .... now is the waiting game we are hopeful....
Hello everyone, Just wanted to give you all an update since signing the papers on 26th Feb my mother was placed on the
lung
transplant
list Friday 22nd March, its felt like a fight to get to this point .... chasing up various and tests and appointments .... now is the waiting game we are hopeful....
Queenbean
in
Lung Conditions Community Forum
5 years ago
3D Printing produces liver tissue for Transplants
The Americans who worked on this technology have elected to make their findings open source, in the hopes that other bioengineers will build on their work and speed up the discovery of a viable alternative to cadaver organs for
transplant
. https://www.scientificamerican.com/article/can-3-d-printing-produce-
lung
-and-liver-tissue-for-transplants
The Americans who worked on this technology have elected to make their findings open source, in the hopes that other bioengineers will build on their work and speed up the discovery of a viable alternative to cadaver organs for
transplant
. https://www.scientificamerican.com/article/can-3-d-printing-produce-
lung
-and-liver-tissue-for-transplants
Bootandall
in
British Liver Trust
5 years ago
CLL, Bone Marrow Transplant and Hodgkin’s Lymphoma
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
leopardo
in
CLL Support
5 years ago
Update on My Father's Cirrhosis - Seems Stable
Hello, As we found out about my father's Cirrhosis in February after we noticed his swollen stomach. His Ascites of 2.5ltr was drained in on Feb 23, 2019. It was followed by Endoscopy where grade 3 varices were diagnosed. He never had bleeding, but doctors recommended banding, so he had it done in
Hello, As we found out about my father's Cirrhosis in February after we noticed his swollen stomach. His Ascites of 2.5ltr was drained in on Feb 23, 2019. It was followed by Endoscopy where grade 3 varices were diagnosed. He never had bleeding, but doctors recommended banding, so he had it done in
zvhipp
in
British Liver Trust
5 years ago
AmazonSmile - charity donations
There maybe a few people out there who may not be aware of AmazonSmile. I daresay we all buy something from Amazon on a regular bases. (I for one buy my printer ink cartridges from Amazon, and I also got my "Liver Transplant" T-shirt from them). If a person was to register with AmazonSmile and place
There maybe a few people out there who may not be aware of AmazonSmile. I daresay we all buy something from Amazon on a regular bases. (I for one buy my printer ink cartridges from Amazon, and I also got my "Liver Transplant" T-shirt from them). If a person was to register with AmazonSmile and place
Hidden
in
British Liver Trust
5 years ago
Major breakthrough in the treatment of leukemia
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
socrates_8
in
MPN Voice
5 years ago
Stem Cells!
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
christiev
in
MPN Voice
5 years ago
All going on!
On the way back from the hospital on Thursday night, Paul called me th say he’d just had a call from th QE hospital to confirm that he’s now officially on the
lung
transplant
list! Talk about a crazy day!
On the way back from the hospital on Thursday night, Paul called me th say he’d just had a call from th QE hospital to confirm that he’s now officially on the
lung
transplant
list! Talk about a crazy day!
Rachelmcc80
in
Lung Conditions Community Forum
5 years ago
Decompensated to compensated?
Hi all, I'm new to here but very concerned about my dad. He has been diagnosed with cirrhosis a few months ago but his tummy is full of fluid (ascites) which is his main issue. He also has varices but thankfully has never had a bleed. As his liver is now decompensated my question is this. Is it possible
Hi all, I'm new to here but very concerned about my dad. He has been diagnosed with cirrhosis a few months ago but his tummy is full of fluid (ascites) which is his main issue. He also has varices but thankfully has never had a bleed. As his liver is now decompensated my question is this. Is it possible
Hidden
in
British Liver Trust
5 years ago
Lung Transplant
My Pulmonologist says I may need a
lung
transplant
if the meds I’m on don’t show any signs of the lung scarring slowing down. I would like to know if anybody close to to my age had a
lung
transplant
?I am skeptical about major surgery when you’re not young.
My Pulmonologist says I may need a
lung
transplant
if the meds I’m on don’t show any signs of the lung scarring slowing down. I would like to know if anybody close to to my age had a
lung
transplant
?I am skeptical about major surgery when you’re not young.
Dermatray15
in
Asthma Community Forum
5 years ago
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