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Please join me in meeting with Congress to ask for Lung Cancer Research Funding
The most important thing you can do as a participant is share your experience with your representative in DC. You put a face on lung cancer which is the most powerful tool we have. You will be matched with other people from your state and the state leader will make the ask for the funding. First
The most important thing you can do as a participant is share your experience with your representative in DC. You put a face on lung cancer which is the most powerful tool we have. You will be matched with other people from your state and the state leader will make the ask for the funding. First
Denzie
Volunteer
in
Lung Cancer Support
2 years ago
Kidney Teansplant and CMV
My husband is 14 months post kidney transplant. He just tested positive for the CMV virus and has a lot of fatigue. Has anyone else had CMV and what were your symptoms. He’s on Valcyte.
My husband is 14 months post kidney transplant. He just tested positive for the CMV virus and has a lot of fatigue. Has anyone else had CMV and what were your symptoms. He’s on Valcyte.
Sister9555
in
Kidney Transplant
2 years ago
6 monthly assessment
Trying to get my head round the impact of a single
lung
transplant
, I should know if this is possible in the next couple of weeks. Happy Sunday Everybody. ☀️
Trying to get my head round the impact of a single
lung
transplant
, I should know if this is possible in the next couple of weeks. Happy Sunday Everybody. ☀️
mary1956
in
Lung Conditions Community Forum
3 years ago
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Kidney transplant podcast: Benji's Story
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
bethedifference
in
Kidney Transplant
2 years ago
Any suggestions for reducing creatinine/ urea
My daughter is 6 years old and 3 years post renal transplant. It has been very challenging with numerous bouts of UTI's and BK thrown into the mix. She currently takes tacrolimus (3.2 mg BD), sytron, bicarbonate, cefalexin and prednisolone (2.5mg every other day), alphacalcitol and darbepoetin. Her
My daughter is 6 years old and 3 years post renal transplant. It has been very challenging with numerous bouts of UTI's and BK thrown into the mix. She currently takes tacrolimus (3.2 mg BD), sytron, bicarbonate, cefalexin and prednisolone (2.5mg every other day), alphacalcitol and darbepoetin. Her
BlueistheColour1
in
Kidney Transplant
2 years ago
In the Rush to Return to ‘Normal,’ What Happens to the Vulnerable? By Sarah Wildman in NYT 04/10/22
“Covid-19 need no longer control our lives,” President Biden announced in the State of the Union address, speaking to a room of unmasked though back-room-tested members of Congress. He then offered, magnanimously: “If you’re immunocompromised or have some other vulnerability, we have treatments and free
“Covid-19 need no longer control our lives,” President Biden announced in the State of the Union address, speaking to a room of unmasked though back-room-tested members of Congress. He then offered, magnanimously: “If you’re immunocompromised or have some other vulnerability, we have treatments and free
Iupiter
in
CLL Support
2 years ago
MIN-102 update: summer 2022
Hi everyone, I am persisting with the min-102 trial and yesterday had my 10th visit. Nothing particularly different about the visit: the usual 6 minute walking and balance trials, the annual MRI scan and echocardiogram and the questionnaires and meeting with a specialist. What I did learn is that Minoryx
Hi everyone, I am persisting with the min-102 trial and yesterday had my 10th visit. Nothing particularly different about the visit: the usual 6 minute walking and balance trials, the annual MRI scan and echocardiogram and the questionnaires and meeting with a specialist. What I did learn is that Minoryx
wilburlois15
in
AMN EASIER
2 years ago
Liver transplant
Hi , I am waiting for a liver transplant, was wondering if there is anyone on here who has had one
Hi , I am waiting for a liver transplant, was wondering if there is anyone on here who has had one
Swansliver
in
British Liver Trust
2 years ago
Food plan for transplant woman weight 80
Hi, One year kidney transplant. My weight is 80 +. Any one having food plan for my situation please?
Hi, One year kidney transplant. My weight is 80 +. Any one having food plan for my situation please?
noor99
in
Kidney Transplant Patient Support
2 years ago
Treatments and Surviving Cancer
I am a stage 3 lung cancer survivor that was diagnosed in August of 2018, so I have now been in remission for 3 1/2 years. When I first found out that I had cancer it was very scary because I thought that I was going to die, so I began depressed and sad. I had a lot of prayer warriors, family members
I am a stage 3 lung cancer survivor that was diagnosed in August of 2018, so I have now been in remission for 3 1/2 years. When I first found out that I had cancer it was very scary because I thought that I was going to die, so I began depressed and sad. I had a lot of prayer warriors, family members
Linnie1430
in
Lung Cancer Support
2 years ago
Supporting parents
Hi all, I'm new here and am seeking support on how to be of help to my parents in IL while I'm in IA, as my Dad (who is a kidney transplant recipient) skin cancer gets progressively worse, and my mom (who was Dad's donor) is in denial that she is depressed and is in need of help. In 2003 Mom donated
Hi all, I'm new here and am seeking support on how to be of help to my parents in IL while I'm in IA, as my Dad (who is a kidney transplant recipient) skin cancer gets progressively worse, and my mom (who was Dad's donor) is in denial that she is depressed and is in need of help. In 2003 Mom donated
SmilesMickey
in
Care Community
2 years ago
Ascetes after transplant
Hi everyone. Has anyone had ascetes 4 years after a liver transplant?
Hi everyone. Has anyone had ascetes 4 years after a liver transplant?
Hidden
in
British Liver Trust
2 years ago
Covid Risk from Travel after Transplant
Hello from New Zealand , I have had a very successful kidney transplant around 20 months ago , and doing very well , no other health issues other than the need for Immuno suppressants , my dilemma is Covid Risk as I am wanting to travel soon to my step daughters wedding in the UK this year , has anyone
Hello from New Zealand , I have had a very successful kidney transplant around 20 months ago , and doing very well , no other health issues other than the need for Immuno suppressants , my dilemma is Covid Risk as I am wanting to travel soon to my step daughters wedding in the UK this year , has anyone
Taconeo
in
Kidney Transplant
2 years ago
Meds
I had a successful kidney transplant on 2/11/21 however at that time I was also diagnosed with Parkinsonism and put on Carbidopa/Levodopa. I have struggled since then with agitation and jitters. Maybe on too many meds or the wrong ones. Is there anyone out there who has Parkinsonism and also on
I had a successful kidney transplant on 2/11/21 however at that time I was also diagnosed with Parkinsonism and put on Carbidopa/Levodopa. I have struggled since then with agitation and jitters. Maybe on too many meds or the wrong ones. Is there anyone out there who has Parkinsonism and also on
Mesabi
in
Kidney Transplant
2 years ago
I've been blessed
On 2/22/22, I received an anonymous live donor kidney transplant. I was totally blown away but so very grateful for this gift. I will be forever thankful and appreciative for this opportunity to give back and support others on their journey. My only regret is that I will not be able to personally thank
On 2/22/22, I received an anonymous live donor kidney transplant. I was totally blown away but so very grateful for this gift. I will be forever thankful and appreciative for this opportunity to give back and support others on their journey. My only regret is that I will not be able to personally thank
MartyVA
in
Kidney Transplant
2 years ago
Virtual Kidney Support Group
Kidneysolutions.org has a free virtual kidney transplant support group on Monday nights at 6:00 CDT. The group supports anyone who is looking for a living kidney donor or who has had s kidney transplant. Go to kidneysolutions.org to sign up. It is free no fees. It is moderated by Kent Bressler MA RN
Kidneysolutions.org has a free virtual kidney transplant support group on Monday nights at 6:00 CDT. The group supports anyone who is looking for a living kidney donor or who has had s kidney transplant. Go to kidneysolutions.org to sign up. It is free no fees. It is moderated by Kent Bressler MA RN
Kbressler
in
Kidney Transplant Patient Support
2 years ago
Please help. How do I get back to transplant with info on Medicare issues.
I was reading about kidney transplant and Medicare and it had a link so I clicked it. Now I can’t get back to those posts. Please help.
I was reading about kidney transplant and Medicare and it had a link so I clicked it. Now I can’t get back to those posts. Please help.
ESRDRLS
in
Kidney Transplant
2 years ago
Health/Travel Insurance after Liver Transplant
I am travelling to the USA soon and am so stressed about the cost of Health insurance for the 7 days that I will be there. Last quote I received was upwards of £2000. I am 3 years post liver transplant. Am I going to the wrong companies? Just want to feel reassured that if anything happens that I will
I am travelling to the USA soon and am so stressed about the cost of Health insurance for the 7 days that I will be there. Last quote I received was upwards of £2000. I am 3 years post liver transplant. Am I going to the wrong companies? Just want to feel reassured that if anything happens that I will
ThePug
in
British Liver Trust
2 years ago
Positive crossmatch ?
Hello everyone, Excuse me for my English as its my second language. Hope you will understand me. My mother was diagnosed with a kidney failure few years a go, but the GFR goas up and down for her, last September it was 14, and last month it goas up to 20 “ not sure what is the couse of that but it
Hello everyone, Excuse me for my English as its my second language. Hope you will understand me. My mother was diagnosed with a kidney failure few years a go, but the GFR goas up and down for her, last September it was 14, and last month it goas up to 20 “ not sure what is the couse of that but it
MAK88
in
Kidney Disease
2 years ago
theoretical question: lung transplant
I am guessing compared living a
lung
transplant
, severe asthma may seem like a walk in the woods.
I am guessing compared living a
lung
transplant
, severe asthma may seem like a walk in the woods.
runcyclexcski
in
Asthma Community Forum
3 years ago
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