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post lung transplant
I have recently been accepted on the
lung
transplant
list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
I have recently been accepted on the
lung
transplant
list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
Northernsaul
in
Lung Conditions Community Forum
1 month ago
Pregnancy
Hi all I am 6.5 years post single
lung
transplant
and recently found out I am 7 weeks pregnant . I'm super shocked as I was told I would never have another child ( I also have a 13 year old daughter) And im super worried about how my body is going to cope with this pregnancy.
Hi all I am 6.5 years post single
lung
transplant
and recently found out I am 7 weeks pregnant . I'm super shocked as I was told I would never have another child ( I also have a 13 year old daughter) And im super worried about how my body is going to cope with this pregnancy.
Ejbid
in
Lung Conditions Community Forum
11 days ago
Lung transplant clinic appointment
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Karenanne61
in
Lung Conditions Community Forum
7 months ago
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Exhausted but happy.
I spent seven hours at the
lung
transplant
clinic at Harefield yesterday. I was weighed and measured many times, sometimes with boots (dockers!) on sometimes off, ECG, echocardiogram, chest xray, blood tests, blood pressure test, lung function test, urine test, and finally mrsa test!
I spent seven hours at the
lung
transplant
clinic at Harefield yesterday. I was weighed and measured many times, sometimes with boots (dockers!) on sometimes off, ECG, echocardiogram, chest xray, blood tests, blood pressure test, lung function test, urine test, and finally mrsa test!
Karenanne61
in
Lung Conditions Community Forum
12 days ago
Transplant Surgeon
I was given a lot of information regarding a double
lung
transplant
, they was all very nice and thorough. I was allocated a transplant co ordinator then was informed a would be discussed at the weekly meeting. September this year I was admitted to the “Jim Quick” ward at wythenshawe .
I was given a lot of information regarding a double
lung
transplant
, they was all very nice and thorough. I was allocated a transplant co ordinator then was informed a would be discussed at the weekly meeting. September this year I was admitted to the “Jim Quick” ward at wythenshawe .
Northernsaul
in
Lung Conditions Community Forum
3 months ago
First appointment at lung transplant centre.
I have my first appointment on Wednesday at the Harefield. Can any of you wise people give me any idea what to expect? I have written down a few questions. We are going Tuesday and stopping in a b and b as the area is completely new to us. ( We live in Oxfordshire) Thank you.
I have my first appointment on Wednesday at the Harefield. Can any of you wise people give me any idea what to expect? I have written down a few questions. We are going Tuesday and stopping in a b and b as the area is completely new to us. ( We live in Oxfordshire) Thank you.
Karenanne61
in
Lung Conditions Community Forum
8 months ago
People of HealthUnlocked - COPD: Preparing for a Double Lung Transplant
My consultant then referred me to a
transplant
institute in northern England to be assessed for a double
lung
transplant
. After a few months with no improvement, I was prescribed ambulatory oxygen and completed a 10-week course in February 2020 shortly after the COVID-19 lockdown began.
My consultant then referred me to a
transplant
institute in northern England to be assessed for a double
lung
transplant
. After a few months with no improvement, I was prescribed ambulatory oxygen and completed a 10-week course in February 2020 shortly after the COVID-19 lockdown began.
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
6 months ago
Officially on the lung transplant waiting list
Last Friday I made the decision to join the
lung
transplant
waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching.
Last Friday I made the decision to join the
lung
transplant
waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
7 months ago
double lungs transplant
I'm a 44 year old mum of 2 I have a son 26and a 8 year old daughter .I don't drink or smoke so to be told my lungs are packing up is hard getting my head round ..I've been an all kinds of tablets and steroids nothing's helped my lungs get better left with the decision of
lung
transplant
.
I'm a 44 year old mum of 2 I have a son 26and a 8 year old daughter .I don't drink or smoke so to be told my lungs are packing up is hard getting my head round ..I've been an all kinds of tablets and steroids nothing's helped my lungs get better left with the decision of
lung
transplant
.
Purpal
in
Lung Conditions Community Forum
6 months ago
Lung transplant second opinion update.
Saw the very nice team at the Royal Papworth following the Harefields decision to delist me. Where do i begin? First of all what a place, futuristic, buzzing with energy and you just knew you were in a different league. They haven’t said yes but more importantly not a no either. Bottom line is they
Saw the very nice team at the Royal Papworth following the Harefields decision to delist me. Where do i begin? First of all what a place, futuristic, buzzing with energy and you just knew you were in a different league. They haven’t said yes but more importantly not a no either. Bottom line is they
Mrbojangles
in
Lung Conditions Community Forum
10 months ago
Refusing Lung Transplant
A few weeks ago my wife's neurologist put her forward for consideration for
lung
transplant
surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content.
A few weeks ago my wife's neurologist put her forward for consideration for
lung
transplant
surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content.
hillclimber1
in
Lung Conditions Community Forum
11 months ago
Back on the transplant list
Yesterday I returned to the
lung
transplant
waiting list after an enforced break due to my Dad picking up his second bout of Covid. Fortunately, Lauren and I didn't get it, too.
Yesterday I returned to the
lung
transplant
waiting list after an enforced break due to my Dad picking up his second bout of Covid. Fortunately, Lauren and I didn't get it, too.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
3 months ago
Newby here seeking advice please.
Just been delisted for
lung
transplant
(IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”.
Just been delisted for
lung
transplant
(IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”.
Mrbojangles
in
Lung Cancer Support
10 months ago
Trikafta drug US Name - Kaftrio drug UK Name
i.e Would it not be offered to anyone who has Severe Bronchiectasis or anyone who could no longer have a
Lung
Transplant
? Kind regards as always Joe x
i.e Would it not be offered to anyone who has Severe Bronchiectasis or anyone who could no longer have a
Lung
Transplant
? Kind regards as always Joe x
Joseph260268
in
Lung Conditions Community Forum
11 months ago
Heart-lung transplant
Hi is there anyone that could share information or experience about a hear-
lung
transplant
. It is the last option for a family member with complex cyanotic heart disease any info would be appreciated . Thank you
Hi is there anyone that could share information or experience about a hear-
lung
transplant
. It is the last option for a family member with complex cyanotic heart disease any info would be appreciated . Thank you
John9912
in
British Heart Foundation
6 months ago
Hypoxia, transplant dry runs and raising awareness of IPF
I've been called up twice for a possible
lung
transplant
, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for Pulmonary Fibrosis Awareness Month.
I've been called up twice for a possible
lung
transplant
, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for Pulmonary Fibrosis Awareness Month.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
5 months ago
Removed from Transplant
Sadly I have been removed from the
lung
transplant
list . Harefield say the pulmonary hypertension I have has worsened so much that I wouldn’t survive surgery. I have no idea what will happen next. I’m on 24/7 oxygen, my lungs have approximately 10% capacity and I have no idea what to expect.
Sadly I have been removed from the
lung
transplant
list . Harefield say the pulmonary hypertension I have has worsened so much that I wouldn’t survive surgery. I have no idea what will happen next. I’m on 24/7 oxygen, my lungs have approximately 10% capacity and I have no idea what to expect.
mary1956
in
Lung Conditions Community Forum
12 months ago
jan16
anyone been diagnosed with
lung
cancer following liver
transplant
for pbc
anyone been diagnosed with
lung
cancer following liver
transplant
for pbc
jackk9
in
PBC Foundation
5 months ago
Only 288 hours until my second opinion assessment at the Royal Papworth for my lung transplant.
Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Mrbojangles
in
Lung Conditions Community Forum
10 months ago
Pulmonary Hypertension
I’ve just returned from a pre
lung
transplant
check up at Harefield. Last seen in November when all was ok except pulmonary hypertension was noted. The pressure was 40 mm of mercury. Normal is 25. They weren’t too bothered as walking to the room could have raised it.
I’ve just returned from a pre
lung
transplant
check up at Harefield. Last seen in November when all was ok except pulmonary hypertension was noted. The pressure was 40 mm of mercury. Normal is 25. They weren’t too bothered as walking to the room could have raised it.
mary1956
in
Lung Conditions Community Forum
12 months ago
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