Experiences with

Lung transplant

I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.

Hi all I am 6.5 years post single lung transplant and recently found out I am 7 weeks pregnant . I'm super shocked as I was told I would never have another child ( I also have a 13 year old daughter) And im super worried about how my body is going to cope with this pregnancy.

Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials

I spent seven hours at the lung transplant clinic at Harefield yesterday. I was weighed and measured many times, sometimes with boots (dockers!) on sometimes off, ECG, echocardiogram, chest xray, blood tests, blood pressure test, lung function test, urine test, and finally mrsa test!

I was given a lot of information regarding a double lung transplant, they was all very nice and thorough. I was allocated a transplant co ordinator then was informed a would be discussed at the weekly meeting. September this year I was admitted to the “Jim Quick” ward at wythenshawe .

I have my first appointment on Wednesday at the Harefield. Can any of you wise people give me any idea what to expect? I have written down a few questions. We are going Tuesday and stopping in a b and b as the area is completely new to us. ( We live in Oxfordshire) Thank you.

My consultant then referred me to a transplant institute in northern England to be assessed for a double lung transplant. After a few months with no improvement, I was prescribed ambulatory oxygen and completed a 10-week course in February 2020 shortly after the COVID-19 lockdown began.

Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching.

I'm a 44 year old mum of 2 I have a son 26and a 8 year old daughter .I don't drink or smoke so to be told my lungs are packing up is hard getting my head round ..I've been an all kinds of tablets and steroids nothing's helped my lungs get better left with the decision of lung transplant .

Saw the very nice team at the Royal Papworth following the Harefields decision to delist me. Where do i begin? First of all what a place, futuristic, buzzing with energy and you just knew you were in a different league. They haven’t said yes but more importantly not a no either. Bottom line is they

A few weeks ago my wife's neurologist put her forward for consideration for lung transplant surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content.

Yesterday I returned to the lung transplant waiting list after an enforced break due to my Dad picking up his second bout of Covid. Fortunately, Lauren and I didn't get it, too.

Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”.

i.e Would it not be offered to anyone who has Severe Bronchiectasis or anyone who could no longer have a Lung Transplant? Kind regards as always Joe x

Hi is there anyone that could share information or experience about a hear-lung transplant . It is the last option for a family member with complex cyanotic heart disease any info would be appreciated . Thank you

I've been called up twice for a possible lung transplant, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for Pulmonary Fibrosis Awareness Month.

Sadly I have been removed from the lung transplant list . Harefield say the pulmonary hypertension I have has worsened so much that I wouldn’t survive surgery. I have no idea what will happen next. I’m on 24/7 oxygen, my lungs have approximately 10% capacity and I have no idea what to expect.

anyone been diagnosed with lung cancer following liver transplant for pbc

Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx

I’ve just returned from a pre lung transplant check up at Harefield. Last seen in November when all was ok except pulmonary hypertension was noted. The pressure was 40 mm of mercury. Normal is 25. They weren’t too bothered as walking to the room could have raised it.