Experiences with

Lung transplant

Pulmonary Sweet's syndrome (Sweet's syndrome affecting the lungs) requiring lung transplant. https://journal.chestnet.org/article/S0012-3692%2821%2900707-8/fulltext

Hi all, Haven’t been in touch for a while now but mercifully still here. Lungaversary last month which I can only describe as a stormy recovery. Trichosporon infection In clamshell wound delayed discharge by 4 weeks. 1 month in ICU with terrifying hallucinations which still haunt me today. Sternum

last week i went to south manchester hospital to discuss what i consider to be a (need) for a lung transplant I informed the doctor that id been thinking about it for a long time & done a lot of research about it in full detail & it seemed that he was impressed At the moment it was an indepth discussion

Hello, I realise this is going to be a very strange post, but this is stress that this is a genuine question / request, I may need a lung transplant in the near future. Nothing is set in stone yet, but it's a possibility. I haven't been in contact with a transplant team yet or anything.

Hello, I have a question for lung transplant recipients: are you allowed to eat anything fermented? I may need a transplant in the near future, but I have a histamine problem which is controlled with antihistamines and DAO tablets.

Hello, I just wanted to ask the community whether they had been through the process of being assessed for a lung transplant or not? What was your experience with the assessment? Did you get accepted as a transplant candidate? What condition did you have that led you to get assessed?

He stayed close to me when I received a devastating diagnosis of end stage lung disease and helped me through recovery after a lung transplant in 2019. Chom walks slower than he used to and the tufts of white fur around his muzzle have increased this past year or so.

Hi everyone I had a single lung transplant 7 years ago . I am really struggling to get some form of life insurance to protect my family , has anyone had any success in finding cover ?

The average life expectancy of a COPD patient who undergoes a lung transplant is about five years. Patients diagnosed with COPD have a much better outlook if they quit smoking. COPD prognosis is dependent on the stage of the illness and the health of the patient.

The average life expectancy of a COPD patient who undergoes a lung transplant is about five years. Patients diagnosed with COPD have a much better outlook if they quit smoking. COPD prognosis is dependent on the stage of the illness and the health of the patient.

Lung transplant is an option, but something we would want to avoid, but stories would help

Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience.

I have been told I am too old at 62 to be considered for a lung transplant and have also been turned down for the antiscarring medication even though I was initially told this was the plan.

I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me.

I don't know how others that have been on the lung transplant list feel but I have definitely found that the mental side of things has got harder with time. For me, a lot of it is frustration tinged with fear that it might never happen.

And next April (2024), if it holds, I’ll be cancer free for three years and can get back on the lung transplant list. “Let your last thinks all be thanks” -W.H. Auden Love you all! James

There were four of us fellow liver transplantees there along with a few heart transplantees and even one lady who had had both a lung and heart transplant. There was a presentation on how research is trying to find ways of getting heart muscles to regenerate.

I can go forward for a lung transplant but you know, I caused this with smoking, I gave up 2 years ago. And I don't fancy having my ribcage opened and someone else's blood in me. Anyway to the question, one for the ladies, or men with hair still on their head 😂.

transplant -took me ages but eventually relented.

My my is early 60s and has just had a double lung transplant operation it went well. Mum had been on the waiting list for over a year and is desperate for a normal life not to have to rely on people, struggle or not be able to breathe. She was buzzing for this transplant.