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post lung transplant

I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
Northernsaul profile image
Northernsaul
in Lung Conditions Community Forum
1 month ago

Pregnancy

Hi all I am 6.5 years post single lung transplant and recently found out I am 7 weeks pregnant . I'm super shocked as I was told I would never have another child ( I also have a 13 year old daughter) And im super worried about how my body is going to cope with this pregnancy.
Hi all I am 6.5 years post single lung transplant and recently found out I am 7 weeks pregnant . I'm super shocked as I was told I would never have another child ( I also have a 13 year old daughter) And im super worried about how my body is going to cope with this pregnancy.
Ejbid profile image
Ejbid
in Lung Conditions Community Forum
11 days ago

Lung transplant clinic appointment

Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Karenanne61 profile image
Karenanne61
in Lung Conditions Community Forum
7 months ago
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Exhausted but happy.

I spent seven hours at the lung transplant clinic at Harefield yesterday. I was weighed and measured many times, sometimes with boots (dockers!) on sometimes off, ECG, echocardiogram, chest xray, blood tests, blood pressure test, lung function test, urine test, and finally mrsa test!
I spent seven hours at the lung transplant clinic at Harefield yesterday. I was weighed and measured many times, sometimes with boots (dockers!) on sometimes off, ECG, echocardiogram, chest xray, blood tests, blood pressure test, lung function test, urine test, and finally mrsa test!
Karenanne61 profile image
Karenanne61
in Lung Conditions Community Forum
12 days ago

Transplant Surgeon

I was given a lot of information regarding a double lung transplant, they was all very nice and thorough. I was allocated a transplant co ordinator then was informed a would be discussed at the weekly meeting. September this year I was admitted to the “Jim Quick” ward at wythenshawe .
I was given a lot of information regarding a double lung transplant, they was all very nice and thorough. I was allocated a transplant co ordinator then was informed a would be discussed at the weekly meeting. September this year I was admitted to the “Jim Quick” ward at wythenshawe .
Northernsaul profile image
Northernsaul
in Lung Conditions Community Forum
3 months ago

First appointment at lung transplant centre.

I have my first appointment on Wednesday at the Harefield. Can any of you wise people give me any idea what to expect? I have written down a few questions. We are going Tuesday and stopping in a b and b as the area is completely new to us. ( We live in Oxfordshire) Thank you.
I have my first appointment on Wednesday at the Harefield. Can any of you wise people give me any idea what to expect? I have written down a few questions. We are going Tuesday and stopping in a b and b as the area is completely new to us. ( We live in Oxfordshire) Thank you.
Karenanne61 profile image
Karenanne61
in Lung Conditions Community Forum
8 months ago

People of HealthUnlocked - COPD: Preparing for a Double Lung Transplant

My consultant then referred me to a transplant institute in northern England to be assessed for a double lung transplant. After a few months with no improvement, I was prescribed ambulatory oxygen and completed a 10-week course in February 2020 shortly after the COVID-19 lockdown began.
My consultant then referred me to a transplant institute in northern England to be assessed for a double lung transplant. After a few months with no improvement, I was prescribed ambulatory oxygen and completed a 10-week course in February 2020 shortly after the COVID-19 lockdown began.
SaskiaHU profile image
SaskiaHU
HealthUnlockedin HealthUnlocked Blog
6 months ago

Officially on the lung transplant waiting list

Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching.
Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching.
dodgylungrunner profile image
dodgylungrunner
British Lung Foundationin Lung Conditions Community Forum
7 months ago

double lungs transplant

I'm a 44 year old mum of 2 I have a son 26and a 8 year old daughter .I don't drink or smoke so to be told my lungs are packing up is hard getting my head round ..I've been an all kinds of tablets and steroids nothing's helped my lungs get better left with the decision of lung transplant .
I'm a 44 year old mum of 2 I have a son 26and a 8 year old daughter .I don't drink or smoke so to be told my lungs are packing up is hard getting my head round ..I've been an all kinds of tablets and steroids nothing's helped my lungs get better left with the decision of lung transplant .
Purpal profile image
Purpal
in Lung Conditions Community Forum
6 months ago

Lung transplant second opinion update.

Saw the very nice team at the Royal Papworth following the Harefields decision to delist me. Where do i begin? First of all what a place, futuristic, buzzing with energy and you just knew you were in a different league. They haven’t said yes but more importantly not a no either. Bottom line is they
Saw the very nice team at the Royal Papworth following the Harefields decision to delist me. Where do i begin? First of all what a place, futuristic, buzzing with energy and you just knew you were in a different league. They haven’t said yes but more importantly not a no either. Bottom line is they
Mrbojangles profile image
Mrbojangles
in Lung Conditions Community Forum
10 months ago

Refusing Lung Transplant

A few weeks ago my wife's neurologist put her forward for consideration for lung transplant surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content.
A few weeks ago my wife's neurologist put her forward for consideration for lung transplant surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content.
hillclimber1 profile image
hillclimber1
in Lung Conditions Community Forum
11 months ago

Back on the transplant list

Yesterday I returned to the lung transplant waiting list after an enforced break due to my Dad picking up his second bout of Covid. Fortunately, Lauren and I didn't get it, too.
Yesterday I returned to the lung transplant waiting list after an enforced break due to my Dad picking up his second bout of Covid. Fortunately, Lauren and I didn't get it, too.
dodgylungrunner profile image
dodgylungrunner
British Lung Foundationin Lung Conditions Community Forum
3 months ago

Newby here seeking advice please.

Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”.
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”.
Mrbojangles profile image
Mrbojangles
in Lung Cancer Support
10 months ago

Trikafta drug US Name - Kaftrio drug UK Name

i.e Would it not be offered to anyone who has Severe Bronchiectasis or anyone who could no longer have a Lung Transplant? Kind regards as always Joe x
i.e Would it not be offered to anyone who has Severe Bronchiectasis or anyone who could no longer have a Lung Transplant? Kind regards as always Joe x
Joseph260268 profile image
Joseph260268
in Lung Conditions Community Forum
11 months ago

Heart-lung transplant

Hi is there anyone that could share information or experience about a hear-lung transplant . It is the last option for a family member with complex cyanotic heart disease any info would be appreciated . Thank you
Hi is there anyone that could share information or experience about a hear-lung transplant . It is the last option for a family member with complex cyanotic heart disease any info would be appreciated . Thank you
John9912 profile image
John9912
in British Heart Foundation
6 months ago

Hypoxia, transplant dry runs and raising awareness of IPF

I've been called up twice for a possible lung transplant, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for Pulmonary Fibrosis Awareness Month.
I've been called up twice for a possible lung transplant, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for Pulmonary Fibrosis Awareness Month.
dodgylungrunner profile image
dodgylungrunner
British Lung Foundationin Lung Conditions Community Forum
5 months ago

Removed from Transplant

Sadly I have been removed from the lung transplant list . Harefield say the pulmonary hypertension I have has worsened so much that I wouldn’t survive surgery. I have no idea what will happen next. I’m on 24/7 oxygen, my lungs have approximately 10% capacity and I have no idea what to expect.
Sadly I have been removed from the lung transplant list . Harefield say the pulmonary hypertension I have has worsened so much that I wouldn’t survive surgery. I have no idea what will happen next. I’m on 24/7 oxygen, my lungs have approximately 10% capacity and I have no idea what to expect.
mary1956 profile image
mary1956
in Lung Conditions Community Forum
12 months ago

jan16

anyone been diagnosed with lung cancer following liver transplant for pbc
anyone been diagnosed with lung cancer following liver transplant for pbc
jackk9 profile image
jackk9
in PBC Foundation
5 months ago

Only 288 hours until my second opinion assessment at the Royal Papworth for my lung transplant.

Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Mrbojangles profile image
Mrbojangles
in Lung Conditions Community Forum
10 months ago

Pulmonary Hypertension

I’ve just returned from a pre lung transplant check up at Harefield. Last seen in November when all was ok except pulmonary hypertension was noted. The pressure was 40 mm of mercury. Normal is 25. They weren’t too bothered as walking to the room could have raised it.
I’ve just returned from a pre lung transplant check up at Harefield. Last seen in November when all was ok except pulmonary hypertension was noted. The pressure was 40 mm of mercury. Normal is 25. They weren’t too bothered as walking to the room could have raised it.
mary1956 profile image
mary1956
in Lung Conditions Community Forum
12 months ago
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