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Orgovyx after surgery?
Husband on orgovyx for 3 months. Finished 28 proton treatments 3 weeks ago. Had lung surgery to remove unrelated cancerous spot. Dr. wants him off orgovyx 2 more weeks. Thoughts? Husband doesn’t want testosterone to rise.
Husband on orgovyx for 3 months. Finished 28 proton treatments 3 weeks ago. Had lung surgery to remove unrelated cancerous spot. Dr. wants him off orgovyx 2 more weeks. Thoughts? Husband doesn’t want testosterone to rise.
Hawaii2021
in
Advanced Prostate Cancer
3 years ago
Post liver transplant. I've got my new life
Post liver transplant. I had my liver transplant few weeks ago, I've got my new life. I am alive and able to bring my kids up. Thanks everyone Thanks NHS Thanks Freeman Hospital Newcastle.
Post liver transplant. I had my liver transplant few weeks ago, I've got my new life. I am alive and able to bring my kids up. Thanks everyone Thanks NHS Thanks Freeman Hospital Newcastle.
MuzMuz
in
British Liver Trust
3 years ago
Hashimotos and PBC? Primary Billiary Cholangitis
Am working on a healthcare brief as a copywriter atm. This time for the autoimmune liver condition PBC. The premise is that PBC is a rare condition, but as it’s a major cause of liver transplants in the US, I tend to think many people are undiagnosed and it actually occurs quite frequently. With that
Am working on a healthcare brief as a copywriter atm. This time for the autoimmune liver condition PBC. The premise is that PBC is a rare condition, but as it’s a major cause of liver transplants in the US, I tend to think many people are undiagnosed and it actually occurs quite frequently. With that
Ziburu
in
Thyroid UK
3 years ago
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Should I do only kidney or pancreas as well?
I have been listed recently in august for kidney and pancreas transplant. I am type 2 diabetic and not on dialysis yet. I was not aware if my transplant doctor would list me for pancreas. I am not sure if I should go for pancreas transplant or keep only kidney. Having both increases risk? Any advise
I have been listed recently in august for kidney and pancreas transplant. I am type 2 diabetic and not on dialysis yet. I was not aware if my transplant doctor would list me for pancreas. I am not sure if I should go for pancreas transplant or keep only kidney. Having both increases risk? Any advise
Live_Positive
in
Kidney Transplant
3 years ago
Advice appreciated.
Hi everyone. I was in intensive care for 10 days in Feb after falling suddenly ill, on a ventilator, a month in hospital in total with another month of acute care at home visits. Had horrific hallucinations and a pretty traumatic time. Have quite extensive nerve damage in my torso from lung surgery so
Hi everyone. I was in intensive care for 10 days in Feb after falling suddenly ill, on a ventilator, a month in hospital in total with another month of acute care at home visits. Had horrific hallucinations and a pretty traumatic time. Have quite extensive nerve damage in my torso from lung surgery so
Skinnerj190
in
ICUsteps
3 years ago
A small piece of advice
Having been through Cirrhosis and fatty liver then the liver cancer string I can only give this advice I also have anxiety as well as depression and PTSD. Keep above all a positive outlook on life. Is it easy no, not at all. Turn to what helps. I spent months angry at God for my life circumstance. I
Having been through Cirrhosis and fatty liver then the liver cancer string I can only give this advice I also have anxiety as well as depression and PTSD. Keep above all a positive outlook on life. Is it easy no, not at all. Turn to what helps. I spent months angry at God for my life circumstance. I
utep99
in
Living with Fatty Liver and NASH
3 years ago
Hair Loss
Hi everyone, I have been on dialysis for 9 months. I am on the registry for a liver and kidney transplant. Along with other symptoms that so many of us suffer from, it is devastating that I have lost half of my hair : (( This started about 6 months into dialysis. Thyroid issues have been ruled out
Hi everyone, I have been on dialysis for 9 months. I am on the registry for a liver and kidney transplant. Along with other symptoms that so many of us suffer from, it is devastating that I have lost half of my hair : (( This started about 6 months into dialysis. Thyroid issues have been ruled out
BeachLove
in
Kidney Transplant
3 years ago
New support sessions starting soon
Hello all Our newest support sessions start soon: Managing During Treatment 12/10 for 6 sessions once a fortnight. Genetic mutation driven lung cancers - 29/10/21 for 8 sessions once a fortnight. These support sessions are run by facilitators, with groups of 8 people with similar experiences. They provide
Hello all Our newest support sessions start soon: Managing During Treatment 12/10 for 6 sessions once a fortnight. Genetic mutation driven lung cancers - 29/10/21 for 8 sessions once a fortnight. These support sessions are run by facilitators, with groups of 8 people with similar experiences. They provide
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
3 years ago
Summary Paper from Drs, Claire N. Harrison and Donal P. McLornan
Nice summary I just came across from some of the experts. I've included some outtakes I found notable. Lots more in there on R&D for MF. https://onlinelibrary.wiley.com/doi/pdf/10.1111/bjh.16573 From chart, HCT control matters. This was discovered ~2011 and is likely a big part of what we've discussed
Nice summary I just came across from some of the experts. I've included some outtakes I found notable. Lots more in there on R&D for MF. https://onlinelibrary.wiley.com/doi/pdf/10.1111/bjh.16573 From chart, HCT control matters. This was discovered ~2011 and is likely a big part of what we've discussed
EPguy
in
MPN Voice
3 years ago
Immense sweating
I am 2 yes 9 months post kidney transplant. Has anyone had issues with immense sweating that your hair is sopping wet? I thought it could be my thyroid but that’s not it. Apparently my blood work is stable. I’ve asked the transplant team, nephrologist and an Endochronogist….. no answers. I am wondering
I am 2 yes 9 months post kidney transplant. Has anyone had issues with immense sweating that your hair is sopping wet? I thought it could be my thyroid but that’s not it. Apparently my blood work is stable. I’ve asked the transplant team, nephrologist and an Endochronogist….. no answers. I am wondering
Dara3351
in
Kidney Transplant Patient Support
3 years ago
FRUSTRATED ON INACTIVE LIST
I am very frustrated with my Transplant Hospital (I need to vent or get guidance if anyone has a suggestion). I have completed all of my THIRD two-year re-evaluation with the multiple tests required. The Transplant hospital insisted I get a special Heart Cath procedure because they found a little “blip
I am very frustrated with my Transplant Hospital (I need to vent or get guidance if anyone has a suggestion). I have completed all of my THIRD two-year re-evaluation with the multiple tests required. The Transplant hospital insisted I get a special Heart Cath procedure because they found a little “blip
TaffyTwoshoes27
in
Kidney Transplant
3 years ago
How we grow and empathise through shared story
It's UK Kidney Week #UKKW2021 which really means there happens to be a big virtual conference happening in the renal community this week. I'm thrilled to be part of the conversation in self care with a brilliant human chairing, Dr Kate Bramham, on Friday. Kate was the on ward consultant last September
It's UK Kidney Week #UKKW2021 which really means there happens to be a big virtual conference happening in the renal community this week. I'm thrilled to be part of the conversation in self care with a brilliant human chairing, Dr Kate Bramham, on Friday. Kate was the on ward consultant last September
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
3 years ago
New study yields insights into chronic rejection after lung transplantation
A study of lung tissue from patients with end-stage bronchiolitis obliterans syndrome (BOS) as a complication of lung transplantation yielded molecular and morphologic insights into the development of chronic rejection. These insights may help develop therapies to optimize long-term outcomes for lung
A study of lung tissue from patients with end-stage bronchiolitis obliterans syndrome (BOS) as a complication of lung transplantation yielded molecular and morphologic insights into the development of chronic rejection. These insights may help develop therapies to optimize long-term outcomes for lung
2greys
in
Lung Conditions Community Forum
3 years ago
Immunocompromised? Why the COVID-19 vaccine might still protect you
"People with conditions that compromise their immune systems exhibit a wide spectrum of antibody responses to COVID-19 vaccination, ranging from only 1 in 5
lung
transplant
patients having an antibody response to a response nearly identical to that of healthy individuals in patients with well-controlled
"People with conditions that compromise their immune systems exhibit a wide spectrum of antibody responses to COVID-19 vaccination, ranging from only 1 in 5
lung
transplant
patients having an antibody response to a response nearly identical to that of healthy individuals in patients with well-controlled
2greys
in
Lung Conditions Community Forum
3 years ago
Lung cancer
Hi everyone sorry it’s been such a long time I’ve been on , my mum hasn’t been too well, I’m on to ask a question if anyone knows, my mum got diagnosed with lung cancer on April had 2 weeks radiotherapy 3 times a day , got out of hospital and was fine , now she’s had a sever wheeze and cough that won
Hi everyone sorry it’s been such a long time I’ve been on , my mum hasn’t been too well, I’m on to ask a question if anyone knows, my mum got diagnosed with lung cancer on April had 2 weeks radiotherapy 3 times a day , got out of hospital and was fine , now she’s had a sever wheeze and cough that won
Elsy12345
in
Lung Conditions Community Forum
3 years ago
Bio-artificial kidney
Hello everyone I hope you're doing good. 😊 Do you think this permanent cure (bio-artificial kidney) is possible anytime soon? It's supposed to replace dialysis and even kidney transplant. I know the concept has been around for a few years now and didn't get anywhere for various reasons, but it seems
Hello everyone I hope you're doing good. 😊 Do you think this permanent cure (bio-artificial kidney) is possible anytime soon? It's supposed to replace dialysis and even kidney transplant. I know the concept has been around for a few years now and didn't get anywhere for various reasons, but it seems
Sharam
in
Kidney Disease
3 years ago
Issues with elevated blood markers
Anyone else having issues after kidney transplant and with their Creatine being elevated and blood work off. Had vaccine plus booster. 4 months post op
Anyone else having issues after kidney transplant and with their Creatine being elevated and blood work off. Had vaccine plus booster. 4 months post op
Lm371260
in
Kidney Transplant
3 years ago
Well, I have sarcoidosis folks
I had my biopsy surgery and just got the results. It is pulmonary sarcoidosis. I have been told that my pulmonologist will be calling me to start treatment. Most likely - steroids :( Steroids and organ transplants are the only treatment options I am 90% certain I will have my breast implants removed.
I had my biopsy surgery and just got the results. It is pulmonary sarcoidosis. I have been told that my pulmonologist will be calling me to start treatment. Most likely - steroids :( Steroids and organ transplants are the only treatment options I am 90% certain I will have my breast implants removed.
Missbrenda21
in
Lung Conditions Community Forum
3 years ago
Hepatic Encephalopathy
What more can they do for hepatic encephalopathy. My relative is on rifaxim twice a day and lactose 3 times a day but still has symptoms. Some days are better than others. Sadly he can’t have a liver transplant as he has cancer and has been told he has months there for want to make sure that he has
What more can they do for hepatic encephalopathy. My relative is on rifaxim twice a day and lactose 3 times a day but still has symptoms. Some days are better than others. Sadly he can’t have a liver transplant as he has cancer and has been told he has months there for want to make sure that he has
Albw
in
British Liver Trust
3 years ago
Do you want to join our new virtual support sessions?
Hello all In the last year we have expanded our virtual support services. As part of our Lung Cancer Connect services we are providing sessions for groups of people including "Managing during treatment" and "Caring for someone with lung cancer" as well as sessions for people with genetic mutation cancers
Hello all In the last year we have expanded our virtual support services. As part of our Lung Cancer Connect services we are providing sessions for groups of people including "Managing during treatment" and "Caring for someone with lung cancer" as well as sessions for people with genetic mutation cancers
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
3 years ago
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