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Just saying hello
Good morning. I have just joined and wanted to say hello and let you all know how appreciative I am that there is a forum for kidney transplant recipients.
Good morning. I have just joined and wanted to say hello and let you all know how appreciative I am that there is a forum for kidney transplant recipients.
4Evergrateful2God
in
Kidney Transplant
7 months ago
Strategic Masking to Protect Patients from All Respiratory Viral Infections
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
lankisterguy
Volunteer
in
CLL Support
10 months ago
Biopsy and Fibroscan
Hello I was diagnosed with PBC in May after they removed my gallbladder and took a liver biopsy. My questions is...the biopsy state I was Stage 1 but I received a phone call from my gastro yesterday who told me I am at Stage 3 and probable Stage 4 according to the fibroscan. I'm not sure why the discrepancy
Hello I was diagnosed with PBC in May after they removed my gallbladder and took a liver biopsy. My questions is...the biopsy state I was Stage 1 but I received a phone call from my gastro yesterday who told me I am at Stage 3 and probable Stage 4 according to the fibroscan. I'm not sure why the discrepancy
suz56
in
PBCers Organization
7 months ago
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GENETIC MUTATION SUPPORT GROUP
[u][i]
THE NEW GENETIC MUTATION GROUP STARTS THIS EVENING!
[/i][/u] If you have a genetically mutated lung cancer and wish to take part in a group that is aimed specifically at your diagnosis and meet others in a similar situation then this group could be of great benefit. The group is hosted
[u][i]
THE NEW GENETIC MUTATION GROUP STARTS THIS EVENING!
[/i][/u] If you have a genetically mutated lung cancer and wish to take part in a group that is aimed specifically at your diagnosis and meet others in a similar situation then this group could be of great benefit. The group is hosted
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
8 months ago
LUNG CANCER TREATMENT SUPPORT
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
8 months ago
Would you like to get more involved?
Hello community members, Roy Castle Lung Cancer Foundation often get asked for input to advisory groups, surveys and information on how diagnosis and treatment has impacted on peoples' lives. If you would like to become more involved or find out more about different ways of sharing your experiences
Hello community members, Roy Castle Lung Cancer Foundation often get asked for input to advisory groups, surveys and information on how diagnosis and treatment has impacted on peoples' lives. If you would like to become more involved or find out more about different ways of sharing your experiences
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
8 months ago
GET INVOLVED! - Lung Cancer Support
This is the week that a new round of our groups kick starts. If you are thinking of joining please reach out, the groups have benefitted people massively and could really give valuable help during a difficult time.
Immunotherapy & Treatment
- Tuesday evening 5th September 7-8pm - fortnightly
This is the week that a new round of our groups kick starts. If you are thinking of joining please reach out, the groups have benefitted people massively and could really give valuable help during a difficult time.
Immunotherapy & Treatment
- Tuesday evening 5th September 7-8pm - fortnightly
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
8 months ago
colonoscope
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
soul-123
in
Lung Conditions Community Forum
5 months ago
Medical breakthrough
Hi everyone just wanted to share this video about a possible breaththrough about an 8 year old girl. Who after a kidney transplant doesn't have to take an immunosuppressant drugs after reviewing a special type of kidney. https://youtu.be/OWbdArmDJOI?si=tD0l1yNFz20kav3I 🌹
Hi everyone just wanted to share this video about a possible breaththrough about an 8 year old girl. Who after a kidney transplant doesn't have to take an immunosuppressant drugs after reviewing a special type of kidney. https://youtu.be/OWbdArmDJOI?si=tD0l1yNFz20kav3I 🌹
bbeba103
in
Kidney Disease
7 months ago
Actinic keratosis & Lung cancer
Hi, Dad is in 5th week of taking Erlotinib and corresponding face rash appears to be under control with prescribed cream / antibiotics. Also good to see that his cough has reduced in frequency by around 90% and no increase in fatigue. My question is- dad has actinic keratosis ( for around 25 years +
Hi, Dad is in 5th week of taking Erlotinib and corresponding face rash appears to be under control with prescribed cream / antibiotics. Also good to see that his cough has reduced in frequency by around 90% and no increase in fatigue. My question is- dad has actinic keratosis ( for around 25 years +
Adaughter
in
The Roy Castle Lung Cancer Foundation
8 months ago
Intense pruritus following liver transplant - diagnosed with hepatic cholestatic. Any help please?
Hi, I received a liver transplant back in December 2022 and recovery was well for the first four months however around end of April I started suffering with pruritus amongst other symptoms i.e. acid reflux, fatigue etc. and following x rays and scans, the Consultants advised it was due to strictures
Hi, I received a liver transplant back in December 2022 and recovery was well for the first four months however around end of April I started suffering with pruritus amongst other symptoms i.e. acid reflux, fatigue etc. and following x rays and scans, the Consultants advised it was due to strictures
KateG94
in
British Liver Trust
7 months ago
Cirrhosis
I have told I can't have a Liver transplant.My Liver has gone to decompensated with portal hypertension. Does anybody know what stage I am and what will happen
I have told I can't have a Liver transplant.My Liver has gone to decompensated with portal hypertension. Does anybody know what stage I am and what will happen
Williamsbluefamily
in
British Liver Trust
7 months ago
Asbestos
Hi, everybody I had breathing problems last year. Went to my doctor & had a blood test that night I got a call to go straight to local hospital. Was there for14 hours but excellent service. Found build up of liquid in lungs & my ankles & lower legs were bigger. I had been cutting my socks as I thought
Hi, everybody I had breathing problems last year. Went to my doctor & had a blood test that night I got a call to go straight to local hospital. Was there for14 hours but excellent service. Found build up of liquid in lungs & my ankles & lower legs were bigger. I had been cutting my socks as I thought
wimbledon
in
Lung Conditions Community Forum
5 months ago
Does anyone get these symptoms and have answers of cause ??
Hi, I had a liver transplant back in March 2022. I had a condition called ‘PSC’ since my op my recovery was and is a slow one involving a few complications, but the one I’m struggling with at the minute is a sort of heat rash all over my body - hot itchy and very uncomfortable. Tonight it seems to
Hi, I had a liver transplant back in March 2022. I had a condition called ‘PSC’ since my op my recovery was and is a slow one involving a few complications, but the one I’m struggling with at the minute is a sort of heat rash all over my body - hot itchy and very uncomfortable. Tonight it seems to
NicharrisonMarch2022
in
British Liver Trust
7 months ago
Posterior subcapsular cataracts surgery
I am 2 years post kidney transplant due to PKD. I went to a routine eye exam yesterday and after a retinal scan was told I need to have cataract surgery, sooner rather than later, as this type of cataract progresses quickly. Anyone have this issue? Any pre/post eye surgery precautions related to
I am 2 years post kidney transplant due to PKD. I went to a routine eye exam yesterday and after a retinal scan was told I need to have cataract surgery, sooner rather than later, as this type of cataract progresses quickly. Anyone have this issue? Any pre/post eye surgery precautions related to
Oceansideup
in
Kidney Transplant
7 months ago
UTI/AF
Since having a kidney transplant I am bothered with UTI's which quickly clears up after taking antibiotics. I also have a PAF episode more or less within a day or two of this. Has anyone else noticed having AF when also having an infection? My potassium and magnesium levels are lower than normal when
Since having a kidney transplant I am bothered with UTI's which quickly clears up after taking antibiotics. I also have a PAF episode more or less within a day or two of this. Has anyone else noticed having AF when also having an infection? My potassium and magnesium levels are lower than normal when
Mismarswe
in
AF Association
7 months ago
My precious daughter
***HELP NEEDED DESPERATELY*** My precious daughter was unfortunately diagnosed with Multiple Hepatic Adenomas in November 2021. She has currently got 12 of these tumours in her liver. In January 2022 she had a liver resection, as the largest tumour was hemorrhaging at the time. The right half of her
***HELP NEEDED DESPERATELY*** My precious daughter was unfortunately diagnosed with Multiple Hepatic Adenomas in November 2021. She has currently got 12 of these tumours in her liver. In January 2022 she had a liver resection, as the largest tumour was hemorrhaging at the time. The right half of her
Mami77
in
British Liver Trust
7 months ago
Itching due to medication??
Hello, I had a liver transplant 3 years ago and take tacrolimus, mycophenolate and prednisone for anti rejection. I have recently had a very itchy localised rash on my neck which I have been treating with hydrocortisone cream. This is having no effect. I was wondering if it could be a reaction to any
Hello, I had a liver transplant 3 years ago and take tacrolimus, mycophenolate and prednisone for anti rejection. I have recently had a very itchy localised rash on my neck which I have been treating with hydrocortisone cream. This is having no effect. I was wondering if it could be a reaction to any
Chasdog
in
British Liver Trust
7 months ago
Sauna post-kidney transpant
My kidney transplant was almost 2 years ago. All is doing well. I have loved my home sauna in the past and would love to resume using it this fall/winter. My transplant doctor suggests that would NOT be a good idea - not because of hydration issues, which could be managed but because the heat of the
My kidney transplant was almost 2 years ago. All is doing well. I have loved my home sauna in the past and would love to resume using it this fall/winter. My transplant doctor suggests that would NOT be a good idea - not because of hydration issues, which could be managed but because the heat of the
Palmtreeguy
in
Kidney Transplant
7 months ago
Anyone here had a dental implant after a kidney transplant?
Anyone here had a dental implant after a kidney transplant?
Anyone here had a dental implant after a kidney transplant?
JackieShan
in
Kidney Transplant
8 months ago
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