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Stem Cell Transplant-update
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
ConniesDad
in
MPN Voice
2 years ago
Transplant Waitlist Survey
If you have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information would affect potential recipients' decision to either accept
If you have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information would affect potential recipients' decision to either accept
KelliC_NKF
in
Kidney Transplant
2 years ago
Transplant Waitlist Survey
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
KelliC_NKF
in
Kidney Dialysis
2 years ago
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Transplant Waitlist Survey
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what
KelliC_NKF
in
Kidney Disease
2 years ago
Feet pain post kidney transplant
I am 2 months post transplant and I’m feeling good. I love to cook so I had my donor over for lunch and I cooked a bunch of food for her. I was standing for a few hours. I had such bad feet pain that afternoon/evening. It felt like it was radiating into my toes. Has anyone ever experienced this?
I am 2 months post transplant and I’m feeling good. I love to cook so I had my donor over for lunch and I cooked a bunch of food for her. I was standing for a few hours. I had such bad feet pain that afternoon/evening. It felt like it was radiating into my toes. Has anyone ever experienced this?
Ski573
in
Kidney Transplant
2 years ago
Just when it's now safe to go out, a note of caution.
I first posted this up two years ago as a timely reminder. All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through
I first posted this up two years ago as a timely reminder. All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through
Richard-Allen
in
British Liver Trust
2 years ago
Thank you!
Wow. Thanks to all of you for saying g’day. PPFE is idiopathic pleuro parenchymal fibroelastosis. Rare. Diagnosed by lung biopsy. I am not suitable for lung transplants. I will contact you all. 😊
Wow. Thanks to all of you for saying g’day. PPFE is idiopathic pleuro parenchymal fibroelastosis. Rare. Diagnosed by lung biopsy. I am not suitable for lung transplants. I will contact you all. 😊
Hidden
in
Lung Conditions Community Forum
3 years ago
Molnupiravir
Hi all , I had a single
lung
transplant
5 years ago , this is my only
lung
as the other has been completely removed.
Hi all , I had a single
lung
transplant
5 years ago , this is my only
lung
as the other has been completely removed.
Hidden
in
Lung Conditions Community Forum
3 years ago
Cancer in broncial tube
Hi everyone i got diagnosed with lung cancer in my broncial tube nearly a year ago. I'm being treated with immunotherapy i have a year left of treatment my doctors just told me. Why because the government have a deal with the pharmaceutical company for a 2yr period but its working ok for me then it
Hi everyone i got diagnosed with lung cancer in my broncial tube nearly a year ago. I'm being treated with immunotherapy i have a year left of treatment my doctors just told me. Why because the government have a deal with the pharmaceutical company for a 2yr period but its working ok for me then it
Bulldog242
in
Lung Cancer Support
2 years ago
Liver transplant
will my partner be considered if is he is still drinking but cutting down and attending regular meetings to eventually get the detox in the community. His condition is worsening. He’s had several bouts of HE and can no longer work. Also does anyone else suffer with insomnia although his docs have give
will my partner be considered if is he is still drinking but cutting down and attending regular meetings to eventually get the detox in the community. His condition is worsening. He’s had several bouts of HE and can no longer work. Also does anyone else suffer with insomnia although his docs have give
Shell2202
in
British Liver Trust
2 years ago
MF high risk Mutations
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
EPguy
in
MPN Voice
2 years ago
Join Us! May 10th, Gathering HOPE, a Social Hour
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE social hour, click here: http://gatheringhope05-2022.event.gatherly.io/ on Tuesday
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE social hour, click here: http://gatheringhope05-2022.event.gatherly.io/ on Tuesday
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
Has anyone been involved in a clinical trial with osmertinib? It’s an option for my dad or have chemo/radiotherapy concurrently.
My dad has stage 3b lung cancer with PDL1 positive and edfr, a rare mutation. He’s a non smoker and we need to choose between chemo/ radio then surgery or a clinical trial (computer randomly assigns either osmertinib tablets only or osimertinib + chemo or osimertinib + placebo) and then surgery to remove
My dad has stage 3b lung cancer with PDL1 positive and edfr, a rare mutation. He’s a non smoker and we need to choose between chemo/ radio then surgery or a clinical trial (computer randomly assigns either osmertinib tablets only or osimertinib + chemo or osimertinib + placebo) and then surgery to remove
Jaynelovestravel
in
The Roy Castle Lung Cancer Foundation
2 years ago
New Year, new lungs?
on whether I go on the
lung
transplant
list or not.
on whether I go on the
lung
transplant
list or not.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
3 years ago
Microneedle skin treatment for kidney transplant patient
Hello... My Husband is kidney transplant patient for 2 years. He has some acnes (maybe it because of methyl) and leave scars on his face. I'm thinking to go to Dermatologist for Microneedle. Is anyone experience the same treatment?.
Hello... My Husband is kidney transplant patient for 2 years. He has some acnes (maybe it because of methyl) and leave scars on his face. I'm thinking to go to Dermatologist for Microneedle. Is anyone experience the same treatment?.
Dheadome
in
Kidney Transplant
2 years ago
Transplant Lethargy
Hi everyone! This is my first question and I'm so excited I found this forum of other kidney transplant recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy. Some days are good, some days are okay, and some other days like today, I am very
Hi everyone! This is my first question and I'm so excited I found this forum of other kidney transplant recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy. Some days are good, some days are okay, and some other days like today, I am very
ksoccer45
in
Kidney Disease
2 years ago
My father has Peripheral t cell lymphoma
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
NikhilSantosh
in
CLL Support
2 years ago
Lost a jewel from my Crown
Last night I got news that the kidney transplant center I was planning on using, if I was approved, has voluntarily put their program on hold pending a review of a couple of their cases by UNOS. I was shocked and it left me feeling a little unsettled. Questions like why are they being reviewed? When
Last night I got news that the kidney transplant center I was planning on using, if I was approved, has voluntarily put their program on hold pending a review of a couple of their cases by UNOS. I was shocked and it left me feeling a little unsettled. Questions like why are they being reviewed? When
HipHopQueen
in
Kidney Dialysis
2 years ago
CBD OIL
Just read an article about an 80 year old lady who had stage 4 lung cancer and took liquid CBD oil daily, and refused all treatment. The tumour disappeared. Is this made up, surely the experts would have found that CBD is a cure. It's like diet, there's no diet that can cure cancer.
Just read an article about an 80 year old lady who had stage 4 lung cancer and took liquid CBD oil daily, and refused all treatment. The tumour disappeared. Is this made up, surely the experts would have found that CBD is a cure. It's like diet, there's no diet that can cure cancer.
Tike3
in
The Roy Castle Lung Cancer Foundation
2 years ago
Driving after transplant
Question for kidney transplant patients How long before you was able to drive again?
Question for kidney transplant patients How long before you was able to drive again?
transplantwarrier
in
Kidney Transplant
2 years ago
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