Has anyone else discovered Ground glass opa... - Kidney Disease

Kidney Disease

12,452 members5,135 posts

Has anyone else discovered Ground glass opacities in lung on abdominal ct for pre transplant evaluation? What was the outcome?

Jamok profile image
6 Replies

Hi my ckd friends, My recent abdominal CT for transplant evaluation discovered 5 mm ground glass opacity nodularity in the lower left lingual. Report said to consider 3 to 6 month follow-up CT scan. Still waiting to hear from the transplant team.Has anyone else encountered this? How did it affect the progression of your transplant activation? What was the outcome? It seems like no matter what it’s always something for me. Just one road block after another! I have to admit I am extremely stressed out and I’m getting worn down and tired. I don’t think I have 3 to 6 months being at GFR of 10 so now I am bracing myself for dialysis. Grateful at least it’s an option and hoping this new finding is nothing to worry about. Ugh!!

thanks so much for your support.

Written by
Jamok profile image
Jamok
To view profiles and participate in discussions please or .
Read more about...
6 Replies
jodaer profile image
jodaer

Were/are you a smoker? I was and i've had this show up from time to time. I do have COPD. What did your doctor say? I would suggest you check in with a pulmonologist to see what he has to say.

Jamok profile image
Jamok in reply tojodaer

Thanks for your reply! I’m not a smoker. What happens to these lesions when they show up on your lungs? Do they just disappear after a while?The transplant nurse got back to me and she’s going to try to get me active on the list as soon as I talk to the social worker in a few weeks. She said the connection for the new kidney is all good and that it’s common to have small nodes show up on ct scans. She said they will repeat the scan in three months to check for stability possibly when I’m being admitted for a kidney offer. Hoping and praying this thing, whatever it is, remains stable or goes away entirely!

jodaer profile image
jodaer in reply toJamok

Sometimes they go away, some get bigger or smaller. It's some damage from infection, pneumonia or just because, maybe 2nd hand smoke? It's smart to keep an eye on it. Would suggest you consult a pulmonologist to make sure. I'm not clear on how big 5mm is but am thinking it's pretty small. Good luck, let us know how it goes.

Tolmezzo profile image
Tolmezzo

I full undertsand your frustration. Going and remain eligible for transplant is kind of never ending. However not said this lung problem will be a roadblock and not said how long you will last at 10 gfr. Never loose hope and never give up.

barbara55109 profile image
barbara55109

I'm an ex smoker. I quit 27 years ago. I have lung nodules. I get periodic CTs to make sure they are stable. They haven't grown. I'm on the transplant list. My Dr. tells me they are common and non cancerous.

dphu profile image
dphu

Have you had/got Covid? A ground glass appearance in the lungs can be a result of Covid. I had a bad reaction to Methotrexate and the doctors were sure I had Covid. Tested and tested but all negative.

Not what you're looking for?

You may also like...

Kidney transplant medication side effects

Hi Everyone... hope you are all off to a great summer. I've been going through testing to see if I...
Highgfr profile image

Initial Transplant Eval

I live about 250 miles from my transplant center. My appointment times started at 0730. The...

Mentioning age is very critical to your post.

We all here on this platform are trying to help each other. I am 53 years old with 11 months post...

Need Some Courage.....

Good day - I have very much appreciated reading everyone's postings over the past couple months -...
MatisseT profile image

Why it is important to advocate for yourself

I have been on this journey for many years and have shared most of my experience. I want to share...
Bassetmommer profile image
NKF Ambassador

Moderation team

See all
PattyM_NKF profile image
PattyM_NKFModerator
DorisL_NKF profile image
DorisL_NKFModerator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.