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Stem cell transplant
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
Leighcox85
in
MPN Voice
2 months ago
Platelets dropped after obinituzumab and won't rise even after transfusion 🚨
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
BMFCDRW
in
CLL Support
2 months ago
TSH adnormal
Hi everyone hope u guys are all well. I have one question well my kidney transplant is 22 years im very blessed but is around 30 to 28 % and on my blood work my TSH thyroid is high I spoke to the dr about it and he said that is because of my kidney function being so low but im concern my gyno wants
Hi everyone hope u guys are all well. I have one question well my kidney transplant is 22 years im very blessed but is around 30 to 28 % and on my blood work my TSH thyroid is high I spoke to the dr about it and he said that is because of my kidney function being so low but im concern my gyno wants
jennifer24
in
Kidney Transplant
1 year ago
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Kidney transplant
My husband received a kidney transplant from a deceased donor last month. He is doing well. Hopefully it will continue that way.
My husband received a kidney transplant from a deceased donor last month. He is doing well. Hopefully it will continue that way.
239227
in
Kidney Transplant
1 year ago
Human stem cell transplantation for Parkinson’s disease: A systematic review
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Farooqji
in
Cure Parkinson's
3 months ago
Momelotinib for Myelofibrosis
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Cazbolac
in
MPN Voice
3 months ago
has anyone here undergone Lung Surgery for cancer?
hi there, newbie here who has just joined and who is looking to connect with some people who have experienced treatments for lung cancer, in this instance, surgery. my mum has been diagnosed with stage 3a lung cancer and is in the process of gathering information in order to make a decision over what
hi there, newbie here who has just joined and who is looking to connect with some people who have experienced treatments for lung cancer, in this instance, surgery. my mum has been diagnosed with stage 3a lung cancer and is in the process of gathering information in order to make a decision over what
Chambertin-1
in
Lung Conditions Community Forum
1 year ago
Treatment for osteoporosis post kidney transplant
Has anyone been treated for osteoporosis post transplant? What medications have been prescribed? Can anyone share their experiences dealing with orthopedic drs, rheumatologist or endrchronolgist who has treated women especially. What has been your experience with medications and side effects.? any information
Has anyone been treated for osteoporosis post transplant? What medications have been prescribed? Can anyone share their experiences dealing with orthopedic drs, rheumatologist or endrchronolgist who has treated women especially. What has been your experience with medications and side effects.? any information
Hydrangea2023
in
Kidney Transplant
1 year ago
Transplant Surgeon
I was given a lot of information regarding a double
lung
transplant
, they was all very nice and thorough. I was allocated a transplant co ordinator then was informed a would be discussed at the weekly meeting. September this year I was admitted to the “Jim Quick” ward at wythenshawe .
I was given a lot of information regarding a double
lung
transplant
, they was all very nice and thorough. I was allocated a transplant co ordinator then was informed a would be discussed at the weekly meeting. September this year I was admitted to the “Jim Quick” ward at wythenshawe .
Northernsaul
in
Lung Conditions Community Forum
2 years ago
Travel and Ibrance
I was diagnosed with MBC in June, 2023. I am on Ibrance and letrozole. My medical history is complicated by having had a donor stem cell transplant in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and
I was diagnosed with MBC in June, 2023. I am on Ibrance and letrozole. My medical history is complicated by having had a donor stem cell transplant in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and
Artesa
in
SHARE Metastatic Breast Cancer
3 months ago
stem cell for et?
Would stem cell transplant be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Would stem cell transplant be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Preacherswife
in
MPN Voice
3 months ago
Stage 4 cardiac AL amyloidosis
Hello! I'm 35. I was diagnosed with this in May 2023. Currently receiving D-VCd treatment form my hematologist and receiving heart monitoring, care, and transplant preparation from my cardiologist. Who else has experienced treatment or this or received a heart transplant? Any tips or useful questions
Hello! I'm 35. I was diagnosed with this in May 2023. Currently receiving D-VCd treatment form my hematologist and receiving heart monitoring, care, and transplant preparation from my cardiologist. Who else has experienced treatment or this or received a heart transplant? Any tips or useful questions
BeardandCoffee
in
Men's Health Forum
1 year ago
AXSL1 gene mutation
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
merlisa
in
MPN Voice
3 months ago
SCT journey update No.2
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
LFCLove
in
MPN Voice
3 months ago
lung surgery
morning everyone been a member since 2014 don’t contribute very often but read everyday I have a large lung bulla and waiting to have it removed via robotic surgery I’m hoping someone has had this surgery and tell me there experience I’m 74 so any surgery is higher risk Thanks in advance Lyn
morning everyone been a member since 2014 don’t contribute very often but read everyday I have a large lung bulla and waiting to have it removed via robotic surgery I’m hoping someone has had this surgery and tell me there experience I’m 74 so any surgery is higher risk Thanks in advance Lyn
lynisa48
in
Lung Conditions Community Forum
1 year ago
Still on hold for stem cell transplant
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
dwolden
in
CLL Support
3 months ago
Psychotic Episodes
Just had a very successful liver transplant 8 weeks ago and am in the very lucky position to feeling better than I have in years. Now everything has settled into a nice routine I just wanted to raise awareness to post op psychotic episodes. I was warned that it is common for post-transplant patients
Just had a very successful liver transplant 8 weeks ago and am in the very lucky position to feeling better than I have in years. Now everything has settled into a nice routine I just wanted to raise awareness to post op psychotic episodes. I was warned that it is common for post-transplant patients
Shep666
in
British Liver Trust
1 year ago
Reviewers needed for a Netflix Film about a lady with lupus
Hi everyone! There is a film on Netflix (UK) called "Beyond the Universe" about a pianist who has lupus and is waiting for a kidney transplant. Here is the trailer for the movie - https://www.youtube.com/watch?v=8OkqLOe_mZI. The movie can be watched with English subtitles and is 2 hours and 6 minutes
Hi everyone! There is a film on Netflix (UK) called "Beyond the Universe" about a pianist who has lupus and is waiting for a kidney transplant. Here is the trailer for the movie - https://www.youtube.com/watch?v=8OkqLOe_mZI. The movie can be watched with English subtitles and is 2 hours and 6 minutes
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
1 year ago
HSCT early in MS
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
BettysMom
in
My MSAA Community
4 months ago
Stem Cell transplant register search goes on…
Unfortunately my next appointment with Consultant has been delayed until early April as they are no further advanced in their search for matches on transplant register. The Nuclear medicine tests that I have just had will be added to MyChart which Addenbrookes uses to show appointments, test results
Unfortunately my next appointment with Consultant has been delayed until early April as they are no further advanced in their search for matches on transplant register. The Nuclear medicine tests that I have just had will be added to MyChart which Addenbrookes uses to show appointments, test results
LFCLove
in
MPN Voice
4 months ago
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