Search
Search
About
Log in
Join
Experiences with
Lung transplant
Posts
Communities
4,768 public posts
Filter results
11 months Post SCT
I’ve been wanting to update my Stem Cell Transplant journey with good news and today I was going to post that, instead I’ve been told that a lot of my lymph nodes are enlarged again. It’s so disappointing to say the least, not what I was expecting as I feel quite well and most of the GVHD issues have
I’ve been wanting to update my Stem Cell Transplant journey with good news and today I was going to post that, instead I’ve been told that a lot of my lymph nodes are enlarged again. It’s so disappointing to say the least, not what I was expecting as I feel quite well and most of the GVHD issues have
Billarina
in
CLL Support
2 months ago
Lung nodule thanks every one who replied
I recently had a cardiac ct scan for chest tightness i have 3 stents stents the results showed that as well as copd which i also have there is now have a 20 mm lung nodule in my left lung Has anyone else have a nodule and how is it treated I have to have a repeat scan in 3 months and have been referred
I recently had a cardiac ct scan for chest tightness i have 3 stents stents the results showed that as well as copd which i also have there is now have a 20 mm lung nodule in my left lung Has anyone else have a nodule and how is it treated I have to have a repeat scan in 3 months and have been referred
Chrissca71
in
Lung Conditions Community Forum
11 months ago
Biopsy and Fibroscan
Hello I was diagnosed with PBC in May after they removed my gallbladder and took a liver biopsy. My questions is...the biopsy state I was Stage 1 but I received a phone call from my gastro yesterday who told me I am at Stage 3 and probable Stage 4 according to the fibroscan. I'm not sure why the discrepancy
Hello I was diagnosed with PBC in May after they removed my gallbladder and took a liver biopsy. My questions is...the biopsy state I was Stage 1 but I received a phone call from my gastro yesterday who told me I am at Stage 3 and probable Stage 4 according to the fibroscan. I'm not sure why the discrepancy
suz56
in
PBCers Organization
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
SCT journey update No.4
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell
Transplant
. Last tests @ Addenbrookes yesterday, was a very early start as
Lung
function testing was @ 8.30am and it’s about 2 hour journey.
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell
Transplant
. Last tests @ Addenbrookes yesterday, was a very early start as
Lung
function testing was @ 8.30am and it’s about 2 hour journey.
LFCLove
in
MPN Voice
3 months ago
ASXL1 mutation 39% Worried about MF turning into leukemia
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
merlisa
in
Fight MPN
3 months ago
Continued Journey
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
FiArt12X
in
CLL Support
3 months ago
Please Join Us! Tuesday September 12th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, September 12th, at 5pm PT/8pm ET.
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, September 12th, at 5pm PT/8pm ET.
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
Continued Journey
Getting my forth chemo treatment today. This has been much easier than the O CHOP. It has been smooth sailing especially with the surgically implanted port.( I forgot to mention). I am starting to notice some fatigue and energy slow down which is quite natural. One more chemo treatment tomorrow then
Getting my forth chemo treatment today. This has been much easier than the O CHOP. It has been smooth sailing especially with the surgically implanted port.( I forgot to mention). I am starting to notice some fatigue and energy slow down which is quite natural. One more chemo treatment tomorrow then
FiArt12X
in
CLL Support
3 months ago
Myelofibrosis- GVHD graft, versus, host, disease.
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
3 months ago
Myelofibrosis - GVHD - graft, versus, host, disease
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
3 months ago
Pembrolizumab & CLL
Greetings, has anyone got experience of taking Pembrolizumab while also having CLL. I have secondary lung cancer (non small cell) as a matatsisation of Squamous Cell Carcinoma.
Greetings, has anyone got experience of taking Pembrolizumab while also having CLL. I have secondary lung cancer (non small cell) as a matatsisation of Squamous Cell Carcinoma.
Meic13
in
Lung Conditions Community Forum
11 months ago
Medical breakthrough
Hi everyone just wanted to share this video about a possible breaththrough about an 8 year old girl. Who after a kidney transplant doesn't have to take an immunosuppressant drugs after reviewing a special type of kidney. https://youtu.be/OWbdArmDJOI?si=tD0l1yNFz20kav3I 🌹
Hi everyone just wanted to share this video about a possible breaththrough about an 8 year old girl. Who after a kidney transplant doesn't have to take an immunosuppressant drugs after reviewing a special type of kidney. https://youtu.be/OWbdArmDJOI?si=tD0l1yNFz20kav3I 🌹
bbeba103
in
Kidney Disease
1 year ago
STEM CELL TRANSPLANT FINALLY SCHEDULED (WE HOPE)
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
dwolden
in
CLL Support
3 months ago
Continued Journey
I will be starting the prep for my Bone Marrow Transplant (June 27) Friday. I have 5 days of chemo starting Friday this week, with a rest day before the BMT. Apprehension has been growing in me but it is balanced by others that have successfully made this journey. Also, my Drs. And team give an
I will be starting the prep for my Bone Marrow Transplant (June 27) Friday. I have 5 days of chemo starting Friday this week, with a rest day before the BMT. Apprehension has been growing in me but it is balanced by others that have successfully made this journey. Also, my Drs. And team give an
FiArt12X
in
CLL Support
3 months ago
Intense pruritus following liver transplant - diagnosed with hepatic cholestatic. Any help please?
Hi, I received a liver transplant back in December 2022 and recovery was well for the first four months however around end of April I started suffering with pruritus amongst other symptoms i.e. acid reflux, fatigue etc. and following x rays and scans, the Consultants advised it was due to strictures
Hi, I received a liver transplant back in December 2022 and recovery was well for the first four months however around end of April I started suffering with pruritus amongst other symptoms i.e. acid reflux, fatigue etc. and following x rays and scans, the Consultants advised it was due to strictures
KateG94
in
British Liver Trust
1 year ago
Cirrhosis
I have told I can't have a Liver transplant.My Liver has gone to decompensated with portal hypertension. Does anybody know what stage I am and what will happen
I have told I can't have a Liver transplant.My Liver has gone to decompensated with portal hypertension. Does anybody know what stage I am and what will happen
Williamsbluefamily
in
British Liver Trust
1 year ago
SCT journey update No.3
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell transplant, my transplant team @ Addenbrookes Hospital are working towards me starting chemotherapy at the end of July with the transplant taking place approx one week later at start of August. I have one more appointment
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell transplant, my transplant team @ Addenbrookes Hospital are working towards me starting chemotherapy at the end of July with the transplant taking place approx one week later at start of August. I have one more appointment
LFCLove
in
MPN Voice
4 months ago
Does anyone get these symptoms and have answers of cause ??
Hi, I had a liver transplant back in March 2022. I had a condition called ‘PSC’ since my op my recovery was and is a slow one involving a few complications, but the one I’m struggling with at the minute is a sort of heat rash all over my body - hot itchy and very uncomfortable. Tonight it seems to
Hi, I had a liver transplant back in March 2022. I had a condition called ‘PSC’ since my op my recovery was and is a slow one involving a few complications, but the one I’m struggling with at the minute is a sort of heat rash all over my body - hot itchy and very uncomfortable. Tonight it seems to
NicharrisonMarch2022
in
British Liver Trust
1 year ago
Posterior subcapsular cataracts surgery
I am 2 years post kidney transplant due to PKD. I went to a routine eye exam yesterday and after a retinal scan was told I need to have cataract surgery, sooner rather than later, as this type of cataract progresses quickly. Anyone have this issue? Any pre/post eye surgery precautions related to
I am 2 years post kidney transplant due to PKD. I went to a routine eye exam yesterday and after a retinal scan was told I need to have cataract surgery, sooner rather than later, as this type of cataract progresses quickly. Anyone have this issue? Any pre/post eye surgery precautions related to
Oceansideup
in
Kidney Transplant
1 year ago
UTI/AF
Since having a kidney transplant I am bothered with UTI's which quickly clears up after taking antibiotics. I also have a PAF episode more or less within a day or two of this. Has anyone else noticed having AF when also having an infection? My potassium and magnesium levels are lower than normal when
Since having a kidney transplant I am bothered with UTI's which quickly clears up after taking antibiotics. I also have a PAF episode more or less within a day or two of this. Has anyone else noticed having AF when also having an infection? My potassium and magnesium levels are lower than normal when
Mismarswe
in
AF Association
1 year ago
1
...
15
16
17
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
870 results
British Liver Trust
715 results
The Roy Castle Lung Cancer Foundation
501 results
View top 10 communities
Sort by
Most Relevant
Newest