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biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
4 months ago
High BLood Pressure, Kidney failure, cause discovered
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
phebamom
in
High Blood Pressure Support
4 months ago
Trying to Maintain Money and Mental Health
My spouse received a kidney transplant in November 2022. He was on dialysis for 18 months and also developed diabetic retinopathy which requires 5 surgeries prior to and after his transplant. He wants to work and going on disability would be terrible for his mental health. We are having trouble financially
My spouse received a kidney transplant in November 2022. He was on dialysis for 18 months and also developed diabetic retinopathy which requires 5 surgeries prior to and after his transplant. He wants to work and going on disability would be terrible for his mental health. We are having trouble financially
Livi5072
in
Kidney Transplant
1 year ago
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Lung Cancer Research
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
YourHealthCompanion
in
The Roy Castle Lung Cancer Foundation
1 year ago
Good sats - so why so breathless?
THAT is indeed the question. Why, with my peripheral O2 levels at 94/5 %even 96% am I still fighting to breath? It goes like this. I wake short of breath. I rise and take my Oximeter (I have several; they all show the same) . My level is, say 92%. I do controlled breathing using a computer monitor
THAT is indeed the question. Why, with my peripheral O2 levels at 94/5 %even 96% am I still fighting to breath? It goes like this. I wake short of breath. I rise and take my Oximeter (I have several; they all show the same) . My level is, say 92%. I do controlled breathing using a computer monitor
Timberman
in
Lung Conditions Community Forum
4 months ago
Blip in Immunitherapy ?
wonder if anyone has experience of a blip in immunotherapy treatment? My husband has stage 4 non small cell lung cancer He was diagnosed about 10 months ago and has been responding well to immunotherapy and chemotherapy (3 weekly treatments of pemetrexed and pembrolizubmab spelling maybe a bit wrong
wonder if anyone has experience of a blip in immunotherapy treatment? My husband has stage 4 non small cell lung cancer He was diagnosed about 10 months ago and has been responding well to immunotherapy and chemotherapy (3 weekly treatments of pemetrexed and pembrolizubmab spelling maybe a bit wrong
Holepunch
in
The Roy Castle Lung Cancer Foundation
1 year ago
Genetics - Children of Lung Cancer Patients
Hi all - I am a young mom who just underwent a lung wedge resection. I will be monitored for life, most likely - but I am wondering about my child. I have two EGFR mutations and am concerned about what this means for my son. Does anyone know much about testing younger patients -he is much too young now
Hi all - I am a young mom who just underwent a lung wedge resection. I will be monitored for life, most likely - but I am wondering about my child. I have two EGFR mutations and am concerned about what this means for my son. Does anyone know much about testing younger patients -he is much too young now
JustBreathe82
in
The Roy Castle Lung Cancer Foundation
1 year ago
question about brain aneurysm and transplant
When I was in my he hospital they found a 3mm maybe a little bigger aneurysm on left side of brain. I have had one aneurysm clip back in 1998 and 1999 I had a subarachnoid hemorrhage. I had a grandma seizure and super low blood pressure they took me off all blood pressure meds I was on. The neurologist
When I was in my he hospital they found a 3mm maybe a little bigger aneurysm on left side of brain. I have had one aneurysm clip back in 1998 and 1999 I had a subarachnoid hemorrhage. I had a grandma seizure and super low blood pressure they took me off all blood pressure meds I was on. The neurologist
Beachgirl32
in
Kidney Transplant
1 year ago
Discitis nearly killed me. I suspect streptococcus B was injected into me by Hormone injection for PCa
I have PCa. I am also immune suppressed due to kidney transplant. In February I started hormone injections due to BCR. A couple of weeks later I started to get back pain. Doctor prescribed pain killers. After about 6 weeks, many blood tests, consultations and an MRI scan I was diagnosed with discitis
I have PCa. I am also immune suppressed due to kidney transplant. In February I started hormone injections due to BCR. A couple of weeks later I started to get back pain. Doctor prescribed pain killers. After about 6 weeks, many blood tests, consultations and an MRI scan I was diagnosed with discitis
Graham49
in
Advanced Prostate Cancer
1 year ago
New diagnosis of hf
Hi 1st post for me My brother had a heart transplant at 39 due to severe heart failure (he is now 2 years post op and doing amazingly) so I went to see to the Dr to get checked after his team suggested it. I'm 39 and just been diagnosed with hf, my ef is 32%, I am asymptomatic so far. I have been prescribed
Hi 1st post for me My brother had a heart transplant at 39 due to severe heart failure (he is now 2 years post op and doing amazingly) so I went to see to the Dr to get checked after his team suggested it. I'm 39 and just been diagnosed with hf, my ef is 32%, I am asymptomatic so far. I have been prescribed
Forrest14
in
British Heart Foundation
1 year ago
wound vac post kidney transplant anyone?
I am 3 weeks out from my living donor transfer. I had drainage the entire time from the staples. It was swollen and reddish. I now have a would vac. Anyone else with this experience? Thank you
I am 3 weeks out from my living donor transfer. I had drainage the entire time from the staples. It was swollen and reddish. I now have a would vac. Anyone else with this experience? Thank you
LeslieK
in
Kidney Transplant
1 year ago
Diagnosed 5 months post Operation with Fluid on the lung. Is this normal & will it clear up? Should I be concerned?
Hi everyone, I hope someone can help me understand my recent diagnosis. I'd a lower left lung lobectomy last November and recently had my follow up appointment which will be annually from now on. I was told by the registrar not the consultant that I'd fluid on my lung. I wasn't told anything more than
Hi everyone, I hope someone can help me understand my recent diagnosis. I'd a lower left lung lobectomy last November and recently had my follow up appointment which will be annually from now on. I was told by the registrar not the consultant that I'd fluid on my lung. I wasn't told anything more than
Eaglewings1
in
The Roy Castle Lung Cancer Foundation
1 year ago
Black Outs and Assessment for st James Leeds Hospital
Hi Just a quick couple of question guys As anyone had blackouts who as been diagnosed cirrhosis NAFLD my Husband as suffered with with dizziness but on Monday he started having Blackout’s, also as anyone got any advice on what to expect at the Preassessment clinic at St James Leeds University hospital
Hi Just a quick couple of question guys As anyone had blackouts who as been diagnosed cirrhosis NAFLD my Husband as suffered with with dizziness but on Monday he started having Blackout’s, also as anyone got any advice on what to expect at the Preassessment clinic at St James Leeds University hospital
Dobielove
in
British Liver Trust
1 year ago
One year stem cell transplant anniversary
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
Scaredy_cat
in
MPN Voice
5 months ago
FDA Program discussion with leaders from patient advocacy groups.
When: Jun 8, 2023 2:30 PM- 4:00 PM Eastern Time (US and Canada) Topic: FDA Patient Listening Session – Non-Small Cell Lung Cancer Patient Advocacy Groups Join us for a discussion with patient advocacy groups, patients, and caregivers, who will share challenges and opportunities as they advocate for
When: Jun 8, 2023 2:30 PM- 4:00 PM Eastern Time (US and Canada) Topic: FDA Patient Listening Session – Non-Small Cell Lung Cancer Patient Advocacy Groups Join us for a discussion with patient advocacy groups, patients, and caregivers, who will share challenges and opportunities as they advocate for
Denzie
Volunteer
in
Lung Cancer Support
1 year ago
1st patient enrolled in global Phase 2 trial of daxdilimab for lupus
Study to test safety, efficacy of Horizon's lupus nephritis treatment by Steve Bryson PhD | May 18, 2023 A woman speaks with a megaphone in this announcement illustration. A Phase 2 trial evaluating the safety and efficacy of daxdilimab, a potentially first-in-class treatment for people with active
Study to test safety, efficacy of Horizon's lupus nephritis treatment by Steve Bryson PhD | May 18, 2023 A woman speaks with a megaphone in this announcement illustration. A Phase 2 trial evaluating the safety and efficacy of daxdilimab, a potentially first-in-class treatment for people with active
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Is there always a rash with vasculitis?
Hood morning everyone and thank you so much for your support so far. I’m still investigating how to try and get my my tested for vasculitis. She has a diagnosis of bronchocentric glanulomatosis currently but I would like her tested for vasculitis as she is currently just being treated with steroids
Hood morning everyone and thank you so much for your support so far. I’m still investigating how to try and get my my tested for vasculitis. She has a diagnosis of bronchocentric glanulomatosis currently but I would like her tested for vasculitis as she is currently just being treated with steroids
Muddywater100
in
Vasculitis UK
1 year ago
Join Us! Tomorrow, May 9th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, May 9th, at 5pm PT/8pm ET. At this meeting
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, May 9th, at 5pm PT/8pm ET. At this meeting
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
Transplant
Yes I had a liver transplant in October 2018 my liver decease which ended up stage 4 liver decease caused unfortunately by medication for another health issue, prior to my transplant I also had open heart heart surgery I was one of these fitness people who didn't know I had a severe heart condition
Yes I had a liver transplant in October 2018 my liver decease which ended up stage 4 liver decease caused unfortunately by medication for another health issue, prior to my transplant I also had open heart heart surgery I was one of these fitness people who didn't know I had a severe heart condition
Bellarman
in
British Liver Trust
1 year ago
have you had trouble getting approved for stem cell transplant?
I have had a wild ride last year beginning with a sudden decline in weight from 240 lbs - 165 lbs. accompanying the weight loss has also been an alarming increase in fatigue, cognitive ability, pain in my arms and legs, some times to the point where I can hardly feel my legs not to mention the
I have had a wild ride last year beginning with a sudden decline in weight from 240 lbs - 165 lbs. accompanying the weight loss has also been an alarming increase in fatigue, cognitive ability, pain in my arms and legs, some times to the point where I can hardly feel my legs not to mention the
Plasmapool
in
MPN Voice
5 months ago
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