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Borderline TSH during cancer treatment
Hi folks! Haven't been on here for some time but in the interim I have been treated for Chronic Myeloid Leukaemia. Had chemo in September last year which was successful (minus a few hiccups like fungal pneumonia that put me in ICU!) and currently on home oral chemo, antifungals and antibiotics daily
Hi folks! Haven't been on here for some time but in the interim I have been treated for Chronic Myeloid Leukaemia. Had chemo in September last year which was successful (minus a few hiccups like fungal pneumonia that put me in ICU!) and currently on home oral chemo, antifungals and antibiotics daily
spongecat
in
Thyroid UK
4 months ago
GENETIC MUTATION SUPPORT GROUP
[u][i]
THE NEW GENETIC MUTATION GROUP STARTS THIS EVENING!
[/i][/u] If you have a genetically mutated lung cancer and wish to take part in a group that is aimed specifically at your diagnosis and meet others in a similar situation then this group could be of great benefit. The group is hosted
[u][i]
THE NEW GENETIC MUTATION GROUP STARTS THIS EVENING!
[/i][/u] If you have a genetically mutated lung cancer and wish to take part in a group that is aimed specifically at your diagnosis and meet others in a similar situation then this group could be of great benefit. The group is hosted
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
My precious daughter
***HELP NEEDED DESPERATELY*** My precious daughter was unfortunately diagnosed with Multiple Hepatic Adenomas in November 2021. She has currently got 12 of these tumours in her liver. In January 2022 she had a liver resection, as the largest tumour was hemorrhaging at the time. The right half of her
***HELP NEEDED DESPERATELY*** My precious daughter was unfortunately diagnosed with Multiple Hepatic Adenomas in November 2021. She has currently got 12 of these tumours in her liver. In January 2022 she had a liver resection, as the largest tumour was hemorrhaging at the time. The right half of her
Mami77
in
British Liver Trust
1 year ago
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LUNG CANCER TREATMENT SUPPORT
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
Would you like to get more involved?
Hello community members, Roy Castle Lung Cancer Foundation often get asked for input to advisory groups, surveys and information on how diagnosis and treatment has impacted on peoples' lives. If you would like to become more involved or find out more about different ways of sharing your experiences
Hello community members, Roy Castle Lung Cancer Foundation often get asked for input to advisory groups, surveys and information on how diagnosis and treatment has impacted on peoples' lives. If you would like to become more involved or find out more about different ways of sharing your experiences
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
1 year ago
Itching due to medication??
Hello, I had a liver transplant 3 years ago and take tacrolimus, mycophenolate and prednisone for anti rejection. I have recently had a very itchy localised rash on my neck which I have been treating with hydrocortisone cream. This is having no effect. I was wondering if it could be a reaction to any
Hello, I had a liver transplant 3 years ago and take tacrolimus, mycophenolate and prednisone for anti rejection. I have recently had a very itchy localised rash on my neck which I have been treating with hydrocortisone cream. This is having no effect. I was wondering if it could be a reaction to any
Chasdog
in
British Liver Trust
1 year ago
GET INVOLVED! - Lung Cancer Support
This is the week that a new round of our groups kick starts. If you are thinking of joining please reach out, the groups have benefitted people massively and could really give valuable help during a difficult time.
Immunotherapy & Treatment
- Tuesday evening 5th September 7-8pm - fortnightly
This is the week that a new round of our groups kick starts. If you are thinking of joining please reach out, the groups have benefitted people massively and could really give valuable help during a difficult time.
Immunotherapy & Treatment
- Tuesday evening 5th September 7-8pm - fortnightly
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
continuing the journey
I just had my 3rd round of Chemotherapy ( O CHOP). Doing pretty well, will see 2nd week is usually the hardest. My oncologist was very pleased with how I have responded (ei. Platelets 357 from 1st chemo 10).I also had a port put in my chest last week for easier access for infusion iOS and blood work.
I just had my 3rd round of Chemotherapy ( O CHOP). Doing pretty well, will see 2nd week is usually the hardest. My oncologist was very pleased with how I have responded (ei. Platelets 357 from 1st chemo 10).I also had a port put in my chest last week for easier access for infusion iOS and blood work.
FiArt12X
in
CLL Support
4 months ago
Sauna post-kidney transpant
My kidney transplant was almost 2 years ago. All is doing well. I have loved my home sauna in the past and would love to resume using it this fall/winter. My transplant doctor suggests that would NOT be a good idea - not because of hydration issues, which could be managed but because the heat of the
My kidney transplant was almost 2 years ago. All is doing well. I have loved my home sauna in the past and would love to resume using it this fall/winter. My transplant doctor suggests that would NOT be a good idea - not because of hydration issues, which could be managed but because the heat of the
Palmtreeguy
in
Kidney Transplant
1 year ago
Late diagnosis of asbestosis
My Dad is 96 and has had progressive lung disease for many years. He's a non-smoker and I always wondered about the cause. On 16 October this year he was referred to a respiratory consultant for the first time. She took a detailed work history (again, the first one to do so) and we realised just how
My Dad is 96 and has had progressive lung disease for many years. He's a non-smoker and I always wondered about the cause. On 16 October this year he was referred to a respiratory consultant for the first time. She took a detailed work history (again, the first one to do so) and we realised just how
tchouli
in
Lung Conditions Community Forum
1 year ago
Sorry it has been a while with an update on Ruxolitinib
The last time I wrote to you all was about 2/3 years ago when I started Ruxolitinib. The first 6 to 8 months I was a different person, I felt great. I started to swim, (200 lengths in 1.5 hours) then I started to get water infections, one after the other, chest infections, ear infections and shingles
The last time I wrote to you all was about 2/3 years ago when I started Ruxolitinib. The first 6 to 8 months I was a different person, I felt great. I started to swim, (200 lengths in 1.5 hours) then I started to get water infections, one after the other, chest infections, ear infections and shingles
wendycu
in
MPN Voice
4 months ago
Quite the CLL journey
2012-2013 suspicion of CLL, enlarged lymph nodes in abdomen. Meet with oncologist, blood work does not reveal definitive diagnosis. Yearly appointments with blood work recommended 2016 enlarged lymph node removed from neck, biopsy confirmed CLL, watch and wait. 2018 escalating white blood count and
2012-2013 suspicion of CLL, enlarged lymph nodes in abdomen. Meet with oncologist, blood work does not reveal definitive diagnosis. Yearly appointments with blood work recommended 2016 enlarged lymph node removed from neck, biopsy confirmed CLL, watch and wait. 2018 escalating white blood count and
FiArt12X
in
CLL Support
4 months ago
Japan and stem cells treatment
Hi there was a post last week about stem cell transplant in Japan. I thought I had saved it but obviously not! Does anyone have a link for it please?
Hi there was a post last week about stem cell transplant in Japan. I thought I had saved it but obviously not! Does anyone have a link for it please?
Bluebell2022
in
Cure Parkinson's
4 months ago
Anyone here had a dental implant after a kidney transplant?
Anyone here had a dental implant after a kidney transplant?
Anyone here had a dental implant after a kidney transplant?
JoanC645
in
Kidney Transplant
1 year ago
Actinic keratosis & Lung cancer
Hi, Dad is in 5th week of taking Erlotinib and corresponding face rash appears to be under control with prescribed cream / antibiotics. Also good to see that his cough has reduced in frequency by around 90% and no increase in fatigue. My question is- dad has actinic keratosis ( for around 25 years +
Hi, Dad is in 5th week of taking Erlotinib and corresponding face rash appears to be under control with prescribed cream / antibiotics. Also good to see that his cough has reduced in frequency by around 90% and no increase in fatigue. My question is- dad has actinic keratosis ( for around 25 years +
Adaughter
in
The Roy Castle Lung Cancer Foundation
1 year ago
Life after transplant
My hubby is now 10 months post transplant due to alcohol liver disease. My question is how much damage did the drinking really do i thought after liver transplant everything would be great i know this is what i focused on to get me where i am and get through it so god knows what my hubby thought . But
My hubby is now 10 months post transplant due to alcohol liver disease. My question is how much damage did the drinking really do i thought after liver transplant everything would be great i know this is what i focused on to get me where i am and get through it so god knows what my hubby thought . But
Lippy42
in
British Liver Trust
1 year ago
New member - Post ET MF (Australia)
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
Hatchie
in
MPN Voice
5 months ago
Exhausted but happy.
I spent seven hours at the
lung
transplant
clinic at Harefield yesterday. I was weighed and measured many times, sometimes with boots (dockers!) on sometimes off, ECG, echocardiogram, chest xray, blood tests, blood pressure test, lung function test, urine test, and finally mrsa test!
I spent seven hours at the
lung
transplant
clinic at Harefield yesterday. I was weighed and measured many times, sometimes with boots (dockers!) on sometimes off, ECG, echocardiogram, chest xray, blood tests, blood pressure test, lung function test, urine test, and finally mrsa test!
Karenanne61
in
Lung Conditions Community Forum
2 years ago
Stem cell transplant (SCT) 15 months on
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
Scaredy_cat
in
MPN Voice
5 months ago
low WBC Count & CMV Update
Okey, I haven’t posted for a while because I haven’t felt terribly well. I’m fairly sure this is due to the high dose of Valcyte I’m taking and have taken for all but 2 months since the first week of June. BACKGROUND I had a kidney transplant the week before Thanksgiving 2022. The surgery went well
Okey, I haven’t posted for a while because I haven’t felt terribly well. I’m fairly sure this is due to the high dose of Valcyte I’m taking and have taken for all but 2 months since the first week of June. BACKGROUND I had a kidney transplant the week before Thanksgiving 2022. The surgery went well
Jayhawker
in
Kidney Transplant
1 year ago
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