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Prognosis is not so good.
Hello all, So we had an appointment this morning to see husbands consultant.He was aware that he had been declined for a transplant, due to other health issues. So had a chat, and we are now managing the complications that go with decompensated cirrhosis, and to keep him as comfortable as possible.
Hello all, So we had an appointment this morning to see husbands consultant.He was aware that he had been declined for a transplant, due to other health issues. So had a chat, and we are now managing the complications that go with decompensated cirrhosis, and to keep him as comfortable as possible.
Lils2019
in
British Liver Trust
2 years ago
Nintedanib offers new hope as transplant recommendation approaches
Hi all, It's been a fair while since I last updated - longer than I'd have liked - but in a way its a good thing as I actually have a fair bit to update on as a result... The additional heart tests involving tracers, a CT scan and an hour long MRI which really tested my lung capacity with one or two
Hi all, It's been a fair while since I last updated - longer than I'd have liked - but in a way its a good thing as I actually have a fair bit to update on as a result... The additional heart tests involving tracers, a CT scan and an hour long MRI which really tested my lung capacity with one or two
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
On the transplant list 11m
I am on the UKELD score, but not too severe at present. I am doing everything I am supposed to. My cirrhosis is as a result of NAFLD. I have had some bleeding varices-- 3y ago, and about 7 more banded more recently. I have also had some ascites, which was treated with pills, though these are affecting
I am on the UKELD score, but not too severe at present. I am doing everything I am supposed to. My cirrhosis is as a result of NAFLD. I have had some bleeding varices-- 3y ago, and about 7 more banded more recently. I have also had some ascites, which was treated with pills, though these are affecting
taar
in
British Liver Trust
2 years ago
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Only 288 hours until my second opinion assessment at the Royal Papworth for my lung transplant.
Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
NAFLD
Hi all, I am type 2 diabetic and overweight at 20st. I have been told my liver is fatty from an ultrasound. I had a fibroscan and was told the normal range was 2.5-7.5 and my score was 18. I was told by a letter that I may have cirrhosis. When I saw the liver specialist she said I definitely have a fatty
Hi all, I am type 2 diabetic and overweight at 20st. I have been told my liver is fatty from an ultrasound. I had a fibroscan and was told the normal range was 2.5-7.5 and my score was 18. I was told by a letter that I may have cirrhosis. When I saw the liver specialist she said I definitely have a fatty
Homebird1
in
British Liver Trust
2 years ago
PD induced COPD
does anyone here have parkinsons induced COPD? Im in PD induced chronic respiratory failure Gold Stage 3........GOLD-3: One of the stages of chronic obstructive lung disease (COPD), according to the Global Initiative for Chronic Obstructive Lung Disease (GOLD). GOLD-3 is stage III in the GOLD classification
does anyone here have parkinsons induced COPD? Im in PD induced chronic respiratory failure Gold Stage 3........GOLD-3: One of the stages of chronic obstructive lung disease (COPD), according to the Global Initiative for Chronic Obstructive Lung Disease (GOLD). GOLD-3 is stage III in the GOLD classification
beehive23
in
Cure Parkinson's
2 years ago
Relationship with alcohol
I was reading through some posts and answers and got thinking. Is the saying ‘once an alcoholic always an alcoholic’, really true. I certainly had a problem with alcohol. I drunk far too much of it and it became far too big a part of my life. To a point where I got very unwell. I was terrified during
I was reading through some posts and answers and got thinking. Is the saying ‘once an alcoholic always an alcoholic’, really true. I certainly had a problem with alcohol. I drunk far too much of it and it became far too big a part of my life. To a point where I got very unwell. I was terrified during
Aotea2012
in
British Liver Trust
2 years ago
Diagnosed with fatty liver disease
Hi guys, it's my first post I'm 29 and I had a liver count of 581 which has drastically risen within a month I'm also epikeptic and have been on my pills for 26 years but I do drink and with the stress I'm finding it harder to put it down and I'm pushing lived ones away I've been referred to a liver
Hi guys, it's my first post I'm 29 and I had a liver count of 581 which has drastically risen within a month I'm also epikeptic and have been on my pills for 26 years but I do drink and with the stress I'm finding it harder to put it down and I'm pushing lived ones away I've been referred to a liver
Tee2229
in
British Liver Trust
2 years ago
I found another
If you read “my story” my last post you already know the story but I found another. This woman’s mother was on urso for 5 years and her insurance did not pay so once a month they made a run to Mexico to buy her drugs. She stayed on liver diet and took drugs as directed and when md… liver specialist here
If you read “my story” my last post you already know the story but I found another. This woman’s mother was on urso for 5 years and her insurance did not pay so once a month they made a run to Mexico to buy her drugs. She stayed on liver diet and took drugs as directed and when md… liver specialist here
Pamela4475
in
PBC Foundation
2 years ago
Transplant waiting list imminent/Nintedanib feedback
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Any suggestions for reducing creatinine/ urea
My daughter is 6 years old and 3 years post renal transplant. It has been very challenging with numerous bouts of UTI's and BK thrown into the mix. She currently takes tacrolimus (3.2 mg BD), sytron, bicarbonate, cefalexin and prednisolone (2.5mg every other day), alphacalcitol and darbepoetin. Her
My daughter is 6 years old and 3 years post renal transplant. It has been very challenging with numerous bouts of UTI's and BK thrown into the mix. She currently takes tacrolimus (3.2 mg BD), sytron, bicarbonate, cefalexin and prednisolone (2.5mg every other day), alphacalcitol and darbepoetin. Her
BlueistheColour1
in
Kidney Transplant
2 years ago
Some advice please
Hi I have joined as my brother has end stage cirrhosis of the liver along with ascites & other complications due to very heavy drinking over many years. He is now at the stage where he can’t walk & refuses to let me contact his gp or any other health professional. Any offers of advice would be extremely
Hi I have joined as my brother has end stage cirrhosis of the liver along with ascites & other complications due to very heavy drinking over many years. He is now at the stage where he can’t walk & refuses to let me contact his gp or any other health professional. Any offers of advice would be extremely
JimmyMartin
in
British Liver Trust
2 years ago
Muscle tension
Hi, Have been suffering from severe anxiety for a little while. My main symptom is chronic and painful muscle tension throughout my whole body and dizziness. It never leaves me and makes it hard to relax or do anything normal. Any tips gratefully received.
Hi, Have been suffering from severe anxiety for a little while. My main symptom is chronic and painful muscle tension throughout my whole body and dizziness. It never leaves me and makes it hard to relax or do anything normal. Any tips gratefully received.
WBC61
in
Anxiety Support
2 years ago
New liver tech
Also note Quell's recent capital raise for transplant rejection https://www.ucl.ac.uk/enterprise/news/2021/dec/ucl-spinout-raises-ps117-million-test-new-therapy-
liver
-
transplant
-patients I am a firm believer that new medical help is not far away to reverse significant fibrosis and other developments
Also note Quell's recent capital raise for transplant rejection https://www.ucl.ac.uk/enterprise/news/2021/dec/ucl-spinout-raises-ps117-million-test-new-therapy-
liver
-
transplant
-patients I am a firm believer that new medical help is not far away to reverse significant fibrosis and other developments
Whyt
in
British Liver Trust
2 years ago
Newby here seeking advice please.
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Mrbojangles
in
Lung Cancer Support
2 years ago
Have diagnosis now
Got a letter from consultant now and it is confirmed that I have alcohol related cirrhosis. Consultant said "The key here though is not so much how much scarring there is in the liver, but how the liver is functioning, and on your liver blood tests your liver is functioning pretty well at present.
Got a letter from consultant now and it is confirmed that I have alcohol related cirrhosis. Consultant said "The key here though is not so much how much scarring there is in the liver, but how the liver is functioning, and on your liver blood tests your liver is functioning pretty well at present.
eileenet49
in
British Liver Trust
2 years ago
Food plan for transplant woman weight 80
Hi, One year kidney transplant. My weight is 80 +. Any one having food plan for my situation please?
Hi, One year kidney transplant. My weight is 80 +. Any one having food plan for my situation please?
noor99
in
Kidney Transplant Patient Support
2 years ago
Help
Now her
liver
is again in serious condition and she needs a new
transplant
but is only being offered palliative care as her mental health issues deem her not eligible.
Now her
liver
is again in serious condition and she needs a new
transplant
but is only being offered palliative care as her mental health issues deem her not eligible.
Worriedparent33
in
British Liver Trust
2 years ago
Functional Recovery from Human Induced Pluripotent Stem Cell-Derived Dopamine Neuron Grafts is Dependent on Neurite Outgrowth
Summary Transplantation of human pluripotent stem cell-derived dopaminergic (DA) neurons is an emerging therapeutic strategy for Parkinson’s disease (PD). In this study, we demonstrate, for the first time, that that functional recovery after DA neuron transplant is critically dependent on graft-host
Summary Transplantation of human pluripotent stem cell-derived dopaminergic (DA) neurons is an emerging therapeutic strategy for Parkinson’s disease (PD). In this study, we demonstrate, for the first time, that that functional recovery after DA neuron transplant is critically dependent on graft-host
Farooqji
in
Cure Parkinson's
2 years ago
Thank You
I’ve been a ‘lurker’ here on the forum, writing very few posts but very much learning about liver disease, it’s complications and it’s effects on the patient, but also on those who care. I wanted to thank both the British Liver Trust for a fantastic resource of information on the liver and it’s complications
I’ve been a ‘lurker’ here on the forum, writing very few posts but very much learning about liver disease, it’s complications and it’s effects on the patient, but also on those who care. I wanted to thank both the British Liver Trust for a fantastic resource of information on the liver and it’s complications
Murfee
in
British Liver Trust
2 years ago
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