Non driving gene mutation-ASXL1: I have MF with... - Fight MPN

Fight MPN

838 members268 posts

Non driving gene mutation-ASXL1

merlisa profile image
0 Replies

I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis gene mutation-ASXL1 with the rate of mutation is 15%~16%. What is the latest international approach to this mutation? I have no donor for stem cell transplantation, and I am extremely worried.

Written by
merlisa profile image
merlisa
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

Overheating at night

Hi All I wondered if anyone else has been suffering with overheating at night time. It’s not hot...
Jansap profile image

Update 7.0

Things have been coming along pretty well. Iron levels are gradually increasing, resulting in an...
hunter5582 profile image

Anyone else with MDS/MPN suffered compression fractures?

Just found out the pain I have had in my back for over four months is due to compression...

vegetarian with pv

hi everyone, six months ago i was diagnosed with et by local hematologist. his diagnosis and...
tuffetgal profile image

Risks in taking and not taking aspirin with hydroxyruea, especially when older

I have been taking hydroxyurea since Nov 2020 when diagnosed with Essential thrombocytosis, my...
kitttycat profile image

Popular Posts

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.