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My father has Peripheral t cell lymphoma
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
NikhilSantosh
in
CLL Support
2 years ago
Liver cancer that has migrated
Hello everyone I had liver cancer in 2018 and unfortunately have been told yesterday I have lung cancer and will be needing chemotherapy however they said I will need a stronger chemo because they are treating it as liver cancer that has migrated to my lungs. I wanted to ask if anyone else has had a
Hello everyone I had liver cancer in 2018 and unfortunately have been told yesterday I have lung cancer and will be needing chemotherapy however they said I will need a stronger chemo because they are treating it as liver cancer that has migrated to my lungs. I wanted to ask if anyone else has had a
Valentina_22
in
Liver4Life
2 years ago
Liver cancer that has migrated
Hello everyone I had liver cancer in 2018 and unfortunately have been told yesterday I have lung cancer and will be needing chemotherapy however they said I will need a stronger chemo because they are treating it as liver cancer that has migrated to my lungs. I wanted to ask if anyone else has had a
Hello everyone I had liver cancer in 2018 and unfortunately have been told yesterday I have lung cancer and will be needing chemotherapy however they said I will need a stronger chemo because they are treating it as liver cancer that has migrated to my lungs. I wanted to ask if anyone else has had a
Valentina_22
in
Blue Faery Liver Cancer
2 years ago
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Let down by promises
Just about a year ago, I was diagnosed having Cirrhosis of the liver, the consultant asked if I would like to be put on a trial of a new medication (not told the name), I was told it would start early this year, When nothing happened, I started to chase this up (bearing in mind I was also told I would
Just about a year ago, I was diagnosed having Cirrhosis of the liver, the consultant asked if I would like to be put on a trial of a new medication (not told the name), I was told it would start early this year, When nothing happened, I started to chase this up (bearing in mind I was also told I would
Mick1414
in
British Liver Trust
2 years ago
US Scan
Just had ultrasound scan and radiographer said no enlarged liver and spleen is normal. But the liver surface was not smooth. I know I have fibrosis. Will this be the cause? And how bad can it be to show up on scan?
Just had ultrasound scan and radiographer said no enlarged liver and spleen is normal. But the liver surface was not smooth. I know I have fibrosis. Will this be the cause? And how bad can it be to show up on scan?
Robert1220
in
British Liver Trust
2 years ago
Post Liver transplant
Post
liver
transplant
my son gets red patches over his body suddenly .. has it happened with anyone else ? Is it due to immuno suppresent ? Please help
Post
liver
transplant
my son gets red patches over his body suddenly .. has it happened with anyone else ? Is it due to immuno suppresent ? Please help
Brahmatv
in
Children's Liver Disease Foundation
3 years ago
Cirrhosis LFTs came back as normal but still worried
I spoke with my consultant today as I'd not had my blood results from last month. He told me my Liver function tests showed now as normal but said I'm probably still border line decompensated as LFTs don't matter. I asked him about hypertension as I have normal portal vein flow and normal flow through
I spoke with my consultant today as I'd not had my blood results from last month. He told me my Liver function tests showed now as normal but said I'm probably still border line decompensated as LFTs don't matter. I asked him about hypertension as I have normal portal vein flow and normal flow through
thelad73
in
British Liver Trust
2 years ago
Newly Diagnosed
After a battery of tests, I've recently been diagnosed with end stage cirrhosis according to my doctor, but haven't yet seen a specialist or had a biopsy. Hopefully someone can help answer a few questions until I get seen. Is final stage cirrhosis life limiting and what is life expectancy? How will I
After a battery of tests, I've recently been diagnosed with end stage cirrhosis according to my doctor, but haven't yet seen a specialist or had a biopsy. Hopefully someone can help answer a few questions until I get seen. Is final stage cirrhosis life limiting and what is life expectancy? How will I
davidsa57
in
British Liver Trust
2 years ago
Consultant appointment
My husband was diagnosed with decompensated cirrosis of the liver (ARLD) in December 2021, he had jaundice, asceties and spent over a week in hospital, where he had a drain and a biopsy. Due to covid I was never able to see the consultant as they always came in the mornings. Since then we have been to
My husband was diagnosed with decompensated cirrosis of the liver (ARLD) in December 2021, he had jaundice, asceties and spent over a week in hospital, where he had a drain and a biopsy. Due to covid I was never able to see the consultant as they always came in the mornings. Since then we have been to
Rockyroo28
in
British Liver Trust
2 years ago
Occasional RUQ since a few years, now elevated GPT
I started having right upper quadrant pain in early 2019. I went to my GP who told me to have a blood sample taken that found slightly elevated Billirubin. I got an improvised ultrasound at the same time that hinted at fat deposits in my liver - that wasn't done thoroughly, it was actually just a test
I started having right upper quadrant pain in early 2019. I went to my GP who told me to have a blood sample taken that found slightly elevated Billirubin. I got an improvised ultrasound at the same time that hinted at fat deposits in my liver - that wasn't done thoroughly, it was actually just a test
MS2D
in
British Liver Trust
2 years ago
Traveling on a plane with liver cirrhosis and portal hypertension
Hi I’m new to all this. My partner was diagnosed with liver cirrhosis back in may 2022 and spent 7 weeks in hospital. In February this year he was taken into intensive care with a GI bleed and needed blood transfusions and was told he had portal hypertension. He had a follow up endoscopy 4 weeks later
Hi I’m new to all this. My partner was diagnosed with liver cirrhosis back in may 2022 and spent 7 weeks in hospital. In February this year he was taken into intensive care with a GI bleed and needed blood transfusions and was told he had portal hypertension. He had a follow up endoscopy 4 weeks later
Lrn13
in
British Liver Trust
2 years ago
Kidney Teansplant and CMV
My husband is 14 months post kidney transplant. He just tested positive for the CMV virus and has a lot of fatigue. Has anyone else had CMV and what were your symptoms. He’s on Valcyte.
My husband is 14 months post kidney transplant. He just tested positive for the CMV virus and has a lot of fatigue. Has anyone else had CMV and what were your symptoms. He’s on Valcyte.
Sister9555
in
Kidney Transplant
2 years ago
Help
Daughter waiting to see a liver specialist that was urgently requested by GP she has no appetite she feels exhausted and doesn’t feel if she has any chance of getting better her mood swings are difficult to handle she feels so sad
Daughter waiting to see a liver specialist that was urgently requested by GP she has no appetite she feels exhausted and doesn’t feel if she has any chance of getting better her mood swings are difficult to handle she feels so sad
Hidden
in
British Liver Trust
2 years ago
Frustrated with hospital
I first posted on here back in February when my husband ended up in ICU with a severe gastric bleed and ended up getting an emergency TIPSS procedure.He ended up back in hospital the next day after being released from hospital after 2 weeks as took another bleed and had a further blood transfusion.
I first posted on here back in February when my husband ended up in ICU with a severe gastric bleed and ended up getting an emergency TIPSS procedure.He ended up back in hospital the next day after being released from hospital after 2 weeks as took another bleed and had a further blood transfusion.
Leia01
in
British Liver Trust
2 years ago
Prognosis is not so good.
Hello all, So we had an appointment this morning to see husbands consultant.He was aware that he had been declined for a transplant, due to other health issues. So had a chat, and we are now managing the complications that go with decompensated cirrhosis, and to keep him as comfortable as possible.
Hello all, So we had an appointment this morning to see husbands consultant.He was aware that he had been declined for a transplant, due to other health issues. So had a chat, and we are now managing the complications that go with decompensated cirrhosis, and to keep him as comfortable as possible.
Lils2019
in
British Liver Trust
2 years ago
On the transplant list 11m
I am on the UKELD score, but not too severe at present. I am doing everything I am supposed to. My cirrhosis is as a result of NAFLD. I have had some bleeding varices-- 3y ago, and about 7 more banded more recently. I have also had some ascites, which was treated with pills, though these are affecting
I am on the UKELD score, but not too severe at present. I am doing everything I am supposed to. My cirrhosis is as a result of NAFLD. I have had some bleeding varices-- 3y ago, and about 7 more banded more recently. I have also had some ascites, which was treated with pills, though these are affecting
taar
in
British Liver Trust
2 years ago
Diagnosed with fatty liver disease
Hi guys, it's my first post I'm 29 and I had a liver count of 581 which has drastically risen within a month I'm also epikeptic and have been on my pills for 26 years but I do drink and with the stress I'm finding it harder to put it down and I'm pushing lived ones away I've been referred to a liver
Hi guys, it's my first post I'm 29 and I had a liver count of 581 which has drastically risen within a month I'm also epikeptic and have been on my pills for 26 years but I do drink and with the stress I'm finding it harder to put it down and I'm pushing lived ones away I've been referred to a liver
Tee2229
in
British Liver Trust
2 years ago
NAFLD
Hi all, I am type 2 diabetic and overweight at 20st. I have been told my liver is fatty from an ultrasound. I had a fibroscan and was told the normal range was 2.5-7.5 and my score was 18. I was told by a letter that I may have cirrhosis. When I saw the liver specialist she said I definitely have a fatty
Hi all, I am type 2 diabetic and overweight at 20st. I have been told my liver is fatty from an ultrasound. I had a fibroscan and was told the normal range was 2.5-7.5 and my score was 18. I was told by a letter that I may have cirrhosis. When I saw the liver specialist she said I definitely have a fatty
Homebird1
in
British Liver Trust
2 years ago
Kidney transplant podcast: Benji's Story
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
bethedifference
in
Kidney Transplant
2 years ago
Nintedanib offers new hope as transplant recommendation approaches
Hi all, It's been a fair while since I last updated - longer than I'd have liked - but in a way its a good thing as I actually have a fair bit to update on as a result... The additional heart tests involving tracers, a CT scan and an hour long MRI which really tested my lung capacity with one or two
Hi all, It's been a fair while since I last updated - longer than I'd have liked - but in a way its a good thing as I actually have a fair bit to update on as a result... The additional heart tests involving tracers, a CT scan and an hour long MRI which really tested my lung capacity with one or two
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
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