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Fluid
I have cirrhosis of the Liver I have just had another US Sulliance scan and it has shown fluid around my Liver Should I be worried because I don't see my Dr untill January 23
I have cirrhosis of the Liver I have just had another US Sulliance scan and it has shown fluid around my Liver Should I be worried because I don't see my Dr untill January 23
Williamsbluefamily
in
British Liver Trust
1 year ago
back in hospital
Hospital again this time with low sodium count i was drinking too much squash on diuretics ( water pills) off them now so more blood tests every week they are doing a great job the NHS keeping a eye on me see specialist every 3 weeks now off to queen Elisabeth for transplant assessment soon fingers crossed
Hospital again this time with low sodium count i was drinking too much squash on diuretics ( water pills) off them now so more blood tests every week they are doing a great job the NHS keeping a eye on me see specialist every 3 weeks now off to queen Elisabeth for transplant assessment soon fingers crossed
lonmallin50
in
British Liver Trust
1 year ago
Levo doses and side effects
Hi everyone, I've had hypothyroidism (Hashimotos) for several years now and never felt 'well' that whole time, but at times have been able to cope and others (like now) absolutely can't. It seems to be constant and I wanted some advice/thoughts from what seems to be a very knowledgeable group who can
Hi everyone, I've had hypothyroidism (Hashimotos) for several years now and never felt 'well' that whole time, but at times have been able to cope and others (like now) absolutely can't. It seems to be constant and I wanted some advice/thoughts from what seems to be a very knowledgeable group who can
Stevensnj87
in
Thyroid UK
1 year ago
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Rheumatology visit. News to me! Biologics pathway - I'm on the last option!!! 😲ðŸ˜
https://gmmmg.nhs.uk/wp-content/uploads/2021/08/GMMMG-RA-pathway-FINAL-v4-1.pdf This is a link to a PDF which talks about pathways for rheumatoid arthritis. I had my 6-monthly rheumatology appointment today. Everything is going OK ish at the moment. I have a few bits and pieces, but mainly Methotrexate
https://gmmmg.nhs.uk/wp-content/uploads/2021/08/GMMMG-RA-pathway-FINAL-v4-1.pdf This is a link to a PDF which talks about pathways for rheumatoid arthritis. I had my 6-monthly rheumatology appointment today. Everything is going OK ish at the moment. I have a few bits and pieces, but mainly Methotrexate
Moomin8
in
NRAS
1 year ago
Allogenic Stem Cell Transplant
I [i]received a Stem cell transplant six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia. As of today I’m still in remission, showing 97% chimerism
I [i]received a Stem cell transplant six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia. As of today I’m still in remission, showing 97% chimerism
GarciaB
in
MPN Voice
1 year ago
After Fibroscan
I have been diagnosed with cirrhosis 12 months ago and have been abstinent with alcohol and cigarettes from then on. I have being referred to a dietitian and lost over 1 and a half stone through diet and exercise. I am worried about getting complications even if I continue with abstinence and eating
I have been diagnosed with cirrhosis 12 months ago and have been abstinent with alcohol and cigarettes from then on. I have being referred to a dietitian and lost over 1 and a half stone through diet and exercise. I am worried about getting complications even if I continue with abstinence and eating
Nip1
in
British Liver Trust
1 year ago
cancer in blood 6 months after STC
It’s been 7 months since the
transplant
and have GvHD affecting my skin and
liver
. My chimerism results were falling 96, 94, 91 with the last one (4weeks ago) going up to 96. My liver results also improved at the same time. All good news and heading in the right direction.
It’s been 7 months since the
transplant
and have GvHD affecting my skin and
liver
. My chimerism results were falling 96, 94, 91 with the last one (4weeks ago) going up to 96. My liver results also improved at the same time. All good news and heading in the right direction.
PiperAlfie
in
CLL Support
4 months ago
Bone marrow transplant
Hi, I am being offered a bone marrow transplant and wonder if anyone can offer me positive advice. Obviously the process is quite scary, but would like to think I'm doing the right thing. Thank you George
Hi, I am being offered a bone marrow transplant and wonder if anyone can offer me positive advice. Obviously the process is quite scary, but would like to think I'm doing the right thing. Thank you George
Georgehb
in
MPN Voice
1 year ago
Update on transplant
Anyone out there following our story will be able to prepare themselves for the long and unpredictable journey that
transplant
and
liver
disease can be! Take care everyone Ewife
Anyone out there following our story will be able to prepare themselves for the long and unpredictable journey that
transplant
and
liver
disease can be! Take care everyone Ewife
Ewife
in
British Liver Trust
2 years ago
Any positive experiences with TIPSS
I am 42 years old in the US and have had my NASH cirrhosis diagnosis for 5 years. I was compensated until early this year when I developed Ascites.After some hard work with diet and exercise I have managed to improve my labs and MELD score greatly. Began the summer at a MELD 26 and am currently at an
I am 42 years old in the US and have had my NASH cirrhosis diagnosis for 5 years. I was compensated until early this year when I developed Ascites.After some hard work with diet and exercise I have managed to improve my labs and MELD score greatly. Began the summer at a MELD 26 and am currently at an
Crooktele79
in
British Liver Trust
1 year ago
Is gluten free food doing us more harm than good?
About twp years ago i went privately for a food intolerance test re my IBS. It was suggested I go gluten & dairy free which I did & continued for over a year. Doing this didn't make much difference to my IBS symptoms so I gave up the gluten free but carried on with being dairy free. But I still bought
About twp years ago i went privately for a food intolerance test re my IBS. It was suggested I go gluten & dairy free which I did & continued for over a year. Doing this didn't make much difference to my IBS symptoms so I gave up the gluten free but carried on with being dairy free. But I still bought
Moggiedee
in
IBS Network
1 year ago
4th shots of Pfizer, Moderna vaccines provide near equal protection — Israeli study
Sheba-led research team says that 6 months after boosters, ‘antibody levels and cumulative vaccine efficacy do not differ between the two vaccines’
NATHAN JEFFAY Booster shots developed by Pfizer and Moderna provide near equal protection against COVID-19, according to Israeli research.
Sheba-led research team says that 6 months after boosters, ‘antibody levels and cumulative vaccine efficacy do not differ between the two vaccines’
NATHAN JEFFAY Booster shots developed by Pfizer and Moderna provide near equal protection against COVID-19, according to Israeli research.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Blood clot in portal vein
Hi everyone not been on the site for a while as my health is good right now!Just a quick question i have cirrhosis that is well compensated apart from slightly lower platelet count and was at my routine 6mth ultrasound when my consultant called saying I have a small blood clot on the left portal
Hi everyone not been on the site for a while as my health is good right now!Just a quick question i have cirrhosis that is well compensated apart from slightly lower platelet count and was at my routine 6mth ultrasound when my consultant called saying I have a small blood clot on the left portal
ballie52
in
British Liver Trust
1 year ago
being left behind
Hi all I just need to get this off my chest. My dad died 3 days ago, 14 weeks after being diagnosed with alcohol related liver cirrhosis. I am totally crushed. I feel guilty for thinking he had ‘let himself go’ when in fact he was full of fluid as he had ascites. I’m left not being able to tolerate
Hi all I just need to get this off my chest. My dad died 3 days ago, 14 weeks after being diagnosed with alcohol related liver cirrhosis. I am totally crushed. I feel guilty for thinking he had ‘let himself go’ when in fact he was full of fluid as he had ascites. I’m left not being able to tolerate
Hwalt90
in
British Liver Trust
1 year ago
polycystic liver disease
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
Sep9
in
British Liver Trust
1 year ago
Fibroscan update
Update on my fibroscan.Hi All Just a quick update from last month, since then I've had a CT scan and a biopsy yesterday, so now just waiting for the results I'm worried but know they will try everything to see what's going on, As I'm only one year post transplant. Is it possible that the bile buct
Update on my fibroscan.Hi All Just a quick update from last month, since then I've had a CT scan and a biopsy yesterday, so now just waiting for the results I'm worried but know they will try everything to see what's going on, As I'm only one year post transplant. Is it possible that the bile buct
Refs
in
British Liver Trust
1 year ago
how life can change
in a nutshell in the space of 2 years I found out some devastating news from my husband which explained his drinking then found out the drinking was worse than I thought then was told he had decompansated alcohol
liver
disease and now on the
transplant
list after all this I had a melt down 8 weeks ago
in a nutshell in the space of 2 years I found out some devastating news from my husband which explained his drinking then found out the drinking was worse than I thought then was told he had decompansated alcohol
liver
disease and now on the
transplant
list after all this I had a melt down 8 weeks ago
Lippy42
in
British Liver Trust
2 years ago
Look after yourself!
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
MrsWorried
in
British Liver Trust
1 year ago
Acamprosate and Liver Cirrhosis
I have had cirrhosis for five years. Recently I was prescribed Acamprosate to prevent the urge to drink (I fell off the wagon three months ago). I have been taking Acamprosate for the last three months and find them very effective. The instructions state that I can take this medication for up to
I have had cirrhosis for five years. Recently I was prescribed Acamprosate to prevent the urge to drink (I fell off the wagon three months ago). I have been taking Acamprosate for the last three months and find them very effective. The instructions state that I can take this medication for up to
Beauport
in
British Liver Trust
1 year ago
Advice needed
I had kidney transplant 3 months ago and it has been a living hell.I have ibs to begin with and for three months my intestines have been getting destroyed from meds.I have chronic watery diarrhea to the point that i cant leave my home for more then 2 hours and if i do i need to have a bathroom close
I had kidney transplant 3 months ago and it has been a living hell.I have ibs to begin with and for three months my intestines have been getting destroyed from meds.I have chronic watery diarrhea to the point that i cant leave my home for more then 2 hours and if i do i need to have a bathroom close
Parkerbarker
in
Kidney Transplant
2 years ago
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