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Rejected for liver transplant
This morning my partner was advised by the Royal free
liver
transplant
assessment unit that he had been rejected for a
liver
transplant
. This was on the basis of false information.
This morning my partner was advised by the Royal free
liver
transplant
assessment unit that he had been rejected for a
liver
transplant
. This was on the basis of false information.
Naomi425
in
British Liver Trust
2 years ago
can I go abroad for studies after a kidney transplant
can I go abroad(Canada) for studies after a kidney tranplant. It has been 4 years since my kidney got transplanted and Iam 21 years old. do the extreme cold weather cause any problems? will there be any difficulties to get Permanent residence?
can I go abroad(Canada) for studies after a kidney tranplant. It has been 4 years since my kidney got transplanted and Iam 21 years old. do the extreme cold weather cause any problems? will there be any difficulties to get Permanent residence?
sanath
in
Kidney Transplant
2 years ago
Coping with Pediatric Kidney Disease
This episode features a conversation about pediatric kidney disease from “The Journey Continues”, a podcast by the National Kidney Foundation of Illinois hosted by kidney transplant recipient Monica Fox. Listen today: https://bit.ly/3gznxpZ
This episode features a conversation about pediatric kidney disease from “The Journey Continues”, a podcast by the National Kidney Foundation of Illinois hosted by kidney transplant recipient Monica Fox. Listen today: https://bit.ly/3gznxpZ
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
2 years ago
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Diagnose Liver Cirrhosis
I've told before that I doubted my diagnose concerning my liver. You can read my previous posts if u would like to. I remember two and a half years ago I had highly elevated values in my blood, a swolen, painfull liver and I could feel my spleen. Further I told the specialist I had blood coming from
I've told before that I doubted my diagnose concerning my liver. You can read my previous posts if u would like to. I remember two and a half years ago I had highly elevated values in my blood, a swolen, painfull liver and I could feel my spleen. Further I told the specialist I had blood coming from
Jimmy777
in
British Liver Trust
2 years ago
ET accelerated progression
hi. I have had ET since 2004, treated with varying doses of HU and in later years also Peg. Apart from unstable platelets I have been relatively symptom free. Until this year! I have definitely struggled with HU, getting terrible mouth sores. I had a bone marrow biopsy recently which has confirmed
hi. I have had ET since 2004, treated with varying doses of HU and in later years also Peg. Apart from unstable platelets I have been relatively symptom free. Until this year! I have definitely struggled with HU, getting terrible mouth sores. I had a bone marrow biopsy recently which has confirmed
Smdg
in
MPN Voice
2 years ago
Confused
hsd a fibroscsn Sept 2021 was told at the time that this was serious and it was chirosis and that I would need a ultrasound. That was a year ago and recently had my ultra sound when radiologist said liver looks OK had bloods in between all well within normal range Expected to have an appointment
hsd a fibroscsn Sept 2021 was told at the time that this was serious and it was chirosis and that I would need a ultrasound. That was a year ago and recently had my ultra sound when radiologist said liver looks OK had bloods in between all well within normal range Expected to have an appointment
Hidden
in
British Liver Trust
2 years ago
The Constitution of Medical Knowledge (Part 1 of 3)
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
Newbie looking for advice on recent test result
I was diagnosed with an underactive thyroid in april 2022. What a rollercoaster! Do I have an autoimmune thyroid disorder? My first test was looking at reason for a change in bowel movements and fatigue. Doctor responded directly to the TSH level and placed me on 25mg levothyroxine. Serum
I was diagnosed with an underactive thyroid in april 2022. What a rollercoaster! Do I have an autoimmune thyroid disorder? My first test was looking at reason for a change in bowel movements and fatigue. Doctor responded directly to the TSH level and placed me on 25mg levothyroxine. Serum
Bambam22
in
Thyroid UK
2 years ago
Deranged Liver Enzymes
I have been having blood tests repeated every 2 months due to raised levels once again they have came back raised and the GP has asked to have the repeated again on Tuesday. I'm becoming more concerned as the GP doesn't seem to be referring this to anyone and I have tried to make an appointment but
I have been having blood tests repeated every 2 months due to raised levels once again they have came back raised and the GP has asked to have the repeated again on Tuesday. I'm becoming more concerned as the GP doesn't seem to be referring this to anyone and I have tried to make an appointment but
Katrina999666
in
British Liver Trust
2 years ago
In the Rush to Return to ‘Normal,’ What Happens to the Vulnerable? By Sarah Wildman in NYT 04/10/22
Ever since I moved to the precarious side of society (my 13-year-old daughter received a
liver
transplant
as part of her cancer treatment in March 2020), I have been thinking about what we owe the vulnerable. I constantly wonder: Was I truly aware of such precarity before I found myself here?
Ever since I moved to the precarious side of society (my 13-year-old daughter received a
liver
transplant
as part of her cancer treatment in March 2020), I have been thinking about what we owe the vulnerable. I constantly wonder: Was I truly aware of such precarity before I found myself here?
Iupiter
in
CLL Support
2 years ago
Holiday Insurance
Hello, I am looking to get holiday insurance to Greece following a
liver
transplant
in September 2020. I have contacted a number of recommended insurers and am shocked at the variation in price for similar cover. For a 10 day cover, this has ranged from £550 to £1300!
Hello, I am looking to get holiday insurance to Greece following a
liver
transplant
in September 2020. I have contacted a number of recommended insurers and am shocked at the variation in price for similar cover. For a 10 day cover, this has ranged from £550 to £1300!
Chasdog
in
British Liver Trust
2 years ago
UKELD at the time of transplant or listing
hi, my partner is due shortly to have his assessment at the Royal Free. He is 7 months post diagnosis for alcohol related decompensated cirrhosis. Bloods were static so they felt he was as good as he was going to get so was referred for assessment. HOWEVER over the last 6 weeks UKELD has gone from 60
hi, my partner is due shortly to have his assessment at the Royal Free. He is 7 months post diagnosis for alcohol related decompensated cirrhosis. Bloods were static so they felt he was as good as he was going to get so was referred for assessment. HOWEVER over the last 6 weeks UKELD has gone from 60
Rshc
in
British Liver Trust
2 years ago
Options for PBC Itch?
I am 61 yrs old, stage 2 and not likely to require a
liver
transplant
before it is age inappropriate. Help please?! Kathy
I am 61 yrs old, stage 2 and not likely to require a
liver
transplant
before it is age inappropriate. Help please?! Kathy
Q8Cooper
in
PBC Foundation
2 years ago
Liver Ultrasound scan results.
Hi everyone, I recently had results back from an Ultrasound scan made because of elevated liver enzymes. The report said Coarse, dense echotexture indicative of fatty infiltration, but all other organs had normal appearence and no intra-hepatic duct dialtion, nor solid focal liver. I am trying to work
Hi everyone, I recently had results back from an Ultrasound scan made because of elevated liver enzymes. The report said Coarse, dense echotexture indicative of fatty infiltration, but all other organs had normal appearence and no intra-hepatic duct dialtion, nor solid focal liver. I am trying to work
EvCLl1
in
British Liver Trust
2 years ago
Please have blood tests if taking medication - Pentasa.
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
TomYorke
in
Crohn's and Colitis Support
2 years ago
Taking a Long Haul flight with Varices?
Hi everyone, This is my first post here - and grateful to find you all! I have stage one liver chirrhosis as a result of having hepatitis C - which I cleared in 2016 - In January this year after an episode of finding black stools, I had an investigative endoscopy finding 4 grade 2 oesophagus varices
Hi everyone, This is my first post here - and grateful to find you all! I have stage one liver chirrhosis as a result of having hepatitis C - which I cleared in 2016 - In January this year after an episode of finding black stools, I had an investigative endoscopy finding 4 grade 2 oesophagus varices
deepwater22
in
British Liver Trust
2 years ago
New to this forum! 35 Yr old Daughter has been diagnosed with liver failure!
Devastated! My 35 year old daughter has liver failure; she is due to see specialist next week and is still drinking but struggling to stop.She recently moved out of family home,making it even more worrying. We want her to move home for we can offer her support and make sure she has food,warmth, people
Devastated! My 35 year old daughter has liver failure; she is due to see specialist next week and is still drinking but struggling to stop.She recently moved out of family home,making it even more worrying. We want her to move home for we can offer her support and make sure she has food,warmth, people
Walking-2022
in
British Liver Trust
2 years ago
transplant evaluation and right heart catheter
hello, partner due at the royal free next week and as part of evaluation has been booked for a right heart catheter. Has anyone had one, is it awful? How quickly did you recover. He was expecting to have to have one so its not a terrible shock
hello, partner due at the royal free next week and as part of evaluation has been booked for a right heart catheter. Has anyone had one, is it awful? How quickly did you recover. He was expecting to have to have one so its not a terrible shock
Rshc
in
British Liver Trust
2 years ago
Beta Blockers changed. Worried about side effects
I have Cirrhosis and heart failure. My Hepatology Consultant has spoken to my Cardiology Consultant and agreed I should move from Bisoprolol beta blockers to Carvedilol. The problem is I've read on the nhs web site that these should not be prescribed to people with liver disease. The side effects can
I have Cirrhosis and heart failure. My Hepatology Consultant has spoken to my Cardiology Consultant and agreed I should move from Bisoprolol beta blockers to Carvedilol. The problem is I've read on the nhs web site that these should not be prescribed to people with liver disease. The side effects can
thelad73
in
British Liver Trust
2 years ago
Refaxamin
Does anyone know how long it is safe to take refaxamin for, I have been taking it for two years now, I haven’t had any HE in that time, I was diagnosed with liver cirrhosis 2 years ago and went into a coma and was put forward for a
transplant
, but since then my
liver
has recommpensated
Does anyone know how long it is safe to take refaxamin for, I have been taking it for two years now, I haven’t had any HE in that time, I was diagnosed with liver cirrhosis 2 years ago and went into a coma and was put forward for a
transplant
, but since then my
liver
has recommpensated
Johnsville1
in
British Liver Trust
2 years ago
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