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PBC diagnosis? AMA 125,1
Hi, I am 55 year old. In 2008 I had a self resolved Hep C, and the virus has never been present since, I had two tests in 2008 and one now, no virus, this takes chronic Hep C off the table. I have my blood tests yearly (except 2019, 2020), everything was normal. In November 2021 my ALT and AST were
Hi, I am 55 year old. In 2008 I had a self resolved Hep C, and the virus has never been present since, I had two tests in 2008 and one now, no virus, this takes chronic Hep C off the table. I have my blood tests yearly (except 2019, 2020), everything was normal. In November 2021 my ALT and AST were
Cat1966
in
PBC Foundation
2 years ago
Worried about alcohol damage
Hi, I was diagnosed in 2018 with fatty liver via ultrasound and raised enzymes. At the time I was drinking quite a bit, I did try to cut down a lot but probably could have done alot better. Fast forward to this year and I go to the doctors for stomach pains, I have the usual blood tests and she books
Hi, I was diagnosed in 2018 with fatty liver via ultrasound and raised enzymes. At the time I was drinking quite a bit, I did try to cut down a lot but probably could have done alot better. Fast forward to this year and I go to the doctors for stomach pains, I have the usual blood tests and she books
Hayleypop
in
British Liver Trust
2 years ago
Update and meeting the team.
I’ve had lost of tests done over the past few months. I met up the the transplant team. I’m looking at 5-10 years for a bone marrow transplant, they said it could be earlier, as I’m still working and I’m well enough they don’t want to do it to early. I will need to take year off work, (when the time
I’ve had lost of tests done over the past few months. I met up the the transplant team. I’m looking at 5-10 years for a bone marrow transplant, they said it could be earlier, as I’m still working and I’m well enough they don’t want to do it to early. I will need to take year off work, (when the time
wendycu
in
MPN Voice
2 years ago
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Cirrhotic pbc
Hi all, My mother was diagnosed 30 years ago with Autoimmune Hepatits. She was 22 years on immunosuppressive treatment which she decided to discontinue after a talk with her doctor. Two years ago her liver enzymes were abnormal especially ALP and GGT (272, 332) weak ASMA positive and mildly abnormal
Hi all, My mother was diagnosed 30 years ago with Autoimmune Hepatits. She was 22 years on immunosuppressive treatment which she decided to discontinue after a talk with her doctor. Two years ago her liver enzymes were abnormal especially ALP and GGT (272, 332) weak ASMA positive and mildly abnormal
Shon1234
in
PBC Foundation
2 years ago
Microneedle skin treatment for kidney transplant patient
Hello... My Husband is kidney transplant patient for 2 years. He has some acnes (maybe it because of methyl) and leave scars on his face. I'm thinking to go to Dermatologist for Microneedle. Is anyone experience the same treatment?.
Hello... My Husband is kidney transplant patient for 2 years. He has some acnes (maybe it because of methyl) and leave scars on his face. I'm thinking to go to Dermatologist for Microneedle. Is anyone experience the same treatment?.
Dheadome
in
Kidney Transplant
2 years ago
New blood work advice please
Hello everyone, Hope you are all keeping well. So I was diagnosed with Graves in April of this year after symptoms of high heart rate/palpitations, nervousness and heat intolerance. I was placed onto 20mg Carbimazole and Propanolol. My blood work is in the photos, first bloods were on diagnoses 14/
Hello everyone, Hope you are all keeping well. So I was diagnosed with Graves in April of this year after symptoms of high heart rate/palpitations, nervousness and heat intolerance. I was placed onto 20mg Carbimazole and Propanolol. My blood work is in the photos, first bloods were on diagnoses 14/
Pjd94
in
Thyroid UK
2 years ago
Liver cancer metastasis to my lungs incurable
Hello I have had the devastating news that there is no cure for my cancer. I am 31 and haven’t yet achieved anything that I wanted too, I am heartbroken and completely devastated. I no this is a huge long shot but does anyone know of any clinical trials going on in anywhere in the world that maybe be
Hello I have had the devastating news that there is no cure for my cancer. I am 31 and haven’t yet achieved anything that I wanted too, I am heartbroken and completely devastated. I no this is a huge long shot but does anyone know of any clinical trials going on in anywhere in the world that maybe be
Valentina_22
in
Blue Faery Liver Cancer
2 years ago
Transplant Lethargy
Hi everyone! This is my first question and I'm so excited I found this forum of other kidney transplant recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy. Some days are good, some days are okay, and some other days like today, I am very
Hi everyone! This is my first question and I'm so excited I found this forum of other kidney transplant recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy. Some days are good, some days are okay, and some other days like today, I am very
ksoccer45
in
Kidney Disease
2 years ago
A bit of good news
Morning. We'll after a few weeks of coming to terms with Stage 4 Fibrosis (compensated) at last a bit of good news as far as my T2 Diabetes is concerned. I have lost a total of 32 lbs in weight and my reading is now 39!! It was 114 when I was initially diagnosed 2 years ago. I am due another FibroScan
Morning. We'll after a few weeks of coming to terms with Stage 4 Fibrosis (compensated) at last a bit of good news as far as my T2 Diabetes is concerned. I have lost a total of 32 lbs in weight and my reading is now 39!! It was 114 when I was initially diagnosed 2 years ago. I am due another FibroScan
Robert1220
in
British Liver Trust
2 years ago
Cancer Health Seeking Black or Latino HCC Patient Story
From Bob Barnett, Editor-in-Chief at Cancer Health -- please contact him directly if you're interested in sharing your story. I'm writing to ask your help in finding a Black or Latino man with liver cancer who we can profile or work with to write his story in an essay. I'd like to highlight some of
From Bob Barnett, Editor-in-Chief at Cancer Health -- please contact him directly if you're interested in sharing your story. I'm writing to ask your help in finding a Black or Latino man with liver cancer who we can profile or work with to write his story in an essay. I'd like to highlight some of
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
2 years ago
Lost a jewel from my Crown
Last night I got news that the kidney transplant center I was planning on using, if I was approved, has voluntarily put their program on hold pending a review of a couple of their cases by UNOS. I was shocked and it left me feeling a little unsettled. Questions like why are they being reviewed? When
Last night I got news that the kidney transplant center I was planning on using, if I was approved, has voluntarily put their program on hold pending a review of a couple of their cases by UNOS. I was shocked and it left me feeling a little unsettled. Questions like why are they being reviewed? When
HipHopQueen
in
Kidney Dialysis
2 years ago
LDH Lactate Dehydrogenase Off The Charts - Why?
I completed my 12 months Obinutuzumab/Venclexta treatment regimen March 1st. I go tomorrow (Friday, May 27, 2022) for my first doctor visit since ending treatment. I feel great. No problems that I know of....BUT. Yesterday I went to the lab to have blood drawn and tests run in preparation of my
I completed my 12 months Obinutuzumab/Venclexta treatment regimen March 1st. I go tomorrow (Friday, May 27, 2022) for my first doctor visit since ending treatment. I feel great. No problems that I know of....BUT. Yesterday I went to the lab to have blood drawn and tests run in preparation of my
DanBro1
in
CLL Support
2 years ago
Fibroscan results
I wanted to share my recent scan results to spur on anyone with severe fibrosis/early cirrhosis. From a diagnosis of NAFLD F3-4 in November 2020 following an MRi showing bridging fibrosis and fibroscan score of 11.6 kpa, my fibroscan score yesterday was 5.6kpa F0-F1. After my first ultrasound scan
I wanted to share my recent scan results to spur on anyone with severe fibrosis/early cirrhosis. From a diagnosis of NAFLD F3-4 in November 2020 following an MRi showing bridging fibrosis and fibroscan score of 11.6 kpa, my fibroscan score yesterday was 5.6kpa F0-F1. After my first ultrasound scan
Muse12
in
British Liver Trust
2 years ago
Worried and
I am wondering what are criteria for
liver
transplant
? I keep ask my doctor if I need this he keeps saying no. He told my damage of liver out of 10 is 8.5 so I think its big.
I am wondering what are criteria for
liver
transplant
? I keep ask my doctor if I need this he keeps saying no. He told my damage of liver out of 10 is 8.5 so I think its big.
Bazinga89
in
British Liver Trust
2 years ago
Stem Cell Transplant-update
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
ConniesDad
in
MPN Voice
2 years ago
Jaundice
Just wondering if jaundice can happen slowly over time, as it builds up. Often hear stories of folks suddenly waking up yellow with an acute attack, but my husband is waiting transplant and although his bilirubin remains relatively stable, it is obviously persistently out of range. He had a bout of jaundice
Just wondering if jaundice can happen slowly over time, as it builds up. Often hear stories of folks suddenly waking up yellow with an acute attack, but my husband is waiting transplant and although his bilirubin remains relatively stable, it is obviously persistently out of range. He had a bout of jaundice
Ewife
in
British Liver Trust
2 years ago
Driving after transplant
Question for kidney transplant patients How long before you was able to drive again?
Question for kidney transplant patients How long before you was able to drive again?
transplantwarrier
in
Kidney Transplant
2 years ago
Liver Fibrosis F3
Hi new on here. Had a positive chat to the British Liver Trust for my F3 Fibrosis. I was told they caught it before it turned to Cirrhosis and that it can be reversed with diet as mine is probably linked to being overweight and Fatty Liver. I have been diagnosed with GAVE (aka Watermelon Stomach)
Hi new on here. Had a positive chat to the British Liver Trust for my F3 Fibrosis. I was told they caught it before it turned to Cirrhosis and that it can be reversed with diet as mine is probably linked to being overweight and Fatty Liver. I have been diagnosed with GAVE (aka Watermelon Stomach)
drittz78
in
British Liver Trust
2 years ago
Gastroscopy to check for varices
Right, I'm at the next step in my Alcohol Related Liver Disease Journey. After being advised in February that I may have Cirrhosis and portal hypertension I ceased drinking. Have done quite well with a couple of relapses with visitors, just the one day each time then back on the wagon. I had the ultra
Right, I'm at the next step in my Alcohol Related Liver Disease Journey. After being advised in February that I may have Cirrhosis and portal hypertension I ceased drinking. Have done quite well with a couple of relapses with visitors, just the one day each time then back on the wagon. I had the ultra
eileenet49
in
British Liver Trust
2 years ago
AMA negative but ANA positive
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Liz_K
in
PBC Foundation
2 years ago
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