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Liver transplant
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To continue or not....that is the question
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
Dawson21
in
CLL Support
2 years ago
Delusions/Hallucinarions
I became very sick 5 years ago with all the symptoms of PA but was undiagnosed. I got to the point where I started having delusions of parasitosis and hallucinations. Has anyone else experienced delusions or halluconations? I'm afraid my brain may have been permanently damaged?
I became very sick 5 years ago with all the symptoms of PA but was undiagnosed. I got to the point where I started having delusions of parasitosis and hallucinations. Has anyone else experienced delusions or halluconations? I'm afraid my brain may have been permanently damaged?
sunshinebee
in
Pernicious Anaemia Society
2 years ago
Diet for fibrosis
Hi I still haver liver fibrosis through alcohol and haven’t touched a drop for 2 years now, but my ELF score has gone up from 9.8, 10.1, 9.1, now 10.1 again (all done at 6 monthly intervals) I don’t understand why? I lost two stone in weight although I have put a stone back on, but my ultrasound last
Hi I still haver liver fibrosis through alcohol and haven’t touched a drop for 2 years now, but my ELF score has gone up from 9.8, 10.1, 9.1, now 10.1 again (all done at 6 monthly intervals) I don’t understand why? I lost two stone in weight although I have put a stone back on, but my ultrasound last
kippy2
in
British Liver Trust
2 years ago
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Severe, 45-minute long leg cramps
When I'm falling asleep, I get terrible leg cramps where both the extending and the contracting leg muscles freeze for about 45 min. until my muscles "remember" where they belong. And then and only then I can put my foot on the floor. I'm scheduled for a kidney transplant and hoping that the cramps will
When I'm falling asleep, I get terrible leg cramps where both the extending and the contracting leg muscles freeze for about 45 min. until my muscles "remember" where they belong. And then and only then I can put my foot on the floor. I'm scheduled for a kidney transplant and hoping that the cramps will
PurpleKatisha
in
Kidney Disease
3 years ago
Covid safety rules to stop !
Had enough now ! feel like myself as RA Imunecompromised and my husband severe Immunecompromised Kidney transplant will never get our life back or be safe ! Boris knows there are still vulnerable and exstremely vulnerable people they are a disgrace and act as if everyone is ok !!!
Had enough now ! feel like myself as RA Imunecompromised and my husband severe Immunecompromised Kidney transplant will never get our life back or be safe ! Boris knows there are still vulnerable and exstremely vulnerable people they are a disgrace and act as if everyone is ok !!!
trace58
in
NRAS
3 years ago
Liver Transplant – Letter to Donor family – totally gutted.
I had my
liver
transplant
back in 2016 due to alcohol abuse and Hepatocellular Carcinoma. For a good 10-months post-transplant, I suffered terribly with survivors guilt and PTSD. I honestly felt that writing that letter to the donor family was an honest reflection of my gratitude.
I had my
liver
transplant
back in 2016 due to alcohol abuse and Hepatocellular Carcinoma. For a good 10-months post-transplant, I suffered terribly with survivors guilt and PTSD. I honestly felt that writing that letter to the donor family was an honest reflection of my gratitude.
Richard-Allen
in
British Liver Trust
3 years ago
Losing weight while on steroids
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and cyclosporin. I'm on 8mg of steroids daily I also have gastropharesis. I have put 3 stone on in 3 years and my consultant has told me I am to lose weight as its putting pressure on my only one
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and cyclosporin. I'm on 8mg of steroids daily I also have gastropharesis. I have put 3 stone on in 3 years and my consultant has told me I am to lose weight as its putting pressure on my only one
Hidden
in
Lung Conditions Community Forum
3 years ago
Help for my sister
My sister is on the transplant list in Birmingham, AL but every live donor who has came forward has been rejected and she hasn't received one call from the Transplant Center for a deceased donor. My 3 brothers and I all have received deceased donor kidney transplants but live in KY. My sister will
My sister is on the transplant list in Birmingham, AL but every live donor who has came forward has been rejected and she hasn't received one call from the Transplant Center for a deceased donor. My 3 brothers and I all have received deceased donor kidney transplants but live in KY. My sister will
bowlingpkd
in
Kidney Transplant
3 years ago
Hyperparathyroidism diagnosis plz help!
Hi Everyone, I had my kidney transplant 8months ago after being on dialysis for almost 6years. My dr. Just told me I have a severe hyperparathyroidism and that’s mainly because I was on dialysis for so long. He prescribed Cinacalcet to be taking once a day. My question is did anyone of you experienced
Hi Everyone, I had my kidney transplant 8months ago after being on dialysis for almost 6years. My dr. Just told me I have a severe hyperparathyroidism and that’s mainly because I was on dialysis for so long. He prescribed Cinacalcet to be taking once a day. My question is did anyone of you experienced
Tuna14
in
Kidney Transplant
3 years ago
Moorefields Consultant
I had an appointment at Moorefields on the 14th February this year and my Consultant said i had pernicious anemia and that my GP was to give me B12 injections - well she will not do it - this is the third time in eighteen months that she has refused what the consultants say and they even send her letters
I had an appointment at Moorefields on the 14th February this year and my Consultant said i had pernicious anemia and that my GP was to give me B12 injections - well she will not do it - this is the third time in eighteen months that she has refused what the consultants say and they even send her letters
xeena
in
Glaucoma UK
2 years ago
Is this Terry's Nails? Am i Suffering from any of the Liver Diseases?
I am 23 right now, and have had this color of pale nails since birth. I have never ever thought about it earlier thinking that it's normal and since I am non-alcoholic I had a misconception that only drinkers get liver diseases... But today i came accross Terry's nails in internet and felt that the pictures
I am 23 right now, and have had this color of pale nails since birth. I have never ever thought about it earlier thinking that it's normal and since I am non-alcoholic I had a misconception that only drinkers get liver diseases... But today i came accross Terry's nails in internet and felt that the pictures
Soorajv
in
British Liver Trust
2 years ago
A Good Day
Saw my new consultant today & my new liver nurse & they were both fantastic. He explained everything clearly to me. He is trying me on Budesonide 9mg a day which is a corticosteroid & stays in the liver longer than pred. I didnt fancy using 6MP after the nightmare I had with Azathioprine. There was
Saw my new consultant today & my new liver nurse & they were both fantastic. He explained everything clearly to me. He is trying me on Budesonide 9mg a day which is a corticosteroid & stays in the liver longer than pred. I didnt fancy using 6MP after the nightmare I had with Azathioprine. There was
Bigbluemonkey
in
British Liver Trust
2 years ago
Feeding tube leak? Is this common?
We were informed on Monday, that dad's feeding tube was leaking in his lungs, he has now developed infection, pneumonia, fever, ventilation back to 100%, peep 10, heart rate 140... this is after they told us he's clear from covid-19 pounds and the virus all together. Anyone experienced this? Trying
We were informed on Monday, that dad's feeding tube was leaking in his lungs, he has now developed infection, pneumonia, fever, ventilation back to 100%, peep 10, heart rate 140... this is after they told us he's clear from covid-19 pounds and the virus all together. Anyone experienced this? Trying
mimo18
in
ICUsteps
2 years ago
Waiting for blood and ultrasound results, suspected cirrhosis and portal hypertension
Had bloods taken February and Ultrasound March and am awaiting results. I gave up alcohol in February which I haven't found too difficult. The sonographer told me quite a bit, apparently pancreas, kidneys, spleen and gall bladder seem to be okay. There is some scarring on my liver but he said he'd seen
Had bloods taken February and Ultrasound March and am awaiting results. I gave up alcohol in February which I haven't found too difficult. The sonographer told me quite a bit, apparently pancreas, kidneys, spleen and gall bladder seem to be okay. There is some scarring on my liver but he said he'd seen
eileenet49
in
British Liver Trust
2 years ago
Dad Airlifted back to Mayo Clinic W/ Covid Complications, After Kidney Transplant And Mother is in a downward spiral, "Self Medicating"
Sorry guy's I really need to vent. I live in different states from my dad and family and can't see him right now because of the restrictions. Today My dad got Airlifted to Arizona for covid related complications. A little over a Month ago things were totally different after him being on dialysis for
Sorry guy's I really need to vent. I live in different states from my dad and family and can't see him right now because of the restrictions. Today My dad got Airlifted to Arizona for covid related complications. A little over a Month ago things were totally different after him being on dialysis for
Luna_Love143
in
Anxiety and Depression Support
3 years ago
Call out to liver cancer patients who have received SIRT
The British Liver Trust is currently campaigning on behalf of liver cancer patients – specifically we want to improve access to minimally invasive cancer therapies. We are keen to hear from patients who have received selective internal radiation therapy (SIRT) who would be willing to tell their story
The British Liver Trust is currently campaigning on behalf of liver cancer patients – specifically we want to improve access to minimally invasive cancer therapies. We are keen to hear from patients who have received selective internal radiation therapy (SIRT) who would be willing to tell their story
Hidden
British Liver Trust
in
British Liver Trust
2 years ago
Do I have PBC
I have high Alp Ggt 〉AST ALT. Positive PANCA and ANA do I have PBC PSC Aih? How can I know
I have high Alp Ggt 〉AST ALT. Positive PANCA and ANA do I have PBC PSC Aih? How can I know
Tinazh
in
PBC Foundation
2 years ago
Looking for advice, sharing my story.
I am quite concerned is
liver
transplant
could save me? Doctor said try healthy diet and we will monitor your
liver
as
liver
transplant
is now no required. I try to stay positive but I don't know for how long you can live with that much damage.
I am quite concerned is
liver
transplant
could save me? Doctor said try healthy diet and we will monitor your
liver
as
liver
transplant
is now no required. I try to stay positive but I don't know for how long you can live with that much damage.
Bazinga89
in
British Liver Trust
3 years ago
A small piece of advice
I am awaiting a
liver
transplant
but no matter what comes I feel very comfortable with it..
I am awaiting a
liver
transplant
but no matter what comes I feel very comfortable with it..
utep99
in
Living with Fatty Liver and NASH
3 years ago
Bone marrow transplant
Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many years. In a few weeks, I will be getting my first MRI in 30 years. I am afraid if the results are poor, I will have to get bone marrow transplant
Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many years. In a few weeks, I will be getting my first MRI in 30 years. I am afraid if the results are poor, I will have to get bone marrow transplant
HenryW
in
AMN EASIER
2 years ago
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